The good news for today is that I have an appointment for the final part of my autism assessment booked in for 9 March, two weeks’ time. This is really all down to my Mum, who has been phoning to chase it up. Sadly on the NHS, or parts of it, there’s a benefit in having someone willing and able to make a certain amount of noise on your behalf when waiting for an appointment, in case you drop off the system, as I suspect I had done.

***

I was burnt out again this morning, sleeping for about twelve hours, although I intended to “only” sleep for ten. The problem is partly that I turn off my clock radio alarms in my sleep, or at least don’t wake up for long enough to really wake up and stay awake. I put my phone on the other side of the room, so I have to get up to turn the alarm off, but its alarm is too quiet to really wake me and I sleep through it. Even if I do wake up, I fall asleep again before I can summon the energy to get up. I’m sure this must be boring and repetitive to readers, but it’s how my life is at the moment, with this major obstacle (burnout and oversleeping) that I just can’t make progress on and don’t really understand, even though I’ve made a lot of progress with the rest of my life.

I went for a walk and to the post office. That was crowded. The post office is inside the pharmacy and the pharmacy is doing COVID vaccinations, so there were a lot of people trying to socially distance inside and outside the shop. My mood slumped again while I was out walking, which might be a late afternoon blood sugar thing, or maybe because I was listening to the Intimate Judaism podcast about sex and Orthodox Judaism and it made me think how slow and uncertain it will be to move my relationship with PIMOJ on to a point where we can marry. My mood dropped a bit again while I was cooking dinner (vegetable curry), although it improved as I focused on cooking, which suggests that not having a focus is a trigger for negative thoughts.

I went to a shiur (religious class), the last of this set of shiurim, this time on Megillat Esther (The Book of Esther). It was more in depth than the previous ones, presumably because Esther is one of the better-known books of the Hebrew Bible among Jews, as we read it every year (twice, morning and evening) on Purim, which is this Thursday night and Friday. There were some interesting points about liminal spaces and identity in Esther. It made me feel more positive about the upcoming Purim, a festival that traditionally inspires very mixed feelings in me.

Then I saw that my shul (synagogue) had sent out an email about social distancing over Purim. So the whole community can all hear the Megillah, morning and evening safely, they are running four different readings at night and another four in the morning in different rooms of the building. I’m not entirely sure where my room is, so I need to go early to make sure I get there on time. They said there will be stewards to guide us, but I’m slightly apprehensive about it and plan to get there ten or fifteen minutes early to be safe.

***

I’ve noticed that I’ve had to struggle against religious OCD thoughts more lately. So far I haven’t sent any panicked emails to my rabbi asking if things were OK, which means it’s mostly under control and no actual OCD, just thoughts. (Actually, there was one email, but it was realistically a necessary email, and I didn’t send follow-up emails even though I was still worried.) Even so, I’m a bit concerned about things spiralling out of control as we approach Pesach. I’m trying to remember my coping strategies and exposure therapy techniques. I’m also trying to tell myself “I can cope” as my therapist suggested.

I guess my life is far from perfect right now, but realistically, no one’s life is ever perfect, and my current life is manageable, at least for the foreseeable future. I’m going with that for now. I do feel kind of fragile and vulnerable though, as if I’m aware I don’t have great resilience at the moment and am worried how I might cope if things start to go wrong.

4 thoughts on “Vulnerable and Fragile

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