Planting Seeds

I had an interesting start to the day. PIMOJ sent me some packets of seeds in the post and we spent some time planting them “together” via Skype. This was to do something to do with plants as it was Tu BeShevat (the Jewish New Year for Trees) during the week and PIMOJ wanted to do something to celebrate it, plus it was an excuse for a lockdown date that was a bit different from just Skyping or Zooming. I don’t really have much experience growing things, so we’ll have to see how it goes, but I planted a whole bunch of seeds: parsley, oregano, basil and more.

I spent time procrastinating over writing my novel, which wasn’t good. When I was finally about to start, my sister phoned and we had a long chat, which delayed things even more. I managed a bit over an hour of reading and redrafting, getting through another chapter, which doesn’t sound much, but it was a very long chapter.

I feel a bit conflicted by my book at the moment, like a parent who recognises moments of intelligence and flair in his child, but also feels that he’s very average a lot of the time and wonders what on Earth he’s going to do with his life when he grows up and goes into the world.

I went for a 5K run. It was good, my pace and stamina were good without much slowing to a walk from tiredness. Surprisingly, it was my first run of 2021 because of physical illness (medication side-effects), weather, Zoom calls with family etc. I actually ran in the rain because I didn’t want to put off running again.

***

I’m working from home tomorrow as J isn’t going in to the office and I can’t go in on Tuesday when he is going in. I’m continuing what I was working on last week, collating data that’s going to a major Jewish community organisation. My family have got me a bit worried about this, as it seems to be in breach of GDPR (data protection) law. I think it’s unlikely that the major community organisation would breach the law in this way, but I also feel uncomfortable working on it without having something in print to say that it’s OK, so I am going to ask J if he can ask for clarification on what is happening to the data before we send it on. This is provoking some worry.

***

I walked into the room while Mum was watching NCIS the other day. One of the characters was saying that she over-thinks things to stop herself feeling things and it occurred to me that this probably applies to me too. I’m probably also over-thinking things because it can be so hard to understand what I’m feeling.

***

Rabbi Dr Avraham Twerski z”tl died. He was a very well-known Orthodox Jewish rabbi, writer and educator, but also a practicing psychiatrist who did much to raise awareness of the taboo issues of mental illness, substance abuse and domestic abuse in the Orthodox community. He wrote prolifically on both psychology and Judaism and although I haven’t read much of his work, his book Let Us Make Man: Self Esteem Through Jewishness was a very useful work for me in distinguishing between self-esteem and arrogance. I recently read one of his books on domestic abuse as part of my research for my novel. He’s yet another great Jewish leader taken from us in this terrible last year, this time actually by COVID. Baruch dayan ha’emet (“Blessed is the True Judge,” the Hebrew expression said on hearing of a death, acknowledging that God is the True Judge who decides when a person’s life is over, but also expressing our grief and incomprehension over the death).

***

I finished watching The Sandbaggers. It was very good, but too cynical and bleak to be one of my favourite TV series, as witnessed by the downbeat, open-ended conclusion, which saw one character facing the sack for deliberately sabotaging an arms-limitation conference against his orders and another one shot, apparently fatally.

Disabled?

I slept too much on Shabbat (the Sabbath) again. Not a lot else happened, other than reading and Torah study. I still don’t dare risk going to shul. J says hardly anyone is going at the moment. I’m glad I don’t belong to a crazy Haredi (ultra-Orthodox) shul where COVID safety guidelines are ignored. I think there’s quite a bit of that going around in the area though. There was a lot in the Jewish newspapers this week about illegal Haredi weddings with hundreds of unmasked guests in close proximity indoors. It’s pretty provoking, although I don’t think there’s much anyone from outside the Haredi world can do about it. It would only stop if the Haredi world’s leaders (read: rabbis) protested, and maybe not even then.

I tried to work on my novel after Shabbat, but was tired and easily distracted and only managed forty minutes or so.

I should go to bed soon as I’m getting up early in the morning for a Skype coffee and gardening session with PIMOJ. But something has been bothering me over Shabbat. It suddenly occurred to me that I’m probably disabled. I always thought of depression as an illness rather than a disability, something that I could theoretically one day recover from. Even when I was on disability benefits (as I am at the moment, although probably not for much longer), I still did not think of myself as “disabled” as such. But it’s increasingly looking like something keeps me back from full “recovery” (whatever that might mean), the worsening of my mental health as a result of my attempts to change medication and improve my sleep pattern being just the latest incident in a long list of relapses.

In the autistic world, there’s a very vocal school of thought that sees high-functioning autism as a difference, not a disability. I can see where those people are coming from, but I also think a lot depends on the individual’s skillset and life goals. It’s one thing if you are a brilliant pattern-finder with a high-salaried job for an investment bank or accountancy firm; it’s another if you are unable to function in the conventional workplace. Likewise, some people are happy without close friends or a partner, but others want these things, but are not good at finding them.

I feel that I’m not ready to label myself “disabled” and work out what that would mean for me, especially given my history of giving myself negative labels. I may have to decide soon though. I should have the final part of my autism assessment soon (NHS permitting…). If I do get a definite diagnosis, that will push me down the path of thinking of myself as disabled, especially if I can claim some kind of help in the workplace under disability law. On the other hand, if I don’t get diagnosed… I’m not sure what that would mean at all. I know I’ve written before about feeling that I’m either autistic or “useless.” I know it’s not that black and white in reality, but it feels like that. I would feel like I’ve been some kind fraudster pretending to be disabled as part of some kind of scam for all the years I’ve been calling myself autistic (although I’ve never had any autism benefits, either monetary or in the workplace, except for one job interview where I was allowed to see the questions in advance).

I want to talk to PIMOJ about this, but I can’t face having the discussion via text or even video and who knows when we will meet in person again?

Fragments from a Day

There’s a famous story about Winston Churchill opening a speech by saying, “I’ve written a long speech because I haven’t had time to write a short one,” but this post is fragmentary because I really don’t have the time or energy to write a longer one.

I slept for about eight hours last night, albeit with a brief interruption, but still spent the morning at work struggling against tiredness and drinking coffee to stay awake. I had to go to the bank, which was good as I can’t sleep and walk at the same time. Then, when I came home, I was too exhausted to do much. I watched an episode of The Mandalorian (which I’ve basically decided is a Western that happens to take place in space) and spoke to PIMOJ for over an hour, which was good as it didn’t feel like that long.

I finished off my devar Torah (Torah thought). It’s OK, but I feel it’s a number of weeks since I’ve written any divrei Torah that I’m really proud of. I also feel that I have a long-term problem in my non-fiction writing, including divrei Torah, with endings. My pieces just sort of stop rather than reaching a real conclusion. I had this problem a lot with tutorial essays at Oxford.

Mum had the COVID vaccine today. She has been quite sick this evening, I’m not sure why or if it’s connected. She and Dad seem to think it is.

Mum was watching TV earlier and when I walked in one character said she over-thinks things to avoid feeling them. I think this is probably true of me, particularly in relationships. I’m not good at understanding or handling feelings. To be honest, I’m probably not great at thinking either.

Medication Change

I woke up in the middle of the night again – 4am this time. I had a slight headache that was threatening to turn into a migraine, so took some solpadeine. My thoughts were getting somewhat agitated, so I ate porridge to ate warm milk to calm me and make me sleepy, although I’m trying to stop eating cereal late at night as an easy win in my attempt to lose weight (and I think I have lost some weight recently, which is good).

I did fall asleep again eventually, but I didn’t manage to get up properly until after midday again and struggled to get going. I felt completely burnt out after yesterday.

***

Tonight and tomorrow is Tu BeShevat, the Jewish New Year for Trees and essentially the first day of spring in Israel. This provokes the normal mixed emotions in me: relief that winter will soon be over (doubly so in this awful lockdown winter), anxiety around the spring festivals of Purim and Pesach, which are difficult to handle with depression, autism and religious OCD. On the whole, if I can’t have lockdown ending, I would at least like the return of longer days, milder weather and more sunlight. Unfortunately, spring doesn’t really start in the UK for another month or two.

I was feeling very depressed and burnt out today and it was hard to do anything. I went for a walk and unlocked two of the credit cards I locked last week; I need to work out what the PIN is for the third. Walking was difficult, I just felt too tired and depressed. I was catastrophising and self-blaming a lot. Just feeling relentlessly negative. I managed about an hour of work on my devar Torah for the week, getting a first draft written, but I didn’t manage much other Torah study or any work on my novel.

When I got home from my walk, I phoned the psychiatrist’s secretary to see if I could speak to my psychiatrist this week. The psychiatrist phoned me back within the hour, which surprised me because it was after 5pm and I didn’t think she even worked on Wednesdays. I explained that I’ve been having side-effects on haliperidol and that my mood has got quite a bit worse since stopping the olanzapine and we agreed that I could go back on the olanzapine immediately and cut out the haliperidol. She suggested that in six months, I can try to reduce the olanzapine a little while staying on it to see if that improves my sleep without destroying my mood.

Trust and Control

I slept badly again last night, waking up in the night and struggling to get back to sleep. I’ve taken a bigger pillow and wonder if that will help. As a result, I was very tired at work in the morning and had to drink coffee to stay awake. I don’t like it when I feel I’m drifting off at work. The work was a bit depressing too. Aside from dealing with subscription payments, I was processing death records for this year and came across one for someone ten years younger than me with bipolar disorder who had committed suicide. This really upset me and I’m not entirely sure why, just a feeling that I wish I could have done something to help her, not that I ever met her. Then PIMOJ texted to say she was upset because of a suicide in her workplace and it seemed like it was catching.

I went to the bank in the afternoon, which probably left me too much time to think and brood while I walked there and back and spent a long time queuing. I think I’ve been less anxious today, but a lot more depressed.

J gave me a lift home again and the conversation on the radio was all about the UK COVID death toll reaching 100,000, so it was a pretty bleak day all round.

I had a shiur (religious class) in the evening on Zoom, perhaps appropriately on Yishayahu (Isaiah), the chief prophet of hope. This was interesting. I knew some of it, but not all of it. I tried to psyche myself up for the bit where we broke into smaller groups to discuss a passage, but my microphone took that moment to break, although I suppose it was interesting to observe other people doing group work from a distance, as it were, and see I’m not necessarily as bad at it compared with other people as I thought.

***

I worry a bit whether I could do a full days’ work at the moment. At the moment, J is letting me come in forty-five minutes or so late so I can avoid the Tube at rush hour because of COVID, and we finish work around 4pm. I only take forty-five minutes for lunch, but even so, that makes for a day that’s not much more than five hours long. Which is nice, but I worry if I’ll ever have the stamina for full working days again.

***

I had a thought about bitachon, trust in God. I find this very hard. I believe in a benevolent God Who wants the best for His creation, but I also believe that sometimes the best option is still something very painful to undergo. But I realised today that a lot of my problem is about control, specifically about accepting that I don’t have very much control over my life, which is scary. I probably have rather less control over my life than many people, certainly people of my age, class and educational level, because of my autism and mental health issues and chequered work history.

It’s easy to tell myself that I can somehow control my career or my romantic life or my mental health by thinking about them (which mostly means being despairing or anxious about them), but really I can’t. I have no idea if I’ll ever get married, to PIMOJ or to anyone else; or whether I’ll build any kind of a career as a writer or a librarian; or how I will support myself when my parents aren’t here; or umpteen other things. That’s very scary, to give up that degree of control. I guess it could be liberating. People with a lot of bitachon (e.g. PIMOJ) seem to live very liberated, carefree lives. But I find it terrifying.

“I keep on wondering if I sleep too long”

I keep on wondering if I sleep too long
Will I always wake up the same (or so)?
And keep on wondering if I sleep too long
Will I even wake up again (or something)?

Sitting by Cat Stevens

I woke up in the night again, although not I think for long. That seems to be a pattern of waking for a while around 5.00am and may be part of a natural sleep pattern as Suzanne suggested. I woke intermittently across the morning, but was too drained to get up before midday, despite the noise coming from the building works next door, which I felt bad about (sleeping in, not the building works), even though I didn’t have work today and had a busy day yesterday. I feel like if someone told me there was a reason for my being so drained, yet managing to get up when I absolutely have to (work, medical appointments, volunteering), I could accept it, but as it is, I just feel lazy and useless.

I did go back to bed after breakfast and took a while getting dressed just because I was so drained. It was hard to “psyche myself up” to daven (pray) too.

I spent about an hour working on my novel, but it was slow work today and I didn’t achieve much. I’ve gone from wanting to write an amazing novel to wanting to write something vaguely publishable to wanting to write something that doesn’t totally embarrass me when I show it to people.

I tried to go for a walk to unlock my credit card that I accidentally locked last week when I forgot the PIN. I thought the ice and snow from yesterday would have melted, but it was very icy and treacherous. I didn’t go for a particularly long walk, but it took longer than usual because of the dangerous ice. The cashpoint wasn’t working properly when I got there. It was probably working well enough to unlock the card, but I’m wary of using damaged cashpoints in case they’ve been tampered with, so I didn’t even get that done.

***

Today was my father’s birthday. We had takeaway in the evening and played The London Game (travel around the Tube map going to tourist sites — I won). I was rather anxious – really religious OCD anxiety about whether the food was delivered correctly from a kashrut (Jewish dietary law) point of view. I think everything was OK, but I worry… I do think my anxiety is worse since stopping olanzapine, even though I was not aware of anxiety as a major issue before.

***

Because of burnout and family time, I only managed twenty minutes of Torah study, which disappointed me a bit. I think Dad appreciated spending time together in the evening though.

***

I’m creeping slowly towards the idea of buying a weighted blanket, but they just seem so expensive and I don’t know what practical benefit I’ll get from it. Will it help me to sleep better? Or just feel good? I’m not good at doing things just because they feel good…

***

People used to debate which was the more realistic dystopia for the twenty-first century West: Nineteen Eighty-Four (totalitarian oppression, perpetual war, The Two Minutes’ Hate) or Brave New World (the masses kept lazy and passive with mass consumerism, compulsory promiscuity and narcotics). Gareth Roberts made an argument in Unherd a while back about The Prisoner becoming disturbingly relevant again. But lately I’ve been thinking about Fahrenheit 451 and whether I’m going to end up having to single-handedly memorise the cultural heritage of the past to preserve it for the future. I have an image of handing a subversive, battered copy of Hamlet or The Third Policeman to my son or daughter like Obi-Wan Kenobi giving Luke his father’s lightsabre in Star Wars: “It’s called a ‘book.’ An elegant weapon for a more civilised age.”

Surprisingly Busy Day

I had a dream over Shabbat about being put in herem (excommunicated) because some rabbis took exception to my novel. This is not likely to happen in reality for many reasons, but I think it does reflect fear of negative reviews of the “Why do they always say bad things about the Orthodox community? Why can’t they see the good in the community?” kind (I’m thinking of one Jewish site in particular here). I can sort of see their point. It’s possible that I haven’t seen as much of the good side of the community as other people despite my having spent my life inside it, to varying degrees. And I feel uncomfortable with people who say things like, “I can only speak my truth,” but beyond a certain point, everything else is impossible, and my experience of the frum (religious Jewish, and in this case, Orthodox) community has been complicated at best – partly my own fault, but I think that’s reflected in the novel too.

***

Just before I was due to go for my COVID test this morning, it started snowing heavily. Dad took me in the snow storm, but when we arrived, the drive-in tests were cancelled as unsafe. I’m not currently planning to book another one; if I still feel bad on Tuesday, I’ll try to get in contact with my psychiatrist and see what she says. I feel a lot better today, with no light-headedness or hot flushes and only brief tremor, although some restless legs, which suggests that the symptoms were from starting haloperidol. I’m still suffering some anxiety (see below) which may be from stopping olanzapine.

***

I spent some time working on my novel. I’m not sure how much I did, somewhere over an hour, without much procrastination once I got down to it. I read two chapters and made some minor changes, finally getting through the 80,000 word barrier.

I went on a rather long Zoom call with my parents, sister and brother-in-law because it was my sister’s birthday yesterday and my Dad’s tomorrow. As I’ve mentioned before, I find Zoom hard at the best of times and struggled through it, but even when my sister and BIL are around in person I have a tendency to drift out of the conversation a lot. I tend to feel that the conversation is either small talky or about “adulting” and that I can’t really join in. I feel rather stuck in immaturity sometimes as a result of autism and mental illness. The restless legs were hard to control by the end of the call too.

I did some work on my devar Torah for the week and some general Torah study. I didn’t get any exercise today because of the snow. I spoke to my rabbi mentor and realised I’ve been procrastinating about some things that really I need to confront. Not major things, thankfully, but I tend to get anxious about things as if they were major. I tried to help Dad when he accidentally deleted a load of email folders, but I couldn’t work out what he’d done or how. I suspect they haven’t been deleted, but hidden somewhere, but I’ve no idea where. I’m not terribly good at Outlook because I only use it at work.

***

I had some anxiety in the evening after having been OK for most of the day. This was probably in part the general tendency for my anxiety to get worse in the evenings and partly from watching The Sandbaggers (1970s/80s espionage drama) which tends to end in downbeat ways, in this case with a likeable character turning out to be a double agent and committing suicide to avoid shaming his family. I like the series a lot, but it’s probably just as well that I only have five episodes left.

***

J suggested I switch work days this week to give the snow a chance to clear before I go in to work, so I’ll be working on Tuesday instead of tomorrow. I was secretly relieved, as I didn’t really want to go in to work in the snow, but was reluctant to suggest changing days after having missed a day off sick last week.

COVID Test, Reading, TV

I’m still not feeling great. My sister and my Mum have been badgering me for days to get a COVID test despite my not having any COVID symptoms. My symptoms are hot flushes, restless legs, tremor and occasional light-headedness, none of which are really COVID symptoms, plus neither my parents nor J have come down with anything despite being around me last week when I was ill. However, my sister’s mother-in-law apparently had mild COVID for days thinking it was just a cold until she got tested, so my sister has really been badgering me to get tested in case I have undiagnosed COVID, even though I’m worried about wasting NHS resources and, well, lying about my symptoms to get a test (integrity is a core value for me, so lying is painful). Anyway, I’m going to a drive-in test tomorrow morning. My Dad volunteered to take me (I don’t drive).

There’s not a lot else to say. I read a lot over Shabbat, not so much in terms of pages, but in terms of books. I finished Morality and America During the Cold War, read more of Ruth: From Alienation to Monarchy and started The Garden of Emunah (book on faith PIMOJ gave me) and The Simulacra (Philip K. Dick novel).

After Shabbat, I watched another episode of The Mandalorian (Sanctuary). It was quite good, but I was distracted by the fact that the plot was basically the same of the Doctor Who episode The Girl Who Died (outsiders train villagers to beat better-armed marauders), but tonally, the two were completely different. The Doctor Who episode was mostly comic, with a tragic bit and an open ending. The Mandalorian episode was like every other Mandalorian episode i.e. like Star Wars, flashy, but unemotional. (I have realised that I notice more about story structure now I write myself.)

Be Anything You Want To Be???

I woke up at 4.30am again and this time I couldn’t get back to sleep at all, although as I had gone to bed very early (10.30pm), I had still had about six hours of sleep, which is the absolute minimum I need to function. Despite that, I felt better than I had done all week, both emotionally and physically, and got up very early.

While davening Shacharit (saying Morning Prayers), I started to feel light-headed again, and when I had finished I went back to bed, and apparently feel asleep for three hours (interrupted by my parents briefly saying goodbye on their way to a routine hospital appointment), until I was woken by the cleaner arriving at midday, shortly before my parents. I was rather disorientated and unsure whether they had come back home or not, which confused things further.

As this indicates, I’m still getting hot flushes, light-headedness and tremor (more frequent and severe than my occasional social anxiety tremor) periodically through the day. I’ve gone back to thinking it’s a medication change side-effect, but who really knows at this stage? I feel rather confused and vaguely concerned.

***

In terms of activity, I managed a half-hour walk, an hour and a half of work on my novel and an hour or so of Torah study, as well as watching a film (Zootropolis) simultaneously with PIMOJ and then having a WhatsApp call afterwards.

***

Life can be an endless stream of self-doubt if you don’t have good self-esteem. I was worrying today if my divrei Torah (Torah thoughts) have declined in quality lately. No one has said that, but then I haven’t had much praise for them either. I suppose most people don’t give me any feedback at all and I wonder what they think or if they are even still reading.

Somewhat related to this, Zootropolis, like a lot of Hollywood films, was about the idea that you can do anything if you want it enough and try hard enough. (Presumably Hollywood pushes this line because it’s safer than saying the system is rigged against the little guy and the only alternative is refusal to join in and revolution.) I don’t think this idea (you can do anything you try) is true, and I think I have made myself very unwell and unhappy over the years trying to do things that are beyond my (autistic, depressed, socially anxious) capabilities. However, I can’t deny that I have managed to push myself to do things in the past that now terrify me (e.g. public speaking). I want to write novels, but I don’t know if I can realistically do this or if I’m wasting my time. It is difficult to know what to think about this.

Lurgy

I woke up in the night again, but not for long. I still woke up feeling very tired, after disturbing dreams, and a bit anxious, although not as much as the last few days. I thought I would have to scale back my plans for the next week or two and try to be kind to myself while I adapt to the new medication.

I went for a walk for half an hour before therapy, which I thought was important even though the weather was awful. I had therapy and spoke about some difficult stuff, but it felt good to get it off my chest. I was a lot less anxious afterwards. I did some Torah study and worked on my devar Torah for the week.

By the evening, I was worried that my symptoms were increasingly physical and not like anxiety, particularly change in temperature (hot and cold) and light-headedness. I don’t seem to have a temperature, but I don’t feel well and don’t think that it’s a good idea to go to work tomorrow. Even if I’m not infectious and am able to work, I’m not sure I want to be exposing myself to COVID (or anything else on the Tube) in this state. I’ve texted my boss to say that I don’t think I can come in as I honestly don’t feel that I’m in a state to get much work done. Unfortunately, I’ve already had one sick day this month, although I’m technically a freelance contractor, which makes my situation a little easier.

***

My shul (synagogue) agreed to my paying reduced fees for a while, which is something of a relief.

More Anxiety

I slept badly again, waking up in the middle of the night. I actually slept in two blocs of five hours, which shouldn’t be bad, but somehow with a gap in the middle felt incomplete. Plus, I woke feeling very anxious, which I think was about my appointment at the optician, although I had some mildly disturbing dreams too. Autism hates the unknown, and I didn’t know how my appointment would go under COVID. Even not knowing if I was going to be left standing outside for a long time before they let me in made me nervous. Of course, some of it could be the general anxiety I’ve had lately, and the usual burnout after work and depression group.

I had managed to mostly cut out the cereal I was eating before bed, on the grounds that I was rarely genuinely hungry and it had just become habitual, but I’ve been eating porridge when I wake up in the night to help me get back to sleep. This is because warm milk helps me sleep, but I dislike the taste of milk by itself. I suppose I could try to get some cocoa or something, but aside from the fact that I’ve never had it so don’t know if I like it, I’m not sure it would have less calories than porridge. I tend to sweet the porridge with sultanas, which is better than sugar, but probably still quite calorific. More problematic, from a diet point of view, was the ton of ice cream I ate last night to reward myself for getting through a difficult day at work and depression group with anxiety…

***

I had sick-in-the-pit-of-my-stomach anxious nausea all day, as well as well as feeling myself to be in agitated in “fight or flight” mode. It’s unusual for me to have anxiety for so long without an obvious cause and I don’t know how to cope. I might look online. In the past I’ve been so depressed that I was actively suicidal and while I wouldn’t say that was better than this, over time I evolved coping strategies for depression. This feels very new and alien and I don’t know what to do about it. I’m pretty sure it’s a medication change issue.

***

I had my eyes tested and chose new glasses. I shook quite a bit while the optician was testing my eyes, although she said it didn’t matter. I’m not sure how much was anxiety and how much the usual I-shouldn’t-shake-so-I-worry-about-it-until-I-start-shaking tremor I get in situations like this (eye test, dentist, doctor, barber, etc.). More awkward was when I attempted to pay. My first credit card was rejected by the machine. I’m not sure why. With my second (debit) card I forgot the PIN and only remembered it after I was locked out of it. And I couldn’t remember the PIN for the third card at all. I’m not sure how much of this was the result of anxiety and how much is because when I buy stuff in person (which I haven’t done much recently), it’s usually under £30 and I can buy it without needing to type in my PIN, so I’ve just forgotten it. Fortunately, my Mum was also having her eyes tested, so I just had to wait for her to finish and she laid out and I paid back. It was very embarrassing though. I felt pretty useless and immature.

The other unhelpful thing I did today was buy a vitamin D supplement without realising that it was considerably higher dosage than Boots usually sell (75 micrograms rather than 10 micrograms). I almost certainly don’t get anywhere near enough vitamin D (mostly indoors, mostly covered up even in the summer), but I’m not sure if 75 micrograms is still too much. The NHS site would seem to indicate that it’s OK. I might phone 111 (NHS non-emergency helpline) later to double-check.

***

I didn’t work on my novel today or do much in the way of Torah study because the anxiety feelings were too strong, plus the eye test and cooking dinner (cashew nut casserole) took up a lot of time. I did get an idea of what I’m doing for my devar Torah this week which I can hopefully write up tomorrow.

***

I listened to the first episode of the Normal Frum Women podcast, even though I am not a woman and am probably not normal. It was quite useful for my understanding of myself vis-a-vis the frum (religious Jewish) world. They quoted psychotherapist Elisheva Liss as saying that rather than asking if we are “normal” we should ask if we are causing harm or distress and, if not, we shouldn’t worry about what we do. Other people being judgemental is not considered causing distress. This makes a lot of sense, although it’s hard to do something that other people in your community will consider “wrong” even if you know you are not harming anyone.

I think my problems with fitting into my shul (synagogue) community come partly from not always being sure of the community’s values, not least because it is a community with some more modern elements and some more Haredi (ultra-Orthodox) elements. For instance, I know some people do have TVs and others do not and it is hard to know what the “official” line on TVs is. (I’ve also noticed in recent years that some people who won’t own a TV do stream on Netflix and the like, something that I don’t fully understand.)

More contentiously, I know that many (all?) people in my community would not approve if they saw me walking arm in arm with PIMOJ, and that does make me a little nervous. However, I feel that I’ve only stayed frum in the last few years by making compromises to my preserve my sanity. This mostly involved bending rules rather than breaking them, but I break the rule about touching women who aren’t relatives for PIMOJ because I just can’t cope any more, and I feel that people who haven’t got to their late thirties without a “legitimate” physical relationship (i.e. marriage) don’t really get to judge me here. It’s break the rules in a small way to stay sane and keep the “bigger picture.”

On a related note, I found this article about passing, intended from an autistic POV (although it is written by a religious Jewish autistic woman). I feel the need to pass, both as neurotypical and mentally healthy in the world in general, and as “normal” in frum world. However, the effort involved can be pretty soul destroying as the article noted. I would like not to feel that need all the time.

High Anxiety

I had sleep trouble again last night, going to bed early, but waking around 3.30am and not being able to get back to sleep until 5.00am. I got to work on time, but I was a bit tired. Worse, I was rather anxious. This was particularly the case when I had to wear my mask, on the Tube to work and when I went to the bank and the post office. Wearing a mask can feel very constricting and suffocating at the best of times, and I was wondering what would happen on the Tube if I suddenly needed to breathe fresh air. I didn’t actually have a panic attack, but I feel vaguely apprehensive about mask situations in the near future.

Other than that I had some anxiety about work and about PIMOJ, but was mostly OK, except for feelings of physical discomfort and aching in my limbs, and also in my teeth/gums, like my teeth are being scraped at the dentist. At one point I was shaking somewhat and unable to type accurately. I just checked the haloperidol leaflet; agitation is a possible side-effect, but anxiety is not, so maybe that’s “just” anxiety from everything going on in my life (work, relationship, autism assessment) and the world at large (COVID) and perhaps the olanzapine was keeping it at bay.

I got home from work very early and tried to work on my novel. I managed about half an hour, but I didn’t do very much other than correct some passages that had been initially written in the first person and then mostly, but not entirely, switched to the third person. I got through another chapter, but I feel very much like I need external criticism (dread word!) as I can’t judge it objectively.

I tried to do some extra Torah study as I hadn’t done much on the Tube into work, because when I felt anxious, I switched to listening to music. I didn’t have much time though because I prioritised working on my novel and going to Zoom depression group. I read some interesting things in Rabbi Sacks’ Morality, but I feel too tired to engage with it now.

Depression group was draining, as I think it always is, but worthwhile. I find the second half more draining than the first and really should volunteer to speak in the first half more often. I spoke about PIMOJ for the first time, really in an off-hand way. I’m still not sure what I feel comfortable sharing about the relationship there – or here, for that matter. It’s hard to know what I feel comfortable sharing, especially in the somewhat artificial environment of Zoom (as opposed to in-person meetings).

Vague Apprehensions

I woke up earlyish, but struggled to get up again and eventually fell asleep again (twice). I don’t think of myself as someone with poor impulse control or a lot of laziness, but getting out of bed, and staying out of bed, is hard and I can’t work out why.

I spent an hour and a quarter working on my novel. I was actually quite focused, first on research, then on writing, but I don’t feel that I got much done in terms of words written on the page. I think I’ve written all I can write for now and need some external feedback. I’m going to try to read through and redraft once more and then hopefully try to find people who can read and respond.

I felt rather anxious this afternoon and I’m not sure why. Some of it was about my novel. Some was probably about my relationship with PIMOJ. I think a lot of it was about work and whether I processed all the cheques properly last week or if someone will write angrily if we ask for payment that has already been made.

I also felt some minor physical discomfort today too. It’s hard to describe, aside from a slightly runny nose (which might be a minor cold), but I guess it’s a kind of tension in my limbs. I wonder if it’s the new haloperidol.

I spoke to my rabbi mentor, which helped with the anxiety a bit. It helped to put into words that I’m trying to accept that some days will be more productive than others, that I won’t always exercise, study Torah or write as much as I would like every day and so on and that it’s about trying to balance these things over a number of days.

Mum cut my hair, and then I was on a Zoom call this evening with my parents and most of my Israeli family. I stuck with it for over an hour, but then I had to leave. I struggle with these meetings. I find it harder to speak than when I’m with people in person, and also harder to be heard when I do speak, plus I find it all very noisy and draining (admittedly my family are rather noisy, and there are a lot of us on these calls).

I feel like I didn’t accomplish much today, although I suppose I did, just not as much as I wanted in terms of writing and exercise. I need to take some time out before bed for TV to decompress from everything that happened today, especially the noisy Zoom call. I feel a bit tense and uncomfortable in general, and vaguely apprehensive about a lot of things that are going to happen in the next few weeks.

Integrity

I spent too much of Shabbat (the Sabbath) in bed again, curled up in the duvet because it calms me, although I wasn’t conscious of feeling anxious, but perhaps I was feeling overwhelmed. I couldn’t sleep last night because I took my medication late and once I did fall asleep, I didn’t get up until midday again. I did quite a bit of Torah study and recreational reading on Friday night and today. I’m getting fed up with all the non-fiction I’m reading at the moment and want to read a novel, but also don’t want to abandon anything half-read. Hopefully I’ll finish Morality or America During the Cold War soon.

After Shabbat I helped tidy up and did some more Torah reading. I hoped to work on my novel, but I felt ill again: a headache, feeling hot (although I don’t think I have a temperature), nauseous, runny nose… I don’t think it’s COVID, but I think fear of COVID might turn me into a hypochondriac. I did feel better after making myself eat some toast and was able to eat enough to take my psych meds. The headache did seem to respond to paracetamol and a kool and soothe strip and once the headache was gone everything else seemed to go, so it seems that it was just a migraine.

I wanted to watch something fairly mindless as I recovered from the migraine, so opted to watch Wonder Woman (the film, not the TV series) with my parents. It was not a good choice, as I found it fairly incoherent and dull. I think superhero films are one of those things I think I “should” like (as a geek), but actually don’t.

***

Last night I had a dream that, while not a recurring dream as such, is a recurring dream scenario, where I’m put in some situation where I have to break Shabbat. I don’t know why I still dream about this when I’ve been keeping Shabbat for about two decades, about as long as the period before I kept it. I clearly still have anxiety about being forced to break it.

***

As I mentioned, I’m still reading Rabbi Lord Sacks’ Morality. He speaks about victim culture and is critical of it, saying it makes people look backward, and look for someone to blame. Inspired by Viktor Frankl and other Holocaust survivors, he advocates looking forwards for new challenges. I think this is true, or at any rate reflects my own experiences. I feel like I’ve only been able to move on from my mental health issues and my anger (not quite the right word, but I’m not sure what else it could be) about being on the autism spectrum in the last eighteen months or so, since feeling I could write. Before that, I had a period when I felt that I could be a librarian, but as that ran into difficulty, the depression and frustration came back. I worry what will happen if my writing doesn’t find an audience.

I guess I admire resilience rather than victimhood. By resilience I mean just carrying on, somehow, even at a level that would not be considered “normal” in the mainstream world. I admire people who can keep going without losing their integrity. Sometimes that’s the only thing you can hold onto. I think integrity in general is a much under-valued virtue these days. Maybe that’s why I have nightmares about breaking Shabbat; it would be a betrayal of my values and integrity.

Fragment (Burnout)

I struggled to sleep the last few nights, not huge insomnia, but a bit, and I wonder if olanzapine was helping me sleep. I would have thought that clomipramine would do it by itself, but apparently not. I overslept today and felt tired and wanting to withdraw even after breakfast and coffee. This is looking to me more like burnout, either depressive or autistic, than medication issues either with coming off olanzapine or starting haloperidol, but it’s probably too early to tell.

I felt kind of low all day, although not very depressed, just mildly. I guess it’s burnout again, or mild depression. I thought I was doing better this week, but it has caught up with me. I just feel exhausted and worry about how much I’ll end up sleeping over Shabbat (the Sabbath). Particularly as reading (my main Shabbat alternative to sleep) is harder at the moment as I don’t have any glasses.

Speaking of which, Dad took my glasses to the optician and it turned out they were irreparable after all. I’ve got an appointment booked in at Specsavers for an eye test and to get a new pair on Tuesday. It’s a little frustrating as I wasn’t due for another eye test until the end of the year, but if I get new glasses now, if I need new lenses in December they will cost almost as much as new frames. It seems like a hassle I didn’t need, although I can see that objectively it’s not that much of a hassle. I guess everything seems like a hassle at the moment, I feel so over-extended.

Here’s hoping for a restful Shabbat

Minor Trials and Tribulations

Today seemed quite busy. I slept badly again, struggling to fall asleep and then struggling to get out of bed. Today was Rosh Chodesh (New Moon) I managed to get up a little earlier to say some of the extra prayers, although I’m still saying a much-reduced Shacharit (Morning Service).

I spent the morning at work processing cheques people have sent in to pay fees. I think I had a few moments of autistic executive function block where my mind went blank and I didn’t know what I was doing and possibly I didn’t save data properly. I think/hope that I caught all of those. I intended to check all of them at the end, but checking forty-six payments seemed excessive (not to mention likely to send me back down the path of OCD compulsive checking), so I checked three or four random accounts and the data was always saved properly, so hopefully it was all OK. Later I processed a credit card payment over the phone and made a mistake, but the payment still went through when it probably shouldn’t have done. I put the wrong name on the card because I was confused by a woman paying on behalf of her mother. Hopefully that won’t be a mess that I need to sort out next week. Other than that, the main diversion was another trip to the bank to pay in the cheques. The cashier looked at the big pile of cheques and said I obviously hadn’t done any banking for a while. “Not since Monday” was my response. Almost everyone pays their annual fees in January, so we have to pay a lot of cheques in, although J says more people are paying by phone or online this year, which is easier for us.

J and I left work early today and despite going a different route home to avoid traffic, I had time this evening to finish and send my devar Torah (Torah thought) and work on my novel for twenty minutes or so.

I spoke to PIMOJ for an hour. She wanted to call on WhatsApp, which was fine, but I didn’t realise my phone hadn’t connected to the wifi properly when I came home, so I used 80% of my data for the next month (it just refreshed a few days ago). Not good. It’s not disastrous, as I don’t generally use much data, but it is frustrating.

PIMOJ bought me chocolate, which she sent in the post. I feel a bit apprehensive about the amount of gifts she gives me. They’re mostly small things, but I don’t really express affection that way and I wonder how she wants me to express affection to her. I wouldn’t know what presents to buy her and it wouldn’t really occur to me to do so without prompting. I’d say it’s an autistic thing, but it’s probably a male thing. Possibly PIMOJ and I need to talk about “love languages” (if you believe in love languages), but we already had one serious conversation today and it’s probably just as well we didn’t have another. At least we were on the same page about the serious conversation we did have.

I got given a confectionary package from my shul (synagogue) today too. Do they think I’m still shielding? I’m not sure, and I’m not sure who to ask/tell. It was probably a bit unfortunate that it came today as I sent off the email asking for a shul fee reduction given my employment/financial situation.

But certainly dieting with this much junk food around will be hard!

***

My glasses broke last night. I’m not sure how. The arm came off the little hinge. I suspect it’s either really easy to fix, or completely impossible and I need a new pair. Dad tried to take them in to Specsavers today. In ordinary times, it would be a simple thing, but because of COVID you have to get an appointment just to speak to someone about a broken pair of glasses and they forgot to phone him back. I wore my spare pair of glasses to work, but they have an old prescription. They were OK, but after a day wearing them, I think my eyes were getting strained, so I took them off. I generally only get new glasses when my prescription changes; then I take the older pair as an imperfect spare. I rarely need to use my spare glasses and even then usually for only a day or two, so it’s not usually a problem, but of course COVID makes everything a problem.

***

From my devar Torah (Torah thought) for this week:

Finally, Rashi tells us that sometimes Moshe [Moses] is put before Aharon [Aaron] and sometimes Aharon is put before Moshe to teach us that they were equal.[1]  This is puzzling, as we know that Moshe was the greatest prophet, so how could Aharon be his equal?  According to Rav Moshe Feinstein, Aharon was equal to Moshe in two senses.  First, that Moshe would not have succeeded without him, so his participation, like Moshe’s, was essential even if Moshe was greater.  Second, Aharon achieved the maximum of his potential, just like Moshe.  Although Moshe’s achievement in absolute terms was greater, both brothers achieved 100% of their potential and are equal in God’s eyes, as He judges success by the proportion of a person’s mission that is achieved and not the amount achieved in absolute terms.[2]


[1] Rashi Commentary to Shemot 6.26

[2] Quoted in Rabbi Nosson Scherman ed, The Stone Edition Chumash: The Torah: Haftaros and Five Megillos with a Commentary Anthologized from the Rabbinic Writings

This idea, about achievement being relative to a person’s potential in God’s eyes rather than an absolute value, is not a new idea to me. So why it is so hard to accept?

***

The pharmacy I use is one of the six in the country that are providing COVID vaccinations. It’s just been on the TV news because the minister in charge of vaccine roll-out was there today. Selfishly, I am vaguely worried about whether this (the vaccinations, not the minister or the news) will have any impact on how fast and easily I can collect my monthly repeat prescriptions, particularly as I have one that needs collection on Monday.

***

None of what I have written here is serious, but it has all left me pretty exhausted. I’m going to do a bit more Torah study, then watch Doctor Who for a bit and go to bed.

Writing Success, Financial Embarrassment

I had another difficult morning of oversleeping. To make it worse, when my clock-radio alarm went off, I couldn’t get it to turn off. I was too tired to work out if I was pressing the wrong button in tiredness and confusion or if it was actually broken and the increasing volume of the alarm was distressing me a bit, so I just yanked the plug out of the wall socket. I couldn’t get it back in the socket in the half-light, so I have no idea what time I actually woke up “properly” because I lay in bed for a long time before I got up and plugged the clock back in. Like yesterday, I went back to bed after breakfast (although it was afternoon) because I was tired and depressed.

***

I spent over an hour working on my novel in the afternoon. Some of the time was spent writing, and I’m more or less up to 80,000 words now (I’ve been told that 70,000 words is the bare minimum for an adult novel, but 80,000 to 100,000 words is safer). The rest of the time was spent reading online, trying to research what the arrest and prosecution process would be for someone making a rape claim weeks after the event and whether the police would realistically advise her to do so in the absence of evidence. I need to do more research and then probably rewrite the climax of the novel (again).

I had hoped to get the novel in a shape where I can get feedback from other readers and potentially send it to editors or agents by Rosh Hashanah (Jewish New Year) in the autumn, but that was when I was unemployed and single. Meeting that deadline seems less likely as work and my relationship are taking up a lot of additional time. I have a three or four page document of changes I still want to make. Some are relatively brief, but some are more far-reaching.

I spent five minutes tidying up the bookmark folder on my internet browser where I had saved links to stuff relevant to writing, either sites for research for my current or potential future novels; or pages about finding an agent or publisher or pitching to magazines. I’m usually quite tidy, but the fact that I had not organised this is probably indicative of a deep-seated avoidance of the aspects of writing involving getting other people to read and judge my work, let alone pay me for it.

***

I worked on the novel straight after lunch, because I wanted to make sure I made progress with it today. This meant that when I went for a walk, it was dark again, although it had at least stopped raining. I feel the winter darkness is getting to me, as it usually is by this time of year. I haven’t been using my light box much, as I’ve been getting up too late, and using it in the afternoon can lead to insomnia later. On days when I work, I get up earlier, but I rush to leave and don’t always remember to use it or get enough time. I am wondering a bit if buying a weighted blanket will lead to more refreshing sleep, although it won’t help with sunlight deprivation.

***

I’m nervous about my relationship too, which is going well, but I’m increasingly aware that PIMOJ and I will face a lot of obstacles in making it more permanent. I’m also a bit concerned about my general mental health at the moment. My therapy is currently fortnightly and this was an ‘off’ week, but I should have asked to see if the therapist could add a session in. I thought I didn’t need it, but in retrospect I did. Next Wednesday afternoon seems a long way away.

***

I drafted an email to my shul (synagogue). They raised their membership fees recently. The increase was small, but I have been paying full fees over the last two years, even though I have only worked for five and a half months out of the last twenty-four, and that was part-time. I don’t feel that I can continue to pay at this rate. I did not say anything until now because I was hoping to find work and because I was ashamed to ask for special consideration. I have also been letting the synagogue collect gift aid from my contribution which really they shouldn’t do as I’m not a taxpayer. This was oversight on my part rather than a deliberate attempt to defraud HM Treasury, although I’m vaguely worried that the taxman may make me pay it back. I feel bad about the whole thing. I don’t like being dependent on others like this, but it was ridiculous that for so long I was making myself pay the full amount like people who are in full-time work. I don’t think I realised how ridiculous it was until in a Zoom shul a few weeks ago, meeting someone in authority said something off-hand about if you were made unemployed you would immediately arrange a fee reduction/cancellation and I realised that it hadn’t done it for so long.

It reminds me of something I heard ages ago from a rabbi, that shuls have funds to support the needy in the community, especially before festivals, which can be particularly expensive. He said that they don’t have a problem getting people to donate to the fund, the problem is getting people to accept the donations, as people feel embarrassed and ashamed. The Medieval halakhicist (jurist) Rambam (Maimonides) wrote about the best and worst ways of giving charity. The best is to make someone self-sufficient by giving them a job or an interest-free loan of start-up capital. Then it goes through various types of giving, but anonymous donation is seen as better, because less shaming. Double anonymity (donor doesn’t know recipient and vice versa) is the absolute best.

***

Other than that, my main achievement was drafting my devar Torah (Torah thought), but I was pressed for time and used some secondary sources (including Artscroll books) rather than going back to the primary sources (Talmud, Midrash). I usually do at least try to do that. I felt it wasn’t a great effort overall, and I’m not sure that my main point is either well-argued or correct.

***

I started to take the haloperidol. The information leaflet says it can cause delusions. Insert joke about Donald Trump here.

***

PIMOJ and I started watching The Mandalorian (Star Wars spin-off streamed TV series). We both got Disney+ the other week to watch the film Soul together. Then PIMOJ found The Mandalorian on there and started watching and asked if I would like to join her. PIMOJ isn’t a straightforward geek, but she likes science fiction, which is good. The series is entertaining. I find it a bit po-faced, but I feel that about Star Wars in general (the old Doctor Who/Star Wars rivalry). I might watch some Doctor Who before bed for something with more humour and imagination. Possibly The Happiness Patrol which is tonally as far from Star Wars as you can get.

***

I had an email from a job agency asking if they could put me forward for a potential job. I don’t think I’ll get it, as I don’t have all the necessary skills and experience, plus it’s a full-time job, which I don’t think I could handle right now, but I will probably tell the agency to put my name forward as a tactical move to show willing to the agency, as they handle a lot of library roles and might have a more suitable part-time role at some point.

***

After the scam phone call I got yesterday, I had another one today. Same scam, slightly different number (last three digits different). I think there was another scam call that I didn’t pick up. The frequency of this worries me a little.

Where Have All the Good Times Gone?

I woke up a few times in the morning and even got up briefly, but didn’t manage to stay up and awake. I just felt too burnt out and depressed. I eventually got up after midday – not good. And I went back to bed after breakfast, which is worse. I still felt drained and low after lunch, which usually boosts my mood. PIMOJ said to focus on taking one step at a time and not worry about tomorrow, which is true, but I still felt like I’ve gone backwards.

I actually got woken up earlier by the phone ringing, but it was a number I didn’t recognise and I didn’t feel able to deal with it, so I didn’t accept the call. Later, I got called by an almost identical number. It was a recorded message saying my National Insurance number was compromised and I was going to be investigated by the police. It sounded like a scam (similar to these), so I hung up. There are very bad people out there in the world.

I struggled to do anything until mid-afternoon. I went for a walk and requested a repeat prescription; cooked dinner (vegetable curry); and bought birthday cards for my Dad and my sister, also a present for Dad (my sister hasn’t told me what she would like yet… we don’t really do surprise presents in this family, although I think my Mum would like to).

I spent about five minutes on research for my devar Torah (Torah thought) for this week. This was probably not enough time, but I have an idea of what to write and spent another five minutes sketching out a plan. I wish I had a lot more time to invest in my divrei Torah than the hour or two a week I usually manage, most of which is spent on writing rather than researching. It would be good to have more resources too (books and Hebrew reading ability). I did some other Torah study too, but ran out of time for working on my novel, which frustrated me, as I feel I’ve been neglecting it since starting my job and that I’m running out of momentum with it, which worries me a bit.

I also submitted a comment online to support my synagogue’s attempt to get planning permission for a new site, which is exciting, but also makes me worry about the semi-detached relationship I seem to have to the community, something that will be worsened if it moves to the other side of the local area (it would be about a twenty minute walk, maybe a little longer, as opposed to currently a ten minute walk). I had been putting off writing the comment for a week and a half, so it was good to get it done.

***

I feel like I’ve gone back to a hand-to-mouth existence, in terms of time, energy and mood, never quite having the time or energy for everything. I’m still hopeful that coming off olanzapine will improve my sleep and get me two to four hours more awake most days, but it might not, if my over-sleeping is caused by depression not medication. There’s also no guarantee the haloperidol will work as a replacement, especially as I have a history of poor responses to antidepressant medication.

The biggest new drains on my time and energy in the last few months have been my new job and my new relationship, but I’m not willing to give up either, so I will just have to squeeze out time for working on my novel where I can. It could be that the winter lack of sunlight and poor weather is having an effect on me too.

In the meantime I find myself feeling a ridiculous amount of unnecessary anxiety about what TV to watch every evening. I’m not entirely sure where these thoughts came from.

***

People on the autism spectrum are supposed to be good at spotting patterns. Supposedly, there’s an entire autistic unit of the Israeli Military Intelligence because of this ability. I think I have that ability on some level, but the patterns I spot aren’t necessarily useful ones. I noticed lately three songs I’ve been listening to that could be taken as referring to mainline London train stations (Waterloo Sunset by The Kinks, which actually is about Waterloo Station; Victoria, also by The Kinks, and Waterloo by ABBA). I’m good at memorising bits of trivia for quizzes, but not really at anything useful. I’m not sure what I’m trying to say here.

Time Travel

I feel somewhat better today. I don’t know if I was distracted from depression and anxiety by being at work. I had autistic executive function issues with tasks where I had to fill in multiple spreadsheets at the same time and I kept losing the place or forgetting which spreadsheets I was supposed to use. This was made worse by having to deal with people phoning to make credit card payments where I had to drop everything and sort out the credit card payment and then afterwards try to remember what I was doing before the phone rang. I am slowly learning what all the spreadsheets do, which makes it easier to work out what goes where, but I still forget things sometimes. I made a couple of mistakes that I caught; I hope there weren’t any that I didn’t catch.

I was at least proud of myself for answering the phone. I hate doing that (anxiety), so it was a big thing.

I went to the bank too. The nearest branch, about fifteen or twenty minutes away, is closed because of COVID. The second-nearest was just a little bit up the road from the nearest one, but had a long queue, so I was out of the office for about an hour. I didn’t get lost this time.

That was it, really. I’m not feeling particularly depressed or anxious, just tired. When I was getting dressed this morning, I had an image in my head from Twin Peaks: The Return, where one character removes her face off to reveal a murky darkness broken by a bright grin. I’m not quite sure why this image was in my head. Did I feel like that this morning? It’s possible. Certainly there have been times in my life where I would have felt like that, but I don’t feel like that right now. It’s possible that being at work helped me today, in which case we’ll have to see what happens tomorrow when I’m at home (cooking dinner and hopefully working on my novel).

I do feel confused about my relationship, but I’m not sure what to do that. I think we were probably moving too fast. Our relationship faces a number of unusual challenges, and the pandemic is one of then. We can’t really move things on at the moment. I think we need to slow down for a bit, but also to spend time together, which we can’t really do right now because of the lockdown.

Other than work, I went to a shiur (religious class) in the evening. It was a bit late and I struggled to concentrate. It was more a mussar (ethical self-development) shiur than anything else, about keeping going if you fail in an area of personal growth. Discussions like this always make me feel weird, as I tend to put other people on a pedestal and assume everyone is doing amazingly and only I am struggling with all my middot (character traits). I still suspect that I have worse traits than everyone really, even if they struggle in the same area. Someone asked a question at the end about how to get non-religious Jews engaged religiously when there is so much they could enjoy in Judaism. The rabbi didn’t want to answer the question in the shiur, as it was a bit off-topic, but I did wonder a bit about whether there’s a way that I could enjoy Judaism more. I can enjoy and find meaning in mitzvot (commandments), Torah study and prayer on Shabbat (the Sabbath), but it seems hard to get that during the week.

I’m not sure what to do now. I’m tired, but not sleepy. I feel I should do something to unwind to help me sleep, but I don’t know what. I’m tired enough that I just sent my sister a text meant for PIMOJ, fortunately just asking how her evening was going.

***

I realised recently that I would rather have a time machine than a spaceship. (I appreciate that this decision is unlikely to have many practical ramifications.) I have felt for a long time that I don’t belong in this time. It’s partly having “old-fashioned” interests in terms of books and TV, partly feeling my politics are not a great fit for any party currently around (although I revise my political views fairly frequently – I get the impression that most people don’t), partly feeling my general worldview (religious, cultural) is different. Not necessarily out-dated, just different. I’ve never got on well with contemporary slang and trends.

I used to feel that studying history (my BA is in history) gave me access to information about the past that allowed me to understand the present better than most people. Now I’m not sure that that’s true. In fact, I suspect it’s not true. I don’t think I really understand the world particularly well. If I have an advantage, it’s only knowing that I don’t understand it, and maybe being aware that the world is more complicated than most people suppose.

Still, I feel adrift in time, looking for a society that works for me, people that I can communicate with. I want to write about a Jewish time traveller, hopefully when I’ve finished my current novel.

Thinking/Worrying

Another day that got away from me…

I think my negative self-talk is back. I think it went away, or more likely reduced without entirely going away, over the last few weeks as I felt more stable, but it seems to be back again now. Some “I’m useless, I hate myself” thoughts, and guilt feelings that are objectively probably out of proportion to anything I might have done, but it’s hard to be sure.

In Morality, Rabbi Lord Sacks says that Maslow and Rogers, the psychologists who did more than anyone to put self-esteem at the centre of healthy psychology, actually both went off the idea late in life. Maslow did research that suggested that people with high self-esteem were more likely to take advantage of other people in various ways, while Rogers switched from self-esteem to self-discipline as a key character trait of psychologists he wanted to employ at his institute. Although I think there is probably room for me to have more self-esteem without ending up taking advantage of other people.

***

I went to bed very late last night, feeling a bit agitated. I slept through the morning again and struggled to get going, despite knowing that I had a lot I wanted to do today. I just feel that my life is a mess and don’t know how to change it. I feel like I try to do the right thing, but God constantly puts me in situations where I can’t. I know that sounds like excuses, but I don’t know how else to describe what happens to me. I know when I choose to do something that is perhaps against Jewish law or Jewish ethics and I know when I feel pushed into something by events or feeling overwhelmed.

I went back to bed after breakfast. This was after 1pm because I got up so late. I just couldn’t face the day. It took ages to get dressed. I had too many negative thoughts about myself and my future. I wonder if I will ever get my life in order, whatever that might mean (career, family, feeling at peace with myself on some level etc.). Just paralysed thinking/worrying.

I guess this is olanzapine withdrawal. Unfortunately, I’m not sure when I’m going to be able to get haloperidol (the replacement mood stabiliser); hopefully by the end of the week, but I’m at the mercy of the NHS bureaucracy.

***

I made myself work on my novel for an hour as leaving it alone was just worrying me. I actually wrote nearly 1,000 words, without much procrastination, which I guess shows I can write fluently if I know what I’m doing and it’s not too emotionally draining for me (this bit wasn’t autobiographical or dark). Then I went for a walk. I replied to some emails too and filled in a form for the Department of Work and Pensions about my benefits (which I think are about to be stopped now I’m in work, even though it’s only part-time work). I guess I did quite a bit (I fitted in a brief call with PIMOJ and a little bit of Torah study too), but not as much as I would have liked.

***

I had fluctuating depression and anxiety during the day. I know it’s partly triggered by coming off the olanzapine, but I feel I have real things to worry about too. At the moment I’m mainly worried about my relationship with PIMOJ for various reasons I can’t really discuss here. It’s hard to know what to think about it sometimes, there are so many different thoughts and feelings, so much that could go wrong. I want to live in the present with it, but that’s hard when COVID is restricting what we can do in the present so much.

PIMOJ wants me to live in the present too (she very much does this) and to accept that God loves me and thinks I’m good enough, but I have a lot of psychological resistance to these ideas. She suggested I should try to see the spiritual beyond the physical. I don’t know if it’s depression or autism or low self-esteem or just me, but I find that hard. Almost impossible, really. It’s the type of thing that makes me wonder if I’m really cut out to be frum (religious Jewish). Or if PIMOJ is right for me. I try to tell myself I thought we were good for each other last week and it’s just olanzapine withdrawal that is making me doubt it now, but it’s hard to believe sometimes. She is very different to me in outlook, very positive and spiritual. I don’t think she understands my depressions and anxieties at all, they’re completely alien to her. Do I need her to understand? I’m not sure. I wonder what it would be like if we were living together and I had a few days like the last few days. I’m in full-blown, “I’m going to be lonely and miserable forever” mode today, even though I know that in the worst case scenario I can go back on olanzapine and be tired all the time and over-weight, but less miserable. I’m telling myself not to make any major decisions until I’m stable, but it’s easy to catastrophise.

***

I have a list of birthdays and anniversaries for family and friends and I copy the dates into my diary each year, alongside reminders of when to buy cards where relevant (yes, I prefer dead tree format despite the effort). Looking at the list today, I see so many friends I am no longer friends with, mostly because they got angry with me, often for reasons I did not understand. Sometimes there were complicated romantic feelings going on in one or other direction. It makes me sceptical of my ability to manage friendships, let alone relationships.

***

I can see that my unhelpful coping strategies are back. At the very least, I’m unable to reduce my junk food intake soon or eating cereal late at night. Not that I eat so much junk in absolute terms, but my medication means whatever I eat goes straight to my waist, and it’s hard to keep up with exercise (a) while working, (b) in the winter and (c) in lockdown.

***

I’m struggling with relaxation at the moment. America During the Cold War is interesting (especially to see how much of our contemporary political crisis parallels that of the 1970s), but is proving a slow read as I’m not really in the mood for non-fiction at the moment. I am trying to decide whether to switch to fiction. Similarly, The Sandbaggers on DVD is excellent, but dark and even nihilistic, so I’ve been watching Doctor Who instead recently. I re-watched The God Complex today – an under-rated story, in my opinion, with a positive presentation of religion that is rare for TV nowadays, let alone Doctor Who.

Special Interests and American Pessimism

Shabbat (the Sabbath) was OK. As I mentioned on Friday, I didn’t go to shul (synagogue), as I thought the COVID risk was too high to be worth it. I spent quite a bit of time on Friday evening and Saturday afternoon in bed, not from tiredness, but anxiety and an autistic desire to wrap up in my duvet to self-soothe. I’ve never got around to buying a weighted blanket, but I did wonder what it would be like to have one. Maybe it would just encourage me to stay in bed…

I did some Torah study and I read a bit more of America During the Cold War, but not much. I confess my recreational reading was mostly Mistress of Chaos, the latest compilation of comic strips from Doctor Who Magazine. The comic strip is arguably better (more imaginative, better-written), and more in tune with what I think Doctor Who should be like, than the TV version is at the moment. This has happened in the past, when David Tennant was the Doctor. Scott Gray, currently the main writer and editor on the strip, is one of my favourite Doctor Who writers, even though he’s never worked on the TV version.

I tried to accept that I was going to end up doing self-soothing things like reading comic strips and curling up in bed given that I’m struggling with my mood as a result of coming off olanzapine at the same time as some very stressful stuff in my personal life and in the wider world. Even so, I feel I wish I had done things differently.

A friend emailed after Shabbat to say that she now has an official high-functioning autism diagnosis. She has also gone through quite a long process to get diagnosed, so hopefully I’ll get my diagnosis soon.

My sister phoned after Shabbat and we had a long chat, mostly me talking about all the stresses I’m under at the moment. We hadn’t really spoken for a while. Later I watched the film Mr Holmes with my parents, about an ailing, nonagenarian Sherlock Holmes, losing his memory and revisiting his last case to try to remember why he retired. It was a character drama rather than a crime story, a little slow, and dark near the end, but it was OK. Sir Ian McKellan was very good as the elderly Holmes, nicely distinguished from his sixty year old self in flashback. I’m pretty sure it contradicted the original stories in several places (Sherlock Holmes is another autistic special interest for me), but not too violently.

I feel a bit agitated now. I don’t think it was the film, just anxiety about major things in my life right now. I feel like I have a lot going on. Aside from being in the middle of the autism diagnosis process, I’m a bit more settled into my new job, but still learning the ropes and conscious that it might end soon. I don’t think I’ve fully adapted to losing two days a week to work; I’m still struggling to fit everything in. Then I’m working on my novel and trying to move on my relationship in difficult circumstances (lockdown), while, like everyone, my ability to cope with COVID is getting less and less. I still get annoyed with people who don’t wear masks properly, but I feel less judgmental of people who are not social distancing or isolating properly. It’s hard. If even a shy, autistic introvert like me is struggling now, I guess almost everyone must be.

There’s not a lot else to say. I impulse-bought a lot of second-hand CDs on sale a couple of weeks ago, which I’ve been listening to recently. One CD was scratched and unplayable and I’m waiting for a replacement, but the others were good. I’ve been listening a lot to ABBA lately. I never liked ABBA, but in the last month or two, I’ve become an enthusiastic convert. I use music mostly to cheer myself up or to motivate myself, so I like fast and upbeat music, and much of ABBA’s output fits here. I bought ABBA Gold (greatest hits), which was the broken CD, and More ABBA Gold (greatest hits volume 2), which wasn’t quite as good as the first one, but surprised me by still being very good.

***

I just commented on a friends’ blog to say, “The riots in the Capitol were pretty shocking. I used to wish I had been born in the USA, where the Modern Orthodox Jewish community is so much stronger than the UK. I wondered if I would marry someone from there and emigrate [I nearly did, as E was from the US]. Now I’m grateful that I’m nowhere near. I worry what will happen to a country where the political class is divided into two groups that each think the other is irredeemably evil, where the President can’t accept he lost the election and where there are more guns than people.” I really can’t see this ending well. Maybe not immediately, but a decade or two down the line. People say Trump is like Hitler, but my worry is more that Trump is someone like Karl Lueger and that someone much worse is waiting twenty years down the line.

On that cheery note — bed!

Quick Post

I feel I need to write, but I only have a few minutes before having to shower for Shabbat (the Sabbath). I’m not going to shul (synagogue) this week as I’m too worried about COVID. The new lockdown has worried me, especially as we found out that Mum still has slightly reduced immunity. I know I’m going to work on the Tube (I’m a key worker, technically), but I don’t want to take unnecessary risks. I’m not seeing PIMOJ this week for the same reason, which I think she was a bit upset about. I’m upset too, but I don’t want to break the rules. I’m not sure what I’m going to do about volunteering, as they have changed the rules for volunteers to make it safer, and I’m not sure how they apply to me – I need time to read them again.

I feel a bit calmer today, mostly because I know none of the things that trouble me will be happening directly over Shabbat. I spoke to my rabbi mentor too, which was helpful. It wasn’t so much that he said anything new as that he validated some of my fears as understandable, but also validated my hopes that I was doing the right thing and should stick with it. Other people have said this, but I really needed his rabbinic approval rather than approval from my parents or therapist. He suggested a coping strategy for now as well.

That said, while getting ready for Shabbat some anxieties returned. I wonder if I’m being punished, or why God seems to put me in so many difficult situations. Situations which I feel someone frum (religious Jewish) should not have got in somehow. To be honest, I struggle to understand how to function in the frum community, not in terms of religious practise, but in terms of socialisation. Know what to do and say informally, when it’s not a matter of Jewish law. Knowing how to be accepted, how to present myself, what interests are allowed and so on.

OK, out of time now. See you in twenty-five hours.

More Anxiety

Wow, I feared that when the American Empire started to go, it wouldn’t go peacefully, but I didn’t expect a mob bearing the Confederate Flag storming Capitol Hill just yet. Crazy. Mind you, I was reading about the protests of the 1960s on my lunch break (civil rights, anti-war) and I think the scale and perhaps also the intensity of unrest greater then than now. It’s just that Twitter and 24 hour news coverage make it more visible now. Compare Capitol Hill with rioters storming the Pentagon in 1967. On the other hand, civil rights and Vietnam bubbled away for years, so who knows how things will look in 2030? The culture of the sixties was definitely better though.

Back here in London…

I had a lot of anxiety again today. I am going through an anxious time, but it occurred to me that I’m coming off olanzapine, which is probably making the anxiety worse. This morning on the Tube in to work, I was too anxious to do much Torah study as I usually do. I tried to practise mindful acceptance of my anxiety and guilt feelings. It helped a bit. The anxiety went away a bit during the morning as I was busy at work, but came back in the afternoon as there wasn’t much for me to do. Sometimes it felt like borderline religious OCD (anxiety that I’ve done/will do something religiously wrong). This leads to a feeling that everything I do to try and move my life on (careers, relationships) just provokes guilt for not being perfect. I try to tell myself it’s irrational guilt, but the slightest mishap (and mishaps are inevitable) just sets me to thinking that I’m being punished by God and that worse is in store for me. I am not sure how to cure myself of this dynamic.

I think I tend to see life very much in black and white terms (which is a classic autistic perspective), but specifically in black and white moral terms. It’s a kind of scrupulosity (religious OCD) whereby I want to be morally perfect and see any moral imperfection as heinous. This leads to things like me applying for jobs that are not right for me because I feel “ought” to do so. My moral integrity and honesty is a big part of my self-esteem (insofar as I have much self-esteem), so it’s hard to challenge it.

Similarly, in terms of dating, I’ve partly internalised a frum (religious Jewish) model of dating which sees the dating process in extremely moralised and black and white terms (e.g. avoiding platonic friendships with the opposite sex; no dating before being ready to marry, in terms of having a settled career and mental health; pre-screening dates to only date people with shared values; avoiding long-term relationships before marriage). I do this even though this model has not worked for me. This leads me to feel that everything I do in dating is wrong and that my dating difficulties are a punishment from God. However, I am not sufficiently integrated into the frum community to really be able to date that way even if I wanted to do so.

Both PIMOJ and my therapist struggled to understand yesterday how I can feel that I’ve never fitted into or been accepted by the Orthodox world and yet still want to be a part of it. I’m not sure that I have the answer to this question myself. I believe in Orthodox Judaism, even if I’m not really able to live the right sort of life, practically, that would enable me to function in the community. That’s the best answer I have. I know that many people would, if not consciously then at least unconsciously, change their beliefs for ones that fitted better with a possible or desirable lifestyle. That has just never happened with me, for whatever reason.

***

As a side-note on black and white morality, I’ve encountered quite a number of rabbis over the years who claimed to be very badly behaved in their youth. I’m not quite sure what to make of this. Are they exaggerating to try to connect with young people? Does a disobedient, questioning, cast of mind lend itself well to Talmudic study? Probably. Can the uncontrollable energy of the boisterous child be focused into the superhuman amounts of emotional energy needed by the congregational rabbi? Possibly. Sometimes I feel weirdly that if only I had been worse-behaved at school, I might be in a much better situation today. It will be weird if I go to Heaven and they tell me that I was too well-behaved to earn much reward.

***

Speaking of which, PIMOJ and I streamed (separately) Soul, the latest Pixar film, about a musician who dies, but wants to come back to Earth, and is set to mentor a soul that is resisting being born. It was amusing enough, but I found it hard to concentrate on and triggered a lot of uncomfortable thoughts about my not enjoying life or having a clear purpose (I want to be a writer, but worry I won’t make it). I couldn’t really explain to PIMOJ that I want to enjoy the small moments of life, but all too often I can’t, and I can’t will that enjoyment into being, particularly not if it’s still an element of depression.

Rebel Rebel

I’m not sure where I am today, emotionally. I had two big things going on, the pandemic and the autism assessment. Now there’s a third, potentially even bigger, and I am not coping well. I don’t want to talk about it here yet. Or rather I do want to talk about it, but I’m not sure that I should, so I won’t for now. Suffice to say that I went to bed late last night because I was dealing with a lot of anxious and self-critical thoughts. Then I couldn’t sleep, probably because I was over-tired and hadn’t done anything to relax. Then I overslept this morning and didn’t want to get up because of the anxiety. I eventually got up because my phone was ringing, but I didn’t get there in time and whoever they were, they didn’t leave a message and I didn’t recognise the number. Hopefully it was just a cold caller, but I worry it might have been something about the autism assessment, although I know it’s unlikely that they would contact me within twenty-four hours of the last assessment.

I’ve felt lately that I was getting ahold of my life, that I was making progress with work and writing and my relationship, that I was moving towards some kind of definitive autism diagnosis, and that I was feeling like depression and mental illness, while not “cured” (I don’t know that I will ever be “cured”), are less prominent in my life. I was even wondering if I should carry on blogging here, or blogging so regularly. What is the point of a mental health blog if my mental health is reasonable?

And then, WHAM! To be honest, I knew this would happen for some time, it just happened faster than I thought it would, and it hit me harder than I expected. I still can’t talk about what is actually happening except in the vaguest of terms, but I’ve been in a state of anxiety since the weekend, and I’m not sure if it’s going to change any time soon. I guess I’m just psychologically vulnerable to mental illness at times of stress, the way some people have reduced immunity and vulnerability to physical illness.

I was able to talk about it a lot in therapy today. We ended up speaking a lot about ideas of community, individuality, conformity and so on and particularly how these apply in the Orthodox Jewish community.

I spoke about feeling a burden at the moment, a bag full of guilt and critical voices from the community and who knows what else. I want to put the bag down, if only to breathe, but I can’t, I have to keep carrying it up the hill. How much of this is actually real (real guilt, real people criticising me) and how much is just in my head is hard to tell. I do feel, on some level, like I’m responsible for the world and that I’m judged to the minutest level of detail, in a way that no one (or no one other than a total tzaddik (saint)) is judged.

My therapist suggested there was anger there too, which is correct, but I’ve never known what to do with anger other than repress it, which is not good in the long-run and arguably leads to depression. I think in the summer, when our Haredi (ultra-Orthodox) neighbours were having lockdown-breaching prayer services in their garden three times a day, I wrote a letter, with no intention of sending it, saying how angry they made me. I think that helped somewhat, but my current anger seems too nebulous and undirected at the moment for that to be a viable strategy.

More surprisingly, I found myself suggesting that maybe on some level I like or need the friction with my community. I’m not entirely sure why I said this, but I suspect that I noted that I’ve spent two decades or more trying to be an Orthodox Jew and to “fit in” to the Orthodox community, but I’ve also spent two decades or more complaining (quietly) about the conformism, narrow-mindedness and bourgeois mentality that often operates in the Orthodox community, trying to not to be socialised out of my geekiness, my non-Jewish friends, the books I read. I guess I have a “can’t live with it, can’t live without it” attitude to the Orthodox world.

I can see it with my novel. Sometimes I’m terrified about the backlash I might face for suggesting that domestic abuse exists in the Orthodox community and that the autistic and mentally ill are not well-catered for there, but other times I will admit to myself that I hope there is some controversy, that it “shakes things up a bit.”

It’s hard to come to terms with this, as I was a well-behaved child and I was the absolute most well-behaved, non-rebellious teenager imaginable. But here I am, worrying that I’m going to bring the Temple crashing down around me, Shimshon (Samson) style, without really wanting to do it, just feeling driven to it by loneliness and desperation, the longing for a place where I can be accepted by people who aren’t like me. I feel I should (“should” again) be able not to care what people think about me, but somehow I can’t.

I told PIMOJ I was anxious and she called. It was a difficult conversation, not least because it was late and I didn’t really want to speak, but I felt I should as she was concerned about me. It really did become apparent that there is a psychological difference between us, that she doesn’t care who does or doesn’t like her, whereas I want to be liked and accepted, something that I don’t think she really understood. I don’t think she understood why it matters to me if other Orthodox Jews reject me. I don’t think I really understand why it matters to me, to be honest. My life would be a lot easier if I didn’t care who liked me, but I find myself unable to find the switch to turn it off.

***

There was no volunteering today, but I was supposed to be doing some work from home and I got up later than I intended for that. I got the work done (stuffing envelopes and stamping them) as well as having therapy, but I didn’t get out for a walk. Add in the call from PIMOJ and I ran out of time for more than five minutes of Torah study, although I did write my devar Torah for the week and liked it more than I expected. It’s going to be another late night. I don’t know if I’ll have time to relax before I go to bed again so sleeplessness is likely.

***

When I started this job, the Department of Work and Pensions said I was OK working part-time and still receiving some benefits. Now they’ve written to ask for more details about the work. I accept that I probably earn too much to justify the benefits, I just wish they would make their minds up. I do wonder whether other government departments and bodies (e.g. the Treasury, the Foreign Office) are as useless and bureaucratic as the DWP and the NHS. It’s easy to look at the lockdown mess and think that they are.

Very Anxious Day

I had the second part of my autism assessment this afternoon. It was a Zoom call with a psychiatric nurse (I think the one who interviewed my Mum a while back). I don’t know how I did. They said it would take an hour to an hour and a half, but it only lasted forty minutes or so. I’m not sure if that’s good or bad. The psychiatric nurse asked me some questions about emotions: what makes angry, happy, sad, etc. and what those emotions feel like. I think I struggled to put those emotions into words and tended to speak more about what I do when I’m angry, happy, sad, etc. Which I guess would suggest autism. We also spoke about friends and having a partner and what that was like emotionally and practically. Also if I coped with living alone, cooking, cleaning, etc. and whether I can handle my own finances. I know I can live alone OK because I just set up routines so I know what I’m doing, but I find that I can’t handle my finances as well as I feel I should be able to do and need to ask my Dad for help sometimes. Again, this might suggest autism.

I also had to narrate a picture book, describe how to brush my teeth and tell a story using five random objects as props. The psychiatric nurse narrated a story with five objects first, to show me what to do. I noticed that while her story was very abstract (e.g. a pen representing a boy, a sellotape roll representing a cake), mine was more literal (e.g. a Lego man for a person, a leaf for a forest), which again would suggest autism to me, although I’m not sure what they are looking for there. I don’t really know if this went well or not, or what “well” really means in this situation. I was told I should hear about the next stage (the actual diagnosis appointment) within six weeks, probably less, but I’m not sure if the actual diagnosis appointment will be within six weeks or just if I should hear when it will be.

The story test makes me wonder if I will really be able to make a career as a novelist, although a quick internet search reveals there are other autistic writers out there. I guess with my current novel, one plot strand is about my experiences with depression and autism in the Jewish community and the other strand is based on a lot of research I did into real life domestic abuse. I suspect I would be the type of author who wears his influences visibly and sticks to existing generic tropes rather than the type of daring, avant garde literary author part of me would like to be. So more of a Terry Nation than a Steven Moffat. Fine, I think Terry Nation is under-rated and I should only make as much money as Terry Nation did… (Nation created a number of popular programmes for British and American television, but was most famous for creating the Daleks for Doctor Who and making a fortune out of them thanks to canny merchandising and rigorous copyright enforcement.)

***

Yesterday J gave me nearly 300 invoices to put in envelopes, stick on stamps and post (he is paying me for this, don’t worry!). Today I put over 100 invoices in envelopes and sealed them; tomorrow I hope to put the rest in and put stamps on them all. It would probably have been more efficient to put a stamp on each envelope after sealing it, but I knew that if I did that, then I would constantly be having OCD worries about whether or not I put one on each one and would be going back to check. Easier, I thought, to do the lot at once, check them, and be done with it.

There’s no volunteering tomorrow, as the paid staff are worried about COVID and are reviewing their procedures to check everything is safe. The packing will be done just by the paid staff this week. Hopefully I can use the morning for envelope stuffing before I have therapy in the afternoon.

***

In the evening I had a rather anxiety-provoking experience. I don’t feel that I can go into much detail. It’s going to be an ongoing thing for a while. I think it’s the right thing to happen, absolutely, but it’s important and scary.

The hardest part isn’t actually the difficult and scary bits. I’m very dependent on the opinion of others, particularly those in religious authority. I worry about appearing like something other than the person I want to be, even though I ended up where I am in good faith and on rabbinic advice. I guess if you have low self-esteem, it’s easy to think everyone thinks badly of you, just as it’s easy to think that every difficulty (or anxiety) is a punishment from God for trivial infractions.

***

Because of everything that happened today, I didn’t do much Torah study. I read Rabbi Sacks’ Morality book for a while, but that was about it. I don’t know if that counts. Is it Torah study if I read a book by a Chief Rabbi about morality, but mostly couched in terms of secular philosophy and psychology rather than Torah sources? I don’t know, but it’s a very good book. I’m pretty tired now, but I need to shower and probably to watch some TV to unwind before going to bed as I still feel very tense, although the anxiety is slowly dissipating. I ate dinner very late, because I was too anxious before, and then I ate a ton of ice cream for dessert. So much for being on a diet.

Feeling Anxious

I’d like to be able to start a post without talking about my sleep pattern, but it seems to be a big part of my life at the moment, so here goes. I went to bed about 12.00pm. I wasn’t sure if I would sleep or not. Being sick can make you sleepy, but I had done nothing all evening since being sick except watch TV, so I didn’t feel particularly tired. I couldn’t sleep. I’m not sure if it was a lack of tiredness or the constant agitated thoughts about the Zoom meeting on Tuesday evening Rabbi B. Eventually I got up and watched some more Doctor Who to calm myself down. I did actually enjoy the second half of Logopolis more than the first, although that may be because it was 1.00am and my standards were not as high. I did eventually fall asleep around 2.00am, but slept through the morning again, which I was hoping to stop doing. I guess it was not entirely unexpected, given the evening I had (being sick, but also having a difficult conversation with my parents and arranging the call with Rabbi B). What did upset me a little was waking up with some religious OCD thoughts, which had not really bothered me for some time. I was a little surprised to experience them, although I know there’s always a risk of the religious OCD coming back at times of stress and exhaustion. They did at least go after I’d eaten breakfast – low blood sugar also exacerbates OCD for me.

After breakfast I felt better, but also a bit down and lethargic. It was hard to do very much. I guess it’s not surprising, given that I had been very sick less than twenty-four hours previously. At lunch I opened the box of vegetables that I was eating with PIMOJ yesterday and saw that the leftover cucumber had gone off. It was completely mouldy and furry. So I suspect I was sick from food poisoning from eating gone off cucumber. I knew it was a little past its best, but it still looked edible yesterday. Obviously not.

I was pleased to get thoughtful messages from PIMOJ, but also a message from J asking how I was, which was nice. He said I could do some work from home one day this week, putting 300 invoices in envelopes, stamping and posting them. I think I can do that on Wednesday, hopefully working around my therapy in the afternoon. I had already decided I was going to skip volunteering this week as I have too many stressful things even without being sick. I’m a bit upset at letting them down, but I need to look after my mental health. I skipped depression group tonight too, as I didn’t feel I had enough stamina to spend a long time on Zoom, as well as not feeling able to speak about the things that most concern me. I feel a bit bad about missing it again, but I feel that I need to focus on the autism assessment, meeting with the rabbi and paid work this week.

I spent an hour or so in the early evening working on my novel. Once I got into it, it flowed quite well for a while and I wrote 500 words, but around seven o’clock I suddenly became very anxious. It was a feeling of nausea and apprehension rather than specific voiced fears, but I suspect the meeting with Rabbi B tomorrow evening is at the root of it, and maybe also the autism assessment tomorrow afternoon.

I guess the Rabbi B fear is wondering what he will think of me, feeling that I’ve done something in good faith and on the advice of my rabbi mentor, but which on the face of it appears bad to someone from an Orthodox Jewish background. Although my rabbi mentor got in touch with Rabbi B before I made contact with him, I’m not sure how much of my story he told him. I guess below that is guilt, which probably isn’t justified. Beyond this, when I knew Rabbi B when I was at university, I felt that I was constantly embarrassing myself in front of him and looking like a freak or an idiot (for reasons I would now identify as being down to autism or social anxiety) and wondered what he thought about me…

Other than that, I didn’t achieve much. I didn’t go for a walk (I actually only just realised that I didn’t go out all day). I did some Torah study and preparation for my devar Torah, but wasn’t satisfied that I’d done enough, nor was I satisfied with my preparation. I may have to start from scratch, but it’s much too late to do that now.

I got distracted this evening reading stuff online that only left me upset, frustrated, guilty and uncertain of things, but I don’t really want to go into it here. Now it’s nearly midnight and I should go to bed as I have a busy day tomorrow (autism assessment, Rabbi B), but I feel very tense and unsleepy. And I haven’t even mentioned my thoughts about Lockdown 3: The Mutant Strain.

***

I was voicing my anxieties to PIMOJ and she was trying to calm me down. Then I watched the first episode of the Doctor Who story Castrovalva and saw the same scenario play out as the composed Nyssa tried to calm down the panicking Tegan, saying that panicking doesn’t achieve anything and so on. To be honest, there’s an element of geeky Adric about me too, and I’ve long suspected that I don’t appreciate Peter Davison’s Doctor as much as I should because he’s the Doctor who’s most like me (polite, but given to moments of panic and ultimately not that good at being the Doctor, with fatal consequences). Suddenly my future life seems like Season Nineteen of Doctor Who… I guess there are worse things it could be, although I hope it’s more Kinda than Earthshock.

***

I commented on someone else’s blog today to say that I’ve only been paid for one piece of writing, although I have done some professional or at least semi-professional writing for free. This, it occurred to me afterwards, is not true any more, as I have sold a couple of copies of my non-fiction Doctor Who book, and while so far only friends and family have bought copies, at least two people have read and enjoyed it (my oldest friend and my sister’s nephew). It’s a bit frightening how my mind can keep positive memories and thoughts away from me when I need it.

“The future lies this way”

I got up early again (9.20am, on a Sunday, is early for me), despite setting my alarm wrongly, so things are looking good on that score. I had dreamt about a kid who bullied me at school bullying me as an adult (or quasi-adult… in the dream, I mean). It made me wonder if a lot of my feelings of inadequacy around work and my life in general are about feeling I have to “show” the kids who bullied me at school that I’m competent, or fitting in with my childhood/adolescent feelings that one day I would succeed in some nebulous, undefined way and that that would be some kind of revenge or self-justification. It would be better to focus on what I want to be doing right now, for myself.

It was a busy day. I had a nice date with PIMOJ. We had to cut it short because we both had things to do afterwards, but it was still two and a half hours. We had a really good time though. It’s strange how two people who are, on the surface, opposites (quiet, reserved and pessimistic vs. ebullient and upbeat) are so alike in many other ways. I came home and had a difficult, but positive conversation with my parents, arranged an important and scary conversation with a rabbi I haven’t seen in fifteen years and always found a little intimidating (I’m cutting a lot of relevant information here that maybe one day I’ll be able to reveal in full), started getting stuff ready for the next stage of my autism assessment on Tuesday… and promptly threw up. Perhaps it was anxiety about all the things happening this week, especially the important and scary conversation with the rabbi. I’m kind of hoping it was, because I don’t want to have a bug.

I’ve spent the last couple of hours watching Doctor Who and slowly eating toast and sipping water, while intermittently dealing with texts from PIMOJ (who is worried about me) and the slightly intimidating rabbi (who I’ll call Rabbi B to distinguish him from all the other rabbis on this blog), setting up a Zoom meeting with me and PIMOJ for Tuesday (no, we’re not about to get married). I don’t feel sick any more, but I do feel a bit faint, despite all the toast and water, and I might be coming down with a temperature; at any rate, I keep feeling hot and then cold (my parents think this is just a side effect of being sick). I texted J to say I won’t come to work tomorrow. Even if I’m not infectious, I don’t want to go on the Tube with a lowered immune system, particularly not as I’m paid on a day to day basis anyway rather than having a contract.

***

When watching Doctor Who, I watched some of The Keeper of Traken and Logopolis, Tom Baker’s final two stories in the title role. Every couple of years I forget enough about these stories to think that they’re intelligent and brooding and I watch them again, alongside with Castrovalva, the next story in sequence, which forms a loose trilogy with them. And they are intelligent and brooding, in places, with a few good lines (including the title of this post). They’re also portentous, jargon-filled and incomprehensible in other places. Tom Baker is good, but has clearly had his wings clipped by the production team. But after a while I forget all that, and then I remember them as I feel they should be and watch them again… and then I remember.

I really liked Logopolis as a child, at least from the novelisation. I think I want to experience that version of the story, the version that appealed to a quiet and intelligent eight year child, rather than the version that makes the thirty-seven year old wannabe writer redraft the whole thing.

Feeling Positive

Shabbat was pretty good, but not much to note. I went to shul in the evening and did a lot of Torah study on Friday night, including an hour on a really difficult Mishnah. I didn’t nap either Friday evening before dinner or this afternoon, and I got up early this morning, albeit that after ten minutes or so I fell asleep again, so maybe reducing the olanzapine is helping already. I feel a little more alert and I don’t feel more depressed, so maybe I won’t need the alternative anti-psychotic after all.

I reflected that I haven’t felt this good for a long time. I feel like I have some kind of structure and purpose in my life again: I work two days a week at a job that seems to be within my capabilities, even if it is fairly mundane; volunteer one morning; work on my novel; have therapy fortnightly; have a relationship that is going well; am doing quite a bit of Torah study… I feel like writing Jewish fiction is giving me a sense of purpose in my life, and working at the admin job is validated by feeling like I’m earning money to support myself writing, which is my real mission.

I had a lot of interesting thoughts last night, some prompted by one of the books I’m reading (Morality by the late Rabbi Lord Sacks z”tl), one of which will hopefully become a devar Torah later in the year. I was pleased with these thoughts and am wondering if PIMOJ is right to see them as communications from God (not in a prophetic/psychotic sense, but in a “there’s no such thing as coincidence/hidden miracle” way, that positive things that happen, happen for a reason), but I wish they wouldn’t become so obsessive and “stuck in my head” (like a song) when I think of them on Shabbat and can’t write them down. I usually do have these kinds of thoughts on Shabbat, I don’t know whether it’s for spiritual reasons or just because it’s when I switch off from computer, phone and TV and let myself actually think about things. Or not think. Sometimes just sitting still and not thinking about anything in particular can lead to very interesting thoughts.

I had a headache today. It started about an hour before the end of Shabbat. The headache part went after a while, but there was still some nausea. As a result, I had to postpone a film night with PIMOJ (watching a film simultaneously in our different homes). We were hoping to go out tomorrow too. I was ready to commit to that, but PIMOJ was worried my headache would return and said to confirm tomorrow morning. We did speak on the phone (via WhatsApp) once my headache was better.

As my headache meant I couldn’t do much, I watched the New Year’s Special Doctor Who, which was broadcast after Shabbat started on Friday, so I had to wait until Saturday evening to watch it. I didn’t hate it, but I didn’t get much out of it. I can’t work out if current Doctor Who showrunner Chris Chibnall’s vision for the programme just doesn’t excite me in either positive or negative ways or if I’m just too old for it now. It is supposed to be a family programme, even if it’s always had a significant adult audience. I can watch the original 1963-1989 run of Doctor Who endlessly without much drop in enjoyment, and I can watch selected episodes of Russell T Davies and especially Steven Moffat’s versions of Doctor Who and get some enjoyment out of them, even if some bits annoy me (no, the Doctor doesn’t need a love interest, and his cultural references should be wider than those of a contemporary ten year old). But Chibnall’s vision of Doctor Who doesn’t even anger me much, except when it’s being inadvertently (I hope) antisemitic (The Witch-Finders, Orphan 55). It’s just there. Maybe I’ve finally grown up. His first season (2018) had moments of narrative, directorial and thematic innovation and daring, in a low-key way, but I haven’t really been excited by it since then.

The Worst Possible Prediction for 2021

This has definitely become a sleep blog… Last night I couldn’t sleep, and then woke up early and couldn’t get back to sleep. Possibly the room was too cold, unless coming off olanzapine is already having an effect. I got just under six hours sleep, which isn’t bad, even if it contrasts weirdly with the eleven or twelve hours I’ve been getting the previous few nights.

The Tube was empty this morning. Tottenham Court Road Station was utterly deserted at 9.00am. I’ve seen busier stations in the middle of the night. New Year’s Eve in a plague city. Work was quiet and we left before 4pm. The roads were empty. That said, people have been firing off fireworks since 6.00pm, and non-stop for the last three quarters of an hour or so, which undermines the “plague city” feeling a bit. Are people that optimistic about 2021? Or are they symbolically blowing up 2020?

In late 1945, George Orwell said he would make the worst possible prediction for 1946: the new year would be just like the old one. (I would have thought 1945 was a good year overall, with the most destructive conflict in human history ending, but I suppose there was the arrival of the atom bomb which terrified everyone more than we remember, and the fact that Britain finished the war more or less bankrupt, with food shortages that lasted for years afterwards.) I suppose I feel a bit like that.

My 2020, as I’ve noted before, was better than a lot of people’s and I feel vaguely embarrassed about that. Mum got cancer, but she was cured too. I self-published a non-fiction book (I might even have sold copies to people I don’t know if I had the money to pay for advertising on Amazon) and wrote a hefty chunk of my first novel. I ended up in a relationship which didn’t work out, but afterwards in one that so far is working out. I worked in January, was unemployed for most of the year (which turned out for the best as I was able to help Mum) and then found some kind of work at the end of the year. It’s not ideal and I don’t know how long it will last, but it’s a job, which is precious at the moment. To be honest, finding a job in COVID times feels like Yitzchak (Isaac) sowing and reaping a hundredfold during a famine.

The Talmud says “Let the old year and its curses go out, and let the new year and its blessings come in!” That’s talking about Jewish New Year, but I’ve been thinking about it recently. I don’t believe things are magically going to get better in 2021, but hopefully they will get marginally better, even if it’s just the beginning of the end of the pandemic. Who knows?

I don’t usually celebrate New Years Eve. My parents usually go to friends, but they obviously couldn’t do that this year, so we bought takeaway and played board games: The London Game, which involves travelling around London on the Tube getting to various destinations, and Schools Out! which involves travelling around school, collecting books. To be honest, they were similar, although the former had an element of skill (which I lacked) and the latter was mostly luck. Dad won both. We had a good time.

I feel a bit peopled out now and slightly down, so I’m probably going to go to bed soon.