The good news: Mum saw the oncologist today and he said that the cancer is completely gone, which is obviously very good. She will still have to have radiotherapy, and to continue to have regular injections of antibodies for a while, but the cancer itself is completely gone.
On to the less good…
I feel that I’m like Charlie Brown trying to kick the football and falling on his back every time. Every few years, my depression seems to shift for a bit, and I talk about being recovered, and then after a period of weeks or months, I fall back into depression again, usually in autumn. At least this time I didn’t say I was “recovered,” just that my depression was now mostly reactive to events going on around me rather than being rooted in my childhood experiences, which is probably true, but nevertheless, I still feel very depressed today.
I’m also feeling burnt out again. I struggled on with preparing my interview presentation, but it was hard work. I just wanted to curl up in bed. In terms of the stresses the depression is reacting to, I guess I’m worried about the interview next week, and what happens if I get the job, whether I can do it and whether I can cope with a masked commute every workday.
I also had problems setting up an account with Microsoft Teams, which I need for my interview on Wednesday. I set up an account and tried to log in, only to be told I couldn’t log in because I didn’t have an account. But when I tried to set up a new account, I was told I couldn’t because I already had an account. I was supposed to have an email that would let me use Teams, but I didn’t receive it for a while, and there wasn’t a helpdesk to complain to. I could somehow get through using the link the Very Important Institution sent me (they have already set the meeting up so I can get into the virtual waiting room), but I couldn’t open Teams from scratch. I was supposed to have a practice call with my sister, but it wouldn’t let me add her to my address book. Pressing the “accept” button on the notification email from her just opened another window with the same email notification, it didn’t actually add her to my address book. I did eventually get everything up and running, just about, but I’m pretty nervous about it working properly on Wednesday. The Doctor Who line about computers being very “sophisticated idiots” never seemed more true. Teams seems like it has a load of fancy features that get in the way and stop it from doing things that can more easily be done on Skype or Zoom. I did eventually manage a practice call with my sister, so I feel a bit more confident about it. It think that Microsoft really are the pits, though. The hollow thumping sound you can hear is the sound of me repeatedly hitting my head on my desk.
I’m also vaguely worried about my relationship with PIMOJ; it’s hard to tell what the relationship is like when we still haven’t met in person or even spoken long on Skype (Love in the Time of COVID), and when there are occasional communication problems from the fact that English isn’t her first language, and I’m not sure of her level of knowledge of English as well as of Hebrew and Yiddish. I don’t want to sound patronising to her by using simple language or explaining things, but I don’t want her to feel I’m showing off my knowledge or intimidating her with terms she doesn’t understand.
It also feels weird for me to be the less spiritual and perhaps also the less serious-minded person in a relationship and I’m not quite sure what to make of that, or about the fact that I don’t feel completely comfortable owning my negative feelings when I’m talking to her, as she’s so positive and I’m scared about how she would respond to me on a day like today when I just feel depressed. Again, it doesn’t help that we haven’t met in person; on instant messenger it’s hard to judge someone’s mood or level of empathy, even beyond my usual autistic struggles with that sort of perspective taking, especially given the language problem and the fact that there are often typos that just confuse the whole thing even further.
I don’t want to sound too negative, as I think PIMOJ meets a lot of my needs in terms of being intelligent, kind and religious and I also find her funny. I think there is chemistry there, even if instant messenger isn’t necessarily the best way of expressing it. I just wonder what will happen. I’m trying to stay in the present, but it isn’t always easy.
I don’t really want to talk about the relationship in detail here, but I don’t have anywhere else to talk about it, other than therapy for an hour a week. I also don’t know how much these worries are real or stem from feeling depressed today.
So, these are the thoughts that have been going through my head today. I guess I’m feeling rather overwhelmed, and I haven’t even mentioned that it’s going to be the most important day in the Jewish calendar on Sunday night and Monday (Yom Kippur, the Day of Atonement), and I don’t feel able to go to shul (synagogue) for it because of fear of infection, discomfort with masks and general autistic uncertainty about what exactly happens at shul with COVID and the new normal.
I listened to an audio shiur (religious class) by Rabbi Yehoshua Engelman, who is a therapist as well as a rabbi, on building a mature relationship with God. In some ways it crystalised things I’ve been thinking recently, but which I had not been able to put into words. Ideas that God is not judging us on Rosh Hashanah (Jewish New Year) or Yom Kippur like a parent or teacher judges a young child and awarding reward and punishment, but that He is being curious and inviting us to enter into a dialogue with Him about why we’ve done the things we’ve done, good and bad, and How we relate to Him through those actions and how we can change and grow and become more authentic towards our inner selves.
I hope to think about this and bring it into my life. I struggle a lot to believe in a God who loves me (as opposed to a loving God – I believe God loves, but I don’t believe I’m worthy of His love). I want to build a relationship with Him, but it’s hard to know what to say, especially when I feel so tired so much of the time, and when I’ve spent so much of my adult life feeling anxious and depressed. I am trying to get away from the “angry old man in the sky” image of God which is poisonous, but sometimes I think I move too far in the direction of abstraction (Ein Sof, the kabbalistic term for the Infinite) and feel too distant from Him.
Achievements: some time spent on interview preparation, no idea how long. Downloaded Microsoft Teams and had a practice call with my sister. Went for a half-hour walk. Finished reading a book on writing character and viewpoint; I think I knew a lot of it instinctively from reading a lot, but I do vaguely feel like I’m a bad writer. I had a bit of a headache in the evening, which may have been stress or just because the heating came on for the first time, which often makes me a bit ill. I listened to a shiur and finished and sent my devar Torah for the week. I finished scanning the autism forms. So, I did quite a bit despite the burnout and low mood, but somehow it never feels “enough” which I guess is something to talk to God about.