Aside from over-thinking some things I’m worried about, today was a normal Sunday (and arguably even the over-thinking was normal for me). I spoke to my sister on the phone. I went for a run in the cold and rain; even aside from the weather, it was not a great run. Pesach has left me even more out of shape than before. I did about fifty-five minutes of Torah study, but it felt a lot longer; the combined sedrot (Torah readings) of Tazria and Metzora (Vayikra (Leviticus) 12-16) are probably the hardest to get anything out of from a contemporary perspective (admittedly a lot of Vayikra is in that category), and Tazria in particular is full of weird Hebrew terms that don’t appear elsewhere just to make understanding it even harder. I have to write a devar Torah about this soon…
My mood went down after my run. I’m not sure why. Eating dinner helped, but not hugely. I got stuck in a lot of negative thoughts and feelings. I did some activities my therapist suggested, to try to clarify for myself what I’m worried about and get my thoughts in order so that I can hopefully do something about these anxieties. That helped a bit, but not hugely.
It occurs to me that while I have come across a few Jewish/frum mental illness blogs over the years (albeit not many), I don’t think I’ve come across any Jewish high functioning autism blogs. I’m not quite sure what to make of this or what to do about it.
Searching online, it looks like there’s a Jewish Autism Trust, but that it’s run by and for parents of children or teenagers with autism, not high functioning adults with autism. I want to reach out somehow, but I’m not sure what exactly I would want. Maybe some kind of discussion forum for high functioning Jewish adults on the spectrum? I suspect there may be Facebook groups, which I think are what people use these days instead of forums and chatrooms. Or do I want to speak to neurotypicals in the community about the needs of people on the spectrum? Or both?
I just searched and found a couple of (non-Jewish) autism discussion forums. I’m wondering if these will be useful to me, helping me to reach out to other people in the same situation, or if they will be a huge drain on my time and resources if I get involved with them (or both).
I haven’t posted publicly recently because I’m dealing with some difficult thoughts and feelings that I didn’t want to express publicly, or even the semi-publicly of my anonymous blog. And I’m not going to write about those things here either. But I wanted to write about something else.
Since my autism diagnosis a month ago, everything seems different somehow. This seems nonsensical. I struggled to explain it to my rabbi mentor earlier today. I was pretty sure for the last few years that I was on the spectrum. I had been screened and found likely to be on the spectrum. The psychiatrist who assessed me said that it did look like I was on the spectrum. Getting the final diagnosis was in no way a surprise. And yet, I look at things differently since February 9th.
Things that I do or have done in the past take on a new significance. I look back at events from my childhood and adolescence or even more recently and say, “I was autistic when that happened.” Autism is a life-long condition, so obviously I had it at every point in my personal history, but it feels like I’m recognising and internalising it with regard to every bad memory I have. I’m not sure if this is good or bad. Sometimes it seems like a way of forgiving myself. Other times it seems more like a threat, that I was autistic then and now, so I could end up repeating that behaviour.
I find myself wondering if my life will ever get better. If I’ll get a full-time job, and an actual career, rather than a succession of jobs for a year or two. I wonder if I’ll get married and have children, if I could actually cope with those things and commit to them 100% with all my issues (it goes without saying that I don’t believe a person should get married or have a child without being 100% committed to them). If I’ll ever be financially independent. If I’ll ever feel really comfortable and active in a religious community. If life will ever seem like anything other than a prolonged exercise in damage limitation. I know that some people on the spectrum, at the “high functioning” end (if that phrase even means anything), do get these things, but lots of others don’t. The uncertainty is hard to deal with.
I couldn’t sleep last night. I don’t know if it was from taking my tablets late, sleeping too much in the day, drinking tea late at night or something else. I got about four hours of sleep in the end, but I had to be up early to see PIMOJ. Yesterday it was so warm that I went for a walk in the afternoon without a coat or jumper. This morning, it snowed. I wrapped up warm, but it was difficult to tell what to wear, as it was warm when sunny, but cold in the shade.
I think PIMOJ had been having some of the thoughts I had been having about our lack of emotional intimacy and vulnerability, although she phrased it differently, saying we haven’t really got to know each other well yet. We had a long talk (in the park, not ideal – thank you COVID) and PIMOJ opened up to me about some things in her past and I tried to be a bit more open about my mood dips and persistent lack of energy. I think we’re OK, we just agreed to try to be more honest and open with each other in the future. Not that we were lying previously, but we were both hiding things, I guess from fear of rejection. I had some further thoughts after the date and texted PIMOJ to tell her that I’m often not good at talking things over spontaneously and need time to think about responses because of autism (hence texting her later because I didn’t think of this at the time!) and maybe it’s worth discussing things over a few days and/or letting me text some ideas later after I’ve thought it over. Unfortunately, neither of us likes video calling much, which is hard at the moment. She hasn’t got back to me about that.
The rest of the date was good, except that we were seen by two of my parents’ friends. I’m not sure if they recognised me, but it’s the type of thing that can start rumours in small communities. PIMOJ and I were together for over four hours and did a lot of walking. We got takeaway falafel. Still, I was left with some anxiety. I worry that my autistic brain simply isn’t wired for a relationship. “Autism” etymologically refers to morbid self-absorption (you may have noticed this here…). Meaning, being unable to relate to others. That although I pine away in loneliness while single, I’m not able to be in a relationship “properly.” Now I’m in a relationship with someone where I know there will be lots of extra obstacles beyond a regular relationship if we want to make this permanent. I want to do that, but I’m worried I’ll burn myself out trying or just won’t make it, and perhaps that fear is stopping me from fully committing to the relationship (unconsciously), along with guilt feelings that the relationship came about in a “wrong” way, religiously. Life is hard. Relationships are hard. Autism is hard. Life + relationships + autism = very hard.
I keep thinking of Rebbe Nachman of Breslov’s parable of The Turkey Prince. The prince goes mad and believes that he is a turkey, sitting naked under the table and eating food off the floor. No one can cure him until a wise man takes off his clothes and sits naked under the table with the prince, claiming to be a turkey too. Once the prince accepts him, the wise man puts on trousers, saying a turkey can wear trousers. When the prince wears trousers, the wise man puts on a shirt until the prince does the same, and so on until the prince is fully clothed and eating normally and is (we are told) fully cured.
Superficially, the story is about the need of the religious mentor to descend to the level of his followers to win their trust and to understand them and inspire them. However, as Arthur Green noted in his biography of Rebbe Nachman (Tormented Master: The Life and Spiritual Quest of Rabbi Nahman of Bratslav), there is a uneasy air about the conclusion of the story. Is the prince really “cured” or has he just been tricked into acting in a more socially acceptable way? Does he really think he is a human again, or just a turkey who wears clothes and eats off a plate? (This is surely a big question in clinical psychology: how much are we “curing” people and how much socialising them into “normal” behaviour even when the “abnormal” behaviour is harmless?) Green suggests that the wise man, and even the other courtiers may be just as insane as the prince.
I feel I need someone to model behaviour for me, to show that an autistic person with a history of mental illness can: get a full-time job; make friends; write fiction; build a relationship and a family; and so on. But maybe this is not addressing the fundamental problem, which is my tendency to see myself as defective and to assume that everything I try to do will be affected by this defectiveness. Otherwise I’m in danger of being a Turkey Prince, acting in a socially acceptable way while still believing myself to be a turkey (“defective” autistic person).
Another thing that happened this afternoon has been on my mind. PIMOJ asked if my family were as religious as I was, and we got onto the subject of how religious I am. PIMOJ felt I am quite religious, but not exceedingly so, as I perform the mitzvot (commandments) as God commands, but have no interest in the spiritual reality behind them. I let this go at the time, but it’s annoyed me a bit since then and I don’t know whether to say anything (my natural conflict aversion versus our newly-stated desire to be honest with each other). I know kabbalists (Jewish mystics) say there are spiritual realities behind the mitzvot, and perhaps there are, but I have never managed to get my head around them. Rather than the mystics, I prefer the religious rationalists like Rambam (Moses Maimonides) who said that every mitzvah “serves to inculcate some truth, to remove some erroneous opinion, to establish proper relations in society, to diminish evil, to train in good manners or to warn against bad habits.” Some mitzvot have an obvious logic (don’t murder, don’t steal etc.). Those that don’t have obvious social benefits are symbols that teach important historical/theological concepts (like eating matzah on Pesach to remember the exodus) or inculcate character traits (eating only kosher food might instil self-control). Thinkers like Rambam and Rabbi Samson Raphael Hirsch spent a lot of time and energy finding rational reasons for symbolic actions and it bothers me a bit to see that dismissed as not religious (see especially Rav Hirsch’s Horeb, which provides reasons for all the mitzvot observed today).
Maybe I ought to bring this up with PIMOJ tomorrow, although I feel that there are other things that might be more important to discuss. I guess it just makes me realise that we see the role of religious observance differently. That’s not necessarily a bad thing, but I’m not sure I can communicate the way I see it. It’s somewhat similar to the way she sees connection with God, and “hearing” His answers, as relatively easy things, whereas I see them as very hard, even a life’s work. It’s not that one is right and one is wrong, but they are very different.
There are actually other things that came up on the date that I’d like to discuss with someone, but don’t feel it’s appropriate to speak about here. I hope to speak to my rabbi mentor on Friday, and it would be good to raise some of this with my therapist too next week (I’m on fortnightly therapy at the moment). Still, it adds to the feeling of juggling a lot of balls and not knowing if I can keep them all in the air or what will happen if I drop one or two.
I was pretty exhausted when I got home after this, maybe not surprisingly. I took some time to write parts this post, which was hard as it meant focusing on the anxiety-provoking parts of the date as well as the more successful parts, and focusing on the work I will need to do in the relationship. I did a little Torah study, but I was too tired to do much. I watched some TV. My mood has been variable and I’m definitely dealing with some anxiety about the relationship, even though I think today went well.
The last two days of Pesach (Passover) went quite well. No real religious OCD-type anxiety, which was good. I went to shul (synagogue) every evening. Today I decided not to wear a coat, as it was still quite warm in the afternoon, only to discover that we were praying in the outside area so we didn’t have to wear masks. I like not wearing a mask, but when we finished Minchah (Afternoon Service) and had a shiur (religious class) before Ma’ariv (Evening Service) it got cold quickly, especially once the sun went down.
I left soon after shul finished, not really staying to help tidy up as I normally would do, partly because I’m not sure where things go in our new socially distanced layout, partly because I wanted to get home and help Mum and Dad clear up the Pesach things (which normally takes several hours). I was pretty tired, though, and felt I didn’t do much to help and spent more time eating than tidying, although Mum and Dad said I did help significantly. 🤷♂️
Communicating in emoji rather than words indicates how burnt out I feel. I wish I knew what tires me out so much. I struggled to sleep last night, but slept through most of the morning and napped in the afternoon after a walk. I just seem to be tired a lot of the time and can’t function in mornings at all. Is it really autistic burnout? 🤷♂️again.
I enjoyed most of Pesach, but I again have the feeling that my chag (festival) lacked meaning and spirituality. Did I really meditate on the meaning of freedom? Did I really come closer to God? I feel like I didn’t. Do some people really manage this? I don’t know again, and I’m scared to ask anyone. This is when I feel like I struggle from not having many frum (religious) friends to talk to. Sometimes I wish I was an FFB (frum from birth i.e. raised as a religious person) who could take the basics of the festival for granted and concentrate on the deeper meaning. Or a BT (ba’al teshuvah, ethnic Jew who became religious later on in life) who had a major inspirational experience at some point to reflect on when feeling distant from God, to re-energise. I just became religious because I felt guilty for not being religious, which is probably exactly the sort of thing I would do, engage in a major life-change from guilt and obligation rather than inspiration and then try to keep it going. But I feel like I’m immune to inspiration. Even now I’m apparently over the depression (for now), I don’t seem to have much of an inspirable soul, at least not with the things that are supposed to inspire Orthodox Jews.
Possibly I assume everyone else is doing a lot better than me when that is not the case.
I have a date with PIMOJ tomorrow and should go to bed, but I want to watch TV for a bit to unwind or I doubt I will sleep easily. I’m going to try not to catch up with my missed blog posts from the weekend, part of an attempt to be online less. I skimmed down my friends list to see I wasn’t missing anything important, and I admit I read one or two posts, but I’m going to try not to read the rest. Sorry if I missed your opus, it’s nothing personal!
I had killer burnout this morning and missed Shacharit (Morning Prayers) completely, even though now the clocks have gone forward you can say it until after 1pm, although Chol HaMoed (semi-festive day) prayers are off-puttingly long, and the Anglo-Jewish custom is to wear tefillin even though it’s semi-festive (I feel uncomfortable wearing tefillin, which I’m sure feeds in to my tendency to pray Shacharit late).
I had a long WhatsApp conversation with PIMOJ which was good, as I was worried the relationship was burning out. It turns out she dislikes video calls as much as I do. So that makes me feel better. I told her about feeling burnt out and she was sympathetic, but I didn’t dare to tell her that I was still in pyjamas, and in bed, at 1pm. I realised last night that I need to make more of an effort to be vulnerable with PIMOJ. It’s hard, because she’s understanding, but also very different to me, very outgoing and happy, and I worry about scaring her off with my issues. Being vulnerable is scary. But I think the relationship will only move on if we open up to each other more. I think we’re both hiding some inner thoughts. It’s hard to work out how much to open up and when, though, especially as I didn’t always have good experiences with this in previous relationships.
I wonder how much of my low self-esteem comes from guilt about sex. Religious guilt about thinking about sex, but also feminist guilt about being attracted to women. Did the low self-esteem, guilt and shame start when I hit adolescence? I was shy as a child, but did I have low self-esteem before adolescence? I can’t remember.
Is it hard for any “normal” male (or female? I don’t know) who cares deeply about a traditionalist religion to get through adolescence any more without feeling hugely guilty? Such is the culture clash between highly sexualised, even pornified, Western sexual culture and religious culture. Then there was my first relationship, much of which was spent negotiating what levels of physical contact we were comfortable with (contrary to stereotype, she wanted to be much more physical than I did; she was a lot more experienced than I was too). Whenever I try to think positively about myself, I feel my libido is there to indict me.
It’s weird being thirty-seven and still a virgin, or at least it seems that way from the world around me. Certainly in the Orthodox Jewish world it’s weird and rather pitiable, although no one voices that opinion. In the Western world its weird for for different reasons. I suppose I seem inadequate, or dangerous (the “dangerous misogynistic incel” meme). The first psychiatrist I saw thought I was gay because I was twenty and had never had a girlfriend. I wonder what he would have thought if he could have known I wouldn’t even go on a date until I was twenty-seven.
Maybe it’s different in a religious community that encourages monasticism and religious celibacy. In the Orthodox Jewish community, where early marriage and large families are the norm, I feel this weird pseudo-child, a fact not helped by my autism and mental illness history rendering me childish and helpless more often than I would like. I agree with the Orthodox Jewish prohibition on sex before marriage, but I wonder if I will ever get there — or if, when I do, it will be one more thing that autism renders difficult and uncomfortable for me. Many people on the spectrum struggle with sex for a variety of reasons, usually tied to sensory discomfort or issues around interpersonal relationships. My experiences with my first relationship don’t make this any easier, just adding more guilt and fear.
Now I’m in a relationship, which makes these worries both more and less pertinent: fewer worries of the “No one could ever love me?” type, but more of the “What if she decides I’m too broken?” or “What if I’m just too autistic to do make this work?” type, as well as the specific obstacles our relationship faces.
I’ve mentioned before my asexual childhood fictional heroes (possibly I had already intuited on some level that sex and relationships would be hard for me) have all been sexualised now. Not for the first time, I reflect that the diversity agenda (which I see a lot in librarianship) is, in many ways, not all that diverse.
I feel haunted by the question, “Am I normal?” Haunted both religiously and generally. Also, “Am I good?” I wonder if God thinks I am a good person or a good Jew. These questions are not uniquely related to sex, but they are not absent from it either. I would like to know very much if God thinks I’m a good Jew.
I don’t know if it was a cause or a result of these thoughts, or something entirely unrelated, but today I had a bit of a mid-Pesach slump. Actually, in OCD anxiety terms, it was good: some things that would normally have been very triggering were overcome quite easily, but my mood was low. I just felt down and struggled to get involved in anything. I managed about forty minutes of Torah study, which surprised me, as it was difficult to concentrate.
I went for a run, which was good in terms of pace and moved my low mood a bit, but also refocused the low mood as general angst: “What if PIMOJ breaks up with me?” “What if our relationship doesn’t work out for some other reason?” “What if I never progress past my autism to build a career?” “What if I never get published?” (Published more than I have been already, I guess.) It’s telling that I was worried about not getting published and didn’t even think about a librarianship career.
I do think lockdown has made my relationship with PIMOJ hard, particularly the last few weeks when we’ve both also been busy with Pesach preparation and she’s been working compulsory overtime several days a week and speaking on video, let alone in person, has been almost impossible. Hopefully things will get a bit easier from here on.
In the evening I had a Zoom call with a couple of university friends. It was good, but also hard in parts, partly because I’m not comfortable on Zoom, partly because I feel our lives are very different. One friend teaches in a law school, the other at a university and I feel a bit inferior. On the other hand, they’re really impressed with my novel, but I don’t like to talk about it for reasons I can’t understand. I was trying to say that someone had read the novel and not liked it without saying it was PIMOJ, because I haven’t told them about PIMOJ and don’t want to at this stage. I didn’t want to talk about my autism assessment either and was vague there when talking about bad Microsoft Teams experiences, which I had at my assessment. I don’t know why I hide so much from people in real life. I’m scared of making myself vulnerable, which is probably an issue I have with PIMOJ too. I’m trying to make myself more vulnerable to her and share more, but it’s not always easy. I’m scared of how she might respond. I also had the issue I had yesterday of wanting to know how long the meeting would last. It was a free meeting and so should have been forty minutes, but went on longer, which made me vaguely anxious. All that said, my mood was better afterwards and I’m glad I managed it.
Perhaps because my mood was better after the call, I decided to send the devar Torah (Torah thought, although this was shorter and less textually-based and possibly less well-reasoned than normal) I wrote earlier in the week after all, after having been on the point of dumping it because I disliked it so much. My belief that Judaism is fundamentally anarchist in outlook (not voiced in so many words) is one I have hinted at before, although I’m wary of stating it explicitly for fear of the response it will get. Obviously it’s a different kind of anarchism to that of modern anarchist thinkers, based on individual responsibility and self-restraint.
All day, when my mood was bad, I was saying I would just vegetate in front of the TV. But then I thought I would do some Torah study first and then I would run first and in the end I’ve only watched forty minutes of TV. I wonder if I do more than I give myself credit for, but I haven’t actually done much today, just thought about doing things.
I didn’t have insomnia last night, but I woke late again and felt burnt out and even sugary Pesach (Passover) cereal and coffee didn’t help. Lately I wonder how much of my depression was actually autistic burnout. Some of it was definitely clinical depression, no question, but all of it? I suppose there’s no real way of knowing from this distance.
I had a quiet day again today. I did about half an hour of Torah study, went for a walk and collected my repeat prescription and had therapy on Zoom. We (my parents and I) also went to my sister and brother-in-law’s garden for tea and biscuits after dark now the ban on seeing people outdoors has been lifted. It was pretty warm even before they turned their outdoor heater on. It was good to see them again. I found I was clock watching a bit though. I often do this when I’m with people or at social events. I think not knowing when something will end leads to some kind of anxiety. I suspect this is an autistic thing about wanting control rather than coming from social anxiety or disinterest in socialising because I don’t just do it when “peopling.” Even watching TV I have one eye on the clock to see how much time is left and if I’m streaming something online I will bring up the time left counter even though it’s a distraction from the image on screen.
Therapy was good. We spoke more about my autism diagnosis and fitting into the frum (religious Jewish) community, that maybe I can open up to some people about my autism and why it makes communal involvement difficult for me. Potentially I could speak to the rabbi about it, although, as Ashley suggested regarding “coming out” as autistic in the workplace, it probably would be helpful to come with some suggestions of what practical adjustments I would like (if any) rather than just dumping all my difficulties on him. I do have a lot of fear about autism stigma and ignorance in the community and I’m not sure how many of the adjustments I would like are “reasonable.” In British disability discrimination law, employers have to make “reasonable adjustments,” but not adjustments that are considered unreasonable. I would like people not to bang on the tables to accompany Kabbalat Shabbat (part of Friday night prayer services), for example, but given that it’s an accepted part of the service, particularly in the current COVID climate where loud singing is forbidden, I’m not sure it would be reasonable of me to try to change it.
I did talk about the frum community being generally conformist and not necessarily an ideal place for people who are quite individualistic even without autism or mental illness. I have encountered other individualistic frum Jews online, particularly on Hevria.com, but that site seems fairly dead these days as are many of the Orthodox blogs I used to follow; I think discussion has moved to Twitter and Facebook, where I don’t feel comfortable.
My therapist felt that speaking to the rabbi as a first step might also have the benefit that he will know other rabbis and can see if they have dealt with autistic congregants. My therapist felt that there must be other autistic people in the community. I’m sure this is true, but I suspect a disproportionate number of those diagnosed are young, given the trends in autism diagnosis generally. There may not be so many diagnosed autistic adults out there.
I had an awkward moment at my sister’s where I misunderstood something in the conversation and said the wrong thing, perhaps as a result of losing the thread of the conversation because of autism. My parents have two friends’ with the same name and I got confused about which one we were talking about and said something that would be completely innocuous regarding the one I thought they were talking about, but hugely tasteless about the other one. Naturally it was the other one they were really talking about. Fortunately, I don’t think anyone heard me.
I feel unheard a lot in social situations and wonder if I mumble. I was often told that I did as a child, although I never sounded quiet to myself. On this occasion it was probably for the best, although it is possible that everyone just politely pretended I hadn’t said anything because it was so tasteless.
Given the disruption to my sleep pattern lately, perhaps it’s unsurprising I struggled to fall asleep last night. As I don’t like drinking milk, normally I would eat porridge to make myself drowsy, but porridge is not kosher for Pesach (approved for Passover). I tried eating Pesach cereal with boiled water added to warm the milk, but it didn’t taste great. In the end I sat up watching Babylon 5 to relax, which may have been the problem in the first place – a lack of passive recreation can keep me awake.
I was a bit burnt out on waking. I actually managed to get up earlier than I expected, given that I fell asleep around 4am, getting up at 10ish, but I went back to bed after breakfast and got dressed slowly after that.
I spent much of the day enjoying not doing very much after the busy weeks before Pesach. I did a bit over half an hour of Torah study and spent forty minutes or so writing a devar Torah (Torah thought) that I’m not too happy with. I’ve used some of the ideas before, plus it’s mostly my own chiddush (original insight) which always makes me worry that (a) I might be completely wrong or (b) people might demand something more rigorously rooted in the traditional sources.
I went for a run too. It wasn’t a good one; after nine minutes I came back home to change from tracksuit bottoms to shorts because it was a lot hotter than I expected for late March. Then I got a headache when I restarted, but insisted on forcing myself to continue to 5K as usual. I was worried for a while that I was going to be sick, but a combination of painkillers, cooling strip and a load of water (in case of dehydration) and crisps (in case of loss of salt) seemed to help get rid of hit fairly quickly in comparison with some previous exercise migraines, but it came back later, although not as bad.
I wonder if I have a lot of undischarged anxiety at the moment, perhaps unsurprisingly given the way Pesach ramps up my anxiety levels. It was one of my reasons for going for a run. There may be some unconscious guilt too. Related to this, lately I’ve been thinking about why it’s so hard for me to think positively about myself, why I see it as morally wrong. I think I feel that I’m not good enough to deserve to think positively about myself; that even if I have good points, they are far outnumbered and outweighed by the bad ones; that thinking positively about myself just makes me look down on other people; and that thinking positively about myself stops my personal growth. I’m not sure what to do about this. There does seem to be a part of myself that thinks I’m one bad decision away from becoming a serial killer and that I have to beat myself up the whole time to (somehow) prevent this.
I’m still wondering what to do about my novel, currently sitting in its third draft and waiting for a friend to read it and give feedback. (Despite the title of this post, I’m not currently writing it.) I think my mistake was thinking I could write mainstream literary fiction. I’m beginning to feel I’m more likely to find my voice as a writer of middlebrow pulp fiction, which is what I read (and watch) a lot. Or maybe I’m just not a good writer.
I want to write Jewish fantasy/science fiction/mild horror, which is not a very crowded genre to work in, although I don’t know how many publishers would be interested if there aren’t many readers. My audience would be non-religious Jews and non-Jews interested in Judaism, or at least interested in fantasy and not averse to a Jewish setting and details (like Faye Kellerman’s detective novels set in the Jewish community). I don’t want to preach or go down the Narnia route exactly, but I’d like to deal with some of the questions that face contemporary Jews (or face me) in an exciting setting.
Shabbat (the Sabbath) and the first two days of Pesach (Passover) were, on the whole, good. I wanted to do a blow-by-blow account, but it’s too late and I don’t have the time, so I’ll do bullet points. (I’m also not catching up on blog posts I’ve missed tonight; hopefully tomorrow, but even then maybe not all of them.)
- I saw a beautiful rainbow on the way to shul (synagogue) on Friday night. This got Yom Tov off to a good start.
- Shabbat was weird. (I’m not even going to try to explain how or why Shabbat the day before Pesach is so weird. Sorry, it’s just too complicated. If you don’t know, you might just want to skip to the next bullet point.) We had egg matzah for hamotzi. This is not entirely in the spirit of not eating matzah on Erev Pesach, but I felt the alternative was to eat pita bread and freak out about chametz (leaven) crumbs all through Pesach. I managed to get up around 8.00am to daven (pray) a bit and make hamotzi before the cut off time.
- Having Shabbat the day before Yom Tov gave the whole experience a weird Groundhog Day time warp effect where none of us were sure what day it was, something only compounded by the clocks going forward on Saturday night, when religious Jews can’t change them (because of Yom Tov) — except that some modern clocks adjust themselves, so on Sunday and Monday we kept having to check what time it was on different clocks to work out what time it really was.
- The sederim went pretty well. Even though there were only three of us (me, Mum and Dad), we had some back and forth of questions and suggested answers. I learnt some things, which was good. We had a good pace, not too fast or too slow. I do feel I’m too old to look for the afikoman, especially alone. I didn’t mind saying the Mah Nishtanah (the Four Questions, traditionally said by the youngest person present), and sang it, something my sister generally refuses to do. I do feel sorry for people doing solo sedarim though.
- My OCD anxious thoughts were mostly under control, more so as time went on. I am still struggling with a few thoughts intermittently. My rabbi mentor is usually uncontactable during Chol HaMoed (the intermediate days of the festival) and won’t talk about Pesach after the event, but I have some questions to ask him for next year.
- I went to shul a few times. This occasioned some social anxiety, although I pushed through it, as well as discomfort (feeling suffocated) from wearing a mask too long.
- I read a bit: more of Seder Talk: The Conversational Haggadah by Erica Brown, the Haggadah I used at the seder this year (it has eight essays, one for each day of Pesach); a bit of Grant Morrison’s Batman arc; and Anno Dracula 1918: The Bloody Red Baron, Kim Newman’s follow-up to Anno Dracula, itself a spin-off from Bram Stoker’s Dracula, positing a world in which Dracula was not defeated and became Prince Consort of the British Empire. In the sequel, expelled from Britain, Dracula becomes Commander-in-Chief of the German and Austro-Hungarian armies in World War I. One hundred pages in, not a lot has actually happened, but the “vampires in spiked helmets” imagery is strong and there are lots of cameos from real and fictional figures from the early twentieth century.
- I think I feel more comfortable in my head at the moment. I’m OK sitting with myself without reading, watching TV or listening to music. On Friday and today I got exhausted and took time out just to lie on the bed silently. I think I need to decompress from sensory overload more than I realised in the past, or maybe I actually need to do it more often as I get older. I’m wondering if I should set a “No screens for the first half-hour after I get home from work” rule so I can decompress properly. I’ve been feeling lately that I want to be on my computer less, but unsure how to do it when my main social interactions are through the internet: my blog and other people’s.
- I went for a walk today without a coat or jumper. Spring is finally here.
- It occurred to me today that so many of my thoughts about not fitting into my community because I don’t feel I’m appropriately religious (Haredi) might actually be about not fitting in because I’m autistic. I realised that while I have a few possibly mentally ill Jewish hero figures (with the usual caveats about trying to diagnose people who have been dead for centuries), I don’t have any high functioning autistic Jewish heroes and its hard to find my place in the community without them. I know there are not many female role voices and models in Orthodox Judaism but there isn’t a single autistic one.
I’m pretty burnt out, which is why I’m writing with two hours until Shabbat (the Sabbath). Fortunately I’ve done all my chores, but I wanted to help my parents more. We haven’t laid the seder table yet.
I woke up feeling burnt out after everything I did yesterday and only managed to get up when PIMOJ phoned me at 10.00am. I managed to get going and do various Erev Pesach (day before Passover) chores that have to be done today because actual Erev Pesach is Shabbat. I did a lot, but by 3.00pm I was struggling. I’m just totally out of energy (or spoons, if you want to go that route). I booked to go to shul (synagogue) tonight, but I’m not sure I’m going to manage it. I just want to sleep. Actually, I just want to vegetate in front of the TV, but that’s not an option for the next seventy-five hours or so. I’ve also cut myself on the edge of the thick aluminium foil we covered the edge of the kitchen sink with.
In terms of OCD, I’ve been worried about a lot of stuff. However, I’ve mostly got the worries under control quite quickly. I resisted the temptation to message my rabbi about a worry too. So I’m probably not drifting into actual OCD, I’m just getting spikes of anxiety that I can slowly bring under control, always with a residual sense of “I hope I’m doing the right thing and don’t really need to ask a shayla (religious question)…”
I’m going to eat something, read for a bit, and try to get the energy to shower and go to shul.
Chag kasher ve’sameach to those celebrating!
On the day before Pesach (Passover), it’s customary for first-born Jewish males to fast, in memory of the plague of the first-born in the exodus story. The custom has also arisen to get out of this fast (unlike other fasts) by attending a siyum a religious celebration, usually for finishing some religious study. When Pesach starts on a Sunday, this all gets pushed back to the Thursday beforehand. This is why I got up early this morning to attend a siyum on Zoom. I decided it wasn’t realistic for me to go to shul (synagogue) for this. I couldn’t sleep last night, but even before that, I thought I was too tired to manage it. I don’t know what I would have done in a “normal” year, but this year there is still COVID, so I attended virtually. I didn’t manage to get up early enough to pray beforehand (the siyum is usually immediately after the morning service) or even to get dressed; I just got up and switched on my phone, leaving the camera switched off as I sat there in my pyjamas.
After I managed to eat breakfast, get dressed and pray, I hoovered my room and went for a walk. My mood dropped quite a lot while out. I was feeling negative (depressed and anxious) about Pesach, but also about my writing. Coming home and eating lunch helped quite a lot. Tiredness and low blood sugar can push my mood very far down, very quickly.
In the afternoon I made the charoset and baked cinnamon balls (biscuits). I was pretty exhausted after that, and after my anxiety got pushed up by something that happened, so I had to take time out to watch Babylon 5 to try to regain my composure.
Then came the worst task of the year: kashering the kitchen sink i.e. getting it ready for Pesach by pouring boiling water over it to remove any trace of food. The difficulty is that it has to be boiling water not boiled water, i.e. poured within just a few seconds of the kettle turning off. And it has to reach the surface of the sink (bottom, walls, drainer, taps) from an area of a couple of inches of where the spout hits the sink, or it will have cooled off too much. And ideally you should do it in one go.
I don’t know why I find it so hard. My rabbi mentor and my parents’ rabbi have both said it’s easy. Mashgiachs (kashrut supervisors) do it all the time. But something – perhaps some autistic body coordination problem, the reason I’m awful at ball games? – stops me doing it. Of course, OCD kicks in too: after two or three seconds I stop, convinced I’ve spent too long pouring when I probably still have a second or two to keep pouring.
Whatever the reason, I can’t do it in one go. I take seven or eight, maybe more, doing the drainer and taps, than the base of the sink, then the walls one by one, sometimes repeating bits I’m not happy with. This time I got to the end and couldn’t remember if I’d done the side nearest me. I was 80% sure I had, but not 100%. I decided 80% would have to be good enough; do it again, and I’ll be there all night doubting myself, redoing bits, fuelling the OCD. My rabbi mentor says I only have to get 51% of the sink for it to be considered done. I have no idea if I managed that. We put a plastic bowl in on Pesach anyway, which is a useful belts and braces approach.
It didn’t help that Mum and Dad were in and out of the kitchen the whole time while I was doing this, which just made me feel more awkward. I felt pretty rotten afterwards, not sure if I’d done the right thing and feeling undischarged anxiety pent up inside me. I hate this job, but I worry my parents wouldn’t do it the way I would like, so I have to do it myself.
I appreciate that this is probably very far from what most people would see as the place of religion. For what it’s worth, I feel that if I do this every year, despite hating it, purely because it is what God wants, according to the rabbis, then that is a kind of sacrifice.
Even this was not the end of the day. After dark, we did the traditional search of the house by candlelight for chametz. We were all pretty exhausted and not in the best temper. Usually this would be done on the night before Pesach, but that’s Shabbat (the Sabbath) this year, so we do it earlier.
With all of this, it’s probably no surprise I barely managed ten minutes of Torah study. Hopefully I can catch up over Pesach.
I feel that maybe I shouldn’t talk about OCD thoughts and anxiety here. Or at least, it’s hard to know what to say about them. They aren’t anywhere near the intensity of when my OCD was at its height a few years ago. Although I would like to hear from my rabbi mentor about one or two things, I’m mostly feeling OK, although something happened today that (frankly) freaked me out for five or ten minutes into stronger anxiety. Everyone has OCD-type “weird” thoughts all the time. The difference is that most people dismiss them easily, but people with OCD fixate on them and worry about them and their implications. I’m not at the OCD end of obsessing about things endlessly, but I’m not at the point of just brushing things off either.
The problem is that checking is bad for OCD, as it just fuels it. You can never be 100% certain, so checking just encourages double and triple checking. In Orthodox Jewish culture, it feels normal to check questions with a rabbi, particularly at Pesach, when the dietary rules are so different from the rest of the year, but that’s counter-productive with OCD. It’s hard to know what to do sometimes. I’m just trying to focus on trying my best and hoping that’s enough, but sometimes it doesn’t feel like it would be.
Ashley pointed me in the direction of this article on autistic burnout. I found it interesting that it sees burnout as being long-term, over a period of weeks or months. I have probably had burnout like that (possibly some of my depressive episodes were actually major burnout), but I experience extreme fatigue and desire to withdraw also on a regular basis for short periods (days or even hours). I certainly agree that burnout can cause loss of skills. I am fairly sure I lose skills in the short-term when burnt out, and I suspect I have lost skills long-term too, particularly my librarian skills. I also seem to make more mistakes in writing than I used to (wrong words, apostrophes), and find it harder to spot them. I used to be a good proof-reader; I’m not sure that I still am.
I’m not sure if I’ll get the time to write tomorrow. It’s not technically Erev Pesach (the day before Pesach), but as Erev Pesach is Shabbat, most of the usual Erev Pesach tasks get done tomorrow. It’s the busiest day of the year and I don’t know if I’ll get time to write. And then I’ll be incommunicado until Monday evening! I’ll be glad to actually get to Pesach after such a stressful build up.
I woke up at 9.30am, but didn’t feel well enough to get up until nearly 11.00am. I don’t know if autistic burnout is my least favourite part of autism, but it’s up there. The hardest thing is not really having a clear conception of it (I haven’t seen much written about it) and blaming myself for laziness even though I know, on some level, it goes deeper than that.
I planned a busy afternoon and early evening of Pesach preparation, but forgot and in some cases did not know, that other stuff would be happening and had to delay while people got out of my way or I got roped in to helping them. We had our burglar alarm serviced today, which was not a good idea (not mine).
I actually did quite a bit: kashered the hob (put pots on it and heated it up to purge it for Pesach, then covered the grates with aluminium foil), thoroughly cleaned the kitchen sink so I can kasher it tomorrow, put away the non-kosher for Pesach over-the-counter medicines (most medicine is kosher for Pesach, but soluble tablets or stuff with taste like throat sweets and cough mixture is problematic) and went for a half-hour walk. I spent some time writing my devar Torah (Torah thought) for the week too, which is good, as I didn’t think I would get it written this week. My other Torah study was listening to a recorded shiur (religious class) while I ate dinner. I was too tired to read any more of my new haggadah.
Writing this down, it doesn’t seem like I did so much, considering how close it is to Pesach, but I got roped into a few other chores too and some of these things had preparation time, so by the time it got to 6.30pm I was ready to drop, even if I hadn’t made the charoset (the thick dip eaten at the Pesach seder) which I had hoped to do today.
There were a few things I did for Pesach that were not necessarily done the ideal way. This makes me worry a bit, in terms of religious OCD worries about things being done perfectly, but I’ve been trying to just push through my OCD fears. It is draining, though, and probably does contribute to my exhaustion. It’s just another thing for me to be juggling. I also feel sorry for my rabbi mentor who still has to put up with nervous WhatsApp messages from me checking that I’ve done things correctly.
I haven’t seen PIMOJ for a while. I’m actually not sure how long, which is bad of me. We couldn’t see each other for ages because of lockdown and mutual Pesach stress, plus she’s having to do a lot of overtime at work lately. We were going to meet next Wednesday, but it turned out I was double-booked with my sister and brother-in-law. I thought we were seeing them on Tuesday, but it turns out to be Wednesday. PIMOJ was very good about changing the date. I’m seeing PIMOJ on Monday 5 April (bank holiday). At least we’ll be able to stay out all afternoon with Pesach stress over (I will be naughty and leave some of the post-Pesach tidying to my parents).
I got up a little earlier today, arguably not as early as I needed to, and need to do for the rest of the week, but a bit earlier. My main achievement of the day was cooking almond macaroons for Pesach. It took quite a while, although the recipe is easy, because I didn’t know where all the stuff was in the garage (which functions as our Pesach kitchen, or part of it – it has sinks, fridge-freezer and cupboards, but no oven or hob) and because I was the first person in our house to do Pesach cooking this year, so everything was still boxed up after last year.
The biscuits turned out OK, although I’m worried they will fall apart when we take them off the baking paper. However, I had a big shock when I opened the oven to put the biscuits in: a blob of brown goo like cake mixture on the door of the oven and matching splash mark on the floor of the oven where it impacted. I went into panic mode thinking we had somehow let chametz (leavened) food into our oven after it was cleaned and/or kashered, rendering it unusable for Pesach. I sent some panicked texts to my rabbi mentor. After I calmed down, I looked at it again with my Dad and we both felt it was extremely unlikely that the professional oven cleaner missed this or that chametz somehow got into the oven after it had been cleaned. The most likely explanation is that a dollop of oven cleaning chemical stuck to the door of the oven when the oven cleaner cleaned it, and when the door was shut it dripped down the door and splashed at the bottom. I decided to act as if it was all OK and baked the biscuits. My rabbi mentor later said I did the right thing. I guess the good thing is that I didn’t freak out with religious OCD about it, at least, not for more than a couple of minutes.
I was pretty exhausted after that. I walked to the shops with my Dad, which I didn’t really want to do, as I was tired, but I said I would help him carry the milk home. My Torah study for the day was listening to an online shiur. I started writing my devar Torah for the week while cooking dinner (it was vegetarian kedgeree, which doesn’t require much active work once the rice and eggs are cooking, so I can sit nearby and type). I feel it’s a bit lightweight, but writing one this week is hard with so much Pesach stuff going on. I thought of finishing writing it after dinner, but decided I was too tired and left it for tomorrow. I would have liked to have baked more biscuits (cinnamon balls), but ran out of time and energy. Oh well. Perhaps from misplaced guilt, I polished more of the silver while watching This is Us, but I ran out of energy long before the end.
I want to do more than I was able to do (again). I feel bad, because I wouldn’t be able to make Pesach without my parents doing a lot, but then, I wouldn’t get through an ordinary week without my parents, at least not easily. Despite supposedly being recovered from depression, I couldn’t survive without their help, even without the financial question of how I could support myself on two days of work a week. I feel that, aged thirty-seven, I ought to be more self-sufficient, but I’m not and maybe I never will be, and that’s something I somehow need to come to terms with.
The Talmud states that no one dies with even half their desires fulfilled. It’s tempting to read this as no average person dies with half their desires fulfilled, but I think it applies to righteous people too. It’s just that their desires are nobler. I don’t know if I’m righteous, but I feel this a lot, that I don’t manage the Torah study and prayer and chesed (kindness, in this case helping around the house) that I would like, and maybe I never will.
I think today was an OK day that I nearly turned into a bad day by trying to fix it badly.
Work was OK, but dull, mostly going through old papers to see if I could throw them away. Looking at the paper trail left by office politics and arguments from a decade ago feels both voyeuristic and depressing – events that clearly angered people to the point that legal action was considered has now left no discernible trace, except for a few letters that have now gone in the bin. It really will all be the same in a hundred years.
I feel that my Pesach (Passover) religious OCD has really kicked in. I’m anxious about a couple of Pesach-related things. However, my parents don’t think I’m much more anxious than the last few years. To be fair, I’ve been a lot worse in the past, I just thought I was over this. I thought Pesach didn’t make me anxious any more, or not this anxious. Maybe it’s not something you are ever “over” just as getting over depression doesn’t mean you won’t have days when you feel depressed.
I got back from home fairly early and decided I would go for a run. This was where I wanted to fix the day. I thought exercise would help shift the OCD anxiety and boost my mood, but it went a bit wrong. I didn’t manage my usual 5K run because my foot hurt. I also got tired, probably because I’d already walked a lot today (to the station and then to the bank and back at work). I probably continued running longer than I should have done, given that my foot was hurting. So I came home feeling tired and down rather than tired and satisfied.
Possibly on an unconscious level, going for a run was influenced by having a bad body image day. I don’t have particularly great body image (does anyone?), but I don’t really think about it much either, except when I see myself in the mirror getting in and out of the shower. I’m on the fringes of being overweight, and have been since being put on clomipramine, but I’ve learned to accept it (sort-of) as the price I pay for a medication combination that keeps me reasonably well. But today I was just feeling fat. It’s not exactly an easy time of year from a healthy eating point of view, as we try to finish all the leftover chametz (leavened) food and then spend eight days eating matzah, which is pretty fattening, especially as you have to eat it with something (butter, cheese, jam, etc.) which makes it more fattening.
I did feel somewhat better after dinner, just very tired and apprehensive about the rest of the week. I’m not sure why this Pesach feels so hard. It’s a lockdown Pesach, but so was last Pesach, and last Pesach Mum was undergoing chemotherapy and while the prognosis was good, we had no way of knowing that it would ultimately be successful. The stakes should feel a lot lower this time. I guess there are a few factors that make this Pesach hard: it starts on Saturday night, which adds a whole load of hassle for reasons that would take a long time to explain (just trust me, it’s not good); I’m working for the first time around Pesach since 2018 (I’m glad that J basically told me not to come in on Thursday, which is a big help); and I have a girlfriend for the first time since I broke up with my first girlfriend on Pesach in 2013 (that was a bad Pesach), which is good, but adds a lot of stressful thoughts about how we can meet during lockdown and how the relationship is going and whether we will weather all the difficulties inherent in it. I think what I’m saying is that this is a Pesach where I’m juggling a lot of non-Pesach-related balls along with the usual Pesach ones, in a way that I haven’t had to do for a while (even last year when Mum had chemo it didn’t impact me so much personally, except that I did a bit more cooking).
I made a tactical decision not to do any more Torah study after dinner, even though I had only managed about thirty-five minutes today and worry I won’t finish the haggadah commentary I’m reading before Pesach. I thought that trying to study more would just deplete me and make me feel worse. I watched Babylon 5 and helped Mum and Dad by polishing some of the silver, although I was too tired to do much of that.
So it was an OK day in the end, but I nearly tipped it over to a bad one by trying to hard to turn it around. There is probably a message there.
It’s weird. I don’t think I have a particularly punitive view of God. With other people, if they do even very slightly good things (religiously speaking), I praise and encourage them. And I genuinely believe God will look favourably on them. I don’t know who exactly gets in to Heaven, but I know I don’t believe in a God who condemns billions to eternal suffering. And yet. It’s so hard to take the view of, “I do the best I can and leave the rest to God” as at least one rabbi encouraged me to do.
I think I’m a person who fears sin. This is a concept in the Talmud. It’s very different to a person who fears punishment. Fearing punishment is a low level, kind of the lowest level of doing the right thing, just doing it to avoid being punished. Fearing sin, on the other hand, is much higher, a sensitivity to the spiritual consequences of apparently trivial actions.
The way it seems to me is like I’m in a palace made of delicate crystal or even ice, representing the world as it exists on a spiritual level, not necessarily the spiritual universes described in kabbalah (Jewish mysticism), but a metaphor for the way the life prescribed by Judaism creates a way of life with tangible effects in the physical world. Moving without the correct attention, as laid out in the Torah, risks cracking or even breaking off the delicate ornamentation. Do enough wrong and the fabric of the building is at risk.
Switching metaphors, I also fear the consequences for my relationship with God of transgressing His word. Even if I do it unintentionally, I worry if I could have tried harder or found some other solution. I don’t want to risk cutting myself off from Him, which is cutting oneself off from life, as God is the source of life. The thought of doing that is horrifying. This is why Pesach is such an ordeal, because the punishment for eating chametz (leaven) on Pesach is karet, being “cut off” from God (probably referring to losing one’s share in the next world and possibly to premature death in this world too; it’s debated among the authorities). The fact that Pesach is once a year doesn’t really help. Shabbat is a major commandment with a serious punishment too (I actually wrote a devar Torah on this recently; the Talmud says keeping – or breaking- Shabbat is equivalent to keeping or breaking the entire Torah), but it comes around every seven days, so I get a lot of exposure therapy that means that most of the time I can enjoy Shabbat without thinking of the potential consequences of error. But Pesach is once a year, so I don’t get much exposure therapy. (Although the thought of doing Pesach once a week is pretty terrifying!)
OK, considering I didn’t think I had enough material for a post today, this has got too long. I don’t feel tired enough to sleep, but I think I’ve had enough screen time for today (or will have soon, as PIMOJ asked me to text her about my day).
I couldn’t sleep last night. I had slept during the day, I often struggle to sleep after a migraine, and the migraine itself meant that I didn’t take my antidepressants until after midnight, and I usually rely on them to knock me out, so it wasn’t a surprise. Still, it was frustrating not to fall asleep until 4am. I did get up about 10am today, which was good, as there was a lot of Pesach cleaning to do.
The cleaners we booked to come in addition to our usual cleaner to do a lot of basic cleaning downstairs before Pesach have cancelled two weeks running now, so we’re having to do more. I appreciate that “Our cleaners – and not regular cleaner, just our Pesach back-up cleaners – have cancelled” is probably the epitome of middle class first world problems. There’s a global pandemic, the worst recession in centuries, genocide in China, a coup in Myanmar etc. Cleaners cancelling is not a big deal, even a week before Pesach. To be honest, I’m a bit glad: if this is the worst of our Pesach trouble, we should be OK.
I’m not sure how long I cleaned for, probably about two hours. I also managed a walk and some Torah study, and Mum cut my hair, but I would have liked to have done more cleaning. I ran out of time and energy. I wish I knew why my energy depletes so quickly. Possibly I’m just getting older, although I don’t hit forty for a couple more years. I did speak to PIMOJ for over an hour, which was good, although would have liked to speak more had I not been conscious that it was getting late and I have work tomorrow.
As the day went on and my stress levels increased and I got tired and hungry, I became more prone to religious OCD-type thoughts again. They are essentially contamination fears about our food, only with the fear being about religious contamination (non-kosher contamination into kosher food; chametz (leaven) into Pesach food) rather than germs. It’s frustrating and I worry what state I will be in by the end of the week, but I did mostly cope OK even if I want to check some things with my rabbi mentor. One book I have on “pure O” OCD (obsessive thoughts without compulsions including religious OCD) is called The Imp of the Mind and it does feel a bit like this external monster stirring up my thoughts when I’m stressed and hungry.
It’s tempting to want to carry on cleaning or doing Torah study and/or seder preparation late at night, but deep down I know I need to unwind a bit or I’ll be a mess tomorrow, emotionally and possibly physically too. It’s hard to see watching TV as necessary and justified even though it probably is. This is the first year I’m juggling Pesach and paid work and a relationship, so maybe it’s not a surprise that I’m a bit more stressed than usual even without lockdown complicating things further.
While cleaning I Want to Break Free by Queen came on my ipod on shuffle. That would seem appropriate anthem for this Pesach on so many levels: the usual Pesach level of the story of the exodus, the usual Pesach cleaning, lockdown, trying to stay free of OCD…
I finished reading Contact last night. I’m glad I stuck with it, as it did get better, and the end was more open to religion than I expected, but I do wish non-religious writers wouldn’t assume that all religious people think like Bible Belt Evangelicals. Also, I now have a serious space issues on my bookshelves. I could buy another bookcase, but I couldn’t fit it in my bedroom easily, and I already have most of my Jewish books downstairs in the dining room on one of my parents’ bookcases.
After my headache subsided last night, I said the prayers I had skipped when I was feeling sick. The Ma’ariv for Motzei Shabbat (Evening prayers for the evening after the Sabbath) contain a long anthology of verses of blessing for the new week and finish with a Talmud passage to start the new week with Torah study. It says (Megillah 31a, translation from the Chief Rabbi’s Siddur):
Rabbi Yochanan said: Wherever you find the greatness of the Holy One, blessed be He, there you find His humility. This is written in the Torah, repeated in the Prophets, and stated a third time in the Writings. It is written in the Torah: “For the LORD your GOD is GOD of gods and LORD of lords, the great, mighty and awe-inspiring GOD, who shows no favouritism and accepts no bribe.” Immediately afterwards it is written, “He upholds the cause of the orphan and widow and loves the stranger, giving him food and clothing.” It is repeated in the Prophets, as it says: “So says the High and Exalted One, who lives for ever and whose name is Holy: I live in a high and holy place, but also with the contrite and lowly in spirit, to revive the spirit of the lowly, and to revive the heart of the contrite.” It is stated a third time in the Writings: “Sing to GOD, make music for His name — and exult before Him.” Immediately afterwards it is written: “Father of the fatherless and Judge of widows is GOD in His holy habitation.”
What struck me yesterday is that the verses about humility have very little to do with what in English we would think of as humility. Rather than being about putting yourself down or avoiding praise, they focus on hesed (love, kindness) and tzedakah (charity, justice, social justice). This would seem to indicate that humility is more about openness and care for others than anything about the self; if anything, it is putting aside thinking about the self (either in either a positive or negative way) and focusing your attention on the other.
Rabbi Twerski z”tl also said that humility is focusing on others, while pride is focusing on the self. Also that pride is past-focused (“I did X”) and humility is future-focused (“I will do X”).
I struggled with burnout again on Friday, but forced myself to do my usual pre-Shabbat (Sabbath) chores, as well as thoroughly hoovering and dusting my room for Pesach, including moving my bed and bedside table to hoover under them (not my desk though – too heavy, and food is unlikely to get under it as the three exposed sides are flush with the floor). At least that’s out the way for now; I won’t eat food (other than water) in there now until after Pesach.
I embarrassed myself phoning the hospital about the report from my autism assessment. I had misunderstood when it would be available, which turns out not to be for another two or three weeks. I was very apologetic to the secretary for wasting her time, but I felt bad.
Shabbat (the Sabbath) went well. I went to shul (synagogue) on Friday night. We davened Kabbalat Shabbat (said some of the Evening Prayers) outside so that we could sing. It was good to sing, but very cold, even if Saturday was the first day of spring.
I got up earlier than usual on Saturday morning, although I went back to bed after breakfast and dozed for a bit. I napped in the afternoon too, which I didn’t want to do. I didn’t do much Torah study, partly because of napping, partly because when Shabbat went out I got an awful migraine that took hours to shift. I didn’t even feel up to saying all of the Ma’ariv (Evening) prayers; usually I somehow soldier on, but I skipped the after Shabbat verses of blessing because just reading made me feel like I was going to throw up. This is an improvement, as in the past I would carry on. The last time I had a bad headache when davening (praying) was on Simchat Torah, when bowing at the end of the Amidah prayer actually made me throw up. Perhaps I’m willing to make more excuses for myself now.
I spent much of the evening wrapped in my weighted blanket, watching Babylon 5 (hence the title of this post from one of the episodes, used in a rather humorously melodramatic way). The painkillers I took finally kicked in, along with the cool and soothe strip. I feel a bit tired now, but not particularly sleepy. I’m going to have something to eat (I need to take my antidepressants with food) and maybe go to bed. My room is freezing cold; I opened the windows wide before as I prefer to be cold if I have a migraine, but I wonder how I will fall asleep now.
I’ve been missing PIMOJ a lot lately. I realised that I experience this not as pining after her the way I pined after various crushes in my earlier life, but in worrying that she will lose interest in me, that I’m not good enough for her and so on. I’m not sure what to do about this. Hopefully we can meet after Pesach or maybe even during it. We had a text conversation tonight, a bit more in-depth than either of us has had the time or energy for this week, and we’re hoping to speak tomorrow.
It’s strange thinking that not only do I now have autism, but I have had autism all my life, even when I was a child doing well at school. It still seems a little strange how well I did at school compared with how badly I’ve done since then, but school was a strange micro-environment, plus “doing well” is relative, as I had undiagnosed depression and anxiety when I was in the sixth form and maybe earlier, and I struggled a lot socially, with bullying and (not) making friends. I would do a lot differently if I knew what I know now, but it’s too late. Still, the thought of being autistic and still doing well academically seems slightly jarring, even though many people on the spectrum are the same. I wish I could identify how I succeeded then and work out how to apply it now, but the answer seems to be to seek out opportunities for rote memorisation of lists and tasks, focus 100% on work with no social or romantic life, and concentrate very hard on doing what I’m told, which does not necessarily make for a healthy adult life.
I was looking over Shabbat at a new haggadah (Passover prayer book) commentary I just bought. It has open questions to stimulate discussion at the seder service. Many of them ask the participants to think about major life events. I keep coming back to my autism diagnosis for so many of these questions. I definitely haven’t worked it through yet.
I search for the truth, in what I suppose is a very old-fashioned way. I took a decision at some point, initially unconsciously, lately very consciously, not to cut out of my life people I disagreed with purely on matters of religion or politics. I feel that this is unusual. I try not to read material that is just supporting my views, although it’s hard to find the time to read things from “my” side let alone other opinions in depth, and naturally I prioritise material I think is going to be more accurate which correlates with material I agree with. But I do tend to try to work out what the other side thinks, more or less automatically, probably a hold-over from my university days, where my essays tended to sit on the fence and examine both sides of the issue without really being drawn to one over the other. Anyway, I feel that this behaviour is unusual and most people do not do this. I’m not sure what to think about this.
(Title quote from Amateur Hour by Sparks)
Today was not good, although I suppose it could have been worse. But I felt overwhelmed (my new keyword) most of the day. I overslept this morning. Actually, I didn’t oversleep; I was awake, I was just too tired to get up and then suddenly it was half an hour later and I had to rush. On the way in to work I felt overwhelmed and anxious: about Pesach (Passover), about autism, my relationship, my life, and the guy opposite me on the Tube not wearing his mask so he could drink beer 9am. (I’m open to the idea of beer-drinking at 9am being OK for some people, but I don’t consider it sufficient reason to remove one’s mask.)
At work I made mistakes, and also discovered mistakes made earlier e.g. the stationery order I placed on Monday arrived and I discovered that I had ordered one ream of printer paper instead of one box as J, my line manager, had requested. There were other mistakes, and J noticed some of them. He didn’t say much about it, which is good, but also makes it hard for me to judge how satisfied he is with my work. I think there tends to be a programme running in my head all the time wondering about that.
At lunch J asked what book I was reading, the first time he’s shown any interest in my lunchtime reading. Perhaps because my interests were the focus of much childhood bullying, I tend to get really nervous about talking about my interests with anyone outside of narrow “boxes” – so I only feel comfortable talking about Doctor Who with people I know from fandom, only talk about Judaism with other frum (religious) Jews and so on. (Somehow the internet is OK to share and overshare all kinds of stuff, don’t ask me why.)
In the afternoon, J got me to start going through old papers from the office, the start of a long clear out. I tend to be a hoarder with my own papers and property, but if I’m not responsible for the articles in question, I end up wanting to throw everything away. I asked J about a lot of the papers and he told me to keep a lot of it, so I’m not sure how much autonomy I’ll actually have over this task. To be honest, I’m not terribly keen on having autonomy over other people’s things. I did throw away a load of invoices from before 2010 that were unlikely to be used again, but I do feel vaguely apprehensive thinking about it. Unfortunately, it was a dull task that did not use much of my brain and I got stuck in negative thoughts and feelings again and wondered if I am becoming depressed again.
My Mum said that I should tell J about the autism diagnosis. I’m reluctant to do so, partly I admit because J is a friend from before when he gave me the job. I mentioned above about compartmentalising things, and I’ve been reluctant to tell people from shul (synagogue) even about my depression history, let alone something like autism that is understood and accepted even less well than depression. If I do that, I would want to prepare what I would say about autism (if people ask me suddenly I tend to blank and struggle to articulate the symptoms, let alone how it affects me personally) as well as what adjustments, if any, I would want.
That was not the end of the day. The journey home was stressful, with a lot of traffic. I don’t know why sitting in traffic is stressful. A half-hour journey with heavy traffic seems more stressful than a forty-five minute with no traffic. So I came back pretty frazzled, only to be thrown into dealing with Pesach OCD stuff. I’m OK, I know things are OK and I’m not falling back into serious religious OCD, I’m just trying to stay calm and cope with things. My OCD is always worst when I’m hungry and tired and I was both of those things when I got home from work. It’s OK now.
PIMOJ haven’t been able to meet much recently, not that we can really go anywhere at the moment anyway because of lockdown. She is doing a full-time job with significant compulsory overtime two nights a week, plus she’s doing a degree and getting ready for Pesach. At least once the clocks go forward we can buy coffee or takeaway dinner after work and eat in a park, but at the moment it still gets dark too early. I know she’s not avoiding me, but I miss her and I still worry about the stress it puts on our relationship.
So, now I write, write, write, because it helps to get things out of my head and process them. I’m only writing on my blog, as I’ve put my novel on hold until I can show it to someone, which won’t be until after Pesach. To be honest, I’ve lost faith in it. I’d be tempted to start working on a different novel that I’ve been thinking about (is that writing bigamy? Or cheating?), but it requires significant research, both factual (details for the setting) and literary (reading other books in the genre) and I don’t have the time or headspace for that at the moment.
I feel too exhausted to do any Pesach preparation or further Torah study tonight. Yesterday, I said on my blog that I was going to watch more TV, but then felt too tired to actually do so, so I’m not going to do anything as reckless as say I’ll watch TV now. I feel tired, but I want to unwind more before I go to bed. I guess it’s a race to see if I can stay awake long enough to read or watch Babylon 5.
Today I feel less burnt out than yesterday, but still subdued and struggling to do things, like I feel after a migraine. I would be tempted to take things easy, but it’s a week and a half until Pesach and I can’t really afford to do that.
I went out and did some shopping and spent well over an hour writing my devar Torah (I wasn’t sure I would have the time or energy this week) as well as doing a few small, but time-consuming, Pesach chores. However, my Dad cleaned the sinks in the garage that we use for Pesach, which was supposed to be my job yesterday; I was too tired yesterday and did not have enough time today. I vaguely feel I should do more things around the house.
The other important thing today was therapy. We spent a while talking about my autism diagnosis and what it means for me and my sense of self. We spoke about coming to terms with it being like grieving in a way and about whether I can use it as an opportunity to work on self-regard, which I feel very nervous about as I tend to assume that any positive self thoughts will lead to narcissism. In my head, someone gave Donald Trump (for example) too much praise as a child and now he has an ego the size of a planet, and I worry about that happening to me.
After therapy I found myself getting sucked into low mood and anxious thoughts again, some about my relationship and whether it can survive several more months of COVID, let alone other stresses. Then it segued into general feelings of gloom and impending doom. I found myself thinking about bad things I’d done in the past and being sucked back into bad experiences from childhood.
I really want to crash, but, again, there are things I have to do e.g. I told Mum I would do ironing and polish the silver over the next two days. I will do the ironing and watch The Simpsons, which I haven’t seen for years. Twice in the last twenty-four hours or so I thought about the episode The Mysterious Voyager of Homer, so I figured that, as I currently have access to it on Disney+, I might as well watch it. And then maybe another Babylon 5 episode before bed; I don’t really feel up to reading.
Today the oven cleaner (that’s a person who cleans ovens, not a spray) came to clean our ovens before Pesach. From here on in, things become increasingly Pesach-related and stressful for the next week and a bit. It feels increasingly “real” as we get past more pre-Pesach milestones (clean fridges, buy Pesach food, clean ovens, kasher ovens etc.). My rabbi mentor said that everyone’s entitled to one pre-Pesach meltdown, and I wonder how I can cope with that (my parents’ as much as my own).
Today was an out of spoons day. I felt very burnt out, probably no surprise after a busy day Zooming shiurim (religious classes) on Sunday and then work yesterday. I’m glad I wasn’t working today, but had a lot of Pesach (Passover) stuff to do and didn’t really want to get up as late as I did. Even when I got up, I was very tired and struggled to get going. I went back to bed for a bit after breakfast, just enjoying being in the dark and quiet and not being over-stimulated. I hoped I would feel better after lunch, but I just wanted to eat and watch TV. It’s a bit easier to give myself permission to be burnt out now I have my autism diagnosis, but it doesn’t help when I have external deadlines to meet, in this case Pesach in under two weeks!
Probably because of this, I felt some Pesach anxiety. When I break down what needs doing into individual tasks, I feel a bit better, but just thinking about EVERYTHING that needs to be done is daunting (and the amount I’m actually doing is pretty small in comparison with what will be done by my Mum and the paid cleaners, not to mention the guy who takes our oven apart to clean it). I’m also a bit worried about the Shabbat (Sabbath) the day before Pesach. For complicated reasons, this is very difficult and I’m particularly worried about burnout and missing deadlines for things that need to be done in the morning, although I have back-up plans for some of them.
I also miss PIMOJ. It’s hard not seeing each other in lockdown. At least we can meet outdoors now, but as she works full-time it’s still difficult as it’s too dark to go to the park at 6pm and we can’t go indoors to cafes or restaurants. Plus, we still have the practical obstacles to our relationship to negotiate, which I feel hang over the relationship a bit, even though we can probably overcome them. I’m trying to be honest with PIMOJ about my autism and sometimes precarious mental health, but I do worry about scaring her off, even though I don’t think she would leave me over that (not least because she would have done it already if she was going to).
I’m still thinking about my autism diagnosis. Maybe there’s a Kubler-Ross grief thing happening, although I’m not sure if I’m still on anger or sometimes on depression. I guess I feel that I know who I am now, and that to some extent explains or even excuses things I’ve done (or not done), but also I wonder just how much can I live with this or even change it, or am I locked into a predestined life forever (worth thinking about in the run up to Pesach, the festival of freedom).
I was thinking about the diagnosis when I went for a walk and came back feeling insignificant and somewhat depressed (I know I’m not supposed to say “depressed” any more now I’m not clinically depressed, but this felt as bad as some of my worst depressed days) even before my Mum started talking about my brother-in-law being made a director of the company he works for and a trustee of a charity he’s involved with. What, I wonder, not for the first time, am I actually doing here? On Earth, I mean. I wonder what PIMOJ sees in me, and when she’ll realise I’m not a good catch.
Then I was phoned by my friend from shul (synagogue) to ask about contributing to the fund for the new building. He spoke a bit about the amounts raised so far and the amount still needed. I didn’t realise that there are some very generous, not to mention wealthy, people in my community. When they want four-figure sums and some people have given five-figure sums, to offer £100 (as I was thinking) seems paltry. My parents actually convinced me not even to give £100 in one go, but to give some now and decide about the rest in six months’ time (the appeal is over two years). This is probably good, as I didn’t really want to give as much as £100. I wouldn’t say I was trying to save face exactly, but it did make me feel like I’m not a real adult among people my age… which brings me back to autism and my negative experiences in the workplace.
I managed to do some things: hoovering the garage (which basically functions as our Pesach kitchen, although we don’t have an oven out there); cooking dinner (macaroni cheese, my easiest recipe); a thirty minute walk; and finished typing up my notes from Sunday’s talks and a tiny bit of Torah study. I did feel that the more I did, the worse my mood got, so there is definitely a trade off there between activity and mood. There was a lot I wanted to do that I didn’t do, mostly preparation for Pesach (Mum and Dad offered to do some of it).
When I was out walking, I noticed someone had parked their car and left their lights on. I would normally go and tell them, but I just did not have the social energy to ring the doorbell and speak to them. I felt awful about it, but I was just too drained to fight the social anxiety enough.
A book I ordered a while back arrived today, a haggadah (prayer book for the Pesach seder service). I wanted a new haggadah as it would have a different commentary, so I could read some new things out at the seder to go beyond the set text. I was worried in particular about not having time this year for much research, so I wanted to get a new haggadah with a commentary I hadn’t read before that hopefully would be full of new ideas. This one in particular (Seder Talk by Erica Brown, who I’ve heard lecture twice at the LSJS on Zoom) has prompts for conversations too. Ideally the seder should lead to flowing conversations on the story of the exodus from Egypt and the concept of freedom in Jewish thought. I find interesting ideas to share at the seder, but I struggle to get actual conversations going, so I thought this would help, even though it’s just going to be my parents and me at our seder this year because of lockdown.
(Why do I always think haggadah should be spelt with one ‘g’ and two ‘d’s while I think armageddon should be the reverse?)
I feel a little better now, but I do feel bad that I didn’t do as much as I wanted (not just Torah study for once), but also aware that realistically I probably did as much as I could, maybe even a little more than I should have done. It’s frustrating, but I guess I need to learn to live with it. This is part of the reason I find it hard to identify autism as a ‘difference’ rather than a ‘disability.’ It feels disabling when I can’t do what I want (or even need) to do, just as it feels disabling when I’m aware of not having a good job, let alone a career, compared with my peers.
Today was a difficult day. Perhaps the stress of the season is beginning to hit me, or perhaps I just did too much Zooming yesterday. I experienced intrusive thoughts of different kinds in the morning and felt overwhelmed and anxious at work. The anxiety was fairly unfocused, touching work, Pesach (Passover) preparations and my relationship (not the relationship itself but the obstacles to moving it forward). I felt an inner tension. At work, I was continuing with the inventory of relatively expensive objects and when I stood on a chair to reach those on the top shelf, I felt a bit of vertigo and anxiety about falling off the chair or dropping the objects and breaking them. I had to get J to help me get one of them down because I was worried I would shake and drop it, although I made out that I just couldn’t reach it (J is taller than me).
After that, J and I practised the new task he wants me to do and I found it difficult. There’s a lot to memorise and it requires quick thinking to follow different permutations of responses based on what the other person says. I’m unwilling to play the autism card yet, but I need to see how I can cope with it in real life rather than role play. He suggested that we role play it some more. I agreed, and also said that the next time the situation arises in real life, he should let me take the call with him in the room so he can prompt me if necessary, rather than waiting until he’s out of the office and I have to do it alone.
On the way home, J reiterated that he’d like to give me a permanent part-time job. I had thought this was dependent on finances, but it sounds like it’s more dependent on institutional politics. I couldn’t follow all of what he was saying as he had the radio on and I find it hard to tune background noise out and was too socially anxious to ask him to turn it off, but it sounds like there’s someone in the organisation who would potentially block making my job permanent, but he retires in June, so if I can stay for another four months, I’m likely to get a permanent job. This would be very good.
Otherwise the journey home was a bit stressful with more depressing news on the radio, more on misogyny and murder, as well as the withdrawal of the AstraZeneca vaccine in much of Europe. This was the vaccine I had, so I’m vaguely nervous, although I think there’s a lot of politics at work here and the number of deaths supposedly related to the vaccine seems tiny. I came home to news of another alleged abuse story, this time in the Haredi (ultra-Orthodox) community. Abuse seems depressingly prevalent in all societies.
I could have gone to depression group tonight, but was too exhausted for more Zooming. Also, last time I spoke about my then-upcoming autism assessment, but I don’t feel ready to talk about my diagnosis yet. I can’t really explain why, I just don’t feel ready. I haven’t spoken to my therapist about it yet (my first therapy session since the diagnosis is on Wednesday) and there’s an aspect of the diagnosis that I have not told anyone else about yet that I really want to speak to my therapist about and maybe that has something to do with it.
I managed about twenty-five minutes of Torah study on the Tube into work and spent half an hour typing up some of my notes of things I learnt yesterday that I want to share at the seder. I’m trying to look at the average amount of time I study Torah each week rather than the amount each day; doing five or six hours yesterday should stand me in good stead for a bit.
I’m still watching Babylon 5. It’s very well-written, particularly the character arcs for G’Kar and Londo. How the writers (mostly J. Michael Straczynski, who wrote about 85% of the series) turn G’Kar from a violent hothead into a man of peace, and turn Londo from a washed up joke into a ruthless politician and war criminal and then give him a hint of redemption without any of this progress seeming forced or unnatural. How G’Kar and Londo go from being bitter enemies to firm friends. How neither character is unlikeable or two-dimensional even when doing terrible things. Most of this is ahead of me (I’m only halfway through season two of five), but it already makes my own writing feel inferior, reminding me how I failed to make the abuser in my novel into a rounded character and how I’m not sure how to change that.
I guess thinking myself into the head of an abuser is on my mind today because of the murder and misogyny in the news. Some of the intrusive thoughts have been around this. I’ve wondered for many years about how people can hurt other people. I find it hard to get into their heads. Over the years I’ve thought a lot about murder, how people can do it, how they can live with it. I can’t even imagine living with myself if I killed someone in self-defence or in a just war, let alone in cold blood. I guess this is the writer (and reader) in me, the part of me that wants to explore other lives, although I’m not so good at thinking it through beyond the initial revulsion, let alone writing about it.
There’s a short story by perhaps my favourite author, Jorge Luis Borges, called Deutsches Requiem, where he writes from the perspective of an unrepentant Nazi war criminal on the eve of his execution. It’s a chilling piece of writing that somehow makes you see the world through the eyes of a thoroughly evil person and feel some kind of empathy for him. I have a long way to go to get to that level of writing.
I was excused from Pesach (Passover) cleaning today to go to the London School of Jewish Studies’ Pesach day of learning on Zoom. It was very interesting, if rather draining: six hour long Zoom sessions and a further fifteen minute Zoom shorter session. That’s a lot of Zooming for one day. Chief Rabbi Mirvis spoke about the need to look forward to seder even more than usual this year because of the COVID restrictions and lack of guests. I am looking forward to it, I’m just nervous too, about preparation (doing it correctly and getting everything done in under two weeks). And I’m tired now!
My favourite quote was from Rabbi Joseph Dweck, that we prefer questions without answers to answers that can’t be questioned.
Now I need to turn twelve pages of handwritten notes into something ordered that can be used to stimulate discussion at the sederim.
I don’t have much to say again today, but I feel the need to write something again…
It occurred to me today that “I won.” I thought I was autistic, despite my first assessment, I fought for reassessment, I got it and I got the diagnosis I wanted. I won. I’m not sure where I go now. I thought that a diagnosis would lead to greater self-knowledge and support. I feel I’ve won, but I can’t work out where that leaves me, what I can do next. I guess I need to wait a while to see how things develop, as well as waiting for the official report from the hospital, which will contain a list of available resources. At the moment I’m pretty focused on getting through Pesach (Passover), but maybe after that I can think about my options.
Shabbat (the Sabbath) was pretty normal. I slept too much, considering I need to be up early tomorrow morning for the LSJS Pesach study day on Zoom. I don’t want to be up late tonight with insomnia.
My parents are out shopping. One of the kosher supermarkets opens after Shabbat around this time of year so people can do Pesach shopping and my parents like to go then, believing it’s less crowded than during the week or on Sunday. It makes me realise how rarely I’ve had the house to myself for any length of time over the last year, particularly at night. Moments alone have mostly been during the day, when Mum has been at the hospital and Dad has been going to or from the hospital (not being allowed to stay and wait for her because of COVID). It’s been a pretty tough year for all of us, but I guess it’s been a pretty tough year for the whole world. And yet somehow I’ve got a job and a girlfriend, neither of which I had this time last year.
I watched another episode of This is Us. I probably wouldn’t be watching if PIMOJ didn’t want to watch it with me, but it’s inoffensive enough, the type of light comedy/drama that tends to be broadcast on Sunday evenings in the UK. There’s a sense that situations that could be difficult or emotional, like abandoning your baby because of your drug addiction, or the USA’s ingrained racial tensions are dealt with in an offhand way, as if they are the same type of thing as changing your job or envying your partner’s ex, these all being ongoing plot threads at the same time. As in the various Star Trek series, no one gets angry at anyone else for more than a few minutes, leading to a stable worldview in which support networks are always there and nothing incurably bad could ever happen to anyone. This is false, on one level, but also reassuring and soothing.
The college I worked at in Higher Education is advertising for an Assistant Librarian (my job) again, I think for the second or third time since I left. I don’t know if it’s for a replacement for my replacement or if it’s a result of expansion. When I was there, the college had four sites and three semi-separate colleges across one side of London, but their website now lists six colleges over nine sites and the job advert says they’re intending to take over colleges in a couple of other cities too.
I am not sure what I think about that. It’s like hearing your ex has moved on when you haven’t. On the other hand, the fact that they keep advertising for the job could mean that morale is low (it wasn’t great when I was there). It was bad enough being forced to go to staff training days at [redacted place that was miles away, where one of the other sites was] occasionally, let alone going to the Midlands! The same principal is still there, and it does feel that he’s expanding aggressively. To be fair, the college has a record for taking over failing colleges in poor parts of London and turning them round. They get decent results and help teenagers from poor backgrounds get into good universities and I can’t criticise that, but I wonder if they are overstretching themselves. Certainly staff were not happy about the constant expansion when I was there.
To be honest, I don’t know, and will never know, if I made the right decision in leaving, but my life since then would be rather different if I had stayed and not necessarily for the better. Whether I made the right decision or not, the life I have now is my life, including all the social and work difficulties I had that prompted me to leave, difficulties that I can now place under the umbrella heading of ‘autism.’