On Planet NHS:
I was referred to the psychiatrist by my doctor some weeks ago. In early October, I spoke on the phone to Mr …. who referred me through the … Team. However, I have not been sent an appointment letter yet.
My mother phoned last Tuesday and was told I have an appointment for 8 November, but the person she spoke to would not tell her the time of the appointment, saying it would be written in the letter. However, I have still not received any letter.
Please could you let me know as soon as possible when my psychiatrist appointment is, as I need to arrange time off with my employer.
Thank you and regards,
8th November with Dr …
Thank you, but please could you let me know the time of my appointment on 8 November with Dr …
A letter will be sent to you with all the details once booked on the system.
Please could you let me know when this is likely to be as I need to clear the time off with my employer.
8th November will be the day.
This is why I get so annoyed at the idolatry of the NHS that goes on. If, as someone said, the NHS is the religion of the British people, then I’m definitely agnostic.
Meanwhile, back in the real world:
Work was OK today, or at least not unbearably awful. It was hard, but I felt a bit more together and I got by without any coffee at work (although I had one at home at breakfast and a couple of cups of tea) and without crying. I did shake slightly when talking to my boss, and when drinking tea (both of which were completely due to psyching myself out by realising how bad it would be to start shaking). My boss goes on honeymoon on Tuesday and will be away until after my contract is due to finish and her boss finished working there today, so my boss from next week will be someone I know slightly, but not well. Change makes me anxious (another autistic trait).
A previous psychiatrist, the one who felt I was somewhere on the autistic spectrum (but didn’t give me a proper assessment or diagnosis) once told me that “You can’t understand people, so stop trying.” It’s possible that my whole life has been trying to understand people, like the robot Commander Data in Star Trek: The Next Generation. At any rate it explains why I ended up on the humanities/social sciences side, unlike many autistic people, despite being good at science at school.
Other autism-related thoughts today: I mentioned yesterday having a few geeky but non-autistic friends at school. One very much fitted Tony Attwood’s idea of a non-autistic mentor friend who helps with socialisation. We were friends from age five and are still occasionally in touch, although we haven’t seen each other in person in some years. We were best friends until we were about fourteen, when we drifted apart a bit. I remember being upset when we were told to write a passage about our best friend in Hebrew class and he read his out and it was about someone other than me. It would be an exaggeration to say that that was a key moment in my life, but it probably was another step down a very long road. As Attwood suggests, once the mentor friend is gone (in my case this really happened when I went to university and he, although going to the same university, went on a gap year first), social integration becomes much harder, particularly as in my case it coincided with living away from home for the first time.
I realised today that I had such limited social interactions in my first job, that it was no wonder that I found it so much easier than my current and immediately previous one. I rarely had to deal with more than one or two people at a time, my boss was understanding, I rarely saw other staff members, library users were mature adults and the library was quiet (perhaps too quiet as I could get lonely sitting in the basement all afternoon). Plus I did three days a week of three hours each, very different to my hours in my other jobs which are much closer to full-time. Even so, I sometimes went off to cry in the toilet or didn’t get to work because I had a panic attack on the way. This, I think, disguised my autistic socialisation problems and made me think I had workarounds until I got to my previous job, especially as university was also a somewhat protected environment. It was only in my previous job, when my socialisation problems became more apparent, when I started thinking seriously about being misdiagnosed when told that I was not autistic, and thinking that the misdiagnosis could matter rather than being an abstract problem. In particular, it became obvious that I have problems with certain types or levels of noise and with interpersonal interactions beyond simple shyness and that I’m not great with vague or implicit instructions or dealing with grey areas.
I also think my sensory sensitivity has been greater than I realised previously. As a child, I found wool uncomfortable. I often find wearing my watch uncomfortable (sometimes at work I take it off and put it in my pocket) and I’ve gone through periods of thinking that way about shoes. I think mostly I’ve just soldiered on until I get inured to these feelings, although I still avoid wearing wool against my skin.