I’ve had a fragment of poetry in my head lately. Searching online, it’s from Stanzas from the Grande Chartreuse by Matthew Arnold, a poem I don’t remember ever having read, although I have read Arnold’s Dover Beach, which is where I initially thought the line was from. It goes, “Wandering between two worlds, one dead/The other powerless to be born”. It sums up how I feel lately, in terms of my autism diagnosis, relationship breakdown and job situation.
I do think things can change. Ten years ago, I was twenty-seven. I had never had a paid job because of severe depression, was struggling with my Master’s degree again because of depression, had never been in a relationship or even gone on a date (actually, my first ever date was pretty much exactly ten years ago). I had largely put aside ideas of being on the spectrum after being assessed and told that I was not on the spectrum. I lived in a much smaller Jewish community and went to a shul (synagogue) that wasn’t an ideal match for me. I had occasional minor religious OCD, which would get a lot worse before I would get over it.
I still seem to struggle with low mood, even though I’m not sure I meet the diagnostic criteria for depression any more. And I’m still single and not in full-time work (or anywhere near), but I am in work and I have had enough relationships to think I’m not inherently unworthy of being in a relationship at least some of the time. And I’m diagnosed with Asperger’s Syndrome/high functioning autism, which has been a relief to finally have confirmed, despite all the difficulties that I have to deal with because of it. And I live in a much larger Jewish community and go to a shul that fits me better, even if it isn’t perfect. So things can change, just geologically slowly. Or that’s how it feels.
It’s strange that things seem so finely balanced between the good and the bad at the moment. I don’t really know what to think. I still hope to have some kind of career, in a meaningful sense, and not just isolated jobs. I’d like to be a professional writer, but that seems an unlikely thing to aim for, especially given my lack of success pitching articles to people. I hope to become financially self-sufficient at some point, unlikely though that sometimes seems. I really, really hope I have a relationship that works out at some point (where “working out” ideally means successful marriage and children, although I’m getting to the stage where I wouldn’t rule out getting married in my fifties or older, if that’s how long it takes for me to get my life together and meet the right person).
The thing is, there’s very little I can do at the moment to advance any of these things at the moment. I have to wait and hope it all works itself out somehow, which is scary. I should trust in God (PIMOJ would have said to trust in God), but, as I’ve mentioned before, although I believe in God and consider myself to live a frum (religious) life, I have a mental block around bitachon (trust in God). I believe that He does what He feels is best for me, but I fear that “what He feels is best for me,” will involve a lot of emotional pain and suffering, as it apparently did ten years ago.
I went to bed late last night and woke up late this morning. I think my sleep was disturbed, judging by the state of the sheets when I woke, but I don’t remember particularly disturbing dreams or anything like that. I had a lot to do today and didn’t really want to do any of it. I needed to phone the autism hospital about the mistakes they made in my diagnostic report; cook dinner; continue with my job application and start my devar Torah (Torah thought). Usually when I read the week’s Torah reading on Sunday, I get an idea of what I want to write about, but this week I had no idea. The double sedra (portion) had lots of mitzvot (commandments), but none really grabbed me as something I wanted to write about, except for one bit that was too similar to something I wrote about a couple of months ago.
However, I just felt depressed and burnt out. At 2.45pm, I was still in my pyjamas and hadn’t done anything since eating breakfast. I would get up, fiddle around on the computer for a bit, and go back to bed to feel lonely and depressed. I played the “I’m depressed and burnt out enough to listen to music in the omer” card, as my rabbi mentor said I could, but quietly, because I still don’t feel comfortable explaining that to my parents. I don’t know why I don’t feel comfortable explaining it.
I did eventually get dressed, somehow put on tallit and tefillin and davened Minchah (said the Afternoon Prayers) as I had missed Shacharit (Morning Prayers). I had lunch (watching The Simpsons to try to raise my mood a bit) and tried to Do Things. It was 4.30pm by this stage. I phoned the number my Mum has for the autism hospital (not the main switchboard, one of the secretaries’ work mobile number that she somehow got hold of and has been using as it’s more direct). There was no answer, but I left a message.
Dinner seemed the next priority, on the grounds that I could apply for the job tomorrow, but if I didn’t cook dinner, we’d all go hungry, especially as Mum was tired from treatment today. I listened to a twenty minute online shiur (religious class) while cooking, but it didn’t tell me much I didn’t already know. I’ve been unlucky picking shiurim that way lately. The idea was to listen to the shiur while cooking so that I could do some Torah study even if I was too burnt out and depressed to read anything afterwards.
I went for a walk after cooking dinner. I had a lot of thoughts and feelings that are hard to categorise, beyond noting they are negative. I’ve noticed that my thoughts become more visual when I feel depressed and agitated, snatches of images, and also negative feelings without thoughts (I’ve never agreed with the CBT idea that negative feelings are always caused by negative thoughts). I’m not sure I can put anything I was feeling into words, just feelings of being useless, of my novel being bad, of not contributing anything online, of wanting to withdraw from people, but also, I suppose, hoping they will follow me if I do. Wondering how many of my thoughts (about politics, religion, culture) are my own and how much are other people’s. Not in a psychotic “I think the government is beaming ideas into my head” sense, but just that we pick up stuff without really thinking from friends and family, colleagues, broadcast media, social media… I find it’s hard to really think about things and reach meaningful conclusions that are completely my own, or at least rigorously interrogated by me until I am sure they are true. Is that just me?
When I got home, I tried to force myself to work on the job application, even though the format — separate boxes to write in for every essential and desirable criterion — made it quite clear that I don’t have all the skills and experience they want. I persevered, but mostly because I felt my parents wanted me to. They say to apply for jobs I don’t meet the criteria for in the hope that I will (somehow) still be the best candidate (see what I mean about not coming to my own conclusions). I worry for the academic library sector if I’m the best candidate for this job. I don’t even know what terms like “synchronous and asynchronous library inductions” and “bibliometrics” mean, although I can guess. I am certainly not up-to-date with developments in higher education and copyright law, let alone in pedagogy. And I don’t think I have the “Ability to think innovatively and creatively to solve problems and improve services”.
Some of the jobs I see require so many skills that I feel daunted to compare the skills and experiences of those who I imagine are applying with my own. And these aren’t even particularly high-flying jobs! I just feel like I somehow picked up a library MA and library work experience by muddling through somehow and have been floundering ever since.
Not for the first time, I feel like the man in Kafka’s Parable of the Law (originally from The Trial, but also published as a separate story) who tries everything to get to the Law, but never makes it, even though the door he was at was only made for him, eventually dying on the threshold. I feel like I keep trying to get a job, get published, get married, make friends, and fit in to my community, but I can never quite do it. But I keep trying. I’m not sure if that’s perseverance or stupidity.
I feel that, as an autistic/Aspie, I struggle with applications and interviews. They tend to ask open questions, and autistic people do not fare well with open questions. We don’t know what to say. I know when I get a statement like write about “Experience of providing excellent support in an academic or research library” I should try to find concrete examples of things I’ve done in different jobs, but it’s hard to even think of examples, let alone relate them. I’m sure I have provided excellent support (OK, “more than just adequate support”), but I find it hard to work out what exactly they mean and think of examples where I’ve done it.
I spent about fifty minutes on the application, although technically a big chunk of that time was spent writing part of this blog post to vent my irritation. I went back and did another ten or fifteen minutes after dinner too, so it’s nearly completed.
I was just sitting down to dinner (and Babylon 5) when my phone rang. It was one of my shul (synagogue) friends phoning to ask about the fundraising for the new building. We had arranged it, but I forgot to put it in my diary, and if it’s not in my diary, I forget about it. I was probably somewhat incoherent, from being taken by surprise and from the subject matter, but I did not agree to make a bigger donation than I can afford, and I did not agree to set up a “team page” for my family (i.e. me) on the shul‘s forthcoming fundraising page. It was awkward doing this with my friend, but I think if it was anyone else, I would not have had the confidence to say no.
After dinner I worked on the job application a while longer, as I mentioned, and did another fifteen minutes of Torah study, but then I started to get tired and decided to call it a night.
For a day where part of me would have stayed in pyjamas, feeling lonely, depressed and burnt out, I did manage to do quite a few things. It’s easy to focus on the negative (I didn’t write my devar Torah, or do as much Torah study as I wanted; I didn’t finish the job application), but I managed quite a bit despite low mood and energy. I just wish life on the spectrum for me wasn’t just damage limitation, constantly running to get things done without any sense of purpose or direction (there’s a line from Babylon 5: Signs and Portents where Londo says “I want to stop running through my life like a man late for an appointment…afraid to look back, or to look forward.” He’s talking politically, about the decline of the Centauri Republic but that’s how I feel in my whole life). And I wish I didn’t still have such deep lows (whether I’m clinically depressed or not). And I wish I wasn’t lonely (although I’m probably less lonely than I was now I have an online support network to supplement my other support).
Anyway, this is a super-long post (really two posts in one), so thanks if you read to the end!