I was very exhausted yesterday, and had suddenly realised it was closer to Shabbat than I thought, but I managed to speak to E briefly before Shabbat started in the UK. We’re hoping to have a longer conversation tomorrow, but I’m worried about how I’ll manage it if there’s a lot to do for Yom Tov (festival). But if I can’t, we’ll have barely spoken for a week, from our last long call on Wednesday evening until this coming Wednesday evening, because of Yom Tov. And this pattern will repeat for three out of the next four weeks. Being long-distance is hard, at Yom Tov doubly so, and that’s not even counting the stress of doing Yom Tov without each other.
I didn’t go to shul (synagogue) after this. I was just too wiped out and feeling physically ill from exhaustion. I did daven (pray) at home, without much energy or enthusiasm. I did some Torah study after dinner, which may have been a mistake, I’m not sure. I just want to finish some of the books I’m reading (see below).
I had weird dreams last night, including my least-favourite ex-boss (the one who basically told me that I wasn’t as good at my job as she expected and that she didn’t really have confidence in me) refusing to acknowledge my existence. Also something I can’t really remember about crocodiles. I ended up sleeping after lunch, too. I didn’t really want to, as I knew it would just mess my sleep pattern up even more, but I struggled through lunch with my parents and then basically went to autistic shutdown mode, curled up in the foetal position in bed with my eyes shut. Inevitably, I eventually fell asleep, but I think it was more about trying to reboot myself after a couple of hours of listening to my parents talk than actually needing sleep. Then I went back to bed briefly in the early evening, but didn’t sleep. I didn’t go to the shiva (house of mourning) for my parents’ friends’ son. I felt too burnt out. It was probably just as well, as it was very busy. I will try to email them tomorrow.
It’s hard to unpick the autism, social anxiety and sleep disorder from each other to work out what is really keeping me away from shul. There may also be an element of SAD now to make things even more difficult, which hopefully won’t turn into full depression. It’s hard to know where to start. So many people on the autism forum also struggle with exhaustion and fatigue. None of us really know how to cope. The medical community seems baffled or perhaps uninterested.
(By coincidence, someone just shared this story about autistic fatigue on the autism group.)
I worry what it will be like when E and I are married. Will it be easier living with someone more on my wavelength and autism-friendly? Will I be able to work more? Will that make me more tired? (I assume so.) Will we be able to have kids? How will I cope with that? Kids are not autism-friendly, even/especially autistic kids (autistic kids are a possibility given how much neurodiversity (diagnosed and undiagnosed) that there seems to be in both E and my families).
Somewhat related, I feel that this Rosh Hashanah/Yom Kippur, I should work on forgiving myself. It just feels wrong even writing this, but I have beaten myself up so much over the years for things that were not within my control to change completely, or at all: depression, social anxiety, OCD, autism, alexithymia, exhaustion and sleep-disruption. (Also: being a heterosexual male with a normal sex drive, trying to be celibate, but that’s a whole other post.)
I don’t know how much I’m going to get to shul over the coming Yom Tovim (festivals), if I’m going to hear the shofar (ram’s horn trumpet) on Rosh Hashanah, and it’s tempting to beat myself up about it in advance. I don’t think that will achieve much, but it’s easy to feel I don’t deserve forgiveness, that if I just pressure myself harder to have more energy, better sleep, a more positive mindset (etc.) that I need to study more Torah and fulfil more mitzvot (commandments), that will somehow happen. Even though it hasn’t worked for decades.
I feel someone should write a Shulchan Aruch for the Mentally Ill and Neurodivergent, to try to set out ways of living Jewishly with these issues and how they affect halakhic (Jewish legal) observance (the Shulchan Aruch is the primary Jewish code of law). In Israel, a rabbi has set up some kind of institute to teach more rabbis how to handle halakhic questions regarding people with mental illness. This is positive, but I would like someone to do it for the neurodivergent too. Unfortunately, Orthodox Judaism tends to lag ten years or so behind the secular West regarding social issues and we are only just beginning to deal with mental health, so we probably won’t catch up to neurodivergence for another ten years.
On the subject of beating myself up, I felt recently that I hadn’t finished any books for a while and was upset about that. Actually, it’s not that long since I finished A Guide for the Perplexed and Faith Without Fear (is it really less than a month since I was in New York and getting married?), but even setting them aside, I realised that I’ve been reading really big books lately. I’m on page 623 (of 712 pages of main text) of The Third Reich in Power 1933-1939, page 427 (of 712 or so pages) of The Television Companion: The Unofficial and Unauthorised Guide to Doctor Who and page 491 (of 528) of Lamentations: Faith in a Turbulent World. These are mostly heavy-going books (not the Doctor Who one, except inasmuch as I get annoyed with some of the views expressed in it, particularly hatred for late seventies Who) and I’m finally getting near the end of most of them. It’s been a long journey through them, but I would have read several novels or shorter religious works in the same time (I did read some, actually), so I should probably beat myself up less about that. I do definitely want to tear through some light novels soon, though.
Shana tova tikatev vetichatem! May you be written and sealed for a good new year!