Microsoft Woes, Writer’s Woes

Work was OK this morning, somewhat harder in the afternoon. I slightly misunderstood one of J’s instructions and will have to do something again. More seriously, I attempted to use Microsoft Access and found that I could remember very little about it. I had to take one module in it as part of my librarianship MA. We (the students) all hated that module and thought it irrelevant to library work. It probably is irrelevant to library work; what I’m doing here is administrative. To be fair to myself, what I was trying to do was not something I had been taught anyway (importing data from Excel). I am likely to have to try this again at some point, and I don’t look forward to doing so.

The struggle with Access brought my mood down. I started having very intense thoughts about Twin Peaks. When I’m depressed or agitated, I can have very intense thoughts that sort of block out my perception of what is going on around me because I’m so focused on my thoughts. They are usually negative thoughts or feelings like despair, anxiety or anger (or a mixture of those), but sometimes they can be intense memories of things I’ve seen on TV, my special interests… I’m not sure how to describe it, it’s almost like being in a TV programme rather than watching it (given that my special interests tend to be TV programmes). I assume this is some weird autistic thing because it’s about emotional regulation and special interests, but who knows, maybe it’s something else entirely. With so much of my life I wonder whether my experiences are “normal” or if they are unique to me, or unique to people with depression or autism.

J gave me a lift home again, so I arrived reasonably early and fresh and decided to work on my novel for a bit. In the event, I didn’t get that much done, so maybe it was not such a good idea. I’m still worried about the quality of my writing. I wonder why an autistic person would choose to write a novel of character. Is it a way of trying to understand myself and others? I also wonder if it was a mistake to write about domestic abuse and rape. Men writing about rape is often not good. It is also hard to do justice to survivors’ emotions and yet also to pay attention to the narrative needs of plot and the sense of an ending. I don’t want to cheapen the former for the sake of the latter, yet the narrative shapes events towards an end that probably would not happen, or not this way, in real life.

***

I’m watching the Doctor Who episode The Woman Who Fell to Earth. I think I’m in a minority of one in preferring Jodie Whittaker’s first year (2018) to her second (2020). I felt the stories were more surprising, in terms of going in unexpected directions. They were small-scale, but I prefer chamber pieces to epics in Doctor Who (although the 2018 season could have done with one or two epics for variety and weight). The 2020 season went all-out with epics and mostly it did not seem surprising or interesting to me, even with major continuity changes and surprises. Even when there were surprises in terms of the series’ ongoing narrative and continuity, there were fewer moments when I felt “I don’t know what is going on or where this is going.” Ascension of the Cybermen had the interpolated “Ireland” bits and Can You Hear Me? had the animated bit and maybe one or two other things, but the major twist of the season (unexpected Doctors) had been done twice before (The Name of the Doctor/The Day of the Doctor and, yes, The Trial of a Time Lord). Compare that with the 2018, where The Woman Who Fell to Earth, Rosa, Demons of the Punjab and It Takes You Away all felt disconcerting and unexpected in different ways and made me feel like the soul of Doctor Who was regenerating, in a good way. I seem to recall that even my least favourite story of the season, The Witchfinders, which I disliked on multiple levels, had some interesting cinematography.

Delays and Burn Out

I slept badly last night. I couldn’t sleep, perhaps because I took my medication very late. I had agitated thoughts going through my head. Not negative thoughts (they were just interpretations of Twin Peaks), but I couldn’t stop them looping around and restarting again. I did eventually fall asleep, but it was not restful sleep. I had a disturbing dream, although now I can’t remember anything about it except that it disturbed me.

I feel really burnt out again today. I guess I did a lot yesterday even before I slept badly. At least I am working on Tuesday rather than today (Monday) this week.

***

The autism hospital phoned Mum again. They cancelled my appointment in December, when I was supposed to get my final diagnosis, because they want me to have an “observational assessment” first. This is with a psychiatric nurse who is booked until January. I now have an appointment for the observational assessment on 5 January. I can’t book to see the psychiatrist until after that, so I’m worried that this will drag on until February, which would be well over two years since my initial screening. I was worried that they have suddenly changed their minds about me given that they suddenly want me to have this screening, but Mum’s response was, “It’s the NHS, the doctors and nurses don’t work together.” She thinks it’s poor coordination again, and that I should have had the assessment before now. I hope she is right. A friend of mine who is also being assessed had an observational assessment, so it’s probably routine.

***

I had an — I’m not sure what you’d call it — a depressive moment or an autistic moment. I went out for a short walk and to get some sandwiches for lunch at work this week (it’s a strictly kosher site, so I have to buy pre-made kosher sandwiches from a kosher baker or deli). They only had one lot of sandwiches that I liked. I was already feeling drained and a bit down, but suddenly I felt overwhelmed, thinking about getting more sandwiches later in the week, thinking about future weeks, thinking about all the chores I’m supposed to do this and that I don’t think I can get them all done with work and therapy too. Just overwhelmed by everything that is happening to me, particularly with my new job. It subsided by the time I came home and spoke to my parents, and began devising strategies to deal with the chores (etc.), but it is a reminder that autism is always there, and depression lurks in the background, and they can come out when I’m feeling stressed and overwhelmed and that autistic rigid thinking can make it hard for me to find solutions unaided.

The main thing I did today, other than that, was to cook dinner. Mum offered to do it, but she was ill this morning, so I wanted to do it. I did miss one of the ingredients, or at least put it in late, which I guess comes from doing things when depressed and burnt out. I guess it’s an autistic executive function issue again (short-term memory and organisation). I think that’s the type of thing autism observational assessment will test. (Dinner tasted OK.)

I didn’t go to Zoom depression group. I was already thinking of skipping it, as I have to go to bed early to get up early for work tomorrow, but then I felt too depressed. I know that sounds silly, but I knew my problems were mostly stress and exhaustion and I didn’t really feel like talking. I felt an evening of TV would be better for me than talking and listening on Zoom, which can be very draining. My main reservation is that I will miss the next session too, as it clashes with a virtual shiur (religious class) PIMOJ and I are both attending.

I didn’t do much Torah study either, just listened to a short five minute devar Torah (Torah thought) on WhatsApp and spent a few minutes thinking about my own devar Torah for the week. I’m not sure when I’m going to write that, or how good it will be (or how long it will be, actually). But I just couldn’t do any more today.

***

A present to myself as a reward for the new job and because I was having a bad day: a cheap second-hand DVD of Blade Runner 2049, and a somewhat more expensive new copy of Tunnel of Fear, an early episode of The Avengers (the British, John Steed Avengers) that was missing and was rediscovered and released on DVD a couple of years ago. Because it was missing when the complete Avengers box-set came out, it was the only surviving episode I haven’t seen.

Because of that I ended up watching a different early Avengers episode (Concerto, by Doctor Who writers Terrance Dicks and Malcolm Hulke). It was diverting, but I find that not many of the pre-Diana Rigg episodes are that memorable. I plan to watch Doctor Who before going to bed to unwind a bit more.

Humdrum

Mum phoned about the mysterious autism appointment. It turned out it’s not for her. For a moment it looked like they had moved my second appointment, but it’s not that either. It doesn’t seem to have been booked properly at all, they just sent a reminder for a non-existent appointment! So, nothing to worry about there. NHS incompetence, etc.

On a related note, I heard today from a friend who is also in the midst of an autism assessment; hers has been very different to mine. I can think of a few reasons why that might be the case, as he life situation is rather different.

I overslept again today, although burnout was at least expected after my first day in my new job yesterday. I struggled to get up, get going and to do anything. I feel exhausted and frustrated today, frustrated by how tired I get and the diminished life I have a result of losing time sleeping and doing things slowly. Still, given that I don’t seem to be able to change it, I need to adapt to it, or at least not to beat myself up for not managing to do more. I’m slowly getting better at that, I think (or hope).

I didn’t get a chance to work on my novel today or to go for a run, and I wonder how I will juggle work, writing, religious obligations, dating (in a lockdown), exercise and family obligations in the coming weeks. Certainly I feel overwhelmed today. It’s also problematic that I often get a migraine after running, which means I want to leave it until the end of the day, but at the moment sunset is around 4pm, which is not the end of the day. This leaves me with a choice of either potentially losing a lot of time after an early run if I do get a migraine or having to run in the dark. The area around here is safe, but I do worry about slipping, particularly at this time of year with lots of wet leaves on the pavements, or about being hit by a car when crossing roads.

I did manage to go for a half hour walk. I would have liked to have gone for a longer one, but I was too tired, had too much to do and the weather was not great. Mum cut my hair afterwards. Then I cooked dinner – macaroni cheese, one of my easy stand-by recipes for days when I’m short of time or energy. I listened to a half-hour shiur (religious class) while doing that, simply as a way of getting some Torah study done today. This was because I knew I also needed to write most of my devar Torah for the week today as tomorrow is very busy and I’m now working on Thursdays. Fortunately, I knew what I wanted to say and didn’t have to research much, although I did find one very useful article that added some depth. Still, it does all take time.

I was feeling rather depressed and a bit anxious earlier. I think the activity of the afternoon/evening has distracted me from those feelings somewhat, which I suppose indicates that they were not clinical depression and anxiety. I just hope I cope over the coming weeks as I get used to working again and as we move into the heart of winter.

Vague Anxieties

It occurred to me today that the clocks went forward two weeks ago and my mood has stayed reasonably good. Usually if my mood slowly improves in the summer, it quickly sinks back to depression in the winter. There’s a lot of winter still to come, and days when I work are harder because of more lack of sunlight (I hate leaving before sunrise and coming home long after sunset, with most of the time in-between indoors and poorly lit) but I feel cautiously optimistic about this.

I went for a walk today to do some shopping. Unfortunately, I could not find this magazine. It was supposed to be out last Wednesday, but doesn’t seem to be available online or in shops. I worry it sold out before reaching the shops, which can occasionally happen with much-wanted merchandise.

I did not get for a run today, partly because I had to go shopping and partly because the weather was poor. Currently sunset is around 4pm, which means (given that I get up late), I have to interrupt my afternoon to go running, which isn’t always practical, especially as I know there’s a reasonable chance of an exercise migraine disrupting the rest of the day afterwards.

I spent two hours working on my novel, which was pretty good. I got through a lot without having to make many changes, and am now long past the halfway mark in the second draft, but I’m likely to slow down now, as I head towards the climax, which I want to significantly rewrite. I managed an hour or so of Torah study too, so it was a fairly full day.

I need to go to bed soon as I start my new job tomorrow. It feels strange to be going to a completely new job, but in a place I’ve worked before. I’m nervous about using public transport during COVID lockdown as well as about the job, my ability to do it and whether I’ll let my friend down, but I’ve said all this before.

Things with PIMOJ feel a bit strange too, with COVID making getting to see each other and know each other difficult and also knowing that there’s a limit to how far we can move this on for some time even without COVID. It’s also unusual for me that I feel more comfortable with her in person than in text. I actually struggle to be more open and spontaneous in text, which was not the case with previous relationships. I hope that’s not a bad sign, especially as I do still struggle to talk a bit in person. I think she’s probably more talkative than I am generally, and certainly more spontaneous. She doesn’t like Skype, so we really need to be able to meet in person again, which we can’t do. Although I’m probably worrying about this to avoid worrying about tomorrow, which is not healthy so BED.

Sleeping, Walking, Writing

I went to bed early (for me, anyway), slept for twelve hours and woke up feeling burnt out again. By the time I got up the cleaner was here, but I was too tired to get dressed before going down for breakfast, so she saw that I was in pyjamas and dressing gown at midday. I suppose this could make me feel decadent, but mostly makes me feel lazy and useless. Then I ended up going back to bed for a bit, although I didn’t sleep. I just felt completely drained.

I can see that staying in bed so long might make me more tired, but I don’t usually wake up naturally after eight or nine hours. Even if I set an alarm, I don’t really wake up properly before I’ve turned it off in my sleep. An alarm on the other side of the room I just sleep through. Perhaps irrationally, it annoys me that I can’t work out if this is depressive burnout or autistic burnout. If depressive, why is it persisting when most of my other symptoms have gone? It’s it’s autistic, then why was I not like this as a child? I went to school every day without a problem until I was sixteen, when the depression started. Did I just have more energy or resilience then? It does make me worry about starting work next week; I hope I don’t have to cancel volunteering because it’s too much to do volunteering and therapy one day, then work the next.

I went for a walk even though it was a bit of a struggle because of exhaustion. It wasn’t terribly long, but I went slowly, because of exhaustion and because PIMOJ asked me to take some photos so she could see where I was going. That was quite a nice thing to do “together”, but stopping and starting probably neutralised the exercise aspect. I’m also not terribly good (or, to be fair, experienced) at taking photos with my phone. Still, it was a nice thing to do. I think PIMOJ would be good at getting me to do little things like that to bond or to decrease my depression (the whole photo thing came about because I said I was feeling depressed today and she said to go on a walk and then added to take photos so she could see where I’m going). I guess my fear is that sometimes I want to withdraw to my Fortress of Solitude and work things through or just sit with my emotions rather than being cheered up. Sometimes that’s the right decision for me; other times I do actually need to be cheered up (like today). I think it may take us a while to work out how to tell which is which.

I don’t know whether it was the walk or the fact that my mood usually peaks in the afternoon/early evening, but I managed to do an hour of work on my novel (admittedly with procrastination) and finished my devar Torah for the week.With the devar Torah, after saying yesterday I wasn’t satisfied with it, I actually feel happier with it now, feeling I’ve got a reasonable balance between primary sources, secondary sources and my own interpretations. Strangely, with the novel I currently feel happier with the plot thread I’ve invented from scratch than with the part that is rooted in my own experiences (and which was the original idea for the novel). The truth may be stranger than fiction, but fiction is better structured and probably more interesting. Also, I don’t really like the character based on me very much, which speaks volumes about my self-esteem.

This cartoon sums up a problem I’d already noticed in my novel. When I started writing a little over a year ago, I wrote an internal timeline of events (it’s a coming of age story that takes place over several years and I wanted to make sure that I didn’t accidentally have one character living through more time than the others by writing “a few months passed” too often), but I didn’t explicitly tie it to specific dates so that the book could be read as “roughly in the present” for a number of years. Then suddenly a massive, dramatic change to how we live occurred and I wonder if I should explicitly date it to be before COVID, otherwise the chronology doesn’t work. But then I worry it will feel almost like a period piece when (if?) we get to the other side of COVID.

***

I got an invitation, or a virtual invitation, to a wedding. It’s the daughter of one of my shul friends who is getting married. She is significantly younger than me as my friend is quite a bit older than me (a number of my friends are significantly older than me. I’m not sure if it speaks to my maturity or autism or something else). I’m glad I’m getting better at dealing with “older single in the frum (religious Orthodox Jewish) community” element of my life. It’s still a bit difficult to get my head around it. I sit with my friend at shul (synagogue) and have been invited for Shabbat and Yom Tov (Sabbath and festival) meals on a number of occasions, so I do know him and his family quite well. It just feels strange to be going to a wedding for someone so much younger than me, and a Zoom wedding at that. I’m not quite sure what the protocol is regarding presents. I would struggle to go if it was an in-person wedding with noise and strangers (autism and social anxiety), but the fact that it’s over Zoom and just the ceremony makes that easier at least although I’m not sure how it will fit with my new job.

***

From a pamphlet of quotations from Rebbe Nachman of Breslov that PIMOJ gave me: “Whatever one is enduring, one must muster the inner strength, as the verse says, “If I ascend to the heavens, there You are, and if I make my bed in hell, here You are,” because even in the depths of hell one can become close to God, for He is there also.” (originally from Lekutey Moharan)

Stalemate

I struggled to get up again this morning. I felt like my sleep was not at all refreshing, which is not unusual for me, but this time seemed particularly bad. I had weird dreams, which I can’t really remember, but I think shul (synagogue) was part of it, so I probably feel guilty for leaving the online AGM early or am just feeling again that I don’t fit in and that everyone else is doing “better” than me in life, whatever that means. To be honest, I probably would have stayed in bed longer, but I knew I had a dentist’s appointment at 2pm and wanted to get up and have lunch first.

I felt rather depressed for much of the day. I’m catastrophising a bit, worried that things won’t work with PIMOJ or in my new job, and that I’ll let my friend down in the latter. The slow pace things are going with PIMOJ is probably good overall, as I don’t think either of us has much relationship experience, but it is frustrating.

I was also worried about the dentist, partly because I’ve been nervous about it since having my first filling a year or so ago, partly because it’s a dentist I haven’t been to before and there’s a lot of autistic “new situation” anxiety there. In the end, I was fine. I have receding gums because I brush too hard, but otherwise fine. I’m not sure how to stop brushing so hard; this is not the first time I’ve been warned about it. There was some slight tremor, but not much.

I went for a walk for about an hour. I have usually been walking for half an hour most days when I don’t run, but I think I should try to increase it a bit as it’s going to become harder to run now the days are shorter, the weather wetter and I’ll be working two days a week. That said, in retrospect, I wonder if walking too long exhausted me and brought my mood down as my mood seemed even worse in the afternoon, the opposite of what usually happens.

I spent an hour or so on my novel. I procrastinated quite a bit. I’m struggling with redrafting. I feel like I’ve lost all ability to judge the quality of my writing, so I have no idea what to change as it seems equally good/bad. Actually, what it seems like most of the time is just indifferent. Also, actually fixing stuff is a lot harder than realising that just spotting that something needs fixing!

While redrafting, I kept getting distracted by tinkering with a draft blog post I’ve got saved about politics that I may never get the courage to post. Eventually I gave up working on either novel or post as I clearly wasn’t getting anywhere and I wanted to be in a reasonable state of mind for Zoom depression group in the evening.

I only managed about fifteen minutes of Torah study, which upsets me a little, but there you go. Realistically, I probably did too much yesterday, especially that overlong AGM, and am suffering burnout today.

At depression group I had the courage to go first (no one ever wants to go first). I spoke about my anxieties about my new job and COVID Tube travel as well as my autism assessment. I didn’t speak about PIMOJ again. I don’t know why. I think I struggle to share with the group the way other people can, particularly on Zoom; I think when we met in person pre-COVID I shared more. I suppose it’s harder to feel a rapport and sense any kind of empathy over Zoom. I certainly find it harder just to speak and listen on Zoom. There’s a function to turn off your camera; I wish there was a function to turn off everyone else’s cameras when I speak as I find the movement (and, on speaker view, the cutting between cameras if someone hasn’t muted themselves) distracting.

I’m trying to focus on the present, otherwise I slip back into depression and self-criticism. I find myself missing PIMOJ and wondering how much of that is genuine and how much is just loneliness. I hope it’s genuine, but it’s probably too early to say. We’ve only been in contact for two months.

I also find myself feeling “touch hunger,” the need to be held. I feel this a lot lately. Hugging my parents helps a bit, but not completely and lately I’ve found it hard to hug my parents, I don’t know why. I guess I just feel withdrawn. As someone on the autistic spectrum, and as an Orthodox Jewish man who tries to keep the laws about not having affectionate physical contact with unrelated women, touch is doubly difficult for me even without COVID. PIMOJ and I hugged on our last date and I don’t really regret it, even though both Jewish law and COVID regulations forbade it. It is hard to know what to do sometimes. I feel like I did what I had to do, even though it’s probably objectively wrong from a variety of viewpoints. Just don’t tell my rabbi or the police (although the idea of being fined for hugging my date is amusing). I know this probably sounds strange from a secular perspective, where sexual contact is assumed to be the norm even in the under age, but for me just hugging is a big, guilt-inducing thing.

I guess today, and other recent days, feels like stalemate, with nothing moving. I’m aware that things are going to change from next week when I start work again. I just hope things change for the better.

***

I’m watching Twin Peaks: The Return, the sequel series to Twin Peaks. I’m in the middle of episode four of eighteen. I don’t think it’s as good as the initial series, or at least the initial series was until they solved the murder of Laura Palmer (halfway through the second season). The original series had a strong hook (the murder), interesting characters and an intense sense of place (Twin Peaks and the surrounding forest). With this background, the style was allowed to flow naturally into a strange and wonderful mash-up of police procedural, soap opera, paranormal horror story and surreal comedy. The Return feels all over the place: no focus of plot or place, no interesting characters. It feels like the only character we’ve really seen at length is Agent Cooper, and he’s done nothing except wander around in a daze, repeating words other people say.

In the original series the weirdness felt like it had an underlying logic that we could not understand. In The Return, it feels like weird things happen because this is Twin Peaks. Rather than juggling different genres expertly, it’s hard to find any genre for it. I can see why they wanted to avoid simply rehashing the original series and do something new, but I think they over-compensated. I’m sufficiently invested in the series to watch more, primarily in the hope that Agent Cooper’s consciousness returns and rejoins his body, but I doubt I would be interested if I hadn’t seen the original series.

Feeling Slightly Useless

I think I’m going to pause job-hunting for a bit, or at least scale it down. My new job will probably only last two or three months, so I do need to keep looking, but it’s not such an imminent thing that I’m willing/able to apply for jobs I’m less likely to want or get. So, for the moment I’m not applying for a very user-facing public library job that would have been hard with autism and social anxiety. I’m not sure what I’m doing about the cataloguing job at the institution where I did disastrously in the interview and exam for a similar job back in 2018.

***

I spent an hour trying to work on my novel. I proof-read half a chapter or so, but did not write much that was new. I got distracted a lot and I probably felt too depressed to do much that was useful – I’m not sure whether I made the right decision about not expanding some passages or cutting others. My brain is just not functioning today and I don’t know why, but I’m certainly less productive today than I was on Friday. Maybe I’m burnt out after a busy Friday and “peopling” yesterday (on Zoom rather than in person, but that can be more stressful). I’m now halfway through the second draft in terms of chapters, but probably much less than halfway in terms of time and work, as I know the latter chapters need a lot of redrafting to fix plot and character problems.

***

I wanted to go for a run, but my knee was hurting for a bit, so I went for a walk, but tried to walk further than usual, about five kilometres.

I did about forty-five minutes of Torah study; I wanted to do more, but I ended up going to my shul‘s (synagogue’s) Annual General Meeting on Zoom and felt I had to draw a line. I was in two minds about going to this given that I felt down, but PIMOJ is the Better Angel of My Nature and suggested I should go. I watched it without my webcam on, which is discouraged, but I did not feel up to being seen or having my room seen; plus, this way I could listen with one ear while eating dinner or working on other things. I don’t really like long-winded speeches at meetings; I’ve already noted the “Everything has been said, but not everyone has said it yet” aspect of meetings that drives me crazy.

There was a lot of praise for people who have helped the community in different ways, which is absolutely correct, but I always feel, “Well, I can’t help, there’s nothing I can do.” When I was at Oxford, someone actually got really annoyed with me for refusing to go on the Jewish Society (JSoc) committee. My feeling was that the JSoc was a social group to enable Jews to meet and socialise (and date) rather than a religious society and that I knew nothing about running a social group. Thus spake undiagnosed autism and social anxiety. This person got really annoyed with me though and felt I was being selfish in taking from the society and not giving back (actually, I wasn’t taking that much as I hardly attended any events, but that’s another question). I drew on this for my novel too. Of course, shul brings up feelings of religious inadequacy compared with other people, which I didn’t have so much at Oxford. On Zoom there is also the “I can see everyone my age has a lovely house and I live in my parents’ second bedroom” inadequacy feeling.

Then they started talking about financial donations, which weren’t an issue at university where we were all impoverished students, but which now set me aside from people with successful jobs.

Then the internet, which had been ropey for the first hour of the meeting completely packed up (I’ve been having internet trouble again on my laptop lately). I did eventually manage to log back in on my phone, which has a better connection, but I was feeling even less engaged.

There was some stuff about finances and fees that panicked me and I need to look into.

I guess my overall impression of the AGM was personal inadequacy and something approaching awe for mentally healthy neurotypicals who are able (a) to do stuff to help the community and (b) stay interested and engaged for the whole meeting. To be honest, if they were able to sit through the finance presentation and ask pertinent questions, they beat me (yes, I know probably a huge chunk of the community are accountants).

The meeting is still ongoing as of 10.10pm, but I think I’m going to have to call it a night or my head will explode and I won’t be able to sleep.

***

I don’t know why I feel depressed today. I’m worried about getting COVID on the commute to my new job or to volunteering. I’m worried about performing badly in the new job and letting my friend down. I’m worried about sharing an office all day with someone (is he going to expect me to talk? To eat lunch together? I like to read on my lunch break…). I guess some of it is wanting to move on with my life (career, writing, PIMOJ) and feeling constrained by external factors (mental health and autism, financial situation and more), which is frustrating. I wonder if I will ever achieve the goals I’ve set for myself. I do know that whether I build a career as a writer or a librarian or something else, it’s going to take years; likewise, getting married will take years, even if PIMOJ is The One, and sometimes that time scale feels very daunting. How am I going to do anything with my life if it takes years just to get to the start? I know, I have started already, but it’s hard to see what I’ve achieved so far. Even on a smaller scale, I don’t like waiting to start the new job; I want to dive in and get started, so that’s another cause of anxiety and depression.

I guess more prosaically I miss PIMOJ. Unlike my previous relationships, I think we communicate better in person than online, which is probably good overall, but bad during COVID. It’s a real shame we can’t meet in person very often. I think we are both serious about this relationship and want to move things forward, but are being held back, partly by COVID, but also by other things going on in each of our lives, like my autism and job situation and some things in PIMOJ’s life. In terms of feeling bad, there’s also some loneliness and touch hunger too today, and not knowing when that will change.

***

Joe Biden’s middle name is ‘Robinette.’ I’m not quite sure how I avoided knowing that until today. I have a weird fascination with the middle names of US Presidents, which are often very unusual, at least from a British point of view. I’m guessing that some Americans still do the Victorian thing, which my grandparents did with my uncle, of giving the mother’s maiden surname to the first son as a middle name.

Ambushed By A Day

I went to bed early last night, but slept for twelve hours or more and got up around midday. Even after getting up I felt burnt out and went slowly. I didn’t even have much energy to be surprised or upset about the US election dragging on. It’s strange and frustrating how much volunteering burns me out, particularly as it’s more physical (moving crates of food, packing tins) than social (masks make it hard even for neurotypicals to chit-chat). I’m apprehensive of how I’m going to cope when I have a full work day after a volunteering day, as could happen soon. I guess I can push through these things when I have to, particularly when it’s not too frequent or intense, but there can be a psychological cost e.g. when I was working four consecutive days a week in a noisy open-plan office for three months, which was painful.

***

I saw a cataloguing job advertised at a university where I applied before, back in 2018. I went through the presentation I had to give badly, stumbled through the interview and then completely failed the exam I had to sit. I couldn’t answer anything, I just wrote on it that I was not well and had not been able to prepare properly and that I was sorry. I don’t know if I dare to apply again after that. I feel so rusty applying for cataloguing jobs and this one has bad associations, and they may recognise my name and throw my application out straight away.

***

My second autism appointment is booked for 20 November. Hopefully that will be when I get a firm diagnosis and find out what help the NHS can offer me.

***

I didn’t manage to do much today until late afternoon, then I tried to cram too much in. Aside from feeling burnt out all day, we had a cleaner here and a window-cleaner and I struggled with that as an invasion of space. I realise that because I already felt exhausted and down I felt this invasion of space acutely and that I would have been OK otherwise. Then I procrastinated a lot thinking about America, checking the BBC News website and looking at Twitter more than I should. I worry what will happen and what it will mean for the world. In the UK, social and political trends from the US as well as cultural ones tend to hit us a few years later and both countries have lost a lot of social capital as a result of the controversies and polarisation of the last few years. There may also have been some depression related to the job offer. Positive things can make me depressed if I feel unworthy or, in this case, if it leads to anxiety about not being able to perform as expected. I have that anxiety about all jobs now as a result of previous bad work experiences, but here I am extra-worried about letting my friend down and about managing to do admin work rather than library work.

Despite all this, I applied for a job, another school librarian job. It looked like a simple “CV and cover letter” application (I have stock CVs and cover letters on file), but after submitting them, there was a huge application form too. Why do companies insist on this (CV, cover letter, application form), when it’s basically the same information three times? Proof that HR personnel really are evil, I suppose (like “Catbert, Evil HR Director” in the Dilbert comic). They want to know everything too, including all time off for illness, which in my case is a lot. It was a really badly-designed form too (if you saved, it logged you out, then you had to wait for the system to email you a link to get back in). Then I left the form for a few minutes and it logged me out without saving my changes and without warning that it would do that. It also wouldn’t let me submit the form, because I wouldn’t state the “province” my previous job was in. We don’t have provinces in this country (must be imported software). I put London as both city and province to get past the thing.

The wretched thing took about two hours in the end. This is the type of thing that provokes my inner Patrick MacGoohan, co-creator, star, executive producer, sometimes writer and director and main creative force on 1960s “spi-fi” series The Prisoner, which pitted the unnamed, numbered Prisoner against the unstoppable bureaucracy of The Village where he was trapped – The Prisoner would regularly rail against intrusive bureaucracy and surveillance as well as smashing things. If he saw what our contemporary information culture was like, he might not have bothered trying to escape.

Filling in this type of form makes me feel bad that I have so many gaps on my CV and that so many of my jobs have been so short-term. I’ve only had one job for more than eighteen months. This form asks for my interests and extra-curricular activities too, which I feel is intrusive, and also outdated. I know people used to ask that as a standard question, but I thought it had fallen out of favour.

I had no time for working on my novel again as a result of all this. I wrote about half the first draft in the first lockdown; conversely, I think this lockdown is going to be spent on paid work and volunteering with little writing at all. I suppose it took Tolstoy eleven years to write War and Peace (I think) and I’ve only been working on my novel for a little under eighteen months.

I did redraft and send my devar Torah for the week. I’m not as happy with it as I was when I wrote it earlier in the week. I feel like my argument (for understanding a particular Midrash) is not as rigorous as it should be. PIMOJ picked up on one bit that I should have phrased differently (actually just one word), but it’s too late to change it now.

I didn’t get time for much Torah study in all of this, less than half an hour, mostly a shiur (religious class) I listened to while doing some ironing. I’m trying not to beat myself up about it as I had a hard day.

It was a hard day, even though I didn’t do much. Actually, reading this back, I did do quite a bit despite feeling bad (I fitted in a half-hour walk too). I just feel exhausted. Sometimes a day kind of ambushes me and it’s a struggle to get through it.

***

Lately I’ve been reading a high-functioning autism memoir by someone whose blog I read. It’s by an autistic woman, which I hoped might be helpful to me as in many ways my autism is more typically female than male. It’s been less useful than I hoped as she experienced very different things to me. She was probably better at masking socially than I am, and just had a different personality with knock-on social differences.

I’ve also been re-reading Doctor Who Magazine comic strips. Doctor Who is typically thought of as a TV series, but it’s been in virtually every medium from musical theatre to a story on the back of chocolate wrappers. The three media where it’s been most successful, outside TV, are novels, audio dramas and comic strips. The latter is definitely seen as the poor relation of the three among fans, but I much prefer the comics (at least the ones from Doctor Who Magazine), to the novels and audios. I’m about a third of the way through a re-read of the tenth Doctor comics, which were a high point for the strip (better than the TV stories of the time, in my humble opinion).

In terms of TV, I’m now onto Twin Peaks: The Return, the follow-up series to Twin Peaks. One episode in, it’s probably weirder and certainly gorier than the original series. I’m not sure whether I like it or not yet – I think some of it is weird for the sake of being weird, whereas the original felt like there was a logic there even if we couldn’t always see it. The first episode was largely not set in Twin Peaks and barely featured any characters from the original series, so it was a bit disorientating, which was probably deliberate, but it does feel like starting all over again, inasmuch as it took several episodes of the first series for me to understand who everyone was and what their relationships were to each other and now I’m being presented with another set of new characters.

Another Job Application

I wish I had something more interesting to write about today. I doubt very much that anyone was gripped with suspense at reading my title. Go watch the US election coverage, if that’s what you want.

I got up earlyish (9.15am), but then wasted two hours going slowly, doing the Doctor Who Magazine crossword and messaging PIMOJ, so I didn’t have much of an early start on the day.

I applied for another job. I’m not sure how interesting the job would be, but the institution would be worth working at. The job application took two hours without a proper break, which was probably silly of me, but once I had started, I didn’t really want to stop in case I couldn’t restart. The application form asked me to state what sector my previous jobs were in. As is often the case, there wasn’t an option for “library/information management,” which wouldn’t have been so bad if this wasn’t an application for a well-known library (they did have an option for having previously been employed by them, so they weren’t just using standard software).

I didn’t know what to put in the disability box either. I’ve been told not to mention depression as it scares employers off. I was guessing the same for autism, certainly while it’s not 100% diagnosed yet. But I want to be able to ask for support later if I need it. It’s also a full-time job, and I don’t really want to work full-time, but there are so few part-time jobs that I see in my sector. I think I may have to work in another sector, but I don’t know which, and the people I’ve asked for careers advice don’t seem to know librarianship well enough e.g. they suggest archival work which (a) is also quite rare on the ground and (b) is a different (although superficially similar) skillset to librarianship and requires specialist training. Other than that, people have suggested proof-reading, and I have made attempts at starting that, but I had trouble, perhaps partly due to autism (difficulty with networking and marketing myself), but also for other reasons (not being sure what kind of reading speed I should be aiming for, or what my current reading speed is, or what fees to charge).

I also found this article not terribly helpful for someone who has almost more gaps in his CV than items, who usually has to fill in application forms rather than submit a CV, and who has been warned that it’s fatal to tell prospective employers about mental health issues.

Filling in job applications always reminds me of bad experiences in previous jobs, particularly the line manager who told me explicitly that I had not adapted to the job as well as she wanted and expected. She used to complain about other people on the team behind their backs and I’m sure she said some nasty things about me to other people when I wasn’t around. I now have to list her as a reference, because that’s the only long-term job I’ve had since 2017. (The rest of the library team at that place were really nice, though.)

Other achievements: the usual: walk, cooked dinner (red bean chilli, quite hot), Torah study.

3 Shopping Days to Lockdown

When my alarm went off at 9.00am (I usually set an alarm, even though I often turn it off in my sleep when it goes off), I actually thought I would get up. My mind felt reasonably alert, but my body was just too drained and burnt out after yesterday and I couldn’t get up and I fell asleep again after a few minutes. I didn’t end up getting up for another two hours, which was not good. The vaguely ill feeling I had yesterday has gone, fortunately, but I do feel drained. I’ve become better at seeing this as a symptom of autism (social burnout) rather than a sign of weakness, even before my assessment, but it is frustrating.

I think I had a dream about my novel and suddenly getting an idea for a much better novel that I had all planned out in my head and not knowing whether to switch to work on it. It’s sort of reflective of where I am at the moment, inasmuch as I worry that my mainstream novel is not working and I should switch to an idea I’ve had for a series of Jewish fantasy novels. I’m not actually going to switch at the moment as I don’t like leaving things half-finished and I want to see this project through. I also know that many authors have doubts when sitting down to extensive redrafting, so I shouldn’t set too much store by them at this stage. Nevertheless, I do wonder if the mainstream novel is going to be readable, let alone sellable.

Since writing the above, I read something, a blog post about sexual harassment. Although this is not the same as my novel (which is about domestic abuse in the Orthodox community, culminating in marital rape), it was similar enough that it made me think that I have a mission to write this book to the best of my ability and try to get it published.

***

I bought the new trainers I’ve been meaning to buy for a while. Hopefully these will support my arches better when running. My Dad took me to a big retail park with a number of warehouse-sized shops, including a sportswear shop. I wouldn’t have been able to get there easily on public transport, so I was grateful for the lift. On the other hand, when I shopping with my parents, I tend to let them take over. I guess it’s lack of confidence and social anxiety as well as a sense that I don’t know what I’m doing. Dad felt that in the past I had been sold over-priced and unsuitable running shoes by asking the shop assistants what shoes they would recommend for running. Dad said instead to go for a well-known brand (he said Nike), find some I like and then ask the assistant if they’re suitable for running. I’m not sure this is necessarily a better strategy, but I tried it and have black Nike trainers now. Hopefully they will be better for running than the previous ones.

***

My other real achievement (aside from scanning my autism assessment from 2006 to send to the psychiatrist doing my current assessment) was writing my devar Torah for this week. I am reasonably, but not completely, happy with it. It has more of a moral or even slightly polemical point than usual.

I also attended (on Zoom) a shiur (religious class) at my shul (synagogue). I was attracted by the fact that it was based on the teachings of Rabbi Kalonymus Kalmish Shapira, the early twentieth century Hasidic rebbe and Holocaust martyr. I read his book Sacred Fire a few months ago and was very moved; I quoted a few times here ideas about suffering and God’s empathy.

A few points I took from the shiur were that hinukh (education) should be about revealing the potential of the student; that we should aim for nothing less than spiritual greatness in our lives and not accept mediocrity; that we should daven (pray) as much as we are able, which sometimes might be less than other times (this was important to me as I can’t always daven properly due to depression and burnout) and to focus in prayer on consciousness of standing before God; and that we should be human and eat, drink and rejoice with our friends. The element that I struggled with was the injunctions to avoid sadness and worry; it is hard to tell what to do when these become pathological depression and anxiety.

Autism Assessment Tomorrow

I was in bed, drifting in and out of sleep, trying to wake up properly and dreaming about living in a dystopia with an even worse pandemic than ours, when I got woken by my phone ringing. It was the autism hospital, phoning me back from yesterday. They wanted to give me an appointment for tomorrow. I was not keen as (a) it was sudden and I didn’t have time to adjust and (b) tomorrow Shabbat (the Sabbath) starts just after 4.30pm, so it will be tight to get done on time. Nevertheless, I accepted the appointment, as there didn’t seem much choice – they didn’t have any appointments next week, so I’m guessing I’ve been given someone else’s cancellation.

I feel really anxious and upset about it, and I’m already catastrophising. I feel I don’t have time to prepare. Twenty-four hours notice is not good for someone on the spectrum! We don’t like sudden changes of plan at the best of times. Dad said maybe this will play to my favour and show how anxious I get when things happen at short notice, but I’m not sure it will come out.

Some of the panic is that I’m currently reading a memoir by a woman with high functioning autism in the hope this would help me understand and present my symptoms better and get diagnosed (I feel my symptoms are closer to the female model of autism, with better masking and use of social scripts to function in social situations as well as special interests that can be more imaginative than mechanical), but I obviously won’t finish that in time now. Also, over the past few years I have also prepared a ten or so page list of my symptoms and why I feel I’m on the spectrum to give them in the assessment meeting. That was immediately scuppered by COVID and not having an in-person assessment; now I can’t easily send it to them in advance. My parents said just to mention it in the meeting and see if they want me to email it, but I worry they won’t.

I worry that I can’t summarise an understanding of myself that I have built up slowly over the last three years in ninety minutes, with limited preparation time, and over Microsoft Teams – I’m not great on video conference technology at the best of times, and I know teams less well than Zoom or Skype, plus the internet connection trouble I’ve been having lately means I have to use my Dad’s computer, and I’ll have to load Teams onto it today.

I just feel negative about the whole experience already, which is not the best mindset to go into it. I can see it’s probably mostly catastrophising and that having more time wouldn’t necessarily help me, but it’s hard to feel that emotionally.

Oh, and it wouldn’t be complete without an NHS admin mess up. I was told on the phone the appointment was at 10.30am, but when I got the confirmation email, it said 9.30am. I emailed to confirm, but haven’t received a reply yet, and I the phone number was withheld…

I’m going really slowly today because of this, feeling quite depressed without really knowing why, aside from catastrophising. I finished my devar Torah for the week and went for a walk, but I haven’t really done anything else. I had a brief text conversation with PIMOJ (she generally can’t message at work) and she said being seen quickly is what I wanted, which is true, but somehow it seems too quick and I seem too unprepared. I’m not sure what I could/should do today, both in terms of autism assessment preparation and other things, hence posting this early in case anyone has any suggestions – by the time I check emails tomorrow, it will probably be too late.

Living the Life, and Intermittent Depression

I got up at 6.30am to go to volunteering. I got there on time. Unfortunately, the fresh fruit and vegetables we were supposed to be packing (for the needy) did not. We packed the dry and tinned food, toilet paper and so on, but when I left at 11.00am the fruit and veg had still not arrived, even though most of the food parcels had been sent on their way to their recipients. The delivery company blamed traffic. It must be disappointing to the recipients. Doing this has really made me appreciate how close some people live to the breadline, a fact I knew intellectually, but not emotionally before now.

I had some awkward autistic moments at volunteering, one big, embarrassing executive function malfunction and some minor communication difficulties, but I think I was mostly OK, even making a bit of small talk.

When I got home I was too tired to do very much. It’s strange how much two and a half hours of volunteering plus an early start takes out of me. I did a little Torah study (I had done some on the bus to volunteering, but wasn’t sure if it technically counted as “Torah” – the letters of Rav Kook and a psychological analysis of Iyov (Job)). I procrastinated a bit, and then it was time for therapy.

Therapy was good. I was awake, thanks to the power of coffee. This therapy is more about practical coping strategies than delving into my past, which is what I need right now. The therapist suggested spending time checking in with my thoughts to see if I am drifting into anxiety or depression, which for me is often about losing present-focus. I said that I’m already kind of doing that with my blog – when I read it through before posting I can sometimes see that I’m beating myself up unnecessarily or worrying or whatever. (I’m even doing that now as I proof-read, because I’m aware that I’ve got some more depressed thoughts coming up in a minute.) We (it’s not always obvious at the end of a session who suggested what) also had some practical ideas for interview practise and to see if there are exercises online to improve executive function. I did look for these, but they seem to mostly be things I’m already doing.

We had a family Zoom meeting in the evening, me, my parents, my sister and brother-in-law, uncle, aunt and five cousins (at different times). It was good, but I feel I don’t talk much when I’m around my extended family. Actually, that’s not quite true; I talk more when we’re present in person, but not on Zoom. We spoke a bit about different COVID regulations in Britain and Israel; when you compare different countries, a lot of it begins to seem arbitrary (not in the sense that it’s unnecessary, but that no one government seems to really know what to do).

I feel I’m not as close to my extended family as I would like. I guess it’s not surprising, as my uncle, aunt and eldest two cousins moved to Israel decades ago; the younger three cousins were born there. Mum and Dad go out there a lot, but I haven’t always gone with them. And I always feel that as the eldest of the seven cousins (I’m nine years older than my eldest cousin), I’m in this strange position of not quite being one of the adults, but not being one of the children either (this could be my epitaph). And life in Israel is very different to life in the UK. But I guess it is partly that I can’t always connect with other people, and why would my family be different? I count myself lucky that I have a good relationship with my parents and my sister. It would be easy to drift into autistic solitary seclusion. The fact that I live at home is obviously a help there, and I think COVID and Mum’s cancer has brought me closer to my parents.

***

While I was at volunteering, I got a phone call from the hospital that will be doing my autism assessment. I asked them to phone back when I was at home. They didn’t. I’m probably going to have to chase this.

***

I wrote a bit yesterday about not feeling able to live the sort of life I’m “supposed” to lead according to mainstream twenty-first century Western or frum (Jewish religious) standards. I’m trying to feel that my worth isn’t related to those standards, the standards of being rich and successful (mainstream) or studying a lot of Torah and being very involved in the community (frum) or being married and having children (mainstream and frum), but it’s hard. I suppose I don’t have some other standard of worth on which to measure myself in a positive way. I try to judge myself based on what I can do, but it’s hard to tell what that is sometimes. I try to be a good son, a good brother, a good friend, but it’s hard to tell if I am objectively those things. Likewise I try to be a good Jew, keep halakhah (Jewish law) and connect with God as much as I can, but, again, it often feels like I could do more and I don’t know how realistic that feeling is. Sometimes (often) I wish I could see myself objectively, as God or other people see me.

***

I’ve been feeling depressed on and off today and I don’t know why. I can see external triggers, like seeing a clip (on Twitter, inevitably) of Orthodox Jews showing support for Black Lives Matter at a BLM march being threatened by BLM supporters, and the comments this got on Twitter. But that’s superficial. I’m not sure why I feel down persistently over the last few days. It feels like a few weeks ago I felt better. Now… I don’t feel constantly bad, as I did from 2003 until a few years ago (I’m not sure when exactly), but there are down times, particularly today. Some is probably tiredness and hunger, and – if not boredom, then frustration and wanting escapism (see below for more on this). Some is frustration with dating in lockdown and wanting to be able to spend more time with PIMOJ, in different settings than just cold walks in parks. Some is the days getting shorter, which always sets me back. I guess I’m also having some doubts about my novel, about why I’m even trying to write a mainstream literary novel (because I want to tell my story and my story doesn’t involve time machines or monsters), whether I will ever get it in good enough shape that I want to share it with anyone else, let alone look for a publisher. I wonder if I will ever have a job again and what that would mean for me. Intermittently at least I feel dysfunctional (like when messing up at volunteering today). I guess I don’t know where my life is going. In some ways the surprising thing is that I’m still on a reasonably even keel. I can see that I have a lot of non-present-focused fears and recrimination here, it’s just hard to know how to bring back present-focus. Perhaps by going to bed?!

***

I was warned that Twin Peaks goes rapidly downhill in the second half of its second season, but I was not prepared for just how far down it goes and how quickly. Pretty much as soon as Laura Palmer’s murder is solved (the initial “hook” of the plot), the whole thing falls apart. The suspense, sense of danger and emotional depth is gone and without that the horror effects, soap operatic sub-plots and moments of surrealism just seem silly, camp and pointless. I’m invested enough in the series and the characters to keep watching, especially as I’ve heard it does pick up again at the very end of the season, but I don’t think I’ll be binge-watching three episodes in a day again. (Well, or so I thought. I was planning to watch a film this evening, but then I couldn’t decide which one and the family Zoom call went on longer than I expected so I ended up watching more Twin Peaks instead, and the episode was a little better than the one I watched earlier.)

Struggling Through

I had hoped to get up at 9am to give me lots of time to get ready for my autism support group Zoom call at 11am, but I overslept by three-quarters of an hour and had to rush. The meeting got off to a bad start with someone challenging the group agreement. The agreement says something about we have to respect each others’ opinions and he got annoyed saying some things are empirical facts and need to be challenged, which was possibly an autistic way of looking at the exact details of the agreement rather than the general gist of the thing. I don’t know why he suddenly got annoyed about this today when he’s been in previous meetings without saying this; maybe he recently got in an argument with a conspiracy theorist or something. This incident put me on edge and made it hard for me to focus on the meeting and really listen to other people and I kept being distracted and found it hard to concentrate, doing other things, which I feel is unfair to the people speaking and usually avoid. I should probably have just left early, especially as it was only on Zoom.

Afterwards, I felt exhausted and somewhat depressed. It was hard to do anything as I felt so drained, but I know tomorrow will be worse (early start, volunteering and therapy, plus a family Zoom call in the evening) so I felt the need to try to do some things. I had poor executive function, making plans and not sticking to them, which is an autistic trait probably worsened by tiredness. I also had anxious/depressed thoughts about not experiencing autism the same way other people in the group do, leading to doubts about whether I’m on the spectrum.

I somehow fought through the tiredness to work for an hour on my novel, although I didn’t get a lot done beyond finishing off and tidying up the bit I was working on yesterday. I did manage to go for a walk. I had some negative feelings while walking. I was thinking that I don’t particularly want, or feel able, to live the type of life I’m “supposed” to live according to general consumerist society or according to frum (religious Jewish) society, but it’s hard to work out what type of life I actually could lead and find fulfilling.

***

I spent the better part of an hour working on my devar Torah (Torah thought) for this week. This was despite the fact that I am reusing an old piece I wrote many years ago (I think about ten years ago). I just wanted to polish it a bit as well as bring the referencing in line with my usual standard (I don’t do Harvard referencing on something that seems so ephemeral and non-academic, but I do like to indicate where my sources came from). Even so, it took forty-five minutes or more to be happy with it.

***

Regarding telling PIMOJ about my blog, some commenters suggested not to do so. I think they’re probably right, but I do need to find a way to open up to her with more of my emotions. I possibly find it easier to speak to her in person than in text/instant messenger, which is unusual compared with previous relationships (perhaps because English isn’t her first language?), but because of COVID it’s hard to meet in person. We’re hoping to Skype on Thursday.

***

This post is being posted somewhat half-finished, as I just realised it’s 10pm and I need to be up in eight and a half hours so should get to bed soon.

Persistence and Hoarding

I spent some time applying for a job, or rather three similar jobs at the same institution for which there was only one application form. I have applied for several jobs at this institution before, but only once got an interview, which I felt went badly; realistically, I don’t think the institution is a good fit in terms of atmosphere and outlook. Nevertheless, I felt I should persevere, so I did. The institution’s application website had saved my previous applications, but mangled them somewhat and I struggled to deal with it. I also struggled to deal with the wide open topic questions asking for evidence of competency. I can’t work out if I struggle with these because of autism, or because I don’t have so much work experience, having been out of work for so much of my adult life or else in jobs where I tried to avoid certain demands or experiences out of autistic “new situation” anxiety and social anxiety.

I suspect that lots of autistic people would freeze on being given a vague topic like “Please provide evidence of how you have provided a positive and responsive student or customer service.” I resisted the temptation to say, “I didn’t punch the students even when they were really annoying.”

I have mentioned before that I worry that my library skills in areas like cataloguing and classification have gone rusty with disuse, but it occurs to me that my transferable skills like leadership and customer service are not in great shape any more either, if they ever were.

I also have a law library job and a school library job to apply for this week, but I’m pessimistic about my chances with either, given that I have no experience in either sector and have rarely been interviewed when applying in either sector. But I feel I have no other options.

***

I went for another twilight run, although twilight was, of course, much earlier today. It was pretty good, in terms of pace (which is what I tend to focus on), despite cramp and a headache that came and went all evening despite taking medicine (the headache was only a 5 for intensity, but an 8 for persistence – just kidding, I don’t really rate all my headaches). After that I went on a virtual tour of Jewish London (money raised going to charity). I knew a lot of what was said, but it was for good causes.

***

I notice I’ve spoken about persistence twice in this post, once in regard to persisting in applying for jobs and once in terms of persisting with a run (and later Torah study) despite a headache. I suspect persistence is one of my key traits. At least, people have told me so. Once I get started, I tend to persist in doing things even when they seem unlikely to work out, like that job application. It was only when I read the book Calling Out to You (about depression and anxiety from an Orthodox Jewish perspective – recommended) that I really began to accept that rather than beating myself up for not doing enough prayer, religious study and other religious activities when depressed, I should be proud for doing anything at all. The analogy used was, “If you have a headache, you wouldn’t expect to function religiously as if you did not have a headache.” Then I realised that not only do I try to live my life as if not depressed when depressed, but even when I have a bad migraine, I try to carry on with prayers as if I was feeling fine, actually making myself throw up the last time I had a very bad migraine by making myself pray. Possibly persistence, like other virtues, is a vice if carried to excess (like my recent decision to stop persisting with books I’m not enjoying). It is hard to remember to see it this way all the time, though.

***

I am by nature a bit of a hoarder, albeit not to an extreme where hoarding becomes a psychological problem. However, lately I’ve been contemplating a clear out of some things. I doubt I will get rid of enough stuff to feel Marie Kondo-style possession-free, but I might free up some space on my over-crowded bookshelves. I have over a thousand books and it’s unlikely that many of those are going to get re-read, or even read once in some cases. I’d like to get rid of some books and also some bits of bric-a-brac that I’ve accumulated, what my parents would refer to as shmey dreys (a Yiddish word I’ve only encountered outside my family here, with a completely different meaning given) and other Yiddish speakers would call tchotchkes (a word I’ve never heard in our family… I think we speak slightly strange Yiddish, perhaps a different regional dialect. It might also be relevant that all four of my grandparents were born in England and only my maternal grandfather spoke much Yiddish). Much of the bric-a-brac consists of mementoes of holidays I went on, or that other people brought me back from their holidays, but I’m not sure how many “spark joy” or make me think about good times particularly. Some I would keep, but maybe put away somewhere so I have the shelf-space and so it’s less of a dust trap. I might put some of the fantasy war gaming miniatures I’ve painted away too. I’m proud of them, but they do make dusting hard, and maybe there are too many of them to create a good impression.

As for books, it’s hard to work out what I won’t read again, particularly with novels. I know I’m unlikely to re-read murder mysteries, but that’s the type of thing I would like to lend to my children (if I have any) to tempt them to read more adult books when they are ready for more adult books. As for non-fiction, I’ve picked up a lot over the years, either free from the duplicate pile at one library where I worked or cheap from another library and from charity shops and the like. At one stage I wanted to build a personal library, but I think I’ve rather given up on that. Still, it seems a shame to give away classic books like Hobbes’ Leviathan or Plato’s Republic even though that’s not really where my interests lie any more. I’ve got some odd books on Jewish history too which might be useful if I write Jewish historical/time-travel novels as I’d like to do, but I suspect a lot have been superseded by more recent research and would have to be supplemented if not ignored.

My parents have also encouraged me not to throw away books or objects that were given to me as presents or books given as prizes for academic achievement at school or university. I have quite a few of these (*blushes*) and they make up a lot of the “unread, unlikely to read” pile. Bear in mind my parents still have several large packing boxes of toys that used to belong to me and my sister in the hope that they will one day have grandchildren who will play with them although I’m not sure how much children would want to play with old toys, even classics like Lego and my train set. I can see the point in holding on to some of these, but I think others would better go to a children’s charity.

I also have a lot of Doctor Who videos, even though I’ve replaced them all with DVDs by now. I was hoping that they might become valuable collectibles at some stage, but I’m not sure that they will. I would like to keep the sleeves even if I get rid of the tapes as, perhaps surprisingly, the Doctor Who video range often used specially commissioned painted art rather than just photos, even though the latter is much cheaper. The pictures produced were often very good and even when they switched to photoshopped photos, the covers were still quite attention-grabbing. I just can’t bring myself to throw them away, although if I disposed of the videos I could store the sleeves easily in a folder.

It’s something to think about anyway. It’s probably be good that I’m even thinking about such a clear out.

The Boy in the Bubble

I went to bed very early last night, but I slept for over twelve hours, so I got up late again this morning. I’m slightly embarrassed to say it, but I feel like I could have slept longer. I did feel drained and burnt out today, particularly in the morning and early afternoon. I’ve got to a point where I’m at least somewhat accepting that this is just what happens to me when I do things. Still, I wish I had more hours awake and alert.

I had a dream about being back at Oxford University. I was trying to get more time to do my work as I was depressed and autistic, but there was some kind of problem, I don’t know what. It may just have been that I did not have the courage to go to my tutor and explain. There were some people from my current shul (synagogue) there too for some reason. It’s pretty obvious that the dream was about feeling bad for needing support with my issues. I’ve never really got over that feeling of shame.

***

A librarian who turned me down for a job a while back saying my cataloguing wasn’t good enough has added me to his network on LinkedIn. I’ve never really got the hang of LinkedIn (like Facebook, but boring), but I reciprocated, because nowadays I mostly do if someone I vaguely know as a real person adds me (not random strangers). I’ve been on LinkedIn for years, but still haven’t got up to the thirty connections they say you should have for it to work well; a number of the connections I do have are family and friends in different sectors, not colleagues. It also reminds me of this cartoon.

***

PIMOJ and I were planning a date, when I realised it contravened COVID regulations (indoors with people outside my “bubble”). My sister and brother-in-law are our household’s “bubble,” so I can’t count PIMOJ as one. They (the regulations) are complicated enough now that I have to look them up as I don’t remember them. I think it will be a long, cold winter if we can’t meet indoors except in cafes and restaurants (where I don’t feel comfortable at the moment anyway). I was a bit nervous of mentioning this to PIMOJ in case it looked like I was backing out, but she was fine with it. When dating, I get so scared of being negative or just disagreeing in case; ironically, one date got angry with me because I was indecisive through fear of contradicting her, the opposite of what I intended. Dating in COVID is hard. Dating with low self-esteem and fear of rejection is harder. I need to learn that (a) PIMOJ seems to like me, other things being equal and (b) when it comes to values questions (like breaching lockdown or not), we’re usually on the same page. The latter is a somewhat unfamiliar place for me to be.

***

I started writing a new bit for my novel, plugging a plot-hole that I noticed. I wrote about 800 words in an hour, but feel I might be approaching the scene the wrong way and need to rewrite. As ever, I wanted to write more, but ran out of time. It can be hard to lead a full life when I only really have afternoons and evenings.

***

Other achievements today: I finished and sent my devar Torah (Torah thought) for the week. It was a little shorter than usual, but I couldn’t think of anything else to say and it seemed silly to pad it needlessly. I did some Torah study, albeit a disproportionate amount was spent tracing a reference in Rabbi Lord Sacks’ devar Torah to Ramban’s Torah commentary, but when I found it, I didn’t fully understand what Ramban was saying or why.

I went for a walk and did some shopping; I also failed to pick up my repeat prescription as the surgery has been slow in processing the pharmacy’s request (the lockdown procedure for requesting repeat prescriptions). I hope it’s ready before late afternoon tomorrow or I will run out over the weekend.

I did some ironing while watching Twin Peaks, which was a mistake, as Twin Peaks required atmosphere and concentration that were not possible while ironing. I find myself wanting to wallow in Twin Peaks. It has a unique atmosphere. Doctor Who is also capable of being mysterious, funny and scary in quick succession or even at the same time, but with Twin Peaks there is a sense of something else as well, I’m not sure what. Twin Peaks certainly has a sense of place which Doctor Who, by virtue of its time-space travelling format, does not, and Twin Peaks can have a greater sense of fear being aimed at an adult, post-watershed audience unlike Doctor Who, which has mostly been aimed at a family audience. There is something else, though, maybe a dreamlike atmosphere that I can’t pin down. Maybe Twin Peaks has a sense of fear that Doctor Who can’t have, because Doctor Who hasn’t really scared me since I was a child, whereas I know (from the classification warning on the DVD box) that Twin Peaks probably will have scenes that will scare or horrify me and I’m sitting on the edge of my seat in nervous anticipation.

Whatever the reason, I want to wallow it and binge-watch episodes, which is unusual for me, although not unknown. I don’t usually watch more than an hour of television in a day. I suppose the serial nature of the programme helps. When I watched Life on Mars and Ashes to Ashes earlier in the year, it was quite obvious that I was only going to get answers in the last episode of the season, if not the last episode of the programme as a whole, whereas here there are limited answers and more questions all the time.

Writing Again, and Therapy

I went (on Zoom) to a time management at work webinar this morning. I thought it might be useful for general life as well as work and it was free so I thought I might as well go. I found that I knew a lot of what I was told, which in a way is good because it shows I’m doing the right sort of things. It was good to hear that everyone is busy, everyone procrastinates and so on.

I struggled to get down to work on my novel in the afternoon. I hadn’t worked on it for a while because of Yom Tov (Jewish festivals) and preparing for job interviews, so it took a while to pick up the thread again. I worked on it for a while. I am not sure how much actual work I did and how much procrastination (and, to be fair, how much being called away by my parents to help them with things). I did some editing and rewriting, perhaps the first bit of significant rewriting. The goal was really just to sit down and resume work on the manuscript for the first time in a month or so; the actual time spent and quality of output was not as important as just bringing it back into my life.

I had therapy, which was exhausting. I’m seeing my therapist once a fortnight now, as things felt reasonably stable; I still want to check in and talk regularly, but I don’t have so much to say. Even so, it can be a struggle to talk for an hour. I just don’t have much new to say, but I need that first fifteen or twenty minutes when I can just offload and everything comes rushing out. I think if I move to monthly sessions, there will be too much of a build-up of things I want to say in between sessions.

I find therapy is as much about letting me see things differently for myself as the therapist saying things that make me see things differently. I realised today that I should focus on the number of things I do every day (a lot) rather than the time spent on things, because somehow saying “I did two hours of job applications, one hour on my novel, half an hour of Torah study” seems less than “I did job applications and worked on my novel and did Torah study.” It’s like once you put a number on it, it can never be enough. Plus sometimes I do a lot of tasks that don’t take up much time individually, but do build up cumulatively.

I still have times of depression during the day, including today, where at times I felt that I wanted to cry, but fortunately these times tend not to be long lasting. I spoke a bit in therapy about trying to be more present-focused as a way of getting out of these depressed periods and also about seeing this way of dealing with depression by being present-focused as a process to learn rather than a skill I either have or don’t have.

I went for a walk right after therapy, as the rain (which had been heavy during therapy) had stopped and I didn’t know when it would restart. I managed some Torah study too, a reasonable amount considering how busy the day was. So it was a fairly busy day.

Overwhelmed

I had what I suppose were wish fulfilment dreams last night, first dreaming that I was James Bond and then (I think – it wasn’t so clear) that I was the Doctor from Doctor Who. I suppose I just want to feel capable, charismatic and worthwhile. My parents feel that I am capable and worthwhile, and PIMOJ seems to feel that too, but somehow that isn’t enough; part of me still wants to be Napoleon and conquer the world, not literally, but through some worthwhile act. The dreams were PG rated, but I still feel vaguely embarrassed about having had them, as they seem infantile things to dream, although not embarrassed enough to stop me sharing them with the world on my blog. They weren’t restful, though, as I woke up exhausted and burnt out after the first dream, fell asleep again and dreamed the second one and woke up exhausted again, but by then it was very late and I had to get up.

***

The main achievements of the day were (a) I helped Dad take down more the sukkah, wishing I was taller, stronger, and less prone to fearing that I’ll fall off ladders; and (b) I cooked Jewish-Ethiopian vegetable stew (wot), which I hadn’t cooked before. I was supposed to cook a half recipe, but then tried to adjust as it didn’t seem to have many filling ingredients, then I confused myself about how much to cook (this is when I feel incompetent and unable to do even basic tasks). Then it turned out that it was only supposed to be a side-dish, but I’d run out of time, so Mum defrosted some soya ersatz “meatballs” and cooked some rice to go with it. I also did some Torah study (not as much etc. etc.), but I haven’t really been out of the house, or at least off the property (I’ve been in the garden) for days, only partly because of the wet weather.

***

I felt rather overwhelmed today. I guess lots of religious Jews feel like that at this time of year, recovering from a month of religious festivals. I don’t have a paid job to catch up on, but I have chores that need doing, some of which have been pushed off for months because of lockdown, plus I have to find a new job. All of which is between me and what I want to do, which is work on my novel, something I felt too depressed to do today. I probably should schedule some novel time in over the next week or so and work on it even if I feel I should be doing something else, otherwise it will never get redrafted because naturally I put what I want to do at the bottom of the to do list.

Plus, this week I had depression group on Zoom yesterday, a Zoom panel discussion on autism and creativity/art today, a webinar on time management and Skype therapy tomorrow and a Skype call with my oldest friend (who I haven’t seen for several years) on Thursday. This would be busy for most people, even if they weren’t a semi-hermit like me (even pre-COVID, even more so with COVID). To hit this after a month of Yom Tov (festivals) really is too much. Of course, I didn’t think that when I booked all this stuff in.

Unlike many autistic people, I don’t get full-blown meltdowns, but when I’m stressed and overwhelmed I get sucked into a negative thought spiral of feeling overwhelmed, not being able to focus on the big picture, being unable to make even minor decisions, catastrophising and feeling everything is hopeless. Eventually it builds up and I have to be “talked down” by my parents, although it’s often the case that initially what they say just feels like another factor overwhelming me. This was what happened today, about my bank account, which is often a trigger for these things. My Dad and my sister read the financial papers and find good interest rates or whatever and persuade me to move my money around, but because I have a low (almost zero) income, it’s questionable whether it’s worth the hassle. Certainly it often leaves me confused about where my money is and what I should do with it. The problem is also that I have a tendency to do what authority figures in my life say, so I try to follow what Dad says while simultaneously confused, overwhelmed and vaguely resentful.

As I say, it’s often finance-related stuff that sets this off. I feel that I should be good at this sort of thing. I was good at maths at school, but somehow lost that with lack of practice. I did A-Level economics too, but that actually tells you very little about managing money, more about managing economies, which is not at all the same thing. I guess it’s not so much the maths but the details that I find overwhelming, the feeling of being overwhelmed on a sea of facts that are too many to be comprehended in their entirety in one go.

Shopping can also be overwhelming and I did that today too (online). Again, Mum was trying to get me to consider different stores and styles; I felt I had to impose boundaries on what I was going to look at, even if they were arbitrary, just to stop myself from getting overwhelmed. I can accept that I might lose a few pounds or not find the “perfect” style of shoe (whatever that would be) just to be able to get through the process.

As well as overwhelmed today, I feel burnt out and somewhat depressed. My mood is low, but it’s hard to tell why. I guess it comes from the burnt out and overwhelmed feelings.

***

In the evening I “attended” a Zoom panel discussion on autism and art. The three panellists, all women, were two autistic artists and an autistic writer/editor. I wasn’t sure if the (male) chair was also on the spectrum. I wondered if it was significant that all three panellists were female. It did make me feel somewhat “not good enough” about my writing, but I’m not sure why. Perhaps because the writer said that autistic writing is always very sensory, and I’m not good at describing sensory stuff which made me think I’m either not really autistic or not a good writer. There was an auction of art for charity afterwards, but I left before that.

***

I feel less overwhelmed now, but perhaps a bit lonely, I’m not sure (I’m not always good at understanding my own emotions, known as alexithymia). I feel that maybe PIMOJ is willing to support me despite my issues, but I’m still scared to open up about what I feel, partly because it’s led to rejection in the past, partly because I feel I misrepresented myself to her as no longer strongly depressed, when it looks like my apparent recovery was just seasonal (longer days and more sunlight in summer), partly I guess because I wonder how I will respond to her positivity on a depressed and overwhelmed day like today. But not saying anything just raises fears of the relationship collapsing through apathy (my apathy) so it’s a lose-lose situation.

We actually spoke a bit about this just now. We were talking about Sefer Iyov (The Book of Job) and somehow got onto it. She said that I should be open with her about when I actually want advice about something and when I just need to vent and she will try to respond appropriately, which is good of her. I do still worry about being too negative for her, though. And also that I think she’s far too good for me.

***

I’m thinking this evening… other autism sufferers seem to place a lot of emphasis on things like sensory sensitivity being their primary experience of autism or executive function issues or special interests or communication issues. I guess I feel that for me autism is… well, autism is literally from the Greek autos meaning self, the term ‘autism’ apparently meaning ‘morbid self-absorption’ (according to this etymology site anyway – I assume ‘morbid’ in the sense of ‘pathological’). That connects with the other aspects, particularly communication issues, but is also separate. I think autism for me is about being locked into my world – my brain – and being unable to connect with other people, lacking a vocabulary to describe what I feel and experience. I guess this is connecting to alexithymia, which I mentioned earlier, given that I don’t lack a vocabulary for describing emotions in the abstract, it’s labelling my own personal experiences that gives me the trouble. There’s a frequent feeling of being alone. I like being on my own a lot, but not always, I need a few good friends and I have spent most of my adult life wanting to be in a relationship and not knowing how to do that. Now I have it and I’m worried I’m going to mess it up.

“Everyone I know is lonely”

My Mum had a phone appointment today for my autism assessment. I’m a bit worried… I’m pretty sure I’m on the spectrum, and that’s why I struggle with some things like job interviews. It’s hard for my parents to remember thirty years ago or more, but part of the diagnosis is based on how I was as a child, so I may not get the diagnosis I think I need. I think I learnt to mask from a young age, and as a child I was quiet, well-behaved and self-contained, so adults generally left me alone and focused on more needy/vocal children. I have noted before that I have a presentation of autism that has more in common with autistic women than men (particularly masking and finding strategies to “pass” as neurotypical in conversation and life in general, and being more imaginative and creative than autistic stereotype) – unfortunately, autism in women is arguably under-diagnosed because it doesn’t seem like “classic” autism, and I suspect the psychiatrists will be even less receptive to finding “female” autism in me.

Ironically, while she was doing that, I had a classic autistic moment. I was helping Dad take down the sukkah, or some of it, and he said, “Go up the ladder,” which I did – without moving it to where it needed to be first. Classic autistic literalism. The thing is, things like this can seem autistic, but they can also just seem absent-minded or eccentric. When I was younger, my parents viewed me through the “absent-minded” lens (my Mum even used to call me her “Absent-Minded Professor”). Now I see myself more through the autism lens. Maybe I’m wrong to do so. I guess I’ll find out soon; usually the appointment with the suspected autistic person is within six weeks of the appointment with the parent/guardian, but lately they’re doing them faster online so I should get an appointment soon.

***

I opened up to PIMOJ about some of this (autism and also depression) and she’s been really supportive, but I can’t shake the fears that one day it will be too much for her and she will walk off, particularly if I can’t find a job soon. I guess because that has happened to me before.

***

Other than that, today felt like trench warfare: a lot of noise, but not much movement (possibly watching The American Civil War triggered that – trench warfare is more associated with World War I, but it was actually first used in The American Civil War). I’m struggling with the disappearance of daylight as days get shorter and cloudier; it is probably time to start using my light box again. I helped Dad with the sukkah, as I said, and spent quite some time catching up on emails, including one to a potential voluntary opportunity (more in a few days, hopefully, when I hear back from them). Other than that, I felt too tired to do much. Post-Yom Tov (festival) burnout, I guess. I spent a lot of time writing and answering emails. I feel like anyone who has a white-collar job spends a huge chunk of the day treading water answering emails, although technically none of these were about paid employment.

No time or energy for a walk, and it was too wet. Mum suddenly felt ill about 6.00pm, so I hurriedly made dinner – just plain pasta with a bought sauce as I was short of time and energy. Part of the lack of time was because I wanted to go to depression group on Zoom, which I did, although I always feel curiously uncertain as to what to say and how coherent I sound. It’s good to have somewhere I can admit to difficult feelings. I spoke about the job interviews and feelings of inferiority and wanting my autism diagnosis to reassure myself, but not about the worry that PIMOJ would not cope with my issues.

I didn’t have time to do any further job hunting today. I have four jobs to apply for on my job spreadsheet, but two are for school librarian positions and I feel reluctant to apply for them given that I was rejected from the other school librarian position for lack of relevant experience. One is a law library position which raises the same experience issues, plus that would, I imagine, be a very fast-paced, high-pressure environment. The other job, a research support librarian position at a major museum, scares me in terms of the responsibility involved and my fears about my skillset.

I didn’t feel up to doing much Torah study so listened on an online shiur (religious class) on the goal of life. To be honest, it didn’t tell me much I hadn’t heard before from similar shiurim and books. Another problem with these types of class is that they tell you that true pleasure is eternal pleasure i.e. pursuing eternal, meaningful things like prayer and Torah study, but I can end up feeling despondent because depressive anhedonia means I don’t always enjoy spiritual things any more than narrowly material things, sometimes less so. Still, that was half an hour of Torah study that I probably wouldn’t have managed if I was still narrowly focused on reading religious texts for my Torah study.

***

I feel upset that so many people I know seem to be struggling right now (hence the title quote, from the Police song O My God). Some of that is COVID, but some, I guess, is that life really is hard for a lot of people. There’s a pithy rhyming quote, I think from Oliver Goldsmith (eighteenth century English poet) that I have been trying to locate again for some time now without coming across it, about how small are the elements of human suffering that can be relieved by governments and kings. I guess that is an unfashionable and conservative view nowadays, where we are supposed to think that the state could and should solve every problem and that social justice is best dealt out in real-time on Twitter, but a lot of people I know are struggling with anxiety, depression, loneliness, autism, not fitting in, arguments with family, sometimes abuse… There can be a material aspect to these things, and sometimes governments can help, but it’s not always the main problem or the key to addressing things. Thank God, I’m not struggling financially because my family are looking after me, but my problems are still very real. It’s hard enough for government to try to secure access to the essentials of life, without factoring in that happiness or sadness are often driven by non-tangible factors, and that dependency on others, especially an impersonal state, can be a strong driver of low self-esteem and depression… I just felt on the brink of tears by dinner time today, thinking about things.

***

I noticed something interesting when I went to shul (synagogue) last week. Obviously masks are compulsory there and a couple of children had dinosaur masks on, so far as I could tell from a distance. I found this interesting, as our previous rabbi was a Creationist and I assumed that most of the congregation were too and I was in a minority for not being one. Moreover, the father of the boys wearing the masks is very religious and involved. Of course, it could be that these are children and no one minds; still, it made me think maybe I’m not as unusual as I thought and I don’t have to feel as constrained as I do to hide my thoughts.

More Burn Out, and Fitting In

I still feel very drained today, perhaps more than yesterday in some ways, which may not be surprising given that I had to “people” a bit yesterday evening as well as making myself draft my devar Torah (Torah thought). Getting up was hard, getting dressed was hard, davening (praying) was hard, shaving was hard… everything today has been hard, really.

It does make me wonder about what I should do if I get the job I was interviewed for last week, but they want me to work full-time (it was a full-time position, but the online application form said that they were possibly open to flexible working, but at the interview they were unsure of that).

I forced myself to go for a half-hour walk and to finish off my devar Torah, but it was hard. I just want to shut down. The weather out was cold and I wore my anorak for the first time this autumn. On Saturday, Jews worldwide will start praying for rain, and summer will well and truly feel over (although it’s still warm and dry in some places with large Jewish populations e.g. Israel and parts of the USA).

I listened to an audio shiur (religious class) because I didn’t feel up to reading any Torah, but wanted to do some Torah study regardless. It made me feel a bit bad as it was on Simchat Torah (The Rejoicing of the Torah), the final festival of the Jewish autumn holiday cycle, which is this Sunday. It’s always a challenging day for me, as it’s celebrated by ecstatic (and often alcohol-fuelled) dancing with the Torah scrolls in shul (synagogue). Obviously that won’t be happening this year due to COVID, but usually I find it very hard: too much joy that I can’t connect with from depression, too much noise that I can’t cope with from autism, too much emphasis on being visible in front of others that I can’t cope with from social anxiety. Often I don’t go to shul for this at all, or I leave early (I have a whole semi-autobiographical scene about this day in the novel I’m writing). In the past I’ve judged myself negatively for not being able to fit in with this festival and I guess I still am doing that, on some level, as the shiur made me feel bad. One year or maybe two I did actually manage to really get into it, really dance and feel happy and connect, I don’t know how, but I’ve never been able to get back there since then.

***

I’ve been thinking recently a lot about fitting in. I guess even the Simchat Torah feeling is about fitting in, as I hate being in shul and seeing other people let go and dance and feel happy and not be able to do that. I wrote and then deleted some paragraphs here about religion and politics and not fitting in. The religious stuff I’ve mostly said before and if I cut it, it’s to avoid repeating myself (although I’ve picked up some new readers since then, so maybe there would be a point in repeating it). But as for the politics… I’ve been edging around the topic for months now, wanting to write something, drafting things, deleting them or cutting and pasting them out and saving them elsewhere. I know roughly what I want to write, but I’m scared of the consequences. It occurs to me that as the Very Important Institution where I was interviewed the other week might not want me writing political stuff, so maybe that’s another reason not to write, even anonymously here. I don’t know.

The essence of the matter is that I want to fit in, but am always scared of upsetting people by holding an opinion on religion or politics or anything that really matters, so I sit quietly and don’t say anything. I don’t know if I seem boring, but I do sometimes wish I could say more. But I’m scared of rejection and of conflict, so being quiet seems the easier option.

I know it’s a problem with dating PIMOJ. She’s so positive in outlook that I feel bad for feeling so negative all the time, but I’m scared to open up too much about my depression and autism. I’ve mentioned both to her, but downplayed the autism and really put the depression in the past tense, whereas it’s probably not over permanently. She asked me on our date why I became depressed, which was difficult to answer adequately in a way I felt comfortable with. I worry that she’s too positive for me and that her intense religiosity and constant mystical sense of God’s immanent presence is incompatible with my religious existentialist unending search for God and meaning in a universe of darkness and doubt. I want to open up and see how she reacts, and so far when I have opened up a bit, her reaction has been positive, but I’m just too scared. Maybe I need to force myself out to her by degrees.

***

That’s all I’ve got for today really. Brain is just not working properly. Off to watch Star Trek Voyager as I’m too depressed and drained to read the huge brick of a novel I tried to start yesterday and didn’t get far with (Dominion by C. J. Sansom, another “What if the Nazis won World War II?” alternative history novel).

I’m Only Sleeping

I didn’t sleep well last night again. I thought/hoped I would sleep better now the interview is out of the way, but obviously not. First I couldn’t get to sleep, although I felt incredibly tired. I think I didn’t have enough “introvert alone time” after “peopling” for so long. Then I woke up about 5.30am feeling anxious. I can’t even remember what I was anxious about, although I know it was connected with the other job interview, the one I had last week and haven’t heard back from yet where I wanted the job more than the job interview I had yesterday. I think I was worried about being able to take off Jewish festivals and “early Fridays” in the winter when Shabbat (the Jewish Sabbath) starts early. I did eventually fall asleep again, and slept through until gone 10.30am and still woke up exhausted and burnt out. I don’t know if it’s depression, autistic burnout or medication side-effects (or a combination of the three) that makes me so tired in the mornings, but it’s hard to know what I can do about it. I know this increasingly feels like a sleep/burnout blog, which I guess is good, as it means the depression is less of an issue during the day and my other autism and social anxiety symptoms are under control (albeit probably because I’m not doing much that is social), but I’m not sure how interesting it is for anyone else.

***

I try not to use the word “triggering” regarding myself, as I feel that it trivialises the term for people who really have c-PTSD (just as I don’t like people saying they’re “depressed” when they mean vaguely down, or they’re “OCD” when they mean they’re neat and tidy). Still, some things are more likely to upset me and start negative thoughts than others. These upsetting thoughts can be vaguely obsessional, in the correct sense this time of being hard to get rid of, spiralling in on themselves and making me anxious and agitated. These kinds of thoughts tend to come from newspapers, news sites and the dreaded Twitter (Twitter is a bit like swimming in raw sewage that occasionally tells a good joke). I’m most vulnerable to these types of thoughts when feeling burnt out and mildly depressed… but I’m more likely to encounter these things when procrastinating (online or leafing through the hardcopy newspapers at home) because I’m feeling burnt out and mildly depressed, as happened today. I actually coped OK with coming across them today and dismissed said thoughts reasonably easily, but it can be difficult sometimes.

I probably should delete my Twitter account, just as I deleted my Facebook account seven years ago, but I think I would still be able to see other people’s Tweets, which is the dangerous bit and I have vague thoughts that I could use my Twitter account to job hunt or join in with Doctor Who fandom, although if I avoided doing either of those two things during lockdown, the likelihood of doing them afterwards seems very remote.

***

Achievements: after a lot of procrastinating (see above about the risks of this) I wrote a first draft of this week’s devar Torah (Torah thought). I managed to write a thought for every week this year, excluding a couple of weeks when Yom Tov (festivals) fell on Saturday and the regular Torah reading was postponed. The thoughts were about 600 to 1,000 words long, which is longer than it sounds (for comparison, I think most of my blog posts are around 1,000 words), and I do try to do some research for them rather than just rely on secondary sources; even if I find something in a secondary source, I like to trace the reference back to the original source in the Talmud or the Midrash or whatever, if I can find it and if my Hebrew/Aramaic is up to it (Sefaria.org is a blessing).

I didn’t manage a lot else. The main thing was a half-hour walk. I did some Torah study – as yesterday, listening to a shiur (religious class) for fifty minutes or so as I was too depressed to read much. Even so, I struggled to concentrate and drifted in and out of it. I think I should consider listening to shiurim more on days when I feel depressed and/or burnt out, although I need to work out how to get shiurim from YU Torah Online on my phone or ipod.

Otherwise, I watched TV: another episode of The Civil War (after talking of gore here the other day, there were some graphic photographs of wounded soldiers that I couldn’t look at) and I’m about to watch Star Trek Voyager.

EDIT: I forgot to say, I had dinner in the sukkah with my parents and two of their friends. I feel more comfortable with these friends than with some others, but I still was really only eating with them so I could eat in the sukkah. It started raining heavily after a while and we all went in; fortunately I had just about finished my pizza and went upstairs.

Anxiety Again

I struggled to sleep again last night. I guess it’s my fault for napping for over two hours in the afternoon and then being up late on screens, messaging PIMOJ and watching Doctor Who before bed. The result was that I slept later than I wanted, which might also be post-Yom Tov burnout (not that I was doing much).

***

This morning brought a mysterious text message telling me that I have an appointment next Monday and I should call the team if I can not attend, but that I should “NOT REPLY TO THIS MESSAGE” (in capitals). Unfortunately, there was no indication of who the message was from or how I should contact the team, whoever they are, or even whether the appointment is by phone, Skype, Zoom or whatever. This seemed to me like NHS incompetence, probably connected with my mother’s appointment about my autism assessment on Monday. She phoned the hospital and, yes, it was for her. They didn’t have her mobile number, so they messaged me instead, which I guess makes a sort of sense, even if it could have been handled better. It did make me worried for while though.

***

I felt somewhat depressed and anxious on and off all afternoon and evening. I’m not sure how much was anxiety about the job interview and date tomorrow and how much was getting annoyed with “performative virtue” online, including from the professional body I belong to. The job interview worries me as I have never worked in the primary school sector before and have limited experience with children (for all that my Mum insists I have a natural ability with them) and I worry that my experiences in further education won’t be transferable. I’m not sure what I’ll say if they ask me specific questions about what I would do in certain situations. I suppose I should just tell myself I’m pushing myself outside of my comfort zone.

I guess the date could also be called pushing myself outside of my comfort zone. PIMOJ today encouraged me to share my negative feelings with her, but I worry that she’s so positive, she won’t put up with my depression and anxiety for long. I guess the only way to tell is to try, just as the only way to see if I’m capable of being a primary school librarian is to put myself up for the interview. I want to open up more to her, I’m just scared. Maybe it will be easier once we’ve actually met in the real world.

As for performative virtue, I wrote 400 words about politics, not fitting in and being anxious about antisemitism, but I don’t have the courage to post, not the first time this has happened (although I was quite proud of writing the phrase, “dialectical ping-pong”). I suppose one day I’ll post something before I think better of it and have to live with the consequences.

***

I thought going for a walk would help with my mood. It started raining heavily while I was walking, but I carried on as I thought the walk would do me good; I had hardly been out the house since Thursday. I did get soaked and lapsed back into depression on returning.

***

On to fear and anxiety of a different kind: I think I mentioned here a while back about wanting to watch the TV series Twin Peaks, but being worried about how gory and violent it might be. In the end I took the plunge and bought the DVDs having heard it wasn’t so gory, but when they arrived the other day, the packaging warned of “Very strong language, strong bloody violence, gore, sex, drug misuse”. I don’t care much about swearing or drugs and find sex on TV embarrassing more than anything, but I am nervous about violence and gore, which make me feel queasy. The most gory DVD in my collection up until now has been Blade Runner: The Final Cut, which is an excellent film, but one I have to fast-forward or look away from at a couple of points to avoid blood or other disturbing things. That said, I think the most disturbing thing I’ve seen on TV in recent years is Ken Burns’ excellent, but brutal documentary series on The Vietnam War; malevolent extra-dimensional beings are nothing compared to man’s inhumanity to man in the real world.

I think I probably will watch Twin Peaks (once I’ve finished Star Trek Voyager – I’ve got about half a dozen episodes of that left) – I’ve wanted to watch it for long enough and it now feels like some bizarre kind of endurance test I have to make myself go through with, but I probably will watch it with the lights on and the volume not too high, to stop it from being an overly-immersive experience, the opposite of how I usually like to watch TV.

***

Achievements: interview preparation (although I still feel unprepared, not really knowing what to expect regarding an interview from this sector); a half-hour walk; half an hour of Torah study (I would have liked to have done more, but as I averaged an hour for the last few days, maybe I shouldn’t beat myself up too much). It doesn’t feel like much, but I guess anxiety and depression eat up a huge amount of time. I did manage to eat both lunch and dinner in the sukkah, which ate up some more time, as it takes time to unlock the door into the garden, remove the sukkah‘s roof, wipe the table, carry food out the house and so on – I find meals in the sukkah take noticeably longer than meals inside.

I’m probably going to get an earlyish night, trying to sleep and not worry about the job interview or the date or whether PIMOJ will drop me as soon as she sees how fragile my mental health can really be. At any rate, by the time I post again, I should have a better idea about some of these things.

Interview and After

I think my job interview this morning went quite well. I got a bit put off by the multiple images on the video conference, especially when I could see myself talking. They didn’t ask any questions about my presentation, which hopefully means it was amazing and not terrible! It sounded like a nice place to work and the panel (of four) were very friendly and I think I connected with them quite well, which is good. Flexible working is a possibility, including working part-time or from home, which is very encouraging, although they sounded a bit unsure about part-time. The work sounds interesting, although I still suffer from confidence problems about accuracy in technical library jobs. I used to be really accurate, but then at jobs in unsuitable environments, I became inaccurate, and now I’ve lost my confidence. I answered all the questions in the interview, but some I definitely answered better than others. I can’t always think of responses including concrete examples from my life/work experience, which may be an autistic thing on several levels. I did try to force myself to give such examples, but one or two questions I just answered in the abstract because I couldn’t think of examples. I should hear back on 12 October.

I had therapy afterwards, but had time to kill before then. I was too tired to do much. I watched another episode of The Civil War, Ken Burns’ documentary on the American Civil War, which I started watching on DVD a few weeks ago after watching Lincoln. It’s a good documentary series, but was really too heavy-going for post-job interview viewing, especially as the episode I was watching was over an hour and a half long, and also focused mainly on the battles rather than the politics and the personalities of the major figures, which I am more interested in.

I tried to go for a walk after lunch, but literally seconds after I stepped out, it started to rain heavily so I beat a hasty retreat indoors.

I didn’t have much to say in therapy, mostly because things seem to be going well. I haven’t had much to say for a couple of weeks, as things have mostly been OK, but I don’t want to cancel the sessions just yet, as some issues may come up associated with the potential new job or dating. I brought this up in therapy and we agreed to move from a weekly session to a fortnightly one, which I think is a good idea for the moment.

I tried to do some Torah study between therapy and dinner. As I was too tired to read (again), I listened to another online shiur. It was on piyyutim (Medieval Jewish liturgical poetry) and was really designed to be listened to before Rosh Hashanah and Yom Kippur (Jewish New Year and Day of Atonement), to prepare for the prayers, although as I davened (prayed) at home this year and skipped most of the piyyutim it probably wouldn’t have made much practical difference to me. It was an interesting shiur, but an hour on Medieval liturgical poetry was probably at least fifteen minutes too long for me, certainly on such a depleting day as today.

***

I did something I rarely do, which is to write an angry comment somewhere. It was on an article on Unherd, about mental illness in the young, which made some valid points about over-prescription of drugs and treating ordinary negative emotions as pathological, but whose author wrapped her message in a shell of stigma, using the words “mad” and “madness” to describe the mentally ill four times in one article. The author’s biography describes her as a campaigner against sexual violence; I’m really surprised that she fails to grasp that many mental illness sufferers are also survivors of violence and abuse, and that’s why they’re mentally ill. I am somewhat worried about receiving negative comments, but I had to get my thoughts off my chest because it was really annoying me.

Lies, Damn Lies and Statistics

A fund-raising email from an autism charity told me today that autistic people are nine times more likely to commit suicide than non-autistic people, which is depressing, but I fear has the ring of truth. Elsewhere, a blog I follow tells me that only 16% of autistic people are in work (although I suspect there are more non-diagnosed autistic people who are in work and haven’t needed a diagnosis) and only 5% get married (it doesn’t say how many of those marriages work out). I’m not sure what happens if you take out the severe autism. Of course, secular Western society defines people by their career and Orthodox Jewish society largely defines them by their marriage and offspring, so it is easy to end up feeling like a failure – which I guess is where the suicide statistic comes in.

***

Shabbat (the Sabbath) felt like the first Shabbat of winter, cold and dark, and over early enough that it wasn’t worth eating dinner for seudah shlishit (the third Sabbath meal). I slept for something like thirteen or fourteen hours out of twenty-five, which was not good. I read two chapters of Iyov (Job) which was good, as Iyov is about the hardest book of Tanakh (the Hebrew Bible) from a linguistic point of view, very, very difficult poetry with lots of obscure words (hard from a theological point of view too, of course, but that wasn’t my main point). Other than that not a lot happened.

I was vaguely anxious, or at least apprehensive about a lot of things: maybe Yom Kippur (the Day of Atonement) which starts tomorrow night and certainly the job interview on Wednesday and my fears about what will happen if I get the job which is at a Very Important Institution (can I work full-time? Will they let me work part-time? Can I cope with work at all? What will it be like working somewhere so important and prestigious, not to mention high security? What about commuting with COVID restrictions?).

I also worried about dating PIMOJ. At the moment I feel inhibited from telling her when I have a depressive day, because she’s so positive and I worry how she will react if I’m depressed. However, that leaves me feeling like a fake and worrying that we can’t build a relationship on honesty if I feel I have to hide how I feel for fear of rejection. I also wonder if she is too religious for me, which seems a weird thing to think, compared with my previous relationships. It doesn’t help that we’ve never met in person because of COVID and it isn’t certain when we will be able to do so. I feel that things might be better, or at least clearer, if we met in person, but at the moment we’re stuck with instant messenger and Skype calls. I do like her, though, even if I worry we’re not on the same wavelength.

On Job Interviews and Autism

I’m feeling burnt out again. My brain has the “stuffed with cotton wool” feeling that I haven’t had for a while. I guess at this time of year, for religious Jews, things get rather fraught anyway, with so many Yom Tovim (festivals) in rapid succession. We had Rosh Hashanah (Jewish New Year) last week; on Sunday night and Monday is Yom Kippur (The Day of Atonement) and then at the end of the week is the start of the mammoth nine day festival of Sukkot (Tabernacles) and its semi-detached conclusion of Shemini Atzeret (the Eighth Day of Assembly) and Simchat Torah (the Rejoicing of the Torah). I’m not getting up at 5.30am for selichot (penitential prayers) at the moment as I “should” be doing; I can only imagine what state I would be in if I were. At least after Monday the festivals will be less psychologically intense, with a focus on joy rather than on repentance, even if there is still a lot to do practically, although I have the “threat” of going back to shul (synagogue) in COVID times hanging over me, which I still do not feel comfortable about.

Because of Shabbat and Yom Kippur, I only have one full day to prepare for my job interview, and maybe an hour or so squeezed in amidst preparation on Sunday. To be honest, today I don’t have much energy/will power for preparation. The interview schedule I was sent seems to indicate that they’re only going to ask questions about my presentation, but that seemed unlikely, unless there’s a second, more general, interview somewhere down the line, so I want to prepare for general questions. I feel that I’m not good at interviews any more. I had a lot of practise for them when I was at school, preparing for university applications, but I have gone rusty. With autism, it’s hard to respond to questions in speech and without pause to consider, as would be permitted with a written test, and sometimes I just stop for several seconds (or longer) as my brain tries to get in gear. Sometimes the question doesn’t even register properly first time around and I have to ask the interviewer to repeat it, another autistic trait. Other times I stumble over my words and don’t sound too coherent, plus there’s sometimes some thinking of good things to say after the interview is over. I don’t know why it’s thought that testing someone’s ability to think and speak on their feet is a good test for how they will behave in a job that is largely written. To be fair, when I’ve had tests of my cataloguing ability lately I’ve done badly with them too, which does my self-esteem no good either.

I just feel negative about stuff today: interview, work, dating… I’m trying not to think about anything important, as it all just seems impossible. Not thinking about things seems safer than being relentlessly negative.

Charlie Brown

The good news: Mum saw the oncologist today and he said that the cancer is completely gone, which is obviously very good. She will still have to have radiotherapy, and to continue to have regular injections of antibodies for a while, but the cancer itself is completely gone.

On to the less good…

I feel that I’m like Charlie Brown trying to kick the football and falling on his back every time. Every few years, my depression seems to shift for a bit, and I talk about being recovered, and then after a period of weeks or months, I fall back into depression again, usually in autumn. At least this time I didn’t say I was “recovered,” just that my depression was now mostly reactive to events going on around me rather than being rooted in my childhood experiences, which is probably true, but nevertheless, I still feel very depressed today.

I’m also feeling burnt out again. I struggled on with preparing my interview presentation, but it was hard work. I just wanted to curl up in bed. In terms of the stresses the depression is reacting to, I guess I’m worried about the interview next week, and what happens if I get the job, whether I can do it and whether I can cope with a masked commute every workday.

I also had problems setting up an account with Microsoft Teams, which I need for my interview on Wednesday. I set up an account and tried to log in, only to be told I couldn’t log in because I didn’t have an account. But when I tried to set up a new account, I was told I couldn’t because I already had an account. I was supposed to have an email that would let me use Teams, but I didn’t receive it for a while, and there wasn’t a helpdesk to complain to. I could somehow get through using the link the Very Important Institution sent me (they have already set the meeting up so I can get into the virtual waiting room), but I couldn’t open Teams from scratch. I was supposed to have a practice call with my sister, but it wouldn’t let me add her to my address book. Pressing the “accept” button on the notification email from her just opened another window with the same email notification, it didn’t actually add her to my address book. I did eventually get everything up and running, just about, but I’m pretty nervous about it working properly on Wednesday. The Doctor Who line about computers being very “sophisticated idiots” never seemed more true. Teams seems like it has a load of fancy features that get in the way and stop it from doing things that can more easily be done on Skype or Zoom. I did eventually manage a practice call with my sister, so I feel a bit more confident about it. It think that Microsoft really are the pits, though. The hollow thumping sound you can hear is the sound of me repeatedly hitting my head on my desk.

I’m also vaguely worried about my relationship with PIMOJ; it’s hard to tell what the relationship is like when we still haven’t met in person or even spoken long on Skype (Love in the Time of COVID), and when there are occasional communication problems from the fact that English isn’t her first language, and I’m not sure of her level of knowledge of English as well as of Hebrew and Yiddish. I don’t want to sound patronising to her by using simple language or explaining things, but I don’t want her to feel I’m showing off my knowledge or intimidating her with terms she doesn’t understand.

It also feels weird for me to be the less spiritual and perhaps also the less serious-minded person in a relationship and I’m not quite sure what to make of that, or about the fact that I don’t feel completely comfortable owning my negative feelings when I’m talking to her, as she’s so positive and I’m scared about how she would respond to me on a day like today when I just feel depressed. Again, it doesn’t help that we haven’t met in person; on instant messenger it’s hard to judge someone’s mood or level of empathy, even beyond my usual autistic struggles with that sort of perspective taking, especially given the language problem and the fact that there are often typos that just confuse the whole thing even further.

I don’t want to sound too negative, as I think PIMOJ meets a lot of my needs in terms of being intelligent, kind and religious and I also find her funny. I think there is chemistry there, even if instant messenger isn’t necessarily the best way of expressing it. I just wonder what will happen. I’m trying to stay in the present, but it isn’t always easy.

I don’t really want to talk about the relationship in detail here, but I don’t have anywhere else to talk about it, other than therapy for an hour a week. I also don’t know how much these worries are real or stem from feeling depressed today.

So, these are the thoughts that have been going through my head today. I guess I’m feeling rather overwhelmed, and I haven’t even mentioned that it’s going to be the most important day in the Jewish calendar on Sunday night and Monday (Yom Kippur, the Day of Atonement), and I don’t feel able to go to shul (synagogue) for it because of fear of infection, discomfort with masks and general autistic uncertainty about what exactly happens at shul with COVID and the new normal.

***

I listened to an audio shiur (religious class) by Rabbi Yehoshua Engelman, who is a therapist as well as a rabbi, on building a mature relationship with God. In some ways it crystalised things I’ve been thinking recently, but which I had not been able to put into words. Ideas that God is not judging us on Rosh Hashanah (Jewish New Year) or Yom Kippur like a parent or teacher judges a young child and awarding reward and punishment, but that He is being curious and inviting us to enter into a dialogue with Him about why we’ve done the things we’ve done, good and bad, and How we relate to Him through those actions and how we can change and grow and become more authentic towards our inner selves.

I hope to think about this and bring it into my life. I struggle a lot to believe in a God who loves me (as opposed to a loving God – I believe God loves, but I don’t believe I’m worthy of His love). I want to build a relationship with Him, but it’s hard to know what to say, especially when I feel so tired so much of the time, and when I’ve spent so much of my adult life feeling anxious and depressed. I am trying to get away from the “angry old man in the sky” image of God which is poisonous, but sometimes I think I move too far in the direction of abstraction (Ein Sof, the kabbalistic term for the Infinite) and feel too distant from Him.

***

Achievements: some time spent on interview preparation, no idea how long. Downloaded Microsoft Teams and had a practice call with my sister. Went for a half-hour walk. Finished reading a book on writing character and viewpoint; I think I knew a lot of it instinctively from reading a lot, but I do vaguely feel like I’m a bad writer. I had a bit of a headache in the evening, which may have been stress or just because the heating came on for the first time, which often makes me a bit ill. I listened to a shiur and finished and sent my devar Torah for the week. I finished scanning the autism forms. So, I did quite a bit despite the burnout and low mood, but somehow it never feels “enough” which I guess is something to talk to God about.

Exhausted

I woke up exhausted again and struggled to get going. I guess I did a lot yesterday, but it frustrates me. This is fast turning from a mental health/autism blog into an exhaustion/burnout blog. What bothers me a bit is not knowing why I feel like this. If it’s depression, why is my mood mostly good? And if it’s autism, why is it so bad even on days when I have not had obvious triggers, and why didn’t it affect me this way as a child? I’m beginning to wonder if I should be researching other issues, like CFS, although a glance at a website on CFS reveals more differences to my symptoms as similarities.

I helped Dad put up the sukkah, the portable dwelling we “live” in during the festival of Sukkot (Tabernacles) which is coming soon. In warmer climates, like Israel and parts of America, people basically live out there for the whole week of the festival, but in the UK we consider ourselves lucky if it’s dry enough to eat out there once a day. There is still a lot to do to prepare the sukkah. I was up on ladders helping. I don’t like being on ladders outdoors. I’m OK being on ladders indoors (changing lightbulbs), but somehow I feel that if I stand on the top step of a ladder on the patio, I’m going to lose my balance, fall off and crack my head open on the paving stones. Being on a lower step doesn’t bother me. I can even stand on the second-highest rung of the taller ladder, which is as high as the top of the short ladder. It’s something about the top rung, and the stone floor. Anyway, I managed to do what needed doing, but I wish I wasn’t mildly anxious about so many things.

I spent a bit over an hour working on my presentation for my job interview next week, getting the new one mostly written, but between waking up exhausted, helping Dad with the sukkah and therapy, I did not have much time to spend on it, especially as by mid-afternoon I was exhausted. I didn’t even go for a walk after therapy. Therapy was just too tiring this week. I’ve been exhausted all evening. I’ve been reading and watching the Ken Burns documentary The Civil War (on the American Civil War) while sloooowly scanning the forms my Mum and I had to fill in yesterday about my autism symptoms. I’m scanning so we’ve got a backup copy when if the NHS loses it. Our scanner is very slow. I’m vaguely worried about the box where they asked for previous psychiatric medicines and I put “Too many to mention.” I don’t remember all the psych drugs I’ve been on, and I know the NHS has lost the details over the years.

***

Something that came up in the autism questionnaires yesterday was whether I treat other people like objects. Now, obviously I want to say, “NO!” On reflection, I think in some sense I do treat people like objects. I empathise with people and don’t want to cause them pain (if anything, I’m over-cautious about that), but I think I have to consciously tell myself what other people might be feeling and I often get surprised because people don’t react the way I expect them to react. I think I probably also treat people like objects in the sense of sometimes forgetting that they have a life that goes on when I’m not around (since childhood I’ve been obsessed with solipsism) and that they have emotions that they might not show. That’s not a very nice thing to admit to and I’m wrestling with the idea that I may be being too hard on myself, but when I saw the question, I felt fairly instinctively that there was some truth in it for me.

I feel there is probably more to say, but it’s late and I’m tired, once again…

Autism Questionnaires

I wanted to get up at 9.00am to give me lots of time to get ready for my autism group at 11.00am, but I overslept (again) and had to rush. Even then I went to the group unshaven, which always frustrates me. The group was good (on sensory issues), but I always feel I don’t meet the exact same profile as other people, which makes me worry about not being on the spectrum. I think my sensory issues are subtle and not always noticeable to or understood by me, let alone other people. I have also always been good at masking and avoiding things, so again I don’t necessarily notice them as autistic sensory issues. Ironically, I had to shut the windows to block out the noise of someone mowing their lawn, a sensory issue that threatened to distract me from the meeting about sensory issues. I also find that even with a five minute break in the middle, I can’t concentrate for two hours and end up getting fidgety and looking at other things online in the last half-hour or so.

I felt completely exhausted after this, even after breaking for a long lunch. I forced myself to work on the questionnaires that the autism hospital sent me (in a classic piece of NHS inefficiency, they didn’t say where to send them when completed. My Mum phoned and discovered they should not go to the most intuitive place). There were some obviously autism-related questions and also questionnaires about general mental health and what I guessed was ADHD and maybe some other things they might want to rule out. I worry about not showing enough autism symptoms, now or in the past (being imaginative seems to work against me, the stereotype being that autistic people are not imaginative). I think the reality is that I masked well and that I use my imagination (reading and TV as well as writing) to try to understand people and situations that confuse me in real life, but I have a poor visual imagination; I have little sense of what the characters in the novel I’m writing look like, even if I can work out how they act. I was pleased that there were questions on my employment history, which I feel ought to set off some kind of alarm bell, even if I’m not sure what exactly. I didn’t have any of the reasons suggested for difficulty in the workplace, which were things like problems taking orders or frequent lateness or disorganisation, but I did have a load of my own issues, like difficulty with social interactions and problems multitasking and changing tasks. I was pleased that some of the questions seemed to be looking for autistic behaviour that is not one of the “classic” impairments, as well as asking about masking behaviour – I’ve felt penalised in the past for deliberately modifying my behaviour and body language (etc.) to fit in e.g. forcing myself to make eye contact even though I hate doing it, not talking about my special interests except with others who share them etc.

(One of the questionnaires was called HADS, which is funny to Doctor Who fans, but no one else.)

The forms took about two and a half hours to complete. Add two hours for the autism group, some time writing my devar Torah (which I didn’t intend to do) and a little Torah study and a half an hour walk, interrupted briefly by tashlich (a water-side ceremony I postponed from Rosh Hashanah (Jewish New Year) on Sunday so I could avoid COVID crowds) and I didn’t have much time or energy for other things. The walk to the stream was bizarre; it was not far away at all, but somewhere I haven’t been much at all in recent months to the extent that it all seemed strange and alien.

I’ve been feeling vaguely down today, vaguely depressed and anxious. I’m not sure why. To be honest, there probably are too many possible causes: an afternoon of form-filling would depress anyone and an imminent job interview for which I am not yet prepared would make anyone anxious. Then there is the fact that the days are noticeably shorter now (it was dark at half-past seven) and the nervousness around my autism assessment, and my new relationship (if it even counts as a relationship yet, which it probably doesn’t)… I just hope I’m not going to relapse into deep depression.

As for tomorrow, I have therapy. Before then, I want to rewrite my interview presentation to talk about the work I was doing at the beginning of the year rather than a project from two years ago, as I think I showed more initiative and have more scope for talking about what I would have done differently if circumstances permitted, plus I simply remember more of the more recent event.

Oversleeping and Social Anxiety

I am feeling somewhat self-critical today. As often happens, I woke up about 8.00am to go to the toilet and wanted to stay up, but ended up going back to bed again and sleeping for another couple of hours. I feel really bad when I do this, and it happens quite a lot, as if I had minimal self-control and will-power, which I know is not the case. It’s just that I get overwhelmed with exhaustion and maybe some mild depression (and, probably, habit too, I admit) and just feel that I have to get back to bed ASAP. PIMOJ has taken to sending me Skype messages on her way to work, around 8.00am, and sometimes I wake up enough to hear the phone ping, and I want to message her back, but I’m just too tired and end up replying at 11.00am or later and feeling embarrassed. This has been a problem for years and years, through different medications and therapies and occupational therapy. Sometimes I have made progress on it during periods of remission from depression (there was a period six years ago or so when I was getting to early morning services in shul (synagogue) three or four times a week), but whenever the depression comes back, it knocks me right back to square one and it’s a struggle to get my sleep pattern sorted out all over again even if, as at the moment, depression isn’t a huge problem in any other aspect of my life. The only thing that works is scheduling stuff to do in the morning, but it has to be an external thing like work or a psychiatrist appointment; if it’s something I just want to do like getting an early start on the day, it won’t happen.

As a side-light on this, I forgot to take my evening dose of anti-depressants until nearly midnight last night and I suddenly had a lot of energy in the evening. My meds definitely do make me tired and slow me down, but I don’t think I can be so sure of being over the depression to ask to come off them completely, given that in the past that has always made my symptoms get much worse very quickly, and given that autumn is traditionally the time of year where my mood dips as the days shorten and the weather worsens.

***

I find not only do I hate wearing a mask, I realised that I hate that other people are wearing them too. Partly it’s that there’s a part of my brain that says, “Mask in a hospital = doctor or nurse; mask in the high street = bank robber,” but beyond that it’s a feeling that I find it hard enough to understand body language and facial expressions as it is (being autistic) without having the lower half of the face completely covered and voice muffled.

***

Ugh, I don’t want to finish the Jewish year on a bad note!

Good things #1: someone came to the door today while I was davening Shacharit (saying Morning Prayers). My parents were at the hospital again. I got to the end of the Amidah (the most important prayer) and hurriedly removed my tefillin and tallit (the prayer boxes and prayer shawl worn by men for weekday morning prayers) and rushed downstairs. It was someone from my shul (synagogue) bringing a small gift to those of us who are shielding and won’t make it to shul over Rosh Hashanah (Jewish New Year, starting tonight). I was grateful, but also feeling hugely embarrassed that I had kept him waiting; I also didn’t want to admit I was davening as it was long past the ideal time for morning prayers. I think he thought I had been in the toilet. I also realised I was wearing a bright red polo shirt, which I tend not to wear when I think I might meet people from shul, as some Orthodox Jews avoid wearing red (more women than men, admittedly). So I felt hugely embarrassed and socially awkward, but it was nice to be thought of. Then I got further flustered and wished him the greeting that is really for Yom Kippur in two weeks’ time rather than for Rosh Hashanah. Because of all this I had a big rush of social anxiety, it took me a while to feel comfortable again, but I suppose there was no harm done and it was nice to be thought of.

Good thing #2: I finished Rav Kook’s The Lights of Penitence yesterday. It was very difficult to understand in parts, very mystical, and as with all mysticism, I wonder where it comes from and how much is authentic, but it was also a very moving and inspiring book and helped me perhaps to conceptualise my life differently, to think of teshuva (penitence) as something ongoing and lifelong rather than a hurdle that I should have overcome by now, and also to see teshuva as something leading to growth and joy rather than being fixated on my negative traits and deeds. Definitely something to re-read before Rosh Hashanah in future years, Rosh Hashanah and Yom Kippur being times to focus on teshuva and growth.

Good thing #3: I emailed a bunch of friends to wish them shana tova (good new year) and my oldest friend, who I haven’t seen in person for years, emailed back to say we should have a virtual coffee soon. I was pleased, as I had thought the same thing, but hadn’t really dared to suggest it, as he’s a communal rabbi and I know they’re busy pretty much 24/7. So hopefully we’ll be able to do that in a few weeks.

***

So ends the Jewish year 5780. It was pretty bad in parts, but my family made it through OK in the end. I’m hoping for a better 5781 though. Shanah tovah – have a good new year!

In Praise of Idleness

Today I felt tired with poor concentration. It is not surprising; I went to over six hours’ worth of shiurim (religious classes) on Zoom yesterday, so it’s only to be expected that I feel burnt out today. Still, I feel bad for struggling to do things. Beating myself up a bit, although trying not to. I really wanted to work on my novel, or at least read some more of the book I’m reading on characterisation, as well as do some Torah study, but I struggled to do anything. In the end I read a little of the characterisation book (it mostly made me feel like a bad writer), did about fifteen minutes of Torah study, quickly cooked some plain pasta for dinner and went for a walk. That was about all I could manage today. Mum and Dad spent the afternoon at the hospital, so I was lucky to have the house to myself. I felt too burnt out, and Zoomed out, to go to Zoom depression group this evening, so I plan to watch Star Trek Voyager until bedtime; I don’t really feel up to doing anything else.

I wish I could just do more with my life, that intermittent bouts of depression and autistic burnout didn’t regularly derail me, and impede my functioning even on better days. As Ashley said on her post today, “high functioning” is an unhelpful term, as functionality can vary over time or in different environments or with different tasks, not to mention the fact that “high functioning” is essentially an arbitrary term that means different things to different people. I certainly feel that my “high functioning” autism is not always very functional, and the same probably goes for when my depression was more severe, but I was still working. I was present at work, but my work was sub-par and getting through each day was an ordeal.

***

Perhaps because I feel burnt out, I’ve been thinking about idleness this afternoon. Orthodox Judaism is very intense and demanding, not just with work and family, but Torah study, mitzvot (commandments) and chessed (kindness, which covers a multitude of concepts: visiting the sick and cooking for them, visiting mourners and cooking for them; hospitality to guests, including strangers; giving to charity and volunteering; and more). Relaxation is allowed primarily as a way of recharging, or when it coincides with another religious activity (e.g. recharging by spending time with friends is praiseworthy if those friends are invited as guests for a Shabbat meal). It’s not just Jews who feel like this (I just went downstairs for something and an advert came on the TV saying, “Do you wish you felt less tired so that you could do more of the things you love?”) and one could talk about capitalism and the Protestant work ethic and so on, but I feel there are perhaps even more demands on our time in the frum (religious Jewish) community, combined with an ethic that stresses that we’re here on Earth to do things with our lives, to study Torah, help people and connect with God, not to relax.

Yet I feel much more comfortable just pottering. I don’t think I’m lazy, although I’ve called myself lazy often enough in the past. I think with autism and depression I just get overloaded really easily. It’s much more comfortable to do one thing at a time, slowly, with breaks than to try to fit everything in. Doing too much triggers burnout and, if it goes on too long, depression. I need lots of downtime to recuperate from things.

Part of it is being creative. I know I’ve noted here before that when I started writing my novel, I got frustrated by the amount of online procrastination I would do when trying to write; it took me a while to realise that my brain needs this. If I get stuck on something I’m writing, browsing aimlessly online lets my unconscious work on the problem. This is often better than trying to resolve it consciously. But I do genuinely feel I need to live my life at a much slower speed than most people, even though that makes me worry (a) how I will ever earn enough money to support myself and (b) how I will ever find anyone willing to be in a long-term relationship with me. Plus, I suppose, how to justify myself religiously, beyond saying that any other work-life balance seems simply impossible right now.

I drifted into mild depression in the early evening, perhaps because of the thoughts about earning a living and finding a partner. There were other anxieties or somewhat obsessive thoughts during the day which I’m too tired to write about now.

***

I said I would write some more about some of the shiurim I went to yesterday. Rabbi Rafi Zarum spoke about the idea that Rosh Hashanah (Jewish New Year) is about judging how existence is going and about our own potential and whether we’ve fallen short of our potential. To be honest, that talk didn’t say so much that I didn’t already know, but Rabbi Zarum is a very engaging speaker and always good to listen to. I didn’t take any notes on Chief Rabbi Mirvis’ brief message; he was talking about the idea of God’s House being a portable tent that we can take to our homes in COVID times.

The final shiur I went to was Rabbi Alex Israel talking about the paradox of Rosh Hashanah, that we stress that God is the powerful King, but also that he will pardon us for our sins if we repent. He quoted a Midrash (rabbinic expansion of the biblical story) where Avraham (Abraham), defending the people of Sodom, tells God that if He wants pure justice, He will have to destroy the world (because people are inherently imperfect and sinful); if He wants a world, He will have to suspend justice; He can’t “take the rope by both ends” and have strict justice and a world. A similar Midrash said that God had to allow the creation of the wicked because otherwise it would be impossible to create the righteous too. I thought that was similar to what Gila Fine said in the morning, which I blogged about yesterday, about God wanting our love and suppressing His justice to get it (there was some overlap with Rabbi Zarum too). Rabbi Israel stressed the idea that Rosh Hashanah is a day of love and mercy as well as justice and that God knows we are flawed. I thought this was important for me to hear, given that I get fixated on my flaws, as shown by the “lazy” worries today.

Slightly Down

I had a slightly stressful morning. I woke up from what was probably a bad dream around 4am. I don’t like it when I feel like I’ve had a bad dream, but can’t remember the content. I guess it feels like missing an important message. Then my parents woke me before 7am to say goodbye before Mum went for her surgery. She doesn’t usually wake me when she goes to the hospital, but I guess she wanted to say goodbye; I certainly did. Then I was woken a third time at 8.30am by our former neighbour (from our old house) dropping off some home-grown vegetables from his garden for us (he’s a very nice man). I felt awkward, as I had assumed the ring at the door was the postman, so had jumped out of bed and come downstairs in toothpaste-stained pyjamas. I was more than half-asleep and certainly not prepared for conversation from an autism/social anxiety point of view, so I didn’t say much and I didn’t even bring the food in immediately as I didn’t have slippers on and didn’t want to go onto the porch in bare feet. So, I hope ex-neighbour doesn’t think I was being rude. I didn’t even recognise him for a moment, because I was tired and not expecting to see him, which was extra-awkward.

When I woke up and got up properly, far too late in the morning, I found I had messages from PIMOJ, who is very much a morning person (I’m a night owl even without the depression/autistic burnout/whatever it is that leaves me so drained every morning). I’m pleased that she wants to message me daily, but I worry what she would say if she found out that I’m not usually up at 8.00am if I’m not working (8.00am? I’m often not up by 10.00am!).

***

I don’t know if it was because of what happened this morning, but I’ve felt slightly down for much of the day. Just tired and disinclined to do anything, but painfully forcing myself to do things. I spent part of the afternoon painting my parents’ garden shed, or trying to do so, as parts of it are inaccessible due to fencing and plants growing in front of it. It will need another coat of paint next week. I used to find doing things like this relaxing, but I finished tired and a bit down, so I didn’t go for a run as I had hoped.

I listened to a Doctor Who audio drama while I painted, but mostly found it confusing. I don’t really connect with Doctor Who audio dramas (of which there are now a vast number, produced mostly by the company Big Finish Productions). I’ve never worked out why this is. Is it difficulty following the medium, a dislike for Big Finish’s take on Doctor Who‘s format or something else? Either way, I found this one hard to follow and in general they don’t really engage my attention or linger in my imagination the way TV stories do.

I forced myself to go for a walk afterwards. I originally intended to go for a run, but I did not have enough energy. I didn’t have the time for any work on my novel. I finished and sent my devar Torah (Torah thought), but I’m not hugely enamoured with what I’ve written. It was light on sources and deep thoughts. I guess they can’t be good every week. I want to write something good for next week, which will be Rosh Hashanah (Jewish New Year), but have been struggling for ideas.

I didn’t do much Torah study today, or this week, which is frustrating; with the Yamim Noraim (High Holy Days) around the corner, I feel I should be increasing my Torah study, not decreasing, but I’ve just been busy. I know: Mum has been ill, I’ve been helping at home and so on. However, I’ve signed up for a day of Zoom shiurim (religious classes) on Sunday at the London School of Jewish Studies, which I hope will be interesting and get me in the appropriate frame of mind.

One thing I did do today was listen to a short shiur (Rethinking Failure) from Rabbi Lord Sacks. He spoke about our deficiencies often being our strengths. I need to think about this in terms of autism and depression.

***

I read a blog post about people on the autism spectrum having to adapt to new rules post-COVID when we weren’t even sure about the old ones. I responded there that, “Very true about having to adapt to the new normal in real time, and having to learn new rules even though we didn’t understand the old ones. Even as lockdown has eased, I’ve avoided social areas because I’m uncertain of how to act in them now. I’m hoping to slowly build up to it. I find wearing a mask uncomfortable, but not impossible, so I’m trying to stick with that, but I haven’t had to wear it for more than half an hour yet and am apprehensive about doing e.g. long Tube journeys into Central London with it.”

***

I may have to do those Tube journeys soon. A job agency offered to put me forward for a job and I accepted. It’s in a library, but a library assistant job rather than a librarian job, so lower pay and status, but perhaps also less stressful. It potentially won’t look so good on my CV, but I’m so desperate for work that I don’t care. It’s afternoons only. There may be a problem with Fridays, as I won’t be able to work on Friday afternoons in the winter because of Shabbat (the Jewish Sabbath) and moving my hours may not work as the library is not always open due to COVID. It is at a library where I worked before, and enjoyed working, although it will probably be in a different place (it’s a big library) and certainly won’t be with the people I was with last time.