The Turkey Prince

I couldn’t sleep last night. I don’t know if it was from taking my tablets late, sleeping too much in the day, drinking tea late at night or something else. I got about four hours of sleep in the end, but I had to be up early to see PIMOJ. Yesterday it was so warm that I went for a walk in the afternoon without a coat or jumper. This morning, it snowed. I wrapped up warm, but it was difficult to tell what to wear, as it was warm when sunny, but cold in the shade.

***

I think PIMOJ had been having some of the thoughts I had been having about our lack of emotional intimacy and vulnerability, although she phrased it differently, saying we haven’t really got to know each other well yet. We had a long talk (in the park, not ideal – thank you COVID) and PIMOJ opened up to me about some things in her past and I tried to be a bit more open about my mood dips and persistent lack of energy. I think we’re OK, we just agreed to try to be more honest and open with each other in the future. Not that we were lying previously, but we were both hiding things, I guess from fear of rejection. I had some further thoughts after the date and texted PIMOJ to tell her that I’m often not good at talking things over spontaneously and need time to think about responses because of autism (hence texting her later because I didn’t think of this at the time!) and maybe it’s worth discussing things over a few days and/or letting me text some ideas later after I’ve thought it over. Unfortunately, neither of us likes video calling much, which is hard at the moment. She hasn’t got back to me about that.

The rest of the date was good, except that we were seen by two of my parents’ friends. I’m not sure if they recognised me, but it’s the type of thing that can start rumours in small communities. PIMOJ and I were together for over four hours and did a lot of walking. We got takeaway falafel. Still, I was left with some anxiety. I worry that my autistic brain simply isn’t wired for a relationship. “Autism” etymologically refers to morbid self-absorption (you may have noticed this here…). Meaning, being unable to relate to others. That although I pine away in loneliness while single, I’m not able to be in a relationship “properly.” Now I’m in a relationship with someone where I know there will be lots of extra obstacles beyond a regular relationship if we want to make this permanent. I want to do that, but I’m worried I’ll burn myself out trying or just won’t make it, and perhaps that fear is stopping me from fully committing to the relationship (unconsciously), along with guilt feelings that the relationship came about in a “wrong” way, religiously. Life is hard. Relationships are hard. Autism is hard. Life + relationships + autism = very hard.

I keep thinking of Rebbe Nachman of Breslov’s parable of The Turkey Prince. The prince goes mad and believes that he is a turkey, sitting naked under the table and eating food off the floor. No one can cure him until a wise man takes off his clothes and sits naked under the table with the prince, claiming to be a turkey too. Once the prince accepts him, the wise man puts on trousers, saying a turkey can wear trousers. When the prince wears trousers, the wise man puts on a shirt until the prince does the same, and so on until the prince is fully clothed and eating normally and is (we are told) fully cured.

Superficially, the story is about the need of the religious mentor to descend to the level of his followers to win their trust and to understand them and inspire them. However, as Arthur Green noted in his biography of Rebbe Nachman (Tormented Master: The Life and Spiritual Quest of Rabbi Nahman of Bratslav), there is a uneasy air about the conclusion of the story. Is the prince really “cured” or has he just been tricked into acting in a more socially acceptable way? Does he really think he is a human again, or just a turkey who wears clothes and eats off a plate? (This is surely a big question in clinical psychology: how much are we “curing” people and how much socialising them into “normal” behaviour even when the “abnormal” behaviour is harmless?) Green suggests that the wise man, and even the other courtiers may be just as insane as the prince.

I feel I need someone to model behaviour for me, to show that an autistic person with a history of mental illness can: get a full-time job; make friends; write fiction; build a relationship and a family; and so on. But maybe this is not addressing the fundamental problem, which is my tendency to see myself as defective and to assume that everything I try to do will be affected by this defectiveness. Otherwise I’m in danger of being a Turkey Prince, acting in a socially acceptable way while still believing myself to be a turkey (“defective” autistic person).

***

Another thing that happened this afternoon has been on my mind. PIMOJ asked if my family were as religious as I was, and we got onto the subject of how religious I am. PIMOJ felt I am quite religious, but not exceedingly so, as I perform the mitzvot (commandments) as God commands, but have no interest in the spiritual reality behind them. I let this go at the time, but it’s annoyed me a bit since then and I don’t know whether to say anything (my natural conflict aversion versus our newly-stated desire to be honest with each other). I know kabbalists (Jewish mystics) say there are spiritual realities behind the mitzvot, and perhaps there are, but I have never managed to get my head around them. Rather than the mystics, I prefer the religious rationalists like Rambam (Moses Maimonides) who said that every mitzvah “serves to inculcate some truth, to remove some erroneous opinion, to establish proper relations in society, to diminish evil, to train in good manners or to warn against bad habits.” Some mitzvot have an obvious logic (don’t murder, don’t steal etc.). Those that don’t have obvious social benefits are symbols that teach important historical/theological concepts (like eating matzah on Pesach to remember the exodus) or inculcate character traits (eating only kosher food might instil self-control). Thinkers like Rambam and Rabbi Samson Raphael Hirsch spent a lot of time and energy finding rational reasons for symbolic actions and it bothers me a bit to see that dismissed as not religious (see especially Rav Hirsch’s Horeb, which provides reasons for all the mitzvot observed today).

Maybe I ought to bring this up with PIMOJ tomorrow, although I feel that there are other things that might be more important to discuss. I guess it just makes me realise that we see the role of religious observance differently. That’s not necessarily a bad thing, but I’m not sure I can communicate the way I see it. It’s somewhat similar to the way she sees connection with God, and “hearing” His answers, as relatively easy things, whereas I see them as very hard, even a life’s work. It’s not that one is right and one is wrong, but they are very different.

***

There are actually other things that came up on the date that I’d like to discuss with someone, but don’t feel it’s appropriate to speak about here. I hope to speak to my rabbi mentor on Friday, and it would be good to raise some of this with my therapist too next week (I’m on fortnightly therapy at the moment). Still, it adds to the feeling of juggling a lot of balls and not knowing if I can keep them all in the air or what will happen if I drop one or two.

***

I was pretty exhausted when I got home after this, maybe not surprisingly. I took some time to write parts this post, which was hard as it meant focusing on the anxiety-provoking parts of the date as well as the more successful parts, and focusing on the work I will need to do in the relationship. I did a little Torah study, but I was too tired to do much. I watched some TV. My mood has been variable and I’m definitely dealing with some anxiety about the relationship, even though I think today went well.

Shrugs Shoulders

The last two days of Pesach (Passover) went quite well. No real religious OCD-type anxiety, which was good. I went to shul (synagogue) every evening. Today I decided not to wear a coat, as it was still quite warm in the afternoon, only to discover that we were praying in the outside area so we didn’t have to wear masks. I like not wearing a mask, but when we finished Minchah (Afternoon Service) and had a shiur (religious class) before Ma’ariv (Evening Service) it got cold quickly, especially once the sun went down.

I left soon after shul finished, not really staying to help tidy up as I normally would do, partly because I’m not sure where things go in our new socially distanced layout, partly because I wanted to get home and help Mum and Dad clear up the Pesach things (which normally takes several hours). I was pretty tired, though, and felt I didn’t do much to help and spent more time eating than tidying, although Mum and Dad said I did help significantly. 🤷‍♂️

Communicating in emoji rather than words indicates how burnt out I feel. I wish I knew what tires me out so much. I struggled to sleep last night, but slept through most of the morning and napped in the afternoon after a walk. I just seem to be tired a lot of the time and can’t function in mornings at all. Is it really autistic burnout? 🤷‍♂️again.

I enjoyed most of Pesach, but I again have the feeling that my chag (festival) lacked meaning and spirituality. Did I really meditate on the meaning of freedom? Did I really come closer to God? I feel like I didn’t. Do some people really manage this? I don’t know again, and I’m scared to ask anyone. This is when I feel like I struggle from not having many frum (religious) friends to talk to. Sometimes I wish I was an FFB (frum from birth i.e. raised as a religious person) who could take the basics of the festival for granted and concentrate on the deeper meaning. Or a BT (ba’al teshuvah, ethnic Jew who became religious later on in life) who had a major inspirational experience at some point to reflect on when feeling distant from God, to re-energise. I just became religious because I felt guilty for not being religious, which is probably exactly the sort of thing I would do, engage in a major life-change from guilt and obligation rather than inspiration and then try to keep it going. But I feel like I’m immune to inspiration. Even now I’m apparently over the depression (for now), I don’t seem to have much of an inspirable soul, at least not with the things that are supposed to inspire Orthodox Jews.

Possibly I assume everyone else is doing a lot better than me when that is not the case.

I have a date with PIMOJ tomorrow and should go to bed, but I want to watch TV for a bit to unwind or I doubt I will sleep easily. I’m going to try not to catch up with my missed blog posts from the weekend, part of an attempt to be online less. I skimmed down my friends list to see I wasn’t missing anything important, and I admit I read one or two posts, but I’m going to try not to read the rest. Sorry if I missed your opus, it’s nothing personal!

Frum and Autistic

I didn’t have insomnia last night, but I woke late again and felt burnt out and even sugary Pesach (Passover) cereal and coffee didn’t help. Lately I wonder how much of my depression was actually autistic burnout. Some of it was definitely clinical depression, no question, but all of it? I suppose there’s no real way of knowing from this distance.

I had a quiet day again today. I did about half an hour of Torah study, went for a walk and collected my repeat prescription and had therapy on Zoom. We (my parents and I) also went to my sister and brother-in-law’s garden for tea and biscuits after dark now the ban on seeing people outdoors has been lifted. It was pretty warm even before they turned their outdoor heater on. It was good to see them again. I found I was clock watching a bit though. I often do this when I’m with people or at social events. I think not knowing when something will end leads to some kind of anxiety. I suspect this is an autistic thing about wanting control rather than coming from social anxiety or disinterest in socialising because I don’t just do it when “peopling.” Even watching TV I have one eye on the clock to see how much time is left and if I’m streaming something online I will bring up the time left counter even though it’s a distraction from the image on screen.

***

Therapy was good. We spoke more about my autism diagnosis and fitting into the frum (religious Jewish) community, that maybe I can open up to some people about my autism and why it makes communal involvement difficult for me. Potentially I could speak to the rabbi about it, although, as Ashley suggested regarding “coming out” as autistic in the workplace, it probably would be helpful to come with some suggestions of what practical adjustments I would like (if any) rather than just dumping all my difficulties on him. I do have a lot of fear about autism stigma and ignorance in the community and I’m not sure how many of the adjustments I would like are “reasonable.” In British disability discrimination law, employers have to make “reasonable adjustments,” but not adjustments that are considered unreasonable. I would like people not to bang on the tables to accompany Kabbalat Shabbat (part of Friday night prayer services), for example, but given that it’s an accepted part of the service, particularly in the current COVID climate where loud singing is forbidden, I’m not sure it would be reasonable of me to try to change it.

I did talk about the frum community being generally conformist and not necessarily an ideal place for people who are quite individualistic even without autism or mental illness. I have encountered other individualistic frum Jews online, particularly on Hevria.com, but that site seems fairly dead these days as are many of the Orthodox blogs I used to follow; I think discussion has moved to Twitter and Facebook, where I don’t feel comfortable.

My therapist felt that speaking to the rabbi as a first step might also have the benefit that he will know other rabbis and can see if they have dealt with autistic congregants. My therapist felt that there must be other autistic people in the community. I’m sure this is true, but I suspect a disproportionate number of those diagnosed are young, given the trends in autism diagnosis generally. There may not be so many diagnosed autistic adults out there.

***

I had an awkward moment at my sister’s where I misunderstood something in the conversation and said the wrong thing, perhaps as a result of losing the thread of the conversation because of autism. My parents have two friends’ with the same name and I got confused about which one we were talking about and said something that would be completely innocuous regarding the one I thought they were talking about, but hugely tasteless about the other one. Naturally it was the other one they were really talking about. Fortunately, I don’t think anyone heard me.

I feel unheard a lot in social situations and wonder if I mumble. I was often told that I did as a child, although I never sounded quiet to myself. On this occasion it was probably for the best, although it is possible that everyone just politely pretended I hadn’t said anything because it was so tasteless.

Running, Writing, Thinking

Given the disruption to my sleep pattern lately, perhaps it’s unsurprising I struggled to fall asleep last night. As I don’t like drinking milk, normally I would eat porridge to make myself drowsy, but porridge is not kosher for Pesach (approved for Passover). I tried eating Pesach cereal with boiled water added to warm the milk, but it didn’t taste great. In the end I sat up watching Babylon 5 to relax, which may have been the problem in the first place – a lack of passive recreation can keep me awake.

I was a bit burnt out on waking. I actually managed to get up earlier than I expected, given that I fell asleep around 4am, getting up at 10ish, but I went back to bed after breakfast and got dressed slowly after that.

I spent much of the day enjoying not doing very much after the busy weeks before Pesach. I did a bit over half an hour of Torah study and spent forty minutes or so writing a devar Torah (Torah thought) that I’m not too happy with. I’ve used some of the ideas before, plus it’s mostly my own chiddush (original insight) which always makes me worry that (a) I might be completely wrong or (b) people might demand something more rigorously rooted in the traditional sources.

I went for a run too. It wasn’t a good one; after nine minutes I came back home to change from tracksuit bottoms to shorts because it was a lot hotter than I expected for late March. Then I got a headache when I restarted, but insisted on forcing myself to continue to 5K as usual. I was worried for a while that I was going to be sick, but a combination of painkillers, cooling strip and a load of water (in case of dehydration) and crisps (in case of loss of salt) seemed to help get rid of hit fairly quickly in comparison with some previous exercise migraines, but it came back later, although not as bad.

***

I wonder if I have a lot of undischarged anxiety at the moment, perhaps unsurprisingly given the way Pesach ramps up my anxiety levels. It was one of my reasons for going for a run. There may be some unconscious guilt too. Related to this, lately I’ve been thinking about why it’s so hard for me to think positively about myself, why I see it as morally wrong. I think I feel that I’m not good enough to deserve to think positively about myself; that even if I have good points, they are far outnumbered and outweighed by the bad ones; that thinking positively about myself just makes me look down on other people; and that thinking positively about myself stops my personal growth. I’m not sure what to do about this. There does seem to be a part of myself that thinks I’m one bad decision away from becoming a serial killer and that I have to beat myself up the whole time to (somehow) prevent this.

***

I’m still wondering what to do about my novel, currently sitting in its third draft and waiting for a friend to read it and give feedback. (Despite the title of this post, I’m not currently writing it.) I think my mistake was thinking I could write mainstream literary fiction. I’m beginning to feel I’m more likely to find my voice as a writer of middlebrow pulp fiction, which is what I read (and watch) a lot. Or maybe I’m just not a good writer.

I want to write Jewish fantasy/science fiction/mild horror, which is not a very crowded genre to work in, although I don’t know how many publishers would be interested if there aren’t many readers. My audience would be non-religious Jews and non-Jews interested in Judaism, or at least interested in fantasy and not averse to a Jewish setting and details (like Faye Kellerman’s detective novels set in the Jewish community). I don’t want to preach or go down the Narnia route exactly, but I’d like to deal with some of the questions that face contemporary Jews (or face me) in an exciting setting.

I Want To Break Free

I couldn’t sleep last night. I had slept during the day, I often struggle to sleep after a migraine, and the migraine itself meant that I didn’t take my antidepressants until after midnight, and I usually rely on them to knock me out, so it wasn’t a surprise. Still, it was frustrating not to fall asleep until 4am. I did get up about 10am today, which was good, as there was a lot of Pesach cleaning to do.

The cleaners we booked to come in addition to our usual cleaner to do a lot of basic cleaning downstairs before Pesach have cancelled two weeks running now, so we’re having to do more. I appreciate that “Our cleaners – and not regular cleaner, just our Pesach back-up cleaners – have cancelled” is probably the epitome of middle class first world problems. There’s a global pandemic, the worst recession in centuries, genocide in China, a coup in Myanmar etc. Cleaners cancelling is not a big deal, even a week before Pesach. To be honest, I’m a bit glad: if this is the worst of our Pesach trouble, we should be OK.

I’m not sure how long I cleaned for, probably about two hours. I also managed a walk and some Torah study, and Mum cut my hair, but I would have liked to have done more cleaning. I ran out of time and energy. I wish I knew why my energy depletes so quickly. Possibly I’m just getting older, although I don’t hit forty for a couple more years. I did speak to PIMOJ for over an hour, which was good, although would have liked to speak more had I not been conscious that it was getting late and I have work tomorrow.

As the day went on and my stress levels increased and I got tired and hungry, I became more prone to religious OCD-type thoughts again. They are essentially contamination fears about our food, only with the fear being about religious contamination (non-kosher contamination into kosher food; chametz (leaven) into Pesach food) rather than germs. It’s frustrating and I worry what state I will be in by the end of the week, but I did mostly cope OK even if I want to check some things with my rabbi mentor. One book I have on “pure O” OCD (obsessive thoughts without compulsions including religious OCD) is called The Imp of the Mind and it does feel a bit like this external monster stirring up my thoughts when I’m stressed and hungry.

It’s tempting to want to carry on cleaning or doing Torah study and/or seder preparation late at night, but deep down I know I need to unwind a bit or I’ll be a mess tomorrow, emotionally and possibly physically too. It’s hard to see watching TV as necessary and justified even though it probably is. This is the first year I’m juggling Pesach and paid work and a relationship, so maybe it’s not a surprise that I’m a bit more stressed than usual even without lockdown complicating things further.

While cleaning I Want to Break Free by Queen came on my ipod on shuffle. That would seem appropriate anthem for this Pesach on so many levels: the usual Pesach level of the story of the exodus, the usual Pesach cleaning, lockdown, trying to stay free of OCD…

***

I finished reading Contact last night. I’m glad I stuck with it, as it did get better, and the end was more open to religion than I expected, but I do wish non-religious writers wouldn’t assume that all religious people think like Bible Belt Evangelicals. Also, I now have a serious space issues on my bookshelves. I could buy another bookcase, but I couldn’t fit it in my bedroom easily, and I already have most of my Jewish books downstairs in the dining room on one of my parents’ bookcases.

***

After my headache subsided last night, I said the prayers I had skipped when I was feeling sick. The Ma’ariv for Motzei Shabbat (Evening prayers for the evening after the Sabbath) contain a long anthology of verses of blessing for the new week and finish with a Talmud passage to start the new week with Torah study. It says (Megillah 31a, translation from the Chief Rabbi’s Siddur):

Rabbi Yochanan said: Wherever you find the greatness of the Holy One, blessed be He, there you find His humility. This is written in the Torah, repeated in the Prophets, and stated a third time in the Writings. It is written in the Torah: “For the LORD your GOD is GOD of gods and LORD of lords, the great, mighty and awe-inspiring GOD, who shows no favouritism and accepts no bribe.” Immediately afterwards it is written, “He upholds the cause of the orphan and widow and loves the stranger, giving him food and clothing.” It is repeated in the Prophets, as it says: “So says the High and Exalted One, who lives for ever and whose name is Holy: I live in a high and holy place, but also with the contrite and lowly in spirit, to revive the spirit of the lowly, and to revive the heart of the contrite.” It is stated a third time in the Writings: “Sing to GOD, make music for His name — and exult before Him.” Immediately afterwards it is written: “Father of the fatherless and Judge of widows is GOD in His holy habitation.”

What struck me yesterday is that the verses about humility have very little to do with what in English we would think of as humility. Rather than being about putting yourself down or avoiding praise, they focus on hesed (love, kindness) and tzedakah (charity, justice, social justice). This would seem to indicate that humility is more about openness and care for others than anything about the self; if anything, it is putting aside thinking about the self (either in either a positive or negative way) and focusing your attention on the other.

Rabbi Twerski z”tl also said that humility is focusing on others, while pride is focusing on the self. Also that pride is past-focused (“I did X”) and humility is future-focused (“I will do X”).

The Long Twilight Struggle

I struggled with burnout again on Friday, but forced myself to do my usual pre-Shabbat (Sabbath) chores, as well as thoroughly hoovering and dusting my room for Pesach, including moving my bed and bedside table to hoover under them (not my desk though – too heavy, and food is unlikely to get under it as the three exposed sides are flush with the floor). At least that’s out the way for now; I won’t eat food (other than water) in there now until after Pesach.

I embarrassed myself phoning the hospital about the report from my autism assessment. I had misunderstood when it would be available, which turns out not to be for another two or three weeks. I was very apologetic to the secretary for wasting her time, but I felt bad.

Shabbat (the Sabbath) went well. I went to shul (synagogue) on Friday night. We davened Kabbalat Shabbat (said some of the Evening Prayers) outside so that we could sing. It was good to sing, but very cold, even if Saturday was the first day of spring.

I got up earlier than usual on Saturday morning, although I went back to bed after breakfast and dozed for a bit. I napped in the afternoon too, which I didn’t want to do. I didn’t do much Torah study, partly because of napping, partly because when Shabbat went out I got an awful migraine that took hours to shift. I didn’t even feel up to saying all of the Ma’ariv (Evening) prayers; usually I somehow soldier on, but I skipped the after Shabbat verses of blessing because just reading made me feel like I was going to throw up. This is an improvement, as in the past I would carry on. The last time I had a bad headache when davening (praying) was on Simchat Torah, when bowing at the end of the Amidah prayer actually made me throw up. Perhaps I’m willing to make more excuses for myself now.

I spent much of the evening wrapped in my weighted blanket, watching Babylon 5 (hence the title of this post from one of the episodes, used in a rather humorously melodramatic way). The painkillers I took finally kicked in, along with the cool and soothe strip. I feel a bit tired now, but not particularly sleepy. I’m going to have something to eat (I need to take my antidepressants with food) and maybe go to bed. My room is freezing cold; I opened the windows wide before as I prefer to be cold if I have a migraine, but I wonder how I will fall asleep now.

***

I’ve been missing PIMOJ a lot lately. I realised that I experience this not as pining after her the way I pined after various crushes in my earlier life, but in worrying that she will lose interest in me, that I’m not good enough for her and so on. I’m not sure what to do about this. Hopefully we can meet after Pesach or maybe even during it. We had a text conversation tonight, a bit more in-depth than either of us has had the time or energy for this week, and we’re hoping to speak tomorrow.

***

It’s strange thinking that not only do I now have autism, but I have had autism all my life, even when I was a child doing well at school. It still seems a little strange how well I did at school compared with how badly I’ve done since then, but school was a strange micro-environment, plus “doing well” is relative, as I had undiagnosed depression and anxiety when I was in the sixth form and maybe earlier, and I struggled a lot socially, with bullying and (not) making friends. I would do a lot differently if I knew what I know now, but it’s too late. Still, the thought of being autistic and still doing well academically seems slightly jarring, even though many people on the spectrum are the same. I wish I could identify how I succeeded then and work out how to apply it now, but the answer seems to be to seek out opportunities for rote memorisation of lists and tasks, focus 100% on work with no social or romantic life, and concentrate very hard on doing what I’m told, which does not necessarily make for a healthy adult life.

I was looking over Shabbat at a new haggadah (Passover prayer book) commentary I just bought. It has open questions to stimulate discussion at the seder service. Many of them ask the participants to think about major life events. I keep coming back to my autism diagnosis for so many of these questions. I definitely haven’t worked it through yet.

***

I search for the truth, in what I suppose is a very old-fashioned way. I took a decision at some point, initially unconsciously, lately very consciously, not to cut out of my life people I disagreed with purely on matters of religion or politics. I feel that this is unusual. I try not to read material that is just supporting my views, although it’s hard to find the time to read things from “my” side let alone other opinions in depth, and naturally I prioritise material I think is going to be more accurate which correlates with material I agree with. But I do tend to try to work out what the other side thinks, more or less automatically, probably a hold-over from my university days, where my essays tended to sit on the fence and examine both sides of the issue without really being drawn to one over the other. Anyway, I feel that this behaviour is unusual and most people do not do this. I’m not sure what to think about this.

“To be more like people better than you”

(Title quote from Amateur Hour by Sparks)

Today was not good, although I suppose it could have been worse. But I felt overwhelmed (my new keyword) most of the day. I overslept this morning. Actually, I didn’t oversleep; I was awake, I was just too tired to get up and then suddenly it was half an hour later and I had to rush. On the way in to work I felt overwhelmed and anxious: about Pesach (Passover), about autism, my relationship, my life, and the guy opposite me on the Tube not wearing his mask so he could drink beer 9am. (I’m open to the idea of beer-drinking at 9am being OK for some people, but I don’t consider it sufficient reason to remove one’s mask.)

At work I made mistakes, and also discovered mistakes made earlier e.g. the stationery order I placed on Monday arrived and I discovered that I had ordered one ream of printer paper instead of one box as J, my line manager, had requested. There were other mistakes, and J noticed some of them. He didn’t say much about it, which is good, but also makes it hard for me to judge how satisfied he is with my work. I think there tends to be a programme running in my head all the time wondering about that.

At lunch J asked what book I was reading, the first time he’s shown any interest in my lunchtime reading. Perhaps because my interests were the focus of much childhood bullying, I tend to get really nervous about talking about my interests with anyone outside of narrow “boxes” – so I only feel comfortable talking about Doctor Who with people I know from fandom, only talk about Judaism with other frum (religious) Jews and so on. (Somehow the internet is OK to share and overshare all kinds of stuff, don’t ask me why.)

In the afternoon, J got me to start going through old papers from the office, the start of a long clear out. I tend to be a hoarder with my own papers and property, but if I’m not responsible for the articles in question, I end up wanting to throw everything away. I asked J about a lot of the papers and he told me to keep a lot of it, so I’m not sure how much autonomy I’ll actually have over this task. To be honest, I’m not terribly keen on having autonomy over other people’s things. I did throw away a load of invoices from before 2010 that were unlikely to be used again, but I do feel vaguely apprehensive thinking about it. Unfortunately, it was a dull task that did not use much of my brain and I got stuck in negative thoughts and feelings again and wondered if I am becoming depressed again.

My Mum said that I should tell J about the autism diagnosis. I’m reluctant to do so, partly I admit because J is a friend from before when he gave me the job. I mentioned above about compartmentalising things, and I’ve been reluctant to tell people from shul (synagogue) even about my depression history, let alone something like autism that is understood and accepted even less well than depression. If I do that, I would want to prepare what I would say about autism (if people ask me suddenly I tend to blank and struggle to articulate the symptoms, let alone how it affects me personally) as well as what adjustments, if any, I would want.

That was not the end of the day. The journey home was stressful, with a lot of traffic. I don’t know why sitting in traffic is stressful. A half-hour journey with heavy traffic seems more stressful than a forty-five minute with no traffic. So I came back pretty frazzled, only to be thrown into dealing with Pesach OCD stuff. I’m OK, I know things are OK and I’m not falling back into serious religious OCD, I’m just trying to stay calm and cope with things. My OCD is always worst when I’m hungry and tired and I was both of those things when I got home from work. It’s OK now.

PIMOJ haven’t been able to meet much recently, not that we can really go anywhere at the moment anyway because of lockdown. She is doing a full-time job with significant compulsory overtime two nights a week, plus she’s doing a degree and getting ready for Pesach. At least once the clocks go forward we can buy coffee or takeaway dinner after work and eat in a park, but at the moment it still gets dark too early. I know she’s not avoiding me, but I miss her and I still worry about the stress it puts on our relationship.

So, now I write, write, write, because it helps to get things out of my head and process them. I’m only writing on my blog, as I’ve put my novel on hold until I can show it to someone, which won’t be until after Pesach. To be honest, I’ve lost faith in it. I’d be tempted to start working on a different novel that I’ve been thinking about (is that writing bigamy? Or cheating?), but it requires significant research, both factual (details for the setting) and literary (reading other books in the genre) and I don’t have the time or headspace for that at the moment.

I feel too exhausted to do any Pesach preparation or further Torah study tonight. Yesterday, I said on my blog that I was going to watch more TV, but then felt too tired to actually do so, so I’m not going to do anything as reckless as say I’ll watch TV now. I feel tired, but I want to unwind more before I go to bed. I guess it’s a race to see if I can stay awake long enough to read or watch Babylon 5.

Overloaded

I struggled to get up today, more than usual on a work day. I’m not sure why. I felt that I was falling asleep on the Tube too and did a lot less Torah study than I would normally manage (which I’m recording to show how tired I was more than how little Torah study I was doing). Work was mostly OK, but J was talking to me about the new task I’m going to be doing and it left me a bit panicked. Firstly, he gave over all the information verbally (although I was taking notes this time), which is not ideal for someone with autism (people on the spectrum tend to have problems processing verbal instructions). However, I have not told him about my issues and at the moment don’t feel comfortable in doing so, and in a tiny organisation realistically there isn’t really a better way to transmit the information. Secondly, the importance of the task and the relatively distressed people I will be coming into contact with is in itself anxiety-provoking, especially as they will be telephone conversations (my least favourite kind). I would like to say more, but can’t without revealing too much about the job. Also, realistically I know that in a new job or with a new task one learns from one’s mistakes, but I worry about making mistakes with distressed people.

I seemed to be quite anxious by the late afternoon. I’m not sure how much was thinking about this task and how much was anxiety about the final part of my autism assessment tomorrow morning. I was also anxious that PIMOJ asked me to message someone on her behalf. I was anxious about what to say and what his response would be. This is an ongoing thing that I’d like to talk about here, but don’t really feel able to do so yet and which provokes nuclear-level anxiety, as well as coexisting with general anxiety about whether I’m too much of an autistic loner to be able to maintain a relationship (my first relationship was probably somewhat immature, although I was in my late twenties; my second was long-distance (and on-off); and this is my third).

I came home feeling awful, terribly drained and overstimulated. I don’t think I’ve felt this overloaded since I was volunteering at the asylum seekers’ drop-in centre, where I would spent three or four hours in a very loud and busy environment, “peopling” and looking after small children and I would come home unable to do anything for hours. I did send the message and one or two other things, but I wasn’t able to do more Torah study or anything productive.

I did watch the first episode of This Is Us, the TV programme PIMOJ wanted to share with me. It was OK. I’m going to hold off from passing a verdict on it until I’ve seen more in a better state of mind, but at the moment I’m not hugely excited at the prospect of watching more episodes.

Kohelet (Ecclesiastes), Joy and Living in the Moment

Last night wasn’t much fun. Around 6.00pm, I started getting aches in my joints. Within a couple of hours, I was shaking and shivering and felt alternately hot and cold. It seemed like I was having side effects from the COVID vaccine, as my body started an immune response. It got worse across the evening. I started crying uncontrollably at times, triggered by all kinds of thoughts: happy or sad, religious or secular or even just trivial. I tried to go to bed around midnight, but was shaking too much to sleep and just lay in bed for two hours. There didn’t seem much point in getting up, as I wasn’t well enough to read and, being Shabbat, I wasn’t able to watch a DVD.

I think I must have dozed off around 2.00am, but I woke up again after an hour or so. I was very thirsty, but so tired that it took me well over an hour to get the energy to get up to get a drink. By this stage the shaking had temperature changes had stopped, but I was getting a headache, one of the type I get where lying down makes it worse, so I sat up for a while. I took some solpadeine and tried to read, but reading just made the headache worse and made me feel that I was going to throw up, so I just sat in the dark for an hour. Eventually the headache lessened and I went back to bed. It was no surprise that I slept through the morning this time or that I slept for two and a half hours in the afternoon (nearly missing Minchah (Afternoon Prayers) and Seudah Shlishit (the third Sabbath meal)). By lunch time I was a lot better, although I still have a bit of achiness in my joints.

I was actually OK at spending all this time alone in my head with no books, music or TV to distract myself. I think I’m mostly OK about being in my own head these days without falling in to loneliness, self-loathing or despair. I thought a lot about religious/Torah topics; my thoughts tend to naturally drift this way on Shabbat (the Sabbath). I tried to stay reasonably upbeat, and I know that it just means that the vaccine is doing its work and its nothing to worry about.

***

There’s a lot on my mind tonight, but most of it will have to wait, as it’s late and I should try to get to bed soon, although my sleep is even more disordered than usual now. However, there’s something I’ve been thinking about all week, and was thinking about when sick last night, and I thought I would share it.

For the last week I’ve been reading Kohelet (Ecclesiastes) with a brief commentary from Rabbi Lord Sacks z”tl in his Sukkot Machzor (Prayerbook for the Tabernacles festival) as well as an essay on the book published in the same Machzor. Kohelet is often seen as a deeply downbeat book, its first significant verse (after an introductory one) being translated by The King James Bible as “Vanity of vanities, saith the Preacher, vanity of vanities, all is vanity.” This is a bad translation. It doesn’t help that “vanity” in a sixteenth century context means something worthless rather than something self-focused, but either way “vanity” is a very poor translation for a word that in Hebrew means “breath.” Rabbi Sacks translates as “Shallowest breath, said Kohelet; the shallowest breath, it is all but breath.” It is a book about the fragility of life; the living are just one breath away from the dead and everything is as insubstantial as breath.

The narrator of the book relates at length the inability of wisdom, wealth, or sex to provide any lasting meaning or joy. Ultimately, everything, even wisdom, passes on the day of death. Moreover, the world is a deeply unjust place, where the wicked thrive and the righteous suffer. So the book has a reputation for being downbeat and not obviously “religious.”

Interspersed between these passages, however, are statements that one should try to experience joy and live a God-fearing life. These are so unlike the bulk of the book that it has been suggested that the author wanted to tone down his negative tirade and appear superficially religious to avoid being suppressed, or that they were the work of a later pious or worried editor. However, Rabbi Sacks notes that there are seven of these interpolations; it is an established principle of Jewish hermeneutics that seven-fold repetitions in Tanakh (Hebrew Bible) are always significant.

Rabbi Sacks suggests that the interpolations are the key to the book. While life is largely negative, one can still experience moments of joy by living in the moment and enjoying the “simple pleasures of life” that come our way, whether monogamous love and honest work or simply food and drink. Rabbi Sacks says that happiness depends on external factors and may be impossible, but joy “lives in the moment” and is essentially shared with others.

In Rabbi Sacks’ view Kohelet is about living in the moment in a deeply imperfect and unhappy world. This intrigued me and I’ve been thinking about it all week. While I don’t think it would have helped me when I was clinically depressed, I’ve been trying lately (before this) to be a bit more mindful and present-focused and this has just increased my desire to do that.

Is Kohelet’s joy of living in the moment the Jewish equivalent of mindfulness? I don’t know. I see it as being very different to “toxic positivity” though. Toxic positivity denies the reality of suffering and evil, whereas Kohelet spends a long time talking about its reality, whether the fact that we will die and all our wisdom will vanish with us or the fact that the world is full of injustice and oppression and clearly not a utopia. Joy for Kohelet is about living despite suffering rather than denying it, and still finding reasons to keep going.

Not Anxious, Slightly Surprisingly

I got up at 10.00am today, which was good, but I was still very tired and went back to bed briefly after breakfast. Sometimes it’s hard just to keep going and I struggle to understand why I still feel like that when I’m not really depressed any more and don’t have obvious sources of autistic burnout. Even at the best of times, I tend to go slowly with things, which is why my current job is good for me, both because the work is not so high-pressure and because J tends not to stress or work flat out either. PIMOJ is very energetic and leads a busy life and sometimes I wonder if she thinks I’m too slow.

I had an emotional and draining therapy session. Other than that it was the usual: working on my devar Torah, Torah study, a short walk in the rain. I got a weird text that purported to be from the Department of Work and Pensions about my benefits. It looked like a scam, but I realised it came from a number that I’ve had genuine DWP communications from before and what details were given seemed to be accurate. Also, in my experience, poor writing does not stop a communication being from the DWP. I didn’t click on the link in the text, because it looked too dodgy, but I’m vaguely worried about the consequences. If they want me for something important, they should write to me properly, not send texts HALF WRITTEN IN CAPITALS FOR NO REASON with no clear contact details.

I spent an hour (!) discussing Pesach (Passover) cleaning, kashering and other Pesach preparations with my parents. Things are extra difficult this year as Pesach starts as Shabbat (the Sabbath) finishes. I don’t really have time or energy to explain this if you don’t know what it involves or why Pesach after Shabbat is so tricky (it’s all quite complicated). Suffice to say, I now have some idea of what I need to do and when, but am a bit freaked out about how much I have to do in the next three weeks, alongside my paid job. I’m glad my writing was already on hold and I don’t know how much exercise I’m going to get in the next few weeks. I hope to still have some time to see PIMOJ when the lockdown ends. I also want to find some time to prepare some extra ideas to share at the seder although I don’t know when, or how I can fit that in with my weekly devar Torah. PIMOJ and I are going (online) to a Pesach seminar day at the London School of Jewish Studies, so I’m hoping to pick up some ideas there that will be suitable to share at the seder. A frantic month starts here. I just hope my religious OCD, which is worse about Pesach than anything else, doesn’t come back.

On the plus side, if it’s nearly Pesach, then it’s nearly spring! Although before I really get into Pesach mode, I’ve got my vaccination on Friday (there’s some “new situation” anxiety although the whole thing is likely to be over in a few minutes) and my autism diagnosis on Tuesday, so there’s potentially a lot of anxiety around in the next few days. I feel OK at the moment though.

Intelligent Life

I didn’t blog yesterday. I had a busy day, but there wasn’t much to put on a mental health blog, except for one thing that wasn’t time-related and was too long for the time available to write. The only other thing worth mentioning is discussing with my rabbi mentor my OCD anxiety about missing words of the Megillah (Book of Esther) on Purim. He said that it’s not my responsibility to check it is read correctly and that there should be other people in the room to do that (usually the rabbi, although he wasn’t in my reading this year because of the socially distanced parallel readings). He said he was once in a Megillah reading where someone in the congregation kept calling the ba’al koreh (reader) out on real or imagined mistakes. It was embarrassing for everyone and eventually the rabbi had to intervene to stop him.

As for today, I woke up early (6.50am) today to try to pray more before going to work, but I stayed in bed too long, actually getting up later than when I usually try to get up, so it was not a success.

At work J started training me for a task which is scary, because it’s client-facing and very serious and potentially dealing with people in emotional distress, so I’m a bit apprehensive. It’s definitely social anxiety provoking. However, I think it’s positive because it means J is at least still hoping to have a permanent job for me. It could also be exposure therapy for social anxiety. I’d like to explain more, but I don’t think I could do so without making where I’m working too obvious. I didn’t take notes when J was explaining it and although I wrote some notes once he had finished, I’m not sure I got it all down. He did say we would role play some situations on Thursday so I can practise it.

I went to depression group on Zoom this evening. We split into smaller groups this time with breakout rooms, which seemed to work well. I do feel lately that I’m not sure how much to share, how much I have the time (or the energy) to share of my history, particularly now the depression part (the reason for being there) is no longer really present for me on a day-to-day basis. I spoke mostly about my worries about my autism assessment next week. I experienced a lot of social anxiety and mostly looked at the keyboard rather than the screen or the camera. I am definitely struggling to keep going to the group now it’s Zoom only, and the fact that I’m not feeling so depressed means I feel I have less of a reason to go, although I do want to hear how other people are getting on. (Some people do keep going to the group after recovery for that reason and to support others.)

I also struggled to concentrate on the group because I was feeling agitated about something I didn’t want to bring to the group. Just before the group started, I was reading Contact. I thought it was going to be a fairly realistic science fiction book about what a near future first contact with aliens would look like, but it’s turning into a religion vs. science story. Or a Christianity vs. science story, as Carl Sagan’s arguments are more anti-Christian than anti-religious. The idea that Tanakh would be more believable if it contained a testable scientific law seemed to be a spectacular exercise in missing the point, like saying King Lear would be a more meaningful expression of the meaning of love and power if the Fool related Newton’s Law of Motion. Christianity is about belief and in a sense so is atheism; Judaism is about deeds. The test of Tanakh from a Jewish point of view is living Jewish practices and values and seeing how it changes you. Tanakh isn’t meant to be a science book. When I get annoyed by something like this, it runs over and over in my head

It reminded me that years ago I started writing a short story with a similar premise to Contact (radio telescope picks up signs of alien life, with a realistic tone, although I knew a lot less of the science than Sagan, obviously) except mine saw the presence of alien life in the cosmos as perhaps affirming of the existence of God, although I can’t remember how I reached that conclusion. Anyway, I didn’t finish it and now I can’t find the draft I started.

I don’t want to abandon the book, because I’m interested in its realistic presentation of a near-future first contact scenario and because I believe in encountering alternative viewpoints. I may end up skimming bits (maybe. I’m pretty bad at skimming things). I looked at the review on Goodreads and people were suggesting it’s positive about religion, but I think it’s positive about awe in nature, which isn’t the same thing. I find nature beautiful, but I find God in the miraculous survival of the Jewish people and perhaps in good deeds and “I-Thou” interactions (I’m actually not sure what I find God in).

***

Goodreads might need to refine their algorithm. It just suggested that “Because you read The Complete Peanuts 1987-1988: Volume 19 [you might like to read] 24/7: Late Capitalism and the Ends of Sleep“. Aside from the fact that I automatically switch off whenever anyone says “late capitalism” (capitalism has been “late” for about 150 years now), I struggle to see the link between Snoopy and Marxist economics. Maybe Snoopy wrote “It was a dark and stormy night. Suddenly the end of capitalism rang out!”

COVID Purim (1)

I struggled to sleep last night and had weird dreams again, but I got up earlier today. Not early early, not even as early as I do on work days (which are not so early given I currently leave at 8.30am to avoid rush hour), but 10.00am, earlier than midday (or later) as I’ve been getting up on non-work days for the last week or two. I actually woke up about 9.30am, before Dad came in about 9.50am to tell me to check my phone in case I’d been offered another vaccination appointment (no, not yet) and before PIMOJ rang me at 10.00am as we’d agreed to help me get up.

I wasn’t working today, as J and I both wanted to make sure we could get to shul (synagogue) in time in the evening for Purim and the Megillah (Book of Esther) reading. J can work from home today, but I can’t, but part of me at least is glad to give up a day’s wages so that I could at least try to approach this strangest Purim with a degree of calm. I actually did feel quite calm when I woke up, despite all the worry I’ve had for the last few days (weeks), like I’m finally facing the fear. However, I did feel at a bit of a loose end and anxiety grew as I got a bit bored. I don’t usually get bored as there are always things I want to do, but here I just wanted to get to shul and get Purim under way. As well as OCD-type anxiety that makes me worry about not hearing a word of the Megillah reading (we are supposed to hear every word of the Megillah, both morning and evening), this year, because of COVID, there is autistic new situation anxiety about having to go to a different room in the building to the one where we normally daven (pray) and social anxiety about possibly having to ask someone for directions to said room.

I did about half an hour of Torah study, but I wanted to save myself for the Megillah reading later rather than exhaust myself with heavy concepts in advance. I tried to make some changes to my novel, but aside for one or two slight edits, I feel stuck with it. I need to hear from someone outside my head about whether it’s any good. I have got a friend who will do that, but not until after Pesach which is not for another month.

It was a strange Purim. Purim with masks, but not fancy dress masks as usual, but COVID masks. I wore my jester’s hat, but almost no one else seemed to have been in fancy dress. I don’t know if I really saw a representative sample (I didn’t see many people), but perhaps people must only dress up for parties or for their children (children under eight were banned from shul to keep the numbers down). Someone handed out sheets of paper, which I thought were Purim shpiels (satirical writing), but turned out to be solemn warnings not to congregate in groups or go to parties.

My shul ran three parallel Megillah readings in different rooms, and a fourth one later, so that people could socially distance instead of having seventy or eighty people in one room at a go. It was permitted to make noise when the villainous Haman’s name was read as per usual, but only stamping or using rattles, no vocal noise. The person who read the Megillah was a boy of about fourteen or fifteen, but very good.

From an OCD worrying about missing words perspective, it was pretty good. There were few enough people in the room that no noise was really a problem, and the reader was good at waiting for quiet, and he repeated words he thought might have been lost. I worried that at one point I thought I heard a wrong word, but wasn’t sure. This seems to happen to me every year since the really bad religious OCD year. This time I reflected that there were some very frum (religious) and Jewishly knowledgeable people in that room, and they had corrected one or two minor mistakes, so they were unlikely to all let a major mistake such as I thought I heard go. This has mostly caused the fear to subside without turning into OCD anxiety.

Howard Jacobson said in an article somewhere that Pesach is the best Jewish festival because it has the best story, but I think the Purim story is even better. In recent years, I find myself reading along with the Megillah in fear and anticipation. That’s partly OCD-type anxiety that I might miss a word, but it’s also becoming involved in the story. Not only was the fate facing the Jewish people worse at the time of the Purim story than at the exodus from Egypt, the salvation was more unexpected. God had promised Avraham (Abraham) that He would rescue his descendants from slavery and once the ten plagues started, the outcome was not in question, but Purim is a festival with no prophecies, no miracles and, on the face of it, no hope, which is why it’s a festival about finding hope, about finding Providence in random chance (the word ‘Purim’ means ‘lottery’). I’m trying to hold on to that at the moment, with the confusion in both my personal life and the world.

Tomorrow I need to be up even earlier than today (6.15am or at least 6.30) to get to the morning Megillah reading (we have to hear it night and day). Given that attendance has to be booked this year because of COVID, I don’t have the option of going to a later reading if I miss it. I feel very tired now as the tension of the day dissipates. I’m not too worried about tomorrow; even in a normal year, morning Megillah readings are quicker, quieter, more straight-forward affairs. I will turn off my computer after this. I want to watch TV, but I watched TV all afternoon. OK, it was about an hour and a half of TV, but I don’t usually watch TV in the afternoon at all. But my brain is just not in gear to read and I need to do something to unwind or I won’t sleep from all the tension I’m still storing inside my body.

Burnout and Worry

I didn’t sleep well again. My weighted blanket became bunched up in one side of the duvet cover I put it in to keep it clean and I kept waking up feeling I wasn’t covered up as I wanted, but I was too tired and burnt out to get up and even out the duvet. I had crazy dreams (something about going to see Hermann Goering about something, possibly stopping the Nazis coming to power, or making sure they did come to power to preserve history… I think this was based on the science fiction novel The Simulacra that I read recently). I think I woke up intermittently across the morning, partly woken by building noise from next-door (or was that yesterday? The mornings blur together), but I didn’t feel able to stay awake and get up until very late and I was very burnt out again.

Burnout feels like more than ordinary “tired,” more like jetlag, or the type of tired you get if you’ve been up for thirty-six hours straight, just totally drained of energy and really impossible to do anything or think straight. It gets a bit better after breakfast, but generally not a lot better until after lunch, which implies to me there might be a blood sugar element (low blood sugar has always affected my mood negatively, since childhood). I’m not sure what the solution is, if there is one. For the moment I’m waiting anxiously for 9 March and the final part of my autism assessment before I make firm plans about my mental health.

I got a text this morning offering me a COVID vaccination at my GP, but I was asleep when it came through and by the time I phoned through to make the appointment, they were all taken. I’m actually glad, as the appointment would have been on a Saturday. Some rabbis are permitting getting vaccinated on Shabbat, but as I’m not a priority (I think I’m only being offered it at this stage because my Mum is still listed as vulnerable), I don’t mind waiting until the next appointment, which I’ve been told is Friday 5 March. I just hope I am awake when I get the next message and can respond in time.

I had a fairly busy day: I wrote my devar Torah for the week (although I have a bit to add that I thought of later) and was glad to link the sedra (weekly Torah reading) to Purim. I did a little Torah study too and went for a run. When I got home, I ate some crackers with salty butter out of curiosity to see if the salt would stop me getting a headache, wondering if lack of salt rather than dehydration is what causes my exercise migraines (dehydration seems unlikely, as I drink a lot). I didn’t get a headache immediately, but one seems to have set in now, over four hours later, although that may be because my parents turn the heating up so high.

***

There’s a joke about a great sage who wanted to know the meaning of life. He spent years studying texts: Tanakh, Talmud, Midrash, Kabbalah… Eventually he looked up from his books and said, “Life is good!” Then he paused for a moment, thought a bit longer and said, “But if life is so good… how come it’s so bad?”

I feel a bit like this. My life is objectively better than it’s been for at least two or three years. And yet, somehow I feel stressed a lot of the time. There is uncertainty. I don’t know if my job will continue long-term or if my novel will be published. I obviously don’t know what will happen with me and PIMOJ. I guess uncertainty about one’s career and relationship is going to lead to unsettled feelings, even if things are OK at the moment.

At the moment, PIMOJ and I still can’t see each other for another nearly two weeks because of the lockdown, which is proving very difficult and I certainly feel it’s putting a bit of strain on the relationship. I think my relationship with PIMOJ is different to my previous two relationships, in that PIMOJ and I are very different in personality and we have to consciously work harder on the relationship and to communicate effectively. I don’t think that’s necessarily a bad thing, but it means I have to engage in the relationship a lot more deliberately than I had to with previous relationships (not that I’ve been in many previous relationships), and that’s not easy when we can’t see each other.

Beyond this, I guess there are things I think about and worry about that I need to process, but which I don’t want to write here because they relate to other people who might not want me to write about them even anonymously. I need to find another way of processing them. I can talk in therapy, but that’s one hour a fortnight. I could try to switch back to once a week, but I’m not sure I will always have enough to say once a week; the amount of worry comes and goes. I speak to my rabbi mentor sometimes. I could try writing privately, as I occasionally do. I do feel that it’s better if I can write with an audience though. Aside from getting helpful comments, knowing I have an audience stops me drifting into catastrophising or self-pity. Just knowing that something will be read makes me careful to avoid that in a way that I fear is not the case in private writing.

Still, just as my intermittent low mood is not capital-D Depression, so my worries are not capital-A Anxiety, which is good.

OK, bed now, as my head hurts.

Vulnerable and Fragile

The good news for today is that I have an appointment for the final part of my autism assessment booked in for 9 March, two weeks’ time. This is really all down to my Mum, who has been phoning to chase it up. Sadly on the NHS, or parts of it, there’s a benefit in having someone willing and able to make a certain amount of noise on your behalf when waiting for an appointment, in case you drop off the system, as I suspect I had done.

***

I was burnt out again this morning, sleeping for about twelve hours, although I intended to “only” sleep for ten. The problem is partly that I turn off my clock radio alarms in my sleep, or at least don’t wake up for long enough to really wake up and stay awake. I put my phone on the other side of the room, so I have to get up to turn the alarm off, but its alarm is too quiet to really wake me and I sleep through it. Even if I do wake up, I fall asleep again before I can summon the energy to get up. I’m sure this must be boring and repetitive to readers, but it’s how my life is at the moment, with this major obstacle (burnout and oversleeping) that I just can’t make progress on and don’t really understand, even though I’ve made a lot of progress with the rest of my life.

I went for a walk and to the post office. That was crowded. The post office is inside the pharmacy and the pharmacy is doing COVID vaccinations, so there were a lot of people trying to socially distance inside and outside the shop. My mood slumped again while I was out walking, which might be a late afternoon blood sugar thing, or maybe because I was listening to the Intimate Judaism podcast about sex and Orthodox Judaism and it made me think how slow and uncertain it will be to move my relationship with PIMOJ on to a point where we can marry. My mood dropped a bit again while I was cooking dinner (vegetable curry), although it improved as I focused on cooking, which suggests that not having a focus is a trigger for negative thoughts.

I went to a shiur (religious class), the last of this set of shiurim, this time on Megillat Esther (The Book of Esther). It was more in depth than the previous ones, presumably because Esther is one of the better-known books of the Hebrew Bible among Jews, as we read it every year (twice, morning and evening) on Purim, which is this Thursday night and Friday. There were some interesting points about liminal spaces and identity in Esther. It made me feel more positive about the upcoming Purim, a festival that traditionally inspires very mixed feelings in me.

Then I saw that my shul (synagogue) had sent out an email about social distancing over Purim. So the whole community can all hear the Megillah, morning and evening safely, they are running four different readings at night and another four in the morning in different rooms of the building. I’m not entirely sure where my room is, so I need to go early to make sure I get there on time. They said there will be stewards to guide us, but I’m slightly apprehensive about it and plan to get there ten or fifteen minutes early to be safe.

***

I’ve noticed that I’ve had to struggle against religious OCD thoughts more lately. So far I haven’t sent any panicked emails to my rabbi asking if things were OK, which means it’s mostly under control and no actual OCD, just thoughts. (Actually, there was one email, but it was realistically a necessary email, and I didn’t send follow-up emails even though I was still worried.) Even so, I’m a bit concerned about things spiralling out of control as we approach Pesach. I’m trying to remember my coping strategies and exposure therapy techniques. I’m also trying to tell myself “I can cope” as my therapist suggested.

I guess my life is far from perfect right now, but realistically, no one’s life is ever perfect, and my current life is manageable, at least for the foreseeable future. I’m going with that for now. I do feel kind of fragile and vulnerable though, as if I’m aware I don’t have great resilience at the moment and am worried how I might cope if things start to go wrong.

Equanimity, and Reading

I struggled to fall asleep last night, probably as a result of having slept too much over the weekend. That’s probably the context in which the rest of this post falls, that I was a bit sleep deprived and not at my best. I think I was worrying when I couldn’t sleep, but I don’t think I was being kept awake by worry, just that with not much to think about, I worried. Again, that’s probably relevant later.

At work I spent five minutes looking for a cheque before I remembered that the person had paid twice by mistake and we posted their second cheque back to them. I had just forgotten to delete the second cheque from the incoming payments spreadsheet. Until I realised what was going on, I worried I had done something really stupid, like throw the cheque in the bin or post it back to the sender instead of their receipt, something I have nearly done on several occasions. I hope I didn’t seem too stupid to J.

In the afternoon, I worked on the inventory again. I struggled a bit emotionally. My therapist says it’s not so helpful to talk of “depression” now, given that my mood is mostly stable, and I think that’s true, but my mood did dip, perhaps because of my lack of sleep. The inventory is not a completely straightforward task, but it doesn’t require a huge amount of concentration either, which is a recipe for my mind to wander, apparently to worries and negative thoughts about myself, somewhat like last night when I couldn’t sleep. I did get through it, but I fear that my work was not particularly fast or efficient, and I’m still only about halfway through the inventory (or really through stage one of the inventory).

***

I worry a lot about not having peace of mind, including today while feeling like this, so it was interesting to see in the Jewish book I just started re-reading (The Strife of the Spirit by Rabbi Adin Steinsaltz) that peace of mind is a negative thing in Judaism. We should feel inner conflict: “there are [spiritual] goals that cannot be attained except through struggle waged within the soul.” (p.5) Elsewhere (The Thirteen Petalled Rose p. 132) Rabbi Steinsaltz states that “The Jewish approach to life considers the man who has stopped going — he who has a feeling of completion, of peace, of a great light from above that has brought him to rest — to be someone who has lost his way. Only he whom the light continues to beckon, for whom the light is as distant as ever, only he can be considered to have received some sort of response.” This is rather different from what a lot of self-help books say. Alan Morinis writes that the Jewish idea of equanimity is like a surfer on a wave, staying balanced, but aware of what is around him. This approach intrigues me. It seems more feasible than complete calm and lack of emotional upsets.

***

I feel that I’m reading less. I should qualify that and say I’m reading less recreationally. I read a lot of religious material, in Hebrew and English. But I think I’m reading less for fun. Certainly I haven’t found a novel that really grabbed me, that I became immersed in, for quite a while. And I’m not sure if my idea of mixing more non-fiction into my reading schedule is so good. I like to learn about history, economics and politics, so setting aside time to read about them is good, but then I want to be a professional author, so I should read a lot of fiction. It can also be harder to get motivated to read non-fiction than fiction. Then again, I want to write Jewish historical fantasy, so a solid grounding in Jewish and world history and mythology is also important…

I also find that it’s easier to read blogs and news articles online than books or even longform online journalism. The Jewish Review of Books periodically posts long articles that they don’t include in the print magazine and I save them, but it’s hard to get around to reading them. Sometimes I print things like that off and read it on Shabbat as it’s easier to set aside the time to read then. Despite this, I still spend hours idly surfing blogs, BBC News and other news sites.

I guess the bottom line is that I haven’t found reading so much fun lately, so I’ve been prioritising television, particularly when tired (which is a lot of the time). I’m not sure what to do about this, or if this is even something I should do anything about. Reading has been my love since I was a toddler, it will probably reassert itself at some point, maybe when I’m sufficiently at peace with my own novel to be able to read other people’s work without taking it to pieces to see how it works and what I should (or shouldn’t) learn from it, which I’ve been doing lately (mind you, I do that with TV too).

***

I don’t normally post links, but as I was complaining about Haredi (ultra-Orthodox Jewish) lockdown non-compliance recently, I want to link to this interesting post that says that the data suggests Haredi compliance was greater than the community has been given credited for, at least in the first lockdown. And while I find many aspects of Haredi life personally uncomfortable, not to mention antithetical to my understanding of Judaism, I agree that demonising “Them” isn’t helpful. It opens the door to all kinds of nasty social engineering projects once you decide that some life choices are inherently wrong and need policing (or “helping”) by other groups (with obvious caveats for where those life choices affect those unable to choose, whether children or people vulnerable to COVID).

The Understudy

I didn’t have a very good night’s sleep. I used my new weighted blanket and it was good, but I wonder if it was warm enough as I kept waking up in the night. If I continue to have interrupted sleep, I may put a summer weight duvet over it and see how that is. I slept badly anyway through going to bed late and having slept too much in the afternoon, so it took me a long time to fall asleep. I had weird dreams, although none interesting enough to be worth sharing, and woke up late and burnt out so that I lay in bed a long time trying to get the strength to get up. I felt a bit better after breakfast, but I don’t usually feel 100% until after lunch, even on work days when I do manage to get up early.

I feel like I’m just trying to keep my head above the water at the moment. Some of it is the time of year, as I’ve mentioned, when the days are still short and cold and wet, but the anxiety about the spring Jewish festivals is growing. In addition, my sleep is still disrupted, I’m still worried about doing the wrong thing at work, I feel negative about my novel (vaguely wondering if I should give up on it and start a new one, although I don’t realistically feel that would be a good idea at this stage) and I miss PIMOJ in the lockdown. And, like pretty much everyone in the world, I’m sick of COVID and lockdowns in general, I just want life to be normal again (for all that I struggle with “normal”). PIMOJ is stressed about things in her life too, which only magnifies the problem.

I know other frum (religious) Jews don’t get so anxious about Jewish observance. They perform the mitzvot (commandments) to the best of their ability and that’s that. I don’t know how they get to that point. Some of it is probably being brought up frum from a young age (which I wasn’t) and some is feeling a strong level of community integration and support (which I don’t have).

I was feeling today that I’m an understudy in my own life, thrust onto the stage unprepared. Or, I’m a new actor playing the Doctor in Doctor Who, trying to play it my way, while keeping faith with my predecessors (i.e. other Jews, especially my ancestors).

I went for a run and while running I started thinking about the two questions Babylon 5 is built around, “Who are you?” and “What do you want?” I want to be a good Jew and a good writer. I’m not sure if that answers the “Who?” or “What?” question and I’m not sure how to achieve either of them. I feel like I should have better answers and more of a plan for achieving them now I’m in my late thirties.

After my run, though, I started thinking about gratitude, how grateful I am for supportive parents and a supportive sister, for a brother-in-law I get on with even though we’re quite different, for friends online and in person, for the fact that I’m in work with a tolerant boss, for the fact that I’m reasonably psychologically stable at the moment, and for the fact that I have a supportive girlfriend. I know not everyone has these things, and I’m grateful for them.

Last Wednesday, my therapist encouraged me to focus on “I can cope” as an affirmation. I’ve not found affirmations hugely useful in my recovery from mental illness, but this seemed fairly pithy and realistic. I know I can cope. I’ve coped with my mental health for years and I’ve had several reasonably good Purims and Pesachs, at least from a mental health point of view, since the ones that were my nadir (around 2015 and 2016). So I can cope – I just have to learn to believe it.

***

Other than that, it wasn’t much of a day. I did some Torah study (less than I wanted) and, as I said, I went for a run, but that was about it. I didn’t get to work on my novel. There are some changes I want to make to the current draft before I send it out for feedback and I don’t know when I will have time to make them. I guess I feel I wasted time, although given how I felt on waking, I probably shouldn’t blame myself too much, not that that has ever stopped me.

***

I feel I’ve put myself “out here” a bit more in my blog over the last few months, occasionally posting more potentially controversial political and religious things. I guess that means I have a certain degree of trust in the people who read and comment. I don’t want to post a huge amount of this type of stuff, I still see this as primarily a daily journal-type blog about surviving with autism and residual mental illness on a day-to-day level, but it’s interesting because it suggests I can put these feelings out here in some circumstances, bearing in mind that I tend to hide my thoughts about politics and religion in Real Life. I do still get the, “Oh, I shouldn’t have said that, what will people think of me?/what will they say?” feeling though, the desire to go back and edit or delete what I’ve written.

Shabbat and “Organised Religion”

Shabbat was mostly good. I finished reading Ruth: From Alienation to Monarchy. It was very detailed (it’s much longer than the other books I have in the Koren Maggid Tanakh series even though Ruth is a very short book), perhaps a little too detailed, but it was very thorough and gave me a new appreciation for the literary and theological depth of a book that I had perhaps dismissed in the past as merely a pleasant story and a bit of an “origin story” for the Davidic monarchy.

I couldn’t sleep at night and read a lot of the graphic novel Final Crisis. I found it fairly incomprehensible. I knew that was likely to happen, as it’s a “crisis” story where Detective Comics put all their superheroes together against a massive foe. As Batman, to a much lesser extent, Superman, are the only superheroes I know well, I was expecting to be faced with many characters I didn’t know well or even at all. However, no characters seemed to stick around for more than a page or two to get to know them, except for a long interlude of Superman with parallel universe Supermen in a weird limbo universe. I didn’t really understand what was going on or why an equation can drive the entire population of Earth to despair and servitude of a super-powerful alien being (Darkseid). I’m reading it as it’s part of Grant Morrison’s wider Batman story arc, but it doesn’t seem to be as good as the other, Batman-only, stories in the arc. Or maybe I’m still too much of a Detective Comics novice to appreciate it. I think Morrison isn’t such a great plot author and tends to rely on spectacle and innovation and reimagining existing characters to pull the reader along.

I told PIMOJ I would get up at 10am today. I’m trying to see if I can get up earlier if I make myself responsible to her. I didn’t manage it, but I did get up at 10.37 instead, which was reasonably good. Unfortunately I napped for two hours after lunch; not good, I won’t sleep tonight (hence it’s gone 12.30am and I’m still writing).

I had a headache after Shabbat. I hope I’m not getting back in the habit of getting a headache every week.

My parents and I watched a Zoom talk this evening. Someone from my shul (synagogue) was speaking about his life story, from birth into a non-Jewish Austrian family in the 1920s to conscription into the Hitler Youth and later the SS, to being captured by the Americans and being a prisoner of war in England and eventually converting to Orthodox Judaism quite late in life. It was interesting and he really had enough material to speak for two evenings.

After that I spoke to PIMOJ for a while and then did some Torah study that I hadn’t managed earlier because of my headache.

***

I had some thoughts about organised religion, based on the comments to my previous post. A number of people spoke about believing in God, or at least being open to God, but getting turned off by organised religion. I guess that’s something I can’t always understand emotionally, although I can see why some religious institutions would annoy people. Maybe it’s partially because Judaism doesn’t have the kind of structure that the Catholic and Anglican Churches have, the sense of a vast institution with wealth and power and a religious hierarchy.

When people say “organised religion” to me in a Jewish context I think of stuff like having a community with some kind of funding to own or lease a building for regular prayers, to ensure the lights and the heating there stay on, and having some kind of administrative set-up to ensure that the money is overseen safely, with no fraud, and that poorer people in the community can be supported from communal tzedaka (charity) funds and so on. Maybe also paying a rabbi to provide pastoral support. That’s not really anything that upsets or annoys me, or turns me off in other ways.

On the other hand, I do get annoyed by, and feel rebellious when confronted with various things. I don’t particularly care about being told what to eat or when to pray or who I can marry; I take that as coming with the territory of being an Orthodox Jew. However, I do react strongly if I feel people are telling me what I can read or are dismissing my beliefs, even if I know they’re minority views in the Orthodox community and more ‘modern’ than Haredi (ultra-Orthodox). Also if I feel people are saying I can’t watch Doctor Who, which is an obsessive autistic special interest for me and looms larger in my life than it probably should; I feel I couldn’t cope without it.

I don’t really associate this with “organised religion” though. To me it seems more of a sociological thing, maybe because it’s enforced by peer pressure rather than by overt means. I mean, when I joined my shul (synagogue), no one asked if I take the Genesis Creation story literally or whether I think non-Jewish religions are religiously valid for their adherents. But then I hear people (including) rabbis taking a different line on these things to me and I feel out of place and worried of being “found out.” I doubt they would (or could) throw me out of the shul if they did find out, but it would probably change how some people interacted with me.

I feel a lot of it comes from the nature of my community, with some very Haredi congregants and certainly Haredi rabbis, but other congregants who are more ‘modern’ like me. I used to go to my parents’ shul, which is definitely more modern, but I felt that people at my current shul took prayer and Torah study more seriously. Plus my current shul is much smaller; I felt overwhelmed by the number of people at my parents’ shul even on ordinary Shabbats, let alone festivals. I have an identity in my own right in my shul too, rather than just being an adjunct of my parents. So I stick with my current shul even though doctrinally it’s not a perfect fit.

This may sound strange to Christians in particular, but doctrine or dogma isn’t such a big thing in Judaism. Jews tend to focus more on what you do than what you believe. If you dress in an acceptable way, don’t publicly violate Shabbat or Yom Tov (festivals), are polite to people, and attend prayer services and shiurim (religious classes) regularly, people will probably accept you, at least on a basic level, without asking what you actually believe.

More Burnout and Coping

I woke up feeling really burnt out again. I didn’t get up until nearly 1pm, which was very late. I feel worried about how easily I get burnt out. I want to have children one day and I know PIMOJ does too, but at the moment if we had children she would virtually be a single mother in terms of childcare. OK, not quite that bad, but it certainly wouldn’t be a 50:50 split. I’ve mentioned that we won’t be able to get married for a couple of years, even if we decide to do so, so I’m hoping that my life will magically turn around in that time and perhaps it could, if I get a firm autism diagnosis, get my novel published and maybe if my job with J becomes more permanent, but it seems a lot to hang on a lot of ifs.

I booked in for Megillah readings at shul (synagogue). The Megillah is the Book of Esther which is read twice on the festival of Purim (next week). There’s an obligation to hear it evening and morning in full – literally every word. There’s also a custom of making noise whenever the name of Haman (the villain, who tried to wipe out the Jews) is mentioned, which makes the idea of hearing every word rather harder. In the past this has provoked religious OCD in me and I’m still nervous of what might happen. Plus Purim has a carnival atmosphere with dressing up in fancy dress and partying (admittedly not so much this year because of COVID) which can be intimidating from a depression and autism point of view. I have had a some good Purims over the years, but also some difficult ones, and I think my first episode of depression started (or became obvious) on Purim many years ago. This year, COVID adds a whole other layer of uncertainty and anxiety.

My parents got my olanzapine, which saved me some time. I was glad it was there and I didn’t have to phone the GP again as I feared I might have to do. Speaking of olanzapine, my psychiatrist phoned just to check on how I’m doing being back on it. I said I’m doing well, aside from the continued tiredness and difficulty working out whether it was residual depression, medication side-effects or autistic burn out. I’m leaning towards the latter and she said autistic burnout is very real and might be the issue. We spoke a bit about what help might be available, but unfortunately I need a diagnosis first and am still waiting to hear when my final assessment will be.

I had a good therapy session too. We spoke about trying to remind myself daily that I can cope with things (work, COVID, unexpected events that faze me and so on). That’s particularly pertinent at this time of year as we approach the Jewish festivals of Purim (next week) and Pesach (a month later) which have historically been very difficult and triggering festivals for me for different reasons and which still provoke anxiety in me in advance, even knowing that for the last couple of years I’ve been coping with them much better (doubtless more on this in the coming weeks).

I just ordered a weighted blanket. I’m hoping this might improve my sleep and make it easier to wake up and get up in the mornings. To be honest, I don’t have much hope, but at this stage I’ll try almost anything. Perhaps more pragmatically, I’ve said I should set a time to get up on non-work days and make myself accountable to PIMOJ to get up then. Hopefully between them, those strategies will help.

Fears for the Future

Lately I have a lot on my mind that I don’t want to share here, or at least not yet. This is hard, as I like to work things through in writing. I may try writing private posts. I’ve done that in the past. I find it helpful to work things through a little in writing to get inchoate thoughts and feelings into a shape where I can take them to therapy or to my rabbi mentor.

***

Shabbat was OK. I struggled a lot with burnout again which made it hard to do much. I wish I knew what burns me out so much. I didn’t get up until 1pm, although I woke briefly several times across the morning, as I was just too tired. Other than that, it was the usual mix of eating, sleeping, Torah study, prayer and recreational reading.

I had some negative or difficult thoughts over Shabbat, but I can’t remember about what, exactly. I have quite a few areas giving me difficulty at the moment, so it could be one of a number of things. I’ve been thinking about trusting God lately. PIMOJ gave me a book about it, and it’s annoying me a lot even though I’m not yet a quarter of the way through the book. I can accept intellectually that if God is benevolent and all-powerful, everything that will happen to me is for the best. I can even accept that bad things that happened for me are for the best, especially as some bad things seem to have led to good results down the line, something I can see now I’m heading for forty that I couldn’t see when I was in my teens and twenties. What is hard to accept is that I can be happy and confident that everything will be fine, as so much of my life was painful to experience and there is no guarantee that everything good will be painless (in fact, it is extremely unlikely to be painless) or even bearable. So often things are painful, and that scares me. It scares me on a personal level and it scares me on a national and global level. Like many Jews, I worry about a second Holocaust (admittedly my generation worries about this less than my parents and grandparents). I worry something will happen to me that will hurt terribly, physically and/or emotionally (I can probably handle emotional pain better than physical, but that’s a whole other post). And I worry a lot about something happening to me that is so painful and difficult that I lose my Jewish belief and practice. I know that’s a strange thing to worry about, or at least I’ve rarely heard anyone with strong faith worry that they will lose it – usually people only worry when they start to lose it, or so it seems. But I do worry about it.

***

I watched the Star Wars film Rogue One with my parents. I had seen it in the cinema. They tried to watch it a while back, having recorded it off the TV, only to discover the end hadn’t recorded. It was OK, but I felt disengaged remembering the ending as the characters and dialogue were not enough to engage me by themselves.

***

I tested my Babylon 5 DVDs. The season one to four box sets each have at least one disc that won’t play, usually more. The season five discs seem OKish, in that they all play, but one or two start by making some horrible clunking noises which make me think the DVD players is going to reject them, but they do eventually play. I think the cost of replacing them with second-hand DVDs from eBay is similar to the cost of paying to stream them. I’m not sure whether to buy seasons one to four or to assume that season five will stop working at some point and buy that too. I’m also still clueless as to what has happened to stop them working.

***

Googling to find details about Babylon 5 downloads, I found out that Mira Furlan (Delenn) died last month. It’s weird, loads of Babylon 5 cast members have died quite young. Furlan joins Michael O’Hare (Commander Sinclair), Andreas Katsulas (G’Kar), Jerry Doyle (Mr Garibaldi), Richard Biggs (Dr Franklin), Jeff Conaway (Zack Allan) and Stephen Furst (Vir) (I didn’t know about Furst either until checking the details on the list). Compare with Star Trek: Deep Space Nine, which was broadcast around the same time with a similar sized cast, but only one regular cast member has died to date. There were two married couples where both partners appeared in Babylon 5 too (Jerry Doyle and Andrea Thompson (Talia), and Bruce Boxleitner (Captain Sheridan) and Melissa Gilbert (Anna Sheridan)) and they both ended in divorce. I also just discovered that O’Hare left the programme after one season because of severe mental health issues. I don’t believe in curses, but it is vaguely eerie, although I imagine that statistically it’s not that odd, just one of those random clumpings of data that happen. It makes me feel a bit sad at any rate.

***

WordPress is showing this post to me in what looks like Times New Roman font, or some other font with serifs. I wonder if it’s going to post in Times New Roman. I used to like fonts with serifs, but I’ve gone off them since discovering that they decrease readability, particularly on screens.

Occam’s Razor and Doctor Who Magazine

I took a while to get to sleep last night. I need to stop watching TV late at night. It doesn’t always stop me sleeping, so I think I can away with it, but periodically it does keep me awake. Then again, I’m probably about to do it again (like a dog returns to his vomit etc.).

Work was OK. I found the mistakes in data that I was looking for on Monday. Some of it was autistic black and white thinking inasmuch as I got stuck in a set of assumptions about where the mistakes were until I stepped back and looked elsewhere. Some of it was misusing Occam’s Razor. I was looking for an error regarding a record, an error regarding a man and an error regarding a woman so I assumed I was looking for one family record covering a man and a woman (don’t multiply entities), when in fact I was looking for one record and additional errors on a man and a woman (three records total).

We (J and I) left the office very early, I’m not sure why; I just leave when J says it’s time to go (he is the boss, and the designated driver). There was no traffic, so we got home very early indeed. As my novel is on pause, I took advantage of the time to do some miniature model painting, which I haven’t done for a while, although it always takes a number of sessions to complete a batch of miniatures.

I had a documentary from a Doctor Who DVD’s special features section on in the background while I painted, the documentary on politics in Doctor Who from The Happiness Patrol DVD. There were some interesting points, although not a lot I didn’t know or think already. As with my current indecision about cancelling my subscription to Doctor Who Magazine (DWM), which I’ve been buying regularly for almost a quarter of a century, I feel a bit like I know every interesting factoid about twentieth century Doctor Who and that I’m not interested in twenty-first century Doctor Who enough to pursue it. There’s less information about an ongoing series than a dead one, and presumably a BBC equivalent of the Thirty Year Rule preventing revealing documents and discussions coming out for years. When Doctor Who was off the air in the nineties and early noughties, DWM got candid interviews from many people who had worked on the programme, often those who had retired from active TV work and were able to be more truthful and reflective about their work and what they really thought. DWM has also cut back on the analytical articles that were my favourite feature, and the ones that do appear are necessarily pitched at a more basic level for new fans who aren’t as au fait with the stories of the sixties and seventies as the hardcore fans of the nineties were. I’m tempted by the Black Archive’s ongoing series of book length monographs on individual Doctor Who stories, new and old, but I don’t really have the time or money to keep up with them, and I’m currently trying to work through a massive backlog of non-fiction books without buying more. Cancelling DWM does feel final, though, like drawing a line under part of my life. Maybe I need to though, to escape from the shadow of Doctor Who and write my own fantasy fiction.

I have more to say, but I’ve run out of energy (I’ve just been helping PIMOJ with something over text). It will keep. I will just say that I’m probably not going to write the article I spoke about the other day, about Judaism and social responsibility, as I think it was becoming incoherent.

Worries That Never Happened

There’s a famous quote from Mark Twain (which I think is really by Mark Twain, even though he’s someone that random quotes are often ascribed to on the internet, like Einstein and Lincoln) that says that, “I’ve had a lot of worries in my life, most of which have never happened.” I feel like that today, as I slept badly (weird dream about a giant orangutan), and struggled to get up, worrying about something that didn’t really happen in the end. I felt relieved, but also somewhat guilty and very drained, which may have been relief rather than tiredness from sleeping badly.

I wonder if the giant orangutan in the dream was a wish-fulfilment me, so big that I could do what I liked and couldn’t be harmed by tranquiliser darts shot by anyone around me i.e. impervious to criticism and other people’s opinions. That is what I would like to be with regard to self-esteem and confidence.

***

I feel very depressed and burnt out again today. Some of it is probably sleeping badly. Some of it is that I always seem to feel like this the day after working, which does not bode well for the idea of me ever being in anything like full-time employment. Some of it is probably the time of year.

This is the worst time of year for me, late January/February. When the days are still short (albeit slowly growing longer), the weather is bad (it snowed again today), everything is cold and dead (even without lockdown) and when the spring festivals of Purim and Pesach (Passover) begin to loom on the horizon. This ought to be good, given that they herald the arrival of warmer and sunnier days, but these are the most difficult festivals for me. Purim is difficult with autism, depression, social anxiety and religious OCD. Pesach is super-difficult with religious OCD; it has, in fact, always been the worst focus of my religious OCD. I imagine I’ll write more on this when we get closer to those festivals so I won’t go into detail now.

Beyond that, lately I’ve found all religious festivals difficult because I feel a pressure to have some kind of intense religious experience. Not mystical hippie-tripping, but somehow feeling closer to God and becoming a better person. This is a lot of pressure to put on myself. Normally it’s enough just to cope with all the peopling from extra shul (synagogue) attendance and meal guests, and the stress and potential religious OCD of all the special festival mitzvot (commandments). I’m not sure how much of this pressure really comes from me or how much from “inspirational” articles. I don’t feel the pressure on Shabbat (the Sabbath), but paradoxically, I think I probably have more of a religious experience then. There’s probably a lesson there.

***

As someone who is influenced by Jewish religious existentialism, I feel that I should try to have “I-Thou” encounters. First identified by Martin Buber, an I-Thou encounter is when two people meet and relate in a very personal and authentic way as opposed to an I-it encounter, which is encountering the other person like an object. Yet I am scared of opening up to people, and when I do, I’m left feeling an awkward mixture of gladness, social anxiety, shame and self-blame. There’s a strong sense of “Did I say the right thing?” which I guess is social anxiety.

***

I feel that I can’t write here about the thing that is most troubling me at the moment. This is problematic, as I process things by writing. I tried writing just for myself, but it didn’t help so much. Hopefully I can talk to my rabbi mentor about it tomorrow. I did discuss it with my therapist last week. She said to try to note my thoughts and feelings without analysing them, which is hard when my thoughts and feelings do not exist in the abstract, but influence my actions in the present and future.

***

In practical terms, I phoned the doctor today and have hopefully got the issue about the dosage of my olanzapine sorted. I cooked dinner (spicy rice and lentils). I also went to my Tanakh shiur (Bible class), which this week was about Yechezkiel (Ezekiel). We did the “dry bones” passage in groups, which cheered me up a bit. That was about all I managed today though.

Work from Home

I was working from home today. I wanted to get up early, not as early as if I was commuting, but still early. I failed. I overslept and got up after 11.00am. Whoops. I’m going to have to work tomorrow to catch up, which in some ways suits me, although it means postponing work on my novel again.

My work transcribing data turns out to be GDPR-compliant after all as data protection only applies to the living and not the dead, so it’s permitted to collect data about them (typical “living privilege”). This is something of a relief to me. When I was transcribing the data in the office last week, I was fine. I managed to concentrate even though it was boring. Today, at home, it just seems impossible and I can’t concentrate for more than five minutes at a time. Maybe it’s something about being in my room, or maybe it’s a cumulative effect. I listened to some classical music while doing it, which helped a bit, but not much. Besides being boring, it’s also depressing going through so much funeral data.

I don’t know if it was bored or immersion in funeral data, but I felt quite depressed this afternoon too; work was a struggle because of depressive poor concentration and executive function issues as well as boredom. I felt like I wanted to cry too.

I realise I’m nearly a year late to the “working from home is awful” pity party, but this is the first time I’ve ever worked from home for a paid job, unless you count my parents paying me to paint the shed.

Anyway, I managed to work on it for a bit over three hours and I got through approximately half the data J gave me. As he wasn’t expecting me to complete all of it, if I do another two or three hours tomorrow and finish most or all of the remainder, that seems quite reasonable for a day’s equivalent work.

Fun fact about transcribing funeral data onto an Excel spreadsheet: if you aren’t careful, Excel turns birthdates from the 1920s into the 2020s and you end up with people died nearly a hundred years ago, but haven’t been born yet.

***

No exercise today because of trying to get through work, and limited Torah study for the same reason, although I did spend fifty minutes writing my devar Torah for the week. I can’t really win with this; if (as I did this week) I focus on my thoughts inspired by something in the sedra (weekly Torah portion), I worry that I’m not engaging with the texts, particularly the secondary sources, enough, but if I’ve mostly taken it from secondary sources, I worry that I’m just parroting other people’s ideas.

***

More NHS fun and games. I was on hold for twenty-five minutes, trying to speak to my GP’s receptionist, only to find that the psychiatrist has not written yet about my medication change (going back to olanzapine). I phoned the psychiatrist’s secretary, but the psychiatrist doesn’t work on Mondays or Tuesdays, so it’s questionable whether anything will happen before Wednesday. I only have enough olanzapine to last until Saturday, so I’m worried about running out if the psychiatrist does not inform the doctor of the change promptly or if there’s a hold-up at the pharmacist.

Also NHS: my sister got vaccinated today, as she’s NHS staff (but not front-line). As my brother-in-law may have had a vaccine a while back as part of a clinical trial (he hasn’t been told if he had the vaccine or a placebo), I could be the only person in my close family not to have been vaccinated yet.

***

I’m pretty fed up with lockdown and left a miserable comment on a friend’s blog saying that even as an autistic introvert with social anxiety who self-isolated before it was cool, I have had enough of not seeing friends and family, of avoiding shops and public places and of mask wearing. Even so, I saw a news email with the subject “New variant spreads” and for a moment part of my mind thought it was about new varieties of jam…

Disabled?

I slept too much on Shabbat (the Sabbath) again. Not a lot else happened, other than reading and Torah study. I still don’t dare risk going to shul. J says hardly anyone is going at the moment. I’m glad I don’t belong to a crazy Haredi (ultra-Orthodox) shul where COVID safety guidelines are ignored. I think there’s quite a bit of that going around in the area though. There was a lot in the Jewish newspapers this week about illegal Haredi weddings with hundreds of unmasked guests in close proximity indoors. It’s pretty provoking, although I don’t think there’s much anyone from outside the Haredi world can do about it. It would only stop if the Haredi world’s leaders (read: rabbis) protested, and maybe not even then.

I tried to work on my novel after Shabbat, but was tired and easily distracted and only managed forty minutes or so.

I should go to bed soon as I’m getting up early in the morning for a Skype coffee and gardening session with PIMOJ. But something has been bothering me over Shabbat. It suddenly occurred to me that I’m probably disabled. I always thought of depression as an illness rather than a disability, something that I could theoretically one day recover from. Even when I was on disability benefits (as I am at the moment, although probably not for much longer), I still did not think of myself as “disabled” as such. But it’s increasingly looking like something keeps me back from full “recovery” (whatever that might mean), the worsening of my mental health as a result of my attempts to change medication and improve my sleep pattern being just the latest incident in a long list of relapses.

In the autistic world, there’s a very vocal school of thought that sees high-functioning autism as a difference, not a disability. I can see where those people are coming from, but I also think a lot depends on the individual’s skillset and life goals. It’s one thing if you are a brilliant pattern-finder with a high-salaried job for an investment bank or accountancy firm; it’s another if you are unable to function in the conventional workplace. Likewise, some people are happy without close friends or a partner, but others want these things, but are not good at finding them.

I feel that I’m not ready to label myself “disabled” and work out what that would mean for me, especially given my history of giving myself negative labels. I may have to decide soon though. I should have the final part of my autism assessment soon (NHS permitting…). If I do get a definite diagnosis, that will push me down the path of thinking of myself as disabled, especially if I can claim some kind of help in the workplace under disability law. On the other hand, if I don’t get diagnosed… I’m not sure what that would mean at all. I know I’ve written before about feeling that I’m either autistic or “useless.” I know it’s not that black and white in reality, but it feels like that. I would feel like I’ve been some kind fraudster pretending to be disabled as part of some kind of scam for all the years I’ve been calling myself autistic (although I’ve never had any autism benefits, either monetary or in the workplace, except for one job interview where I was allowed to see the questions in advance).

I want to talk to PIMOJ about this, but I can’t face having the discussion via text or even video and who knows when we will meet in person again?

Medication Change

I woke up in the middle of the night again – 4am this time. I had a slight headache that was threatening to turn into a migraine, so took some solpadeine. My thoughts were getting somewhat agitated, so I ate porridge to ate warm milk to calm me and make me sleepy, although I’m trying to stop eating cereal late at night as an easy win in my attempt to lose weight (and I think I have lost some weight recently, which is good).

I did fall asleep again eventually, but I didn’t manage to get up properly until after midday again and struggled to get going. I felt completely burnt out after yesterday.

***

Tonight and tomorrow is Tu BeShevat, the Jewish New Year for Trees and essentially the first day of spring in Israel. This provokes the normal mixed emotions in me: relief that winter will soon be over (doubly so in this awful lockdown winter), anxiety around the spring festivals of Purim and Pesach, which are difficult to handle with depression, autism and religious OCD. On the whole, if I can’t have lockdown ending, I would at least like the return of longer days, milder weather and more sunlight. Unfortunately, spring doesn’t really start in the UK for another month or two.

I was feeling very depressed and burnt out today and it was hard to do anything. I went for a walk and unlocked two of the credit cards I locked last week; I need to work out what the PIN is for the third. Walking was difficult, I just felt too tired and depressed. I was catastrophising and self-blaming a lot. Just feeling relentlessly negative. I managed about an hour of work on my devar Torah for the week, getting a first draft written, but I didn’t manage much other Torah study or any work on my novel.

When I got home from my walk, I phoned the psychiatrist’s secretary to see if I could speak to my psychiatrist this week. The psychiatrist phoned me back within the hour, which surprised me because it was after 5pm and I didn’t think she even worked on Wednesdays. I explained that I’ve been having side-effects on haliperidol and that my mood has got quite a bit worse since stopping the olanzapine and we agreed that I could go back on the olanzapine immediately and cut out the haliperidol. She suggested that in six months, I can try to reduce the olanzapine a little while staying on it to see if that improves my sleep without destroying my mood.

Trust and Control

I slept badly again last night, waking up in the night and struggling to get back to sleep. I’ve taken a bigger pillow and wonder if that will help. As a result, I was very tired at work in the morning and had to drink coffee to stay awake. I don’t like it when I feel I’m drifting off at work. The work was a bit depressing too. Aside from dealing with subscription payments, I was processing death records for this year and came across one for someone ten years younger than me with bipolar disorder who had committed suicide. This really upset me and I’m not entirely sure why, just a feeling that I wish I could have done something to help her, not that I ever met her. Then PIMOJ texted to say she was upset because of a suicide in her workplace and it seemed like it was catching.

I went to the bank in the afternoon, which probably left me too much time to think and brood while I walked there and back and spent a long time queuing. I think I’ve been less anxious today, but a lot more depressed.

J gave me a lift home again and the conversation on the radio was all about the UK COVID death toll reaching 100,000, so it was a pretty bleak day all round.

I had a shiur (religious class) in the evening on Zoom, perhaps appropriately on Yishayahu (Isaiah), the chief prophet of hope. This was interesting. I knew some of it, but not all of it. I tried to psyche myself up for the bit where we broke into smaller groups to discuss a passage, but my microphone took that moment to break, although I suppose it was interesting to observe other people doing group work from a distance, as it were, and see I’m not necessarily as bad at it compared with other people as I thought.

***

I worry a bit whether I could do a full days’ work at the moment. At the moment, J is letting me come in forty-five minutes or so late so I can avoid the Tube at rush hour because of COVID, and we finish work around 4pm. I only take forty-five minutes for lunch, but even so, that makes for a day that’s not much more than five hours long. Which is nice, but I worry if I’ll ever have the stamina for full working days again.

***

I had a thought about bitachon, trust in God. I find this very hard. I believe in a benevolent God Who wants the best for His creation, but I also believe that sometimes the best option is still something very painful to undergo. But I realised today that a lot of my problem is about control, specifically about accepting that I don’t have very much control over my life, which is scary. I probably have rather less control over my life than many people, certainly people of my age, class and educational level, because of my autism and mental health issues and chequered work history.

It’s easy to tell myself that I can somehow control my career or my romantic life or my mental health by thinking about them (which mostly means being despairing or anxious about them), but really I can’t. I have no idea if I’ll ever get married, to PIMOJ or to anyone else; or whether I’ll build any kind of a career as a writer or a librarian; or how I will support myself when my parents aren’t here; or umpteen other things. That’s very scary, to give up that degree of control. I guess it could be liberating. People with a lot of bitachon (e.g. PIMOJ) seem to live very liberated, carefree lives. But I find it terrifying.

“I keep on wondering if I sleep too long”

I keep on wondering if I sleep too long
Will I always wake up the same (or so)?
And keep on wondering if I sleep too long
Will I even wake up again (or something)?

Sitting by Cat Stevens

I woke up in the night again, although not I think for long. That seems to be a pattern of waking for a while around 5.00am and may be part of a natural sleep pattern as Suzanne suggested. I woke intermittently across the morning, but was too drained to get up before midday, despite the noise coming from the building works next door, which I felt bad about (sleeping in, not the building works), even though I didn’t have work today and had a busy day yesterday. I feel like if someone told me there was a reason for my being so drained, yet managing to get up when I absolutely have to (work, medical appointments, volunteering), I could accept it, but as it is, I just feel lazy and useless.

I did go back to bed after breakfast and took a while getting dressed just because I was so drained. It was hard to “psyche myself up” to daven (pray) too.

I spent about an hour working on my novel, but it was slow work today and I didn’t achieve much. I’ve gone from wanting to write an amazing novel to wanting to write something vaguely publishable to wanting to write something that doesn’t totally embarrass me when I show it to people.

I tried to go for a walk to unlock my credit card that I accidentally locked last week when I forgot the PIN. I thought the ice and snow from yesterday would have melted, but it was very icy and treacherous. I didn’t go for a particularly long walk, but it took longer than usual because of the dangerous ice. The cashpoint wasn’t working properly when I got there. It was probably working well enough to unlock the card, but I’m wary of using damaged cashpoints in case they’ve been tampered with, so I didn’t even get that done.

***

Today was my father’s birthday. We had takeaway in the evening and played The London Game (travel around the Tube map going to tourist sites — I won). I was rather anxious – really religious OCD anxiety about whether the food was delivered correctly from a kashrut (Jewish dietary law) point of view. I think everything was OK, but I worry… I do think my anxiety is worse since stopping olanzapine, even though I was not aware of anxiety as a major issue before.

***

Because of burnout and family time, I only managed twenty minutes of Torah study, which disappointed me a bit. I think Dad appreciated spending time together in the evening though.

***

I’m creeping slowly towards the idea of buying a weighted blanket, but they just seem so expensive and I don’t know what practical benefit I’ll get from it. Will it help me to sleep better? Or just feel good? I’m not good at doing things just because they feel good…

***

People used to debate which was the more realistic dystopia for the twenty-first century West: Nineteen Eighty-Four (totalitarian oppression, perpetual war, The Two Minutes’ Hate) or Brave New World (the masses kept lazy and passive with mass consumerism, compulsory promiscuity and narcotics). Gareth Roberts made an argument in Unherd a while back about The Prisoner becoming disturbingly relevant again. But lately I’ve been thinking about Fahrenheit 451 and whether I’m going to end up having to single-handedly memorise the cultural heritage of the past to preserve it for the future. I have an image of handing a subversive, battered copy of Hamlet or The Third Policeman to my son or daughter like Obi-Wan Kenobi giving Luke his father’s lightsabre in Star Wars: “It’s called a ‘book.’ An elegant weapon for a more civilised age.”

Be Anything You Want To Be???

I woke up at 4.30am again and this time I couldn’t get back to sleep at all, although as I had gone to bed very early (10.30pm), I had still had about six hours of sleep, which is the absolute minimum I need to function. Despite that, I felt better than I had done all week, both emotionally and physically, and got up very early.

While davening Shacharit (saying Morning Prayers), I started to feel light-headed again, and when I had finished I went back to bed, and apparently feel asleep for three hours (interrupted by my parents briefly saying goodbye on their way to a routine hospital appointment), until I was woken by the cleaner arriving at midday, shortly before my parents. I was rather disorientated and unsure whether they had come back home or not, which confused things further.

As this indicates, I’m still getting hot flushes, light-headedness and tremor (more frequent and severe than my occasional social anxiety tremor) periodically through the day. I’ve gone back to thinking it’s a medication change side-effect, but who really knows at this stage? I feel rather confused and vaguely concerned.

***

In terms of activity, I managed a half-hour walk, an hour and a half of work on my novel and an hour or so of Torah study, as well as watching a film (Zootropolis) simultaneously with PIMOJ and then having a WhatsApp call afterwards.

***

Life can be an endless stream of self-doubt if you don’t have good self-esteem. I was worrying today if my divrei Torah (Torah thoughts) have declined in quality lately. No one has said that, but then I haven’t had much praise for them either. I suppose most people don’t give me any feedback at all and I wonder what they think or if they are even still reading.

Somewhat related to this, Zootropolis, like a lot of Hollywood films, was about the idea that you can do anything if you want it enough and try hard enough. (Presumably Hollywood pushes this line because it’s safer than saying the system is rigged against the little guy and the only alternative is refusal to join in and revolution.) I don’t think this idea (you can do anything you try) is true, and I think I have made myself very unwell and unhappy over the years trying to do things that are beyond my (autistic, depressed, socially anxious) capabilities. However, I can’t deny that I have managed to push myself to do things in the past that now terrify me (e.g. public speaking). I want to write novels, but I don’t know if I can realistically do this or if I’m wasting my time. It is difficult to know what to think about this.

Lurgy

I woke up in the night again, but not for long. I still woke up feeling very tired, after disturbing dreams, and a bit anxious, although not as much as the last few days. I thought I would have to scale back my plans for the next week or two and try to be kind to myself while I adapt to the new medication.

I went for a walk for half an hour before therapy, which I thought was important even though the weather was awful. I had therapy and spoke about some difficult stuff, but it felt good to get it off my chest. I was a lot less anxious afterwards. I did some Torah study and worked on my devar Torah for the week.

By the evening, I was worried that my symptoms were increasingly physical and not like anxiety, particularly change in temperature (hot and cold) and light-headedness. I don’t seem to have a temperature, but I don’t feel well and don’t think that it’s a good idea to go to work tomorrow. Even if I’m not infectious and am able to work, I’m not sure I want to be exposing myself to COVID (or anything else on the Tube) in this state. I’ve texted my boss to say that I don’t think I can come in as I honestly don’t feel that I’m in a state to get much work done. Unfortunately, I’ve already had one sick day this month, although I’m technically a freelance contractor, which makes my situation a little easier.

***

My shul (synagogue) agreed to my paying reduced fees for a while, which is something of a relief.

More Anxiety

I slept badly again, waking up in the middle of the night. I actually slept in two blocs of five hours, which shouldn’t be bad, but somehow with a gap in the middle felt incomplete. Plus, I woke feeling very anxious, which I think was about my appointment at the optician, although I had some mildly disturbing dreams too. Autism hates the unknown, and I didn’t know how my appointment would go under COVID. Even not knowing if I was going to be left standing outside for a long time before they let me in made me nervous. Of course, some of it could be the general anxiety I’ve had lately, and the usual burnout after work and depression group.

I had managed to mostly cut out the cereal I was eating before bed, on the grounds that I was rarely genuinely hungry and it had just become habitual, but I’ve been eating porridge when I wake up in the night to help me get back to sleep. This is because warm milk helps me sleep, but I dislike the taste of milk by itself. I suppose I could try to get some cocoa or something, but aside from the fact that I’ve never had it so don’t know if I like it, I’m not sure it would have less calories than porridge. I tend to sweet the porridge with sultanas, which is better than sugar, but probably still quite calorific. More problematic, from a diet point of view, was the ton of ice cream I ate last night to reward myself for getting through a difficult day at work and depression group with anxiety…

***

I had sick-in-the-pit-of-my-stomach anxious nausea all day, as well as well as feeling myself to be in agitated in “fight or flight” mode. It’s unusual for me to have anxiety for so long without an obvious cause and I don’t know how to cope. I might look online. In the past I’ve been so depressed that I was actively suicidal and while I wouldn’t say that was better than this, over time I evolved coping strategies for depression. This feels very new and alien and I don’t know what to do about it. I’m pretty sure it’s a medication change issue.

***

I had my eyes tested and chose new glasses. I shook quite a bit while the optician was testing my eyes, although she said it didn’t matter. I’m not sure how much was anxiety and how much the usual I-shouldn’t-shake-so-I-worry-about-it-until-I-start-shaking tremor I get in situations like this (eye test, dentist, doctor, barber, etc.). More awkward was when I attempted to pay. My first credit card was rejected by the machine. I’m not sure why. With my second (debit) card I forgot the PIN and only remembered it after I was locked out of it. And I couldn’t remember the PIN for the third card at all. I’m not sure how much of this was the result of anxiety and how much is because when I buy stuff in person (which I haven’t done much recently), it’s usually under £30 and I can buy it without needing to type in my PIN, so I’ve just forgotten it. Fortunately, my Mum was also having her eyes tested, so I just had to wait for her to finish and she laid out and I paid back. It was very embarrassing though. I felt pretty useless and immature.

The other unhelpful thing I did today was buy a vitamin D supplement without realising that it was considerably higher dosage than Boots usually sell (75 micrograms rather than 10 micrograms). I almost certainly don’t get anywhere near enough vitamin D (mostly indoors, mostly covered up even in the summer), but I’m not sure if 75 micrograms is still too much. The NHS site would seem to indicate that it’s OK. I might phone 111 (NHS non-emergency helpline) later to double-check.

***

I didn’t work on my novel today or do much in the way of Torah study because the anxiety feelings were too strong, plus the eye test and cooking dinner (cashew nut casserole) took up a lot of time. I did get an idea of what I’m doing for my devar Torah this week which I can hopefully write up tomorrow.

***

I listened to the first episode of the Normal Frum Women podcast, even though I am not a woman and am probably not normal. It was quite useful for my understanding of myself vis-a-vis the frum (religious Jewish) world. They quoted psychotherapist Elisheva Liss as saying that rather than asking if we are “normal” we should ask if we are causing harm or distress and, if not, we shouldn’t worry about what we do. Other people being judgemental is not considered causing distress. This makes a lot of sense, although it’s hard to do something that other people in your community will consider “wrong” even if you know you are not harming anyone.

I think my problems with fitting into my shul (synagogue) community come partly from not always being sure of the community’s values, not least because it is a community with some more modern elements and some more Haredi (ultra-Orthodox) elements. For instance, I know some people do have TVs and others do not and it is hard to know what the “official” line on TVs is. (I’ve also noticed in recent years that some people who won’t own a TV do stream on Netflix and the like, something that I don’t fully understand.)

More contentiously, I know that many (all?) people in my community would not approve if they saw me walking arm in arm with PIMOJ, and that does make me a little nervous. However, I feel that I’ve only stayed frum in the last few years by making compromises to my preserve my sanity. This mostly involved bending rules rather than breaking them, but I break the rule about touching women who aren’t relatives for PIMOJ because I just can’t cope any more, and I feel that people who haven’t got to their late thirties without a “legitimate” physical relationship (i.e. marriage) don’t really get to judge me here. It’s break the rules in a small way to stay sane and keep the “bigger picture.”

On a related note, I found this article about passing, intended from an autistic POV (although it is written by a religious Jewish autistic woman). I feel the need to pass, both as neurotypical and mentally healthy in the world in general, and as “normal” in frum world. However, the effort involved can be pretty soul destroying as the article noted. I would like not to feel that need all the time.

High Anxiety

I had sleep trouble again last night, going to bed early, but waking around 3.30am and not being able to get back to sleep until 5.00am. I got to work on time, but I was a bit tired. Worse, I was rather anxious. This was particularly the case when I had to wear my mask, on the Tube to work and when I went to the bank and the post office. Wearing a mask can feel very constricting and suffocating at the best of times, and I was wondering what would happen on the Tube if I suddenly needed to breathe fresh air. I didn’t actually have a panic attack, but I feel vaguely apprehensive about mask situations in the near future.

Other than that I had some anxiety about work and about PIMOJ, but was mostly OK, except for feelings of physical discomfort and aching in my limbs, and also in my teeth/gums, like my teeth are being scraped at the dentist. At one point I was shaking somewhat and unable to type accurately. I just checked the haloperidol leaflet; agitation is a possible side-effect, but anxiety is not, so maybe that’s “just” anxiety from everything going on in my life (work, relationship, autism assessment) and the world at large (COVID) and perhaps the olanzapine was keeping it at bay.

I got home from work very early and tried to work on my novel. I managed about half an hour, but I didn’t do very much other than correct some passages that had been initially written in the first person and then mostly, but not entirely, switched to the third person. I got through another chapter, but I feel very much like I need external criticism (dread word!) as I can’t judge it objectively.

I tried to do some extra Torah study as I hadn’t done much on the Tube into work, because when I felt anxious, I switched to listening to music. I didn’t have much time though because I prioritised working on my novel and going to Zoom depression group. I read some interesting things in Rabbi Sacks’ Morality, but I feel too tired to engage with it now.

Depression group was draining, as I think it always is, but worthwhile. I find the second half more draining than the first and really should volunteer to speak in the first half more often. I spoke about PIMOJ for the first time, really in an off-hand way. I’m still not sure what I feel comfortable sharing about the relationship there – or here, for that matter. It’s hard to know what I feel comfortable sharing, especially in the somewhat artificial environment of Zoom (as opposed to in-person meetings).