Surprisingly, after going to bed after 1am last night, I woke up at 7.30am this morning and, after failing to get back to sleep, eventually got up before 8.00am, which is pretty much unprecedented on a non-work day!
I didn’t do much: a bit more Torah study than usual, a tiny bit of miniature painting (tidying things up) and a run (I felt heavy and lumpish at first, but my pace did improve as I went on). I’m also going to watch the film The Favourite (about Queen Anne) with my parents later. It was actually a relaxing day, which is not usually the case for me, as I tend to have things I want to do, usually more than I have time and energy to get done.
These are the fantasy wargaming miniatures I was painting (lizard men). I’m not entirely happy with them, but I’ve run out of patience to work on them more. They are quite small and fiddly, which isn’t so obvious in the picture.
I think I need to “come out” as autistic/Aspie. I hope to speak to J tomorrow about being on the spectrum and how it affects my work, specifically regarding difficulty using multiple spreadsheets and data bases at once (I get confused about which ones I’ve entered data in) and difficulty taking in a lot of spoken instructions in one go (I need to take notes). I might also say that I’m not always good with unstructured conversations, especially on the phone, which might impact on my work, particularly the new task I’m doing, which is on the phone, although it is actually a fairly structured conversation.
I’m thinking of talking to my community rabbi (not my rabbi mentor, who I’ve already told) about it too, but I’m not sure when. I’d rather do it in person than on Zoom or the phone, but lockdown doesn’t fully lift until June and that’s quite a long way off. I’m also not sure what I want to tell him, not least because I don’t have a clear sense of how autism affects me at shul, just that I often feel uncomfortable there. I’m not sure if I want to ask not to be given aliyot for a while; it would make me less socially anxious, but is running away from my fears instead of confronting them.
I am nervous about this, as I worry how people will react. I will probably self-describe as having “Asperger’s Syndrome” rather than “high-functioning autism” as I think the latter tends to make people assume lower capability than the former. This, despite my discomfort with mentioning Dr Asperger because of his Nazi/euthanasia links. I think there is a misconception that autism is a learning disability rather than a difficulty with communication and various other things such as executive function and multitasking. I need to find a way to explain this. This is especially important regarding dating. I think my one experience with a formal shadchan (matchmaker) went badly because of this, although I can’t prove it.
I found a study of Orthodox Jewish families in Manchester with children with autistic spectrum disorder or ADHD. It talked about hiding diagnoses to avoid stigma and of the child’s “difference” leading the family not feeling “belongingness” [sic] in the community. It does not correspond exactly to my experience, as these are much younger children, and less functional than I was at that age, but I do feel the sense of “difference” and not belonging, particularly with regard to marriage and family, as well as my impaired ability to participate confidently in activities where the social and the religious overlap e.g. kiddush (refreshments after shul) or seudah shlishit (the third Sabbath meal, held in shul). I feel this difference even if other people don’t explicitly notice it or draw attention to it e.g. if I manage to function well and “pass,” but feel it’s taking me a lot of effort and energy to do so and possibly end up very burnt out afterwards.
Possibly there is a need for someone to be a more visible high functioning autistic/Aspie in the Orthodox community to raise awareness, although, perhaps inevitably, I would only want to be that person if I could be visible in a quiet, unsocial way.
I think my lack of socialisation into the frum (religious Jewish) world despite decades of observance and my lack of romantic success go together, although both are obviously connected with my autism/Asperger’s and my poor mental health history. It goes both ways: my lack of socialisation has resulted in not being set up on dates, as per the usual method of Orthodox finding a spouse, but on the other hand, if I’d managed to marry someone frum, that would probably have brought me more into the flow of frum social life, because presumably she would have frum friends and a community that I would suddenly be a part of. Instead, I’ve tended to date women who are also on the fringes of the frum community, or outside it completely. My rabbi mentor has encouraged me to do this (date less frum women) and I admit I wonder if he would so encourage someone who didn’t have the social issues that I have. Is he being meikel (lenient) because he suspects I won’t get married otherwise? I’ve never had the courage to ask him.
Related to this is a feeling that I should be go back to being shomer negiah (not touching people of the opposite sex) when dating. I was shomer negiah when I dated my first girlfriend (the only one from inside the frum community), but she put a lot of pressure on me to change, which I did, not entirely unwillingly. We hugged a bit and she tried to kiss me once, which I didn’t like, and I’ve never been able to work out if that was because I wasn’t expecting it or if it’s another autistic touch thing that will be a problem down the line. We broke up when she started pressuring me to sleep with her, or seemed to be doing that; I’m honestly not sure if she knew what she wanted. I think she stopped being frum soon afterwards and left the Orthodox community.
My second relationship was long-distance and we were not around in person when we were actually dating, but E said she would wait to get married for sex, but not for hugging and I agreed to that in principle, again not entirely unwillingly. But we were not in the same country when we were dating. With PIMOJ recently, we held hands and hugged, but I felt increasingly uncomfortable with it, partly from fear we would meet someone I knew from shul, partly because I was conscious of breaking COVID protocol, but also I suppose because of the problems we were having with intimacy and opening up to each other in the relationship. When we broke up, she said she sensed I was feeling uncomfortable hugging, but put it down to relationship issues; I’m not sure how aware she was about shomer negiah (or COVID, which she was a lot less scrupulous about than I was), although I had half-heartedly tried to talk to her about it.
I wonder vaguely if this is covering for an autistic desire not to be touched. I don’t think so, although I have less “touch hunger” lately, but I think it is defending myself against touch I’m not ready for, as well as trying to cement my position in the frum community, a position that I don’t think I hold strongly enough to be able to cope with becoming shomer negiah again.
(And, now this is turning into a ‘frum autism sex/celibacy blog,’ if you can imagine such a thing.)