That’s a life update that is brief, not an update to a life that is brief. (Reminds me of an anecdote I heard about the Jewish law code called the Chayei Adam (Life of Man). Why did it get this strange name? (Admittedly many pre-modern rabbinic texts have strange names, often puns or quotes based on the author’s name.) Because the author knew a previous law code, the Shulchan Aruch (Prepared Table) was republished in an edited form, as the Kitzur Shulchan Aruch (Shorter Prepared Table). He didn’t want an edited version of his law code published, so he thought that no one would publish a book called the Kitzur Chayei Adam (Shorter Life of Man). However, they did still publish an edited version, just with a different name.)

Earlier I was going to complain about my life feeling stuck, but then suddenly a bunch of things happened today! Unfortunately, it’s only the least interesting ones I can share for now…

My parents managed to get me a phone appointment with the doctor today about my exhaustion. We’ve agreed to reduce and then stop the olanzapine (one of three psych meds I’m on, all of which can cause tiredness) and to do some blood tests to check vitamin levels and the like. Annoyingly, I had one of my regular lithium blood tests yesterday; I would have waited if I had known. I’m hoping coming off some of meds is helpful regarding exhaustion, although I suspect at least some of the exhaustion is autistic fatigue (the doctor didn’t comment when I mentioned that). I’m not sure how long it will take to come off the olanzapine. The doctor said take a lower dose of olanzapine for a couple of weeks, then stop entirely, assuming the depression doesn’t come back, but that will be around the time my parents are hoping to be away, and that’s often a time when I feel lonely and depressed, so maybe not the best time for a medication change.

I heard from the Benefits Centre too. The money I was getting wasn’t a mistake. Some people are eligible for more than a year’s worth of benefits and I was classed as vulnerable and so permitted to keep getting benefits even though I was earning over the usual limit. I wish they had made this clearer. My benefits have been suspended now, pending my sending them more information about my earnings over the last fifteen months or so, and I suspect it won’t be restarted now I’m working.

6 thoughts on “Brief Life Update

  1. Good to know exciting things are happening which you cannot share for now– from your tone I assume they are positive… Do be careful with reducing olanzapine too quickly — I seem to remember you had problems before … I am interested in your benefits issue. As a person who supports people with benefits I have never heard of NS ESA being continued despite the person earning more than the “permitted work” ceiling because they are classed as vulnerable. I’d be interested to know more. You could apply for universal credit if you are on a low income, though in practice this would probably not apply while you don’t have housing costs.

    Liked by 1 person

    1. I don’t really no more than that about earning more permitted, they didn’t say anything else. Perhaps it might have been because it was during lockdown?

      I’ll bear that in mind about universal credit, thanks.


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