Neurotypicalism

I went to my autism support group on Zoom this morning. I was wary of it, as I find it a lot less helpful than depression group, but it was about relationships and I wanted to see if I would learn anything. The main thing I learnt is that the person who runs the meetings seems to have issues with neurotypicals and needs to work them through somewhere else rather than just ranting about them in the meeting. I left early because it was just too much. There wasn’t really much helpful advice, just some stuff about being authentic and making room for yourself in the relationship and feeling free to have non-standard relationships if that works for you. Someone there had been married for nearly fifty years, which is reassuring, although other people were speaking about not wanting to live with anyone at all. It makes me feel vaguely weird for wanting a “neurotypical standard” relationship involving marriage and living in the same house. I felt there wasn’t really enough talk about how to make compromises for a relationship rather than expecting your neurotypical partner to make compromises for you. The final straw was when the presenter said that, for autistic people, no means no, but neurotypical people are “play games” and often say no when they mean yes, which struck me as a misleading and dangerous thing to say.

I was also a bit worried by the number of people in the group who are quite happy living by themselves. Not worried for them, if they’re happy, but I’ve had mixed feelings about that. I have lived by myself at times and I coped and enjoyed parts of it, but I also found it very lonely and isolating at times. Realistically, there isn’t any easy way I can have people around me when I want them, but not when I don’t, so either living alone or with someone involves trade-offs. I also think that some of the people in the “want to live alone forever” group were OK with having casual sex, and I’m not, for various reasons, so that certainly does alter the cost/benefit analysis.

I spent an hour or so working on my devar Torah for the week, partially abandoning my original plan when I was unable to locate some quotes in the primary sources. I prefer to use primary sources than secondary ones, but I don’t always know where to find the primary sources for concepts and sayings I’ve picked up over the years, plus I’m often reliant on online sources and my imperfect Hebrew translation skills. I know I’m not alone in struggling to remember where I heard things as the internet is full of Jews either misattributing quotes and concepts or saying vaguely that, “It’s a Jewish idea that…” or “The rabbis say that…” Someone should make an index of well-known Talmudic and Midrashic stories and quotes. Famously, a lot of Jews, including some very frum (religious) ones, misremember the story about Avraham (Abraham) smashing up his father’s idol workshop as an actual passage in the Torah (it isn’t, it’s a Midrash (rabbinic expansion of the biblical narrative)).

After that, I did a mixture of Torah study and cooking and went for a 5K run, but I did feel a bit lost without either paid work or my novel to work on. I’m resting the novel for a few weeks until my writer/editor friend can look at it. I feel pretty negative about it at the moment, to be honest, and keep wondering what possessed me to try to a mainstream novel of character. Part of me wants to start on a new novel, but I know I have to stick with this one until it’s either ready for publication or definitely unpublishable.

I spoke to PIMOJ in the evening. To be honest, during and after my run I was having negative thoughts (personal worries, worries about antisemitism… the usual), but I did feel better after speaking to PIMOJ. We didn’t even talk about my issues, we just talked. It was good.

Lately I’ve had some minor religious OCD, not the Purim Megillah issue I wrote about, but “idolatrous” thoughts when I was trying to pray. I’ve had this a lot over the years. The easiest way to get rid of them is exposure therapy. Trying not to think about something tends to make you think about it, so the anxiety about not thinking X immediately prompts thoughts of X. The solution is to deliberately think about X a lot, so I spent time this evening repeating the phrase where I usually have the trouble while thinking the things I usually try not to think in the hope that I will get to a point where I’m so desensitised to thinking about them that I don’t try not to think about them (if that makes sense). I may have to do this for a number of days until it works, but I’ve responded well to this in the past.

Intelligent Life

I didn’t blog yesterday. I had a busy day, but there wasn’t much to put on a mental health blog, except for one thing that wasn’t time-related and was too long for the time available to write. The only other thing worth mentioning is discussing with my rabbi mentor my OCD anxiety about missing words of the Megillah (Book of Esther) on Purim. He said that it’s not my responsibility to check it is read correctly and that there should be other people in the room to do that (usually the rabbi, although he wasn’t in my reading this year because of the socially distanced parallel readings). He said he was once in a Megillah reading where someone in the congregation kept calling the ba’al koreh (reader) out on real or imagined mistakes. It was embarrassing for everyone and eventually the rabbi had to intervene to stop him.

As for today, I woke up early (6.50am) today to try to pray more before going to work, but I stayed in bed too long, actually getting up later than when I usually try to get up, so it was not a success.

At work J started training me for a task which is scary, because it’s client-facing and very serious and potentially dealing with people in emotional distress, so I’m a bit apprehensive. It’s definitely social anxiety provoking. However, I think it’s positive because it means J is at least still hoping to have a permanent job for me. It could also be exposure therapy for social anxiety. I’d like to explain more, but I don’t think I could do so without making where I’m working too obvious. I didn’t take notes when J was explaining it and although I wrote some notes once he had finished, I’m not sure I got it all down. He did say we would role play some situations on Thursday so I can practise it.

I went to depression group on Zoom this evening. We split into smaller groups this time with breakout rooms, which seemed to work well. I do feel lately that I’m not sure how much to share, how much I have the time (or the energy) to share of my history, particularly now the depression part (the reason for being there) is no longer really present for me on a day-to-day basis. I spoke mostly about my worries about my autism assessment next week. I experienced a lot of social anxiety and mostly looked at the keyboard rather than the screen or the camera. I am definitely struggling to keep going to the group now it’s Zoom only, and the fact that I’m not feeling so depressed means I feel I have less of a reason to go, although I do want to hear how other people are getting on. (Some people do keep going to the group after recovery for that reason and to support others.)

I also struggled to concentrate on the group because I was feeling agitated about something I didn’t want to bring to the group. Just before the group started, I was reading Contact. I thought it was going to be a fairly realistic science fiction book about what a near future first contact with aliens would look like, but it’s turning into a religion vs. science story. Or a Christianity vs. science story, as Carl Sagan’s arguments are more anti-Christian than anti-religious. The idea that Tanakh would be more believable if it contained a testable scientific law seemed to be a spectacular exercise in missing the point, like saying King Lear would be a more meaningful expression of the meaning of love and power if the Fool related Newton’s Law of Motion. Christianity is about belief and in a sense so is atheism; Judaism is about deeds. The test of Tanakh from a Jewish point of view is living Jewish practices and values and seeing how it changes you. Tanakh isn’t meant to be a science book. When I get annoyed by something like this, it runs over and over in my head

It reminded me that years ago I started writing a short story with a similar premise to Contact (radio telescope picks up signs of alien life, with a realistic tone, although I knew a lot less of the science than Sagan, obviously) except mine saw the presence of alien life in the cosmos as perhaps affirming of the existence of God, although I can’t remember how I reached that conclusion. Anyway, I didn’t finish it and now I can’t find the draft I started.

I don’t want to abandon the book, because I’m interested in its realistic presentation of a near-future first contact scenario and because I believe in encountering alternative viewpoints. I may end up skimming bits (maybe. I’m pretty bad at skimming things). I looked at the review on Goodreads and people were suggesting it’s positive about religion, but I think it’s positive about awe in nature, which isn’t the same thing. I find nature beautiful, but I find God in the miraculous survival of the Jewish people and perhaps in good deeds and “I-Thou” interactions (I’m actually not sure what I find God in).

***

Goodreads might need to refine their algorithm. It just suggested that “Because you read The Complete Peanuts 1987-1988: Volume 19 [you might like to read] 24/7: Late Capitalism and the Ends of Sleep“. Aside from the fact that I automatically switch off whenever anyone says “late capitalism” (capitalism has been “late” for about 150 years now), I struggle to see the link between Snoopy and Marxist economics. Maybe Snoopy wrote “It was a dark and stormy night. Suddenly the end of capitalism rang out!”

COVID Purim (1)

I struggled to sleep last night and had weird dreams again, but I got up earlier today. Not early early, not even as early as I do on work days (which are not so early given I currently leave at 8.30am to avoid rush hour), but 10.00am, earlier than midday (or later) as I’ve been getting up on non-work days for the last week or two. I actually woke up about 9.30am, before Dad came in about 9.50am to tell me to check my phone in case I’d been offered another vaccination appointment (no, not yet) and before PIMOJ rang me at 10.00am as we’d agreed to help me get up.

I wasn’t working today, as J and I both wanted to make sure we could get to shul (synagogue) in time in the evening for Purim and the Megillah (Book of Esther) reading. J can work from home today, but I can’t, but part of me at least is glad to give up a day’s wages so that I could at least try to approach this strangest Purim with a degree of calm. I actually did feel quite calm when I woke up, despite all the worry I’ve had for the last few days (weeks), like I’m finally facing the fear. However, I did feel at a bit of a loose end and anxiety grew as I got a bit bored. I don’t usually get bored as there are always things I want to do, but here I just wanted to get to shul and get Purim under way. As well as OCD-type anxiety that makes me worry about not hearing a word of the Megillah reading (we are supposed to hear every word of the Megillah, both morning and evening), this year, because of COVID, there is autistic new situation anxiety about having to go to a different room in the building to the one where we normally daven (pray) and social anxiety about possibly having to ask someone for directions to said room.

I did about half an hour of Torah study, but I wanted to save myself for the Megillah reading later rather than exhaust myself with heavy concepts in advance. I tried to make some changes to my novel, but aside for one or two slight edits, I feel stuck with it. I need to hear from someone outside my head about whether it’s any good. I have got a friend who will do that, but not until after Pesach which is not for another month.

It was a strange Purim. Purim with masks, but not fancy dress masks as usual, but COVID masks. I wore my jester’s hat, but almost no one else seemed to have been in fancy dress. I don’t know if I really saw a representative sample (I didn’t see many people), but perhaps people must only dress up for parties or for their children (children under eight were banned from shul to keep the numbers down). Someone handed out sheets of paper, which I thought were Purim shpiels (satirical writing), but turned out to be solemn warnings not to congregate in groups or go to parties.

My shul ran three parallel Megillah readings in different rooms, and a fourth one later, so that people could socially distance instead of having seventy or eighty people in one room at a go. It was permitted to make noise when the villainous Haman’s name was read as per usual, but only stamping or using rattles, no vocal noise. The person who read the Megillah was a boy of about fourteen or fifteen, but very good.

From an OCD worrying about missing words perspective, it was pretty good. There were few enough people in the room that no noise was really a problem, and the reader was good at waiting for quiet, and he repeated words he thought might have been lost. I worried that at one point I thought I heard a wrong word, but wasn’t sure. This seems to happen to me every year since the really bad religious OCD year. This time I reflected that there were some very frum (religious) and Jewishly knowledgeable people in that room, and they had corrected one or two minor mistakes, so they were unlikely to all let a major mistake such as I thought I heard go. This has mostly caused the fear to subside without turning into OCD anxiety.

Howard Jacobson said in an article somewhere that Pesach is the best Jewish festival because it has the best story, but I think the Purim story is even better. In recent years, I find myself reading along with the Megillah in fear and anticipation. That’s partly OCD-type anxiety that I might miss a word, but it’s also becoming involved in the story. Not only was the fate facing the Jewish people worse at the time of the Purim story than at the exodus from Egypt, the salvation was more unexpected. God had promised Avraham (Abraham) that He would rescue his descendants from slavery and once the ten plagues started, the outcome was not in question, but Purim is a festival with no prophecies, no miracles and, on the face of it, no hope, which is why it’s a festival about finding hope, about finding Providence in random chance (the word ‘Purim’ means ‘lottery’). I’m trying to hold on to that at the moment, with the confusion in both my personal life and the world.

Tomorrow I need to be up even earlier than today (6.15am or at least 6.30) to get to the morning Megillah reading (we have to hear it night and day). Given that attendance has to be booked this year because of COVID, I don’t have the option of going to a later reading if I miss it. I feel very tired now as the tension of the day dissipates. I’m not too worried about tomorrow; even in a normal year, morning Megillah readings are quicker, quieter, more straight-forward affairs. I will turn off my computer after this. I want to watch TV, but I watched TV all afternoon. OK, it was about an hour and a half of TV, but I don’t usually watch TV in the afternoon at all. But my brain is just not in gear to read and I need to do something to unwind or I won’t sleep from all the tension I’m still storing inside my body.

Burnout and Worry

I didn’t sleep well again. My weighted blanket became bunched up in one side of the duvet cover I put it in to keep it clean and I kept waking up feeling I wasn’t covered up as I wanted, but I was too tired and burnt out to get up and even out the duvet. I had crazy dreams (something about going to see Hermann Goering about something, possibly stopping the Nazis coming to power, or making sure they did come to power to preserve history… I think this was based on the science fiction novel The Simulacra that I read recently). I think I woke up intermittently across the morning, partly woken by building noise from next-door (or was that yesterday? The mornings blur together), but I didn’t feel able to stay awake and get up until very late and I was very burnt out again.

Burnout feels like more than ordinary “tired,” more like jetlag, or the type of tired you get if you’ve been up for thirty-six hours straight, just totally drained of energy and really impossible to do anything or think straight. It gets a bit better after breakfast, but generally not a lot better until after lunch, which implies to me there might be a blood sugar element (low blood sugar has always affected my mood negatively, since childhood). I’m not sure what the solution is, if there is one. For the moment I’m waiting anxiously for 9 March and the final part of my autism assessment before I make firm plans about my mental health.

I got a text this morning offering me a COVID vaccination at my GP, but I was asleep when it came through and by the time I phoned through to make the appointment, they were all taken. I’m actually glad, as the appointment would have been on a Saturday. Some rabbis are permitting getting vaccinated on Shabbat, but as I’m not a priority (I think I’m only being offered it at this stage because my Mum is still listed as vulnerable), I don’t mind waiting until the next appointment, which I’ve been told is Friday 5 March. I just hope I am awake when I get the next message and can respond in time.

I had a fairly busy day: I wrote my devar Torah for the week (although I have a bit to add that I thought of later) and was glad to link the sedra (weekly Torah reading) to Purim. I did a little Torah study too and went for a run. When I got home, I ate some crackers with salty butter out of curiosity to see if the salt would stop me getting a headache, wondering if lack of salt rather than dehydration is what causes my exercise migraines (dehydration seems unlikely, as I drink a lot). I didn’t get a headache immediately, but one seems to have set in now, over four hours later, although that may be because my parents turn the heating up so high.

***

There’s a joke about a great sage who wanted to know the meaning of life. He spent years studying texts: Tanakh, Talmud, Midrash, Kabbalah… Eventually he looked up from his books and said, “Life is good!” Then he paused for a moment, thought a bit longer and said, “But if life is so good… how come it’s so bad?”

I feel a bit like this. My life is objectively better than it’s been for at least two or three years. And yet, somehow I feel stressed a lot of the time. There is uncertainty. I don’t know if my job will continue long-term or if my novel will be published. I obviously don’t know what will happen with me and PIMOJ. I guess uncertainty about one’s career and relationship is going to lead to unsettled feelings, even if things are OK at the moment.

At the moment, PIMOJ and I still can’t see each other for another nearly two weeks because of the lockdown, which is proving very difficult and I certainly feel it’s putting a bit of strain on the relationship. I think my relationship with PIMOJ is different to my previous two relationships, in that PIMOJ and I are very different in personality and we have to consciously work harder on the relationship and to communicate effectively. I don’t think that’s necessarily a bad thing, but it means I have to engage in the relationship a lot more deliberately than I had to with previous relationships (not that I’ve been in many previous relationships), and that’s not easy when we can’t see each other.

Beyond this, I guess there are things I think about and worry about that I need to process, but which I don’t want to write here because they relate to other people who might not want me to write about them even anonymously. I need to find another way of processing them. I can talk in therapy, but that’s one hour a fortnight. I could try to switch back to once a week, but I’m not sure I will always have enough to say once a week; the amount of worry comes and goes. I speak to my rabbi mentor sometimes. I could try writing privately, as I occasionally do. I do feel that it’s better if I can write with an audience though. Aside from getting helpful comments, knowing I have an audience stops me drifting into catastrophising or self-pity. Just knowing that something will be read makes me careful to avoid that in a way that I fear is not the case in private writing.

Still, just as my intermittent low mood is not capital-D Depression, so my worries are not capital-A Anxiety, which is good.

OK, bed now, as my head hurts.

Equanimity, and Reading

I struggled to fall asleep last night, probably as a result of having slept too much over the weekend. That’s probably the context in which the rest of this post falls, that I was a bit sleep deprived and not at my best. I think I was worrying when I couldn’t sleep, but I don’t think I was being kept awake by worry, just that with not much to think about, I worried. Again, that’s probably relevant later.

At work I spent five minutes looking for a cheque before I remembered that the person had paid twice by mistake and we posted their second cheque back to them. I had just forgotten to delete the second cheque from the incoming payments spreadsheet. Until I realised what was going on, I worried I had done something really stupid, like throw the cheque in the bin or post it back to the sender instead of their receipt, something I have nearly done on several occasions. I hope I didn’t seem too stupid to J.

In the afternoon, I worked on the inventory again. I struggled a bit emotionally. My therapist says it’s not so helpful to talk of “depression” now, given that my mood is mostly stable, and I think that’s true, but my mood did dip, perhaps because of my lack of sleep. The inventory is not a completely straightforward task, but it doesn’t require a huge amount of concentration either, which is a recipe for my mind to wander, apparently to worries and negative thoughts about myself, somewhat like last night when I couldn’t sleep. I did get through it, but I fear that my work was not particularly fast or efficient, and I’m still only about halfway through the inventory (or really through stage one of the inventory).

***

I worry a lot about not having peace of mind, including today while feeling like this, so it was interesting to see in the Jewish book I just started re-reading (The Strife of the Spirit by Rabbi Adin Steinsaltz) that peace of mind is a negative thing in Judaism. We should feel inner conflict: “there are [spiritual] goals that cannot be attained except through struggle waged within the soul.” (p.5) Elsewhere (The Thirteen Petalled Rose p. 132) Rabbi Steinsaltz states that “The Jewish approach to life considers the man who has stopped going — he who has a feeling of completion, of peace, of a great light from above that has brought him to rest — to be someone who has lost his way. Only he whom the light continues to beckon, for whom the light is as distant as ever, only he can be considered to have received some sort of response.” This is rather different from what a lot of self-help books say. Alan Morinis writes that the Jewish idea of equanimity is like a surfer on a wave, staying balanced, but aware of what is around him. This approach intrigues me. It seems more feasible than complete calm and lack of emotional upsets.

***

I feel that I’m reading less. I should qualify that and say I’m reading less recreationally. I read a lot of religious material, in Hebrew and English. But I think I’m reading less for fun. Certainly I haven’t found a novel that really grabbed me, that I became immersed in, for quite a while. And I’m not sure if my idea of mixing more non-fiction into my reading schedule is so good. I like to learn about history, economics and politics, so setting aside time to read about them is good, but then I want to be a professional author, so I should read a lot of fiction. It can also be harder to get motivated to read non-fiction than fiction. Then again, I want to write Jewish historical fantasy, so a solid grounding in Jewish and world history and mythology is also important…

I also find that it’s easier to read blogs and news articles online than books or even longform online journalism. The Jewish Review of Books periodically posts long articles that they don’t include in the print magazine and I save them, but it’s hard to get around to reading them. Sometimes I print things like that off and read it on Shabbat as it’s easier to set aside the time to read then. Despite this, I still spend hours idly surfing blogs, BBC News and other news sites.

I guess the bottom line is that I haven’t found reading so much fun lately, so I’ve been prioritising television, particularly when tired (which is a lot of the time). I’m not sure what to do about this, or if this is even something I should do anything about. Reading has been my love since I was a toddler, it will probably reassert itself at some point, maybe when I’m sufficiently at peace with my own novel to be able to read other people’s work without taking it to pieces to see how it works and what I should (or shouldn’t) learn from it, which I’ve been doing lately (mind you, I do that with TV too).

***

I don’t normally post links, but as I was complaining about Haredi (ultra-Orthodox Jewish) lockdown non-compliance recently, I want to link to this interesting post that says that the data suggests Haredi compliance was greater than the community has been given credited for, at least in the first lockdown. And while I find many aspects of Haredi life personally uncomfortable, not to mention antithetical to my understanding of Judaism, I agree that demonising “Them” isn’t helpful. It opens the door to all kinds of nasty social engineering projects once you decide that some life choices are inherently wrong and need policing (or “helping”) by other groups (with obvious caveats for where those life choices affect those unable to choose, whether children or people vulnerable to COVID).

The Understudy

I didn’t have a very good night’s sleep. I used my new weighted blanket and it was good, but I wonder if it was warm enough as I kept waking up in the night. If I continue to have interrupted sleep, I may put a summer weight duvet over it and see how that is. I slept badly anyway through going to bed late and having slept too much in the afternoon, so it took me a long time to fall asleep. I had weird dreams, although none interesting enough to be worth sharing, and woke up late and burnt out so that I lay in bed a long time trying to get the strength to get up. I felt a bit better after breakfast, but I don’t usually feel 100% until after lunch, even on work days when I do manage to get up early.

I feel like I’m just trying to keep my head above the water at the moment. Some of it is the time of year, as I’ve mentioned, when the days are still short and cold and wet, but the anxiety about the spring Jewish festivals is growing. In addition, my sleep is still disrupted, I’m still worried about doing the wrong thing at work, I feel negative about my novel (vaguely wondering if I should give up on it and start a new one, although I don’t realistically feel that would be a good idea at this stage) and I miss PIMOJ in the lockdown. And, like pretty much everyone in the world, I’m sick of COVID and lockdowns in general, I just want life to be normal again (for all that I struggle with “normal”). PIMOJ is stressed about things in her life too, which only magnifies the problem.

I know other frum (religious) Jews don’t get so anxious about Jewish observance. They perform the mitzvot (commandments) to the best of their ability and that’s that. I don’t know how they get to that point. Some of it is probably being brought up frum from a young age (which I wasn’t) and some is feeling a strong level of community integration and support (which I don’t have).

I was feeling today that I’m an understudy in my own life, thrust onto the stage unprepared. Or, I’m a new actor playing the Doctor in Doctor Who, trying to play it my way, while keeping faith with my predecessors (i.e. other Jews, especially my ancestors).

I went for a run and while running I started thinking about the two questions Babylon 5 is built around, “Who are you?” and “What do you want?” I want to be a good Jew and a good writer. I’m not sure if that answers the “Who?” or “What?” question and I’m not sure how to achieve either of them. I feel like I should have better answers and more of a plan for achieving them now I’m in my late thirties.

After my run, though, I started thinking about gratitude, how grateful I am for supportive parents and a supportive sister, for a brother-in-law I get on with even though we’re quite different, for friends online and in person, for the fact that I’m in work with a tolerant boss, for the fact that I’m reasonably psychologically stable at the moment, and for the fact that I have a supportive girlfriend. I know not everyone has these things, and I’m grateful for them.

Last Wednesday, my therapist encouraged me to focus on “I can cope” as an affirmation. I’ve not found affirmations hugely useful in my recovery from mental illness, but this seemed fairly pithy and realistic. I know I can cope. I’ve coped with my mental health for years and I’ve had several reasonably good Purims and Pesachs, at least from a mental health point of view, since the ones that were my nadir (around 2015 and 2016). So I can cope – I just have to learn to believe it.

***

Other than that, it wasn’t much of a day. I did some Torah study (less than I wanted) and, as I said, I went for a run, but that was about it. I didn’t get to work on my novel. There are some changes I want to make to the current draft before I send it out for feedback and I don’t know when I will have time to make them. I guess I feel I wasted time, although given how I felt on waking, I probably shouldn’t blame myself too much, not that that has ever stopped me.

***

I feel I’ve put myself “out here” a bit more in my blog over the last few months, occasionally posting more potentially controversial political and religious things. I guess that means I have a certain degree of trust in the people who read and comment. I don’t want to post a huge amount of this type of stuff, I still see this as primarily a daily journal-type blog about surviving with autism and residual mental illness on a day-to-day level, but it’s interesting because it suggests I can put these feelings out here in some circumstances, bearing in mind that I tend to hide my thoughts about politics and religion in Real Life. I do still get the, “Oh, I shouldn’t have said that, what will people think of me?/what will they say?” feeling though, the desire to go back and edit or delete what I’ve written.

The Luftmentsch of Zur-En-Arrh

I feel really burnt out today. I was supposed to be going on a Zoom call from my autism support group about dealing with romantic relationships, but I slept through most of it and was too exhausted to think of hurrying to catch the end. I don’t think more Zoom would have been a good idea to be honest, especially as I had a Zoom shiur (religious class) in the evening which I didn’t want to miss because (a) I paid for it, (b) it’s with PIMOJ and (c) it’s a good teacher.

As well as missing the group, I decided I was too exhausted to write my devar Torah (Torah thought) for this week today as I had intended. I jotted down some ideas on Sunday, but I’m not sure that I’ve planned anything long enough or coherent. I just have to hope I can sort it all out tomorrow, along with having therapy. I wanted to work on my novel today or tomorrow too, making some changes I thought of, but I don’t feel able to do so today and may not have time tomorrow, depending on how long my devar Torah takes (and what time I get up).

My blood test results seem to be fine, except my cholesterol is still a bit high. I had more NHS trouble, though. My Mum tried to phone about my autism assessment, but the person she usually speaks to wasn’t there. I tried to get my repeat prescription, but there was no olanzapine. This time they seem to have the new dose on my records, but no one thought to prescribe for the gap between when the mistakenly low dose ran out and the next repeat prescription.

In the evening I had shiur (religious class). It was OK, although I knew a lot of the material and I didn’t really participate in the group learning activity. Afterwards I tried to write to the Bet Din to tell them about the improperly delivered (from a Jewish law point of view) food from yesterday, but I’m not happy with the email and may not send it.

I would have liked to have had a mental health day today, but I had to collect my prescription, sort out the olanzapine issue and go to shiur. I was just doing all of this on autopilot because I felt so drained and burnt out. I’m re-reading Grant Morrison’s run as chief writer for Batman and just finished Batman RIP, in which a criminal gang known as The Black Glove drug and brainwash Batman, hoping to manipulate him, not realising he already prepared for this opportunity by preparing a kind of unconscious back-up personality, called The Batman of Zur-En-Arrh to take over his consciousness. That’s how I feel today, out of spoons and being controlled by The Luftmentsch of Zur-En-Arrh because I’m too burnt out to do anything myself, not in the sense of an alter as in a different personality, but just an auto-pilot that somehow gets through mundane tasks when mood-wise I’m not good for anything other than lying in bed.

PIMOJ was really supportive today. We had a Skype conversation after shiur, but I think I was too tired to say much. She said I’m “brave” for facing my fear and trying to keep going with my life. I don’t feel brave. I don’t feel like I had much choice.

Make-Believe Work

I got up reasonably early today, but somehow slowed down somewhere and was a bit late leaving for work. Then, when I was partway to the station, I realised I’d left my mask at home and had to walk back to get it, so I was a bit late for work, although J didn’t seem to mind. I tried to walk mindfully on the way to the station, but got rather overwhelmed by the sounds and smells. Maybe this is why I usually listen to music.

I felt impostor syndrome and negativity at work, feeling that I can’t really do my work. Sometimes it feels that I’m doing make-believe work like a child rather than a real job. I feel I can do difficult things like write books, but not easy ones (I messed up writing an invoice twice, even though it was based on a template). Not that I feel particularly confident about my novel at the moment; I actually feel quite negative about it and am wondering why I want to show it to my editor friend. I felt a bit better after lunch, but then I realised I’ve been going about an inventory of some property the wrong way and have wasted time in the process.

It’s funny, because after work I saw Ashley’s post for today, about mental health and Britney Spears. I’m not terribly interested in Britney Spears, but her comment that she is “taking the time to learn and be a normal person” didn’t seem that strange to me, or at least it feels like it’s what I’m trying to do now that I think I’m on the autism spectrum (if I don’t get diagnosed then there’s a whole new identity crisis… I need to chase when my final assessment appointment is as I should have heard by now). I think I still have a long way to go if I want to learn to be a normal person.

***

It’s my parents’ fortieth wedding anniversary today. It’s a bit muted in lockdown, but we had a Zoom call with my sister and brother-in-law. I still find these difficult. Everyone seems to shout. I’m not sure if the microphones aren’t good enough or everyone just thinks you have to shout for some weird psychological reason. Either way, I find it painful. I’m not usually someone whose autism makes loud noisy physically painful, but Zoom shouting down my ear seems to do it. Plus, a lot of the conversation was about work, specifically BIL’s promotion at work and voluntary charity work, so I felt a bit like the idiot child with his make-believe job again (back to learning how to be a “normal” person again).

We had take away dinner to celebrate. It threatened to set off my religious OCD again, as although it was from a kosher restaurant, the delivery company was a mainstream company, and the restaurant did not package the food according to the London Bet Din’s ideal guidelines. It met the more lenient “What if my food turns up packaged wrongly?” minimum guidelines, so I ate it, but I felt a bit anxious about it. At least I didn’t go into full-blown OCD meltdown. I’m not sure whether to complain about it. It’s probably too late to complain to the restaurant, but I might ask the Bet Din for more guidance for the future.

I feel just about ready to crash now. I wanted to do some Torah study this evening, as I only managed twenty-five minutes on the Tube and of the book that wasn’t helpful, but I’m too tired.

***

PIMOJ gave me a book on emunah (faith) that I’ve been reading on the train but I think I will stop. It seems to be lacking in nuance and reinforcing negative thoughts I have about myself. It talks about the importance of emunah and that someone who has it will feel happy whatever happens. I have two problems with this. One, it doesn’t say how to get emunah. It just seems to assume it can be switched on by a conscious act of will. Two, I know that, given that I believe in an all-powerful, benevolent God, I should logically believe that everything in my life will work out for the best. And on one level I do believe that. But I also feel that the long-term, overall best can still involve a lot of suffering in the short-term, and usually does, and that upsets and worries me. What if God thinks it’s for the best that I be lonely and depressed forever so that I can be happy in the Next World? That’s not something I would look forward to, even if I can accept intellectually that it’s for the best.

The book says that most suffering is rooted in punishment for sin, which seems questionable to me, although when I’m in the depths of depression I can believe it. My depression started when I was in my teens, but the Talmud states that a person doesn’t get punished for their sins until they reach the age of twenty (to give them time to become mature and repent) and obviously my autism would be lifelong from birth, so it seems that it can’t be down to sin completely — unless you want to go down the route of previous lives, which the author does, but which I’m sceptical of (it’s fairly accepted in kabbalah (Jewish mysticism), but seems relatively new to Judaism as a whole). I think using suffering as an opportunity for introspection and repentance is one thing, but assuming all suffering is due to sin is counter-productive and victim blaming.

Beyond this, it has a Hasidic attitude of sadness being a sin and a sign of ingratitude for God’s blessings, which, again, is something I don’t agree with and which I know is hardly universally accepted in the Jewish world. The book is based on the teachings of Rebbe Nachman of Breslov, who said it is a great mitzvah (commandment) to be happy all the time, but he himself had many intense bouts of depression (if you read Arthur Green’s academic biography, it seems likely he struggled with bipolar disorder) which makes me struggle to accept it as a rule. I’m actually very interested in Rebbe Nachman, but part of the interest is the dichotomy between the joy and despair in him.

Overall, the book seemed not to be the type of thing you would want to put in the hands of someone with a mood disorder. I didn’t want to do a big attack on the book (hence the fact that I’m not naming it), but I do feel like these attitudes, if unchallenged, can do a lot of harm in the frum (religious) community. So, I think I will rest this book for a while if not permanently. It makes me a bit sad, though, as PIMOJ says she got a lot from it and I’d like to see that, but I just don’t. I think we have quite different ways of looking at things, which I guess is part of the attraction.

***

I feel a bit bad that I complained here about Haredi (ultra-Orthodox) children still going to school despite the lockdown. Apparently most of them are allowed to go, as they have crowded houses and no internet for online learning.

In Which I am Taught a Frustrating Lesson About Materialism

I was burnt out and slept through the morning again, which is not good when it is nearly Shabbat. Today has been a slow day, forcing myself to do things that need to be done before Shabbat while not really feeling like doing much. I wish I knew why this happens to me so much; depression and autism are the main candidates.

***

I asked a writer friend if she would be willing to read my novel and give me some feedback. She said yes, as long as I don’t hate her for giving criticism, which has now made me panic about it, as I’m not good with criticism, even though I need it to grow as a writer. It doesn’t help that I’m currently in “My novel is awful and I should just give up on it” mode. I do think I’m not really cut out for writing mainstream literary fiction, so I guess I’ve learnt something from writing it at least, although I’ve no idea if I could write genre fiction. The idea of showing my work to people is producing some anxiety though.

***

I think some of my Babylon 5 discs have died. Season one discs 1 and 2 both jammed. I found tiny dirt marks on them (not sure how they got there) and after wiping with a damp cloth numerous times, they finally played properly. Disc 3 looks pristine, but simply won’t read, either on my DVD player or my laptop D drive. The DVD player just makes horrible clunking noises. I tried wiping with a damp cloth to no avail. I tried the other three discs from season one, and only one would play.

I’m not sure why this should be the case. DVDs are supposed to be very durable; that was why I replaced my videos. I’ve had the discs for about twelve years, but they have only been watched twice (I think) and have been kept clean and at normal temperatures. I’d like to re-watch the series, but I don’t really want to pay £60 or £70 all over again to watch it. After Shabbat I will test some of the other DVDs in the big box set (box set of all Babylon 5 episodes) and try to work out how many might need replacing, if it’s just season one or all the seasons.

It does make me wonder about my other DVDs. I don’t think of myself as materialistic, but it’s true that part of my identity is tied up with all my books and DVDs (well over a thousand books; not sure how many DVDs, and it depends how you count box sets, but a bookcase full, and full stacked on top of each other warehouse-style, not displayed library-style). Books are a durable format as long as they can avoid either water or fire. I thought DVD was durable, but apparently it’s not as much as I thought. It probably is a lesson about not investing your identity in “things,” but as watching DVDs is one of my key coping strategies for dealing with depression, anxiety and autistic overload/burnout, it’s not easy to cut them out of my life/identity completely, especially given the connection to my autistic special interest in Doctor Who and similar science fiction.

It occurs to me that on Shabbat I can’t watch DVDs, yet I’m not noticeably upset or cut off from my support, although I do often watch TV after Shabbat.

If this was a religious inspirational site, at this point I would say that I’m putting my materialism about books and DVDs behind me, but, to be honest, I don’t feel anywhere near ready to do that. But I am wondering what it would be like to try to cut them out a bit, although I’m not sure how to do that healthily. Soon after we started dating, PIMOJ gave me a little motivational picture she drew about “Joy is not in things, it is in us” which I have up on my bookcase, but I think she’s better at living that approach than I am.

It occurs to me that my difficulty throwing away, or even putting away, mementoes and bric a brac is probably relevant here too… more reasons to feel bad about myself…

***

I weighed myself this morning for the first time in ages. I was about 74kg, which is lower than previously, which is good. In the past I thought the NHS BMI tracker had said this is still too high and that I shouldn’t be much more than 70kg, but checking today it put me just in the healthy weight range. It does seem to depend on whether I round my height down to 5′ 7″ or up to 5′ 8″, so I’m borderline rather than fully healthy.

Short Update

My novel is on pause again as I want to get some new perspectives on it, ideally from having other people read it (but who can I ask?), but at the very least by going on a break and coming to it fresh in a while, maybe after Pesach (nearly two months’ time). Strangely, as soon as I stop writing the novel, I had an idea for a longer, more analytical blog post than I’ve written for a while (on Judaism and social responsibility). It will probably take a bit of time to write it though. I spent a bit of time on it this evening.

As for today, I was reasonably busy. I drafted my devar Torah (Torah thought) for the week and actually feel quite pleased with it. I went for a walk and requested a repeat prescription. I emailed a few friends and my Dad showed me how to use filters on MS Excel, which might come in useful at work. And I dusted my room, which is harder than it should be because of all the bric-a-brac I have out. I think I’ve written about that before. I’m not sure how much of it “sparks joy” (© Marie Kondo), but as of yet I haven’t been able to bring myself to put it away, much less throw it away. It’s probably that I don’t want to think about it – thinking about it would entail thinking about holidays I only vaguely remember (apparently due to autistic autobiographical memory issues), an unconsciously unhappy adolescence, the deterioration of my miniature painting skills due to medication-based tremor, and friends who fell out with me.

I Skyped my rabbi mentor too, which was helpful in dealing with some of the issues that I don’t feel I can write about here, although some of his advice was scary in terms of having to do scary social things.

Misfits

I’m back in “I hate the NHS” mode. I realised that the reason the doctor only prescribed half the only olanzapine I need is because he (or she – prescriptions can be done by anyone in the practice) misread the letter from the psychiatrist and thought I was on one tablet a day, not two. I know, there’s a global pandemic, doctors are super-busy and stressed. Even so, it’s annoying, and makes me wonder how many other, more serious, mistakes have been made by over-stretched medical staff during the pandemic – there must be a number of indirect COVID casualties as well as those actually killed by the virus.

***

I got my new glasses (and walked back in the cold and snow after getting them). I tried them on in Specsavers, including tilting my head to see if they slipped, and they seemed to be OK, but they seem to be slipping now, so I may have to go back at some point and get them adjusted. I’m just glad to have them for now.

I spent a bit over an hour on my novel and finished the third draft. It ended up at 79,766 words, slightly under the 80,000 I was aiming for. Now I need to find some people willing to read it and give me feedback. I’m not quite sure how to do this; I don’t have other writer friends where we can exchange work, and I don’t want to go to a writers’ group at the moment. I’m also terrified of negative feedback.

Given the snow this morning, I thought my walk back home from Specsavers would be my exercise for the day, but mid-afternoon I started feeling anxious and depressed for no obvious reason and, as it wasn’t snowing, and the earlier snow hadn’t settled, I went for a run, despite the fact that it was fast getting dark. I did 5K again and I had a better pace than I’ve had for a while too. I don’t mind running in the cold (it can be bracing) although I worry about pulling muscles despite doing a longer warm up and cool down than usual.

I did some Torah study too, although not quite up to the hour I was aiming for as I ran out of time and energy.

***

I came across an interview today, a religious Jew interviewing someone raised in the Orthodox world, but now outside it. The non-religious Jew says he warns religious Jews thinking of leaving because they don’t fit into the frum (religious) community that they may not fit into the secular world either; they may, in fact, be misfits who won’t fit in anywhere.

I have long suspected that this would be true of me. For all my struggles to fit in to the frum world, I can’t really see myself fitting in to the wider Western world easily either. I guess I’m a bit of a misfit, or even that not fitting in is a part of my psyche; I’ve begun to suspect that when I fit in somewhere, I self-sabotage to find a way to feel like a misfit.

***

On a related note, a while back I wrote about feeling myself to be a “Tory anarchist.” Lately the anarchist part is stronger. I have limited patience for big business or big government and just want to be left alone. Sometimes it’s easy to want to pull society to pieces and start again. I feel a lot of anger and resentment at the ruling class and I’m not sure where it’s coming from, from politics or from my inner self as it’s the class so many of my peers from Oxford now belong to, people in politics, academia, law, and other places I might have been had depression and autism not intervened. I feel like a class traitor sometimes.

“There is a hole in your mind”

I got my olanzapine in time on Friday, so I won’t run out. It was a lucky escape. I’ve only been prescribed enough for two weeks though. I haven’t checked, but I suspect/hope that’s to ensure that I run out at the same time I run out of my other medication, so I can collect them all in one go. Having been put on different medications at different times in my adult life, there have been times when I’ve been going to the doctor and the pharmacist almost weekly to request and collect different meds.

Shabbat (the Sabbath) continued the pattern of lockdown Shabbatot being unmemorable. As usual, I did a lot of Torah study, ate too much junk food and slept too much. I’m not sure if I actually napped this afternoon; I went to bed, but I don’t think I actually slept. Still, it was probably a waste of time as I didn’t need the rest, except inasmuch as I still feel burnt out a lot and don’t know why.

I had hoped to work on my novel this evening, but ran out of time.

There’s not a lot else to report. I’ve started a big Babylon 5 re-watch, in part to keep myself busy without watching Twin Peaks again just yet or endless re-watching of original series Doctor Who (although I probably will interrupt for Doctor Who at times). Babylon 5 was structured as a single story told across five seasons, so it’s harder to break episodes off to watch by themselves than can be done for programmes like Doctor Who, Star Trek and so on. In practice, most of the first season consisted of more or less standalone episodes, to set up characters and setting. Seasons two, three and four told the bulk of the plot. Season five ended up feeling a bit tacked on for various reasons. The middle three seasons are very good, though, and benefit from being marathon-watched.

I think I last watched it about seven years ago, and ended up writing two essays about it that I was very pleased with and would have liked to have had published somewhere, but had no where to submit them to. One was an analysis of the whole series fifteen years after it finished transmitting and the other was about the influence of British science fiction on Babylon 5. Most American science fiction – most American culture – is autarkic and hardly admits to recognising influence from elsewhere, so the nods to the likes of Blake’s 7, The Prisoner and Doctor Who in Babylon 5, not to mention the more obvious Nineteen Eighty-Four seemed noteworthy.

Rants (Redacted and Otherwise)

More NHS woes. I wrote a rant here, but then deleted it. I had to make a lot of phone calls and still didn’t get my olanzapine. Mum did some more phoning for me (I was peopled out after the calls I made, and in autistic black-and-white thinking mode) and it looks like I should be able to get the olanzapine tomorrow, but I won’t feel happy until I’ve actually collected it. And I feel vaguely bad that in the end I dropped out before the crucial final call and my Mum got the answer I wanted for me.

It occurs to me that the NHS is less different to the US free market system than the NHS’s defenders admit. In the USA, treatment is triaged largely based on wealth. In the NHS, it’s triaged based on blind luck, location and the confidence and ability to navigate bureaucracy. I strongly suspect that, other than luck, those factors work more in favour of the educated middle classes than other people.

***

Other than that, today was OK. I overslept a little, rushed and caught up the time, but then spent too long davening (praying) and was a few minutes later than usual for work, although I don’t have an official start time. J was leaving early today, so I was allowed to finish early too; add in another trip to the bank, and I wasn’t actually in the office that long. I did a little more work on my novel in the evening, which may have been a mistake as I was tired and doing other things, but I wanted to have something to show for leaving work early other than all those phone calls to the NHS that went nowhere. I somehow managed to fit in some Torah and speaking to PIMOJ too. I’m not quite sure how I fitted everything in; I feel exhausted now and it’s rather late. I’m glad it’s nearly Shabbat as I’m likely to be burnt out tomorrow.

***

Second rant: today I’ve been pondering the difficult of the mitzvah (commandment) of loving my neighbour, when so many of my Haredi (ultra-Orthodox Jewish) neighbours (literal neighbours as well as metaphorical ones) are breaking the lockdown. I blogged last summer about the illegal minyan (prayer service) happening three times a day in our next-door neighbours’ garden. That’s stopped since the places of worship reopened, and they did at least make a vague show of social distancing, but you can still see loads of Haredi children going to school every weekday. I appreciate that Haredi households can have eight kids crowded in one house with few or even no computers or internet phones, not good conditions for home schooling. Even so, the numbers of children still going to school seems troubling. And that’s without mentioning the large weddings still going on, reported in the (non-Haredi) Jewish press. Or the jaw-droppingly awful super-spreader event like the wedding of a Hasidic rebbe’s son in America that had hundreds or even thousands guests from across the world, or the funerals for Haredi rabbis that had tens of thousands of mourners.

It’s very hard, in these cases, to feel at all loving towards people who are living in a different reality and/or who feel no obligation at all to anyone outside of their narrow community, not just in terms of COVID, but also in terms of giving the Jewish community as a whole a bad press and providing openings for antisemites everywhere (“Jews spread plague” is a libel that has been around for centuries, baselessly until now). Bear in mind that the Haredi community comprises only about 10% of the global Jewish population, but is easily the most visible part of it, and the part that non-Jews see as most authentically Jewish. Newspaper articles about Jews are invariably illustrated with pictures of bearded Hasidic men, even if the article has little to do with Hasidim in particular.

I find myself wondering what figures like Rav Kook and Rabbi Levi Yitzchak of Berditchev, notable for their love for all Jews, would think or do. It’s hard to feel respect for people’s (genuine) dedication to prayer and Torah study when they are blatantly ignoring the commandments to follow the secular law of the country, preserve life and not give the Jewish God and Judaism a bad name. In fact, even thinking about trying to feel love for them just provokes the opposite, more anger and hatred. But God wants us to love idiots and scoundrels as well as pious people.

***

I’ve broken my iPod headphones (earbuds) again. I can’t seem to get them to last more than six months. I get a lot of use out of them (almost daily), but I feel they should last longer. I wonder if they aren’t built to be worn primarily while walking and jogging, or if I wind them too tightly or violently when putting them away. I can be heavy-handed with things.

***

PIMOJ and I watched WandaVision separately “together.” It was odd. I like odd, but I’m not sure what it was trying to do. Having looked briefly at the Wikipedia page (trying not to get spoilered), I think it is supposed to imitate TV from different decades, but it felt like the line between pastiching bad TV and actually being bad TV is a thin one.

Planting Seeds

I had an interesting start to the day. PIMOJ sent me some packets of seeds in the post and we spent some time planting them “together” via Skype. This was to do something to do with plants as it was Tu BeShevat (the Jewish New Year for Trees) during the week and PIMOJ wanted to do something to celebrate it, plus it was an excuse for a lockdown date that was a bit different from just Skyping or Zooming. I don’t really have much experience growing things, so we’ll have to see how it goes, but I planted a whole bunch of seeds: parsley, oregano, basil and more.

I spent time procrastinating over writing my novel, which wasn’t good. When I was finally about to start, my sister phoned and we had a long chat, which delayed things even more. I managed a bit over an hour of reading and redrafting, getting through another chapter, which doesn’t sound much, but it was a very long chapter.

I feel a bit conflicted by my book at the moment, like a parent who recognises moments of intelligence and flair in his child, but also feels that he’s very average a lot of the time and wonders what on Earth he’s going to do with his life when he grows up and goes into the world.

I went for a 5K run. It was good, my pace and stamina were good without much slowing to a walk from tiredness. Surprisingly, it was my first run of 2021 because of physical illness (medication side-effects), weather, Zoom calls with family etc. I actually ran in the rain because I didn’t want to put off running again.

***

I’m working from home tomorrow as J isn’t going in to the office and I can’t go in on Tuesday when he is going in. I’m continuing what I was working on last week, collating data that’s going to a major Jewish community organisation. My family have got me a bit worried about this, as it seems to be in breach of GDPR (data protection) law. I think it’s unlikely that the major community organisation would breach the law in this way, but I also feel uncomfortable working on it without having something in print to say that it’s OK, so I am going to ask J if he can ask for clarification on what is happening to the data before we send it on. This is provoking some worry.

***

I walked into the room while Mum was watching NCIS the other day. One of the characters was saying that she over-thinks things to stop herself feeling things and it occurred to me that this probably applies to me too. I’m probably also over-thinking things because it can be so hard to understand what I’m feeling.

***

Rabbi Dr Avraham Twerski z”tl died. He was a very well-known Orthodox Jewish rabbi, writer and educator, but also a practicing psychiatrist who did much to raise awareness of the taboo issues of mental illness, substance abuse and domestic abuse in the Orthodox community. He wrote prolifically on both psychology and Judaism and although I haven’t read much of his work, his book Let Us Make Man: Self Esteem Through Jewishness was a very useful work for me in distinguishing between self-esteem and arrogance. I recently read one of his books on domestic abuse as part of my research for my novel. He’s yet another great Jewish leader taken from us in this terrible last year, this time actually by COVID. Baruch dayan ha’emet (“Blessed is the True Judge,” the Hebrew expression said on hearing of a death, acknowledging that God is the True Judge who decides when a person’s life is over, but also expressing our grief and incomprehension over the death).

***

I finished watching The Sandbaggers. It was very good, but too cynical and bleak to be one of my favourite TV series, as witnessed by the downbeat, open-ended conclusion, which saw one character facing the sack for deliberately sabotaging an arms-limitation conference against his orders and another one shot, apparently fatally.

Disabled?

I slept too much on Shabbat (the Sabbath) again. Not a lot else happened, other than reading and Torah study. I still don’t dare risk going to shul. J says hardly anyone is going at the moment. I’m glad I don’t belong to a crazy Haredi (ultra-Orthodox) shul where COVID safety guidelines are ignored. I think there’s quite a bit of that going around in the area though. There was a lot in the Jewish newspapers this week about illegal Haredi weddings with hundreds of unmasked guests in close proximity indoors. It’s pretty provoking, although I don’t think there’s much anyone from outside the Haredi world can do about it. It would only stop if the Haredi world’s leaders (read: rabbis) protested, and maybe not even then.

I tried to work on my novel after Shabbat, but was tired and easily distracted and only managed forty minutes or so.

I should go to bed soon as I’m getting up early in the morning for a Skype coffee and gardening session with PIMOJ. But something has been bothering me over Shabbat. It suddenly occurred to me that I’m probably disabled. I always thought of depression as an illness rather than a disability, something that I could theoretically one day recover from. Even when I was on disability benefits (as I am at the moment, although probably not for much longer), I still did not think of myself as “disabled” as such. But it’s increasingly looking like something keeps me back from full “recovery” (whatever that might mean), the worsening of my mental health as a result of my attempts to change medication and improve my sleep pattern being just the latest incident in a long list of relapses.

In the autistic world, there’s a very vocal school of thought that sees high-functioning autism as a difference, not a disability. I can see where those people are coming from, but I also think a lot depends on the individual’s skillset and life goals. It’s one thing if you are a brilliant pattern-finder with a high-salaried job for an investment bank or accountancy firm; it’s another if you are unable to function in the conventional workplace. Likewise, some people are happy without close friends or a partner, but others want these things, but are not good at finding them.

I feel that I’m not ready to label myself “disabled” and work out what that would mean for me, especially given my history of giving myself negative labels. I may have to decide soon though. I should have the final part of my autism assessment soon (NHS permitting…). If I do get a definite diagnosis, that will push me down the path of thinking of myself as disabled, especially if I can claim some kind of help in the workplace under disability law. On the other hand, if I don’t get diagnosed… I’m not sure what that would mean at all. I know I’ve written before about feeling that I’m either autistic or “useless.” I know it’s not that black and white in reality, but it feels like that. I would feel like I’ve been some kind fraudster pretending to be disabled as part of some kind of scam for all the years I’ve been calling myself autistic (although I’ve never had any autism benefits, either monetary or in the workplace, except for one job interview where I was allowed to see the questions in advance).

I want to talk to PIMOJ about this, but I can’t face having the discussion via text or even video and who knows when we will meet in person again?

“I keep on wondering if I sleep too long”

I keep on wondering if I sleep too long
Will I always wake up the same (or so)?
And keep on wondering if I sleep too long
Will I even wake up again (or something)?

Sitting by Cat Stevens

I woke up in the night again, although not I think for long. That seems to be a pattern of waking for a while around 5.00am and may be part of a natural sleep pattern as Suzanne suggested. I woke intermittently across the morning, but was too drained to get up before midday, despite the noise coming from the building works next door, which I felt bad about (sleeping in, not the building works), even though I didn’t have work today and had a busy day yesterday. I feel like if someone told me there was a reason for my being so drained, yet managing to get up when I absolutely have to (work, medical appointments, volunteering), I could accept it, but as it is, I just feel lazy and useless.

I did go back to bed after breakfast and took a while getting dressed just because I was so drained. It was hard to “psyche myself up” to daven (pray) too.

I spent about an hour working on my novel, but it was slow work today and I didn’t achieve much. I’ve gone from wanting to write an amazing novel to wanting to write something vaguely publishable to wanting to write something that doesn’t totally embarrass me when I show it to people.

I tried to go for a walk to unlock my credit card that I accidentally locked last week when I forgot the PIN. I thought the ice and snow from yesterday would have melted, but it was very icy and treacherous. I didn’t go for a particularly long walk, but it took longer than usual because of the dangerous ice. The cashpoint wasn’t working properly when I got there. It was probably working well enough to unlock the card, but I’m wary of using damaged cashpoints in case they’ve been tampered with, so I didn’t even get that done.

***

Today was my father’s birthday. We had takeaway in the evening and played The London Game (travel around the Tube map going to tourist sites — I won). I was rather anxious – really religious OCD anxiety about whether the food was delivered correctly from a kashrut (Jewish dietary law) point of view. I think everything was OK, but I worry… I do think my anxiety is worse since stopping olanzapine, even though I was not aware of anxiety as a major issue before.

***

Because of burnout and family time, I only managed twenty minutes of Torah study, which disappointed me a bit. I think Dad appreciated spending time together in the evening though.

***

I’m creeping slowly towards the idea of buying a weighted blanket, but they just seem so expensive and I don’t know what practical benefit I’ll get from it. Will it help me to sleep better? Or just feel good? I’m not good at doing things just because they feel good…

***

People used to debate which was the more realistic dystopia for the twenty-first century West: Nineteen Eighty-Four (totalitarian oppression, perpetual war, The Two Minutes’ Hate) or Brave New World (the masses kept lazy and passive with mass consumerism, compulsory promiscuity and narcotics). Gareth Roberts made an argument in Unherd a while back about The Prisoner becoming disturbingly relevant again. But lately I’ve been thinking about Fahrenheit 451 and whether I’m going to end up having to single-handedly memorise the cultural heritage of the past to preserve it for the future. I have an image of handing a subversive, battered copy of Hamlet or The Third Policeman to my son or daughter like Obi-Wan Kenobi giving Luke his father’s lightsabre in Star Wars: “It’s called a ‘book.’ An elegant weapon for a more civilised age.”

Surprisingly Busy Day

I had a dream over Shabbat about being put in herem (excommunicated) because some rabbis took exception to my novel. This is not likely to happen in reality for many reasons, but I think it does reflect fear of negative reviews of the “Why do they always say bad things about the Orthodox community? Why can’t they see the good in the community?” kind (I’m thinking of one Jewish site in particular here). I can sort of see their point. It’s possible that I haven’t seen as much of the good side of the community as other people despite my having spent my life inside it, to varying degrees. And I feel uncomfortable with people who say things like, “I can only speak my truth,” but beyond a certain point, everything else is impossible, and my experience of the frum (religious Jewish, and in this case, Orthodox) community has been complicated at best – partly my own fault, but I think that’s reflected in the novel too.

***

Just before I was due to go for my COVID test this morning, it started snowing heavily. Dad took me in the snow storm, but when we arrived, the drive-in tests were cancelled as unsafe. I’m not currently planning to book another one; if I still feel bad on Tuesday, I’ll try to get in contact with my psychiatrist and see what she says. I feel a lot better today, with no light-headedness or hot flushes and only brief tremor, although some restless legs, which suggests that the symptoms were from starting haloperidol. I’m still suffering some anxiety (see below) which may be from stopping olanzapine.

***

I spent some time working on my novel. I’m not sure how much I did, somewhere over an hour, without much procrastination once I got down to it. I read two chapters and made some minor changes, finally getting through the 80,000 word barrier.

I went on a rather long Zoom call with my parents, sister and brother-in-law because it was my sister’s birthday yesterday and my Dad’s tomorrow. As I’ve mentioned before, I find Zoom hard at the best of times and struggled through it, but even when my sister and BIL are around in person I have a tendency to drift out of the conversation a lot. I tend to feel that the conversation is either small talky or about “adulting” and that I can’t really join in. I feel rather stuck in immaturity sometimes as a result of autism and mental illness. The restless legs were hard to control by the end of the call too.

I did some work on my devar Torah for the week and some general Torah study. I didn’t get any exercise today because of the snow. I spoke to my rabbi mentor and realised I’ve been procrastinating about some things that really I need to confront. Not major things, thankfully, but I tend to get anxious about things as if they were major. I tried to help Dad when he accidentally deleted a load of email folders, but I couldn’t work out what he’d done or how. I suspect they haven’t been deleted, but hidden somewhere, but I’ve no idea where. I’m not terribly good at Outlook because I only use it at work.

***

I had some anxiety in the evening after having been OK for most of the day. This was probably in part the general tendency for my anxiety to get worse in the evenings and partly from watching The Sandbaggers (1970s/80s espionage drama) which tends to end in downbeat ways, in this case with a likeable character turning out to be a double agent and committing suicide to avoid shaming his family. I like the series a lot, but it’s probably just as well that I only have five episodes left.

***

J suggested I switch work days this week to give the snow a chance to clear before I go in to work, so I’ll be working on Tuesday instead of tomorrow. I was secretly relieved, as I didn’t really want to go in to work in the snow, but was reluctant to suggest changing days after having missed a day off sick last week.

Be Anything You Want To Be???

I woke up at 4.30am again and this time I couldn’t get back to sleep at all, although as I had gone to bed very early (10.30pm), I had still had about six hours of sleep, which is the absolute minimum I need to function. Despite that, I felt better than I had done all week, both emotionally and physically, and got up very early.

While davening Shacharit (saying Morning Prayers), I started to feel light-headed again, and when I had finished I went back to bed, and apparently feel asleep for three hours (interrupted by my parents briefly saying goodbye on their way to a routine hospital appointment), until I was woken by the cleaner arriving at midday, shortly before my parents. I was rather disorientated and unsure whether they had come back home or not, which confused things further.

As this indicates, I’m still getting hot flushes, light-headedness and tremor (more frequent and severe than my occasional social anxiety tremor) periodically through the day. I’ve gone back to thinking it’s a medication change side-effect, but who really knows at this stage? I feel rather confused and vaguely concerned.

***

In terms of activity, I managed a half-hour walk, an hour and a half of work on my novel and an hour or so of Torah study, as well as watching a film (Zootropolis) simultaneously with PIMOJ and then having a WhatsApp call afterwards.

***

Life can be an endless stream of self-doubt if you don’t have good self-esteem. I was worrying today if my divrei Torah (Torah thoughts) have declined in quality lately. No one has said that, but then I haven’t had much praise for them either. I suppose most people don’t give me any feedback at all and I wonder what they think or if they are even still reading.

Somewhat related to this, Zootropolis, like a lot of Hollywood films, was about the idea that you can do anything if you want it enough and try hard enough. (Presumably Hollywood pushes this line because it’s safer than saying the system is rigged against the little guy and the only alternative is refusal to join in and revolution.) I don’t think this idea (you can do anything you try) is true, and I think I have made myself very unwell and unhappy over the years trying to do things that are beyond my (autistic, depressed, socially anxious) capabilities. However, I can’t deny that I have managed to push myself to do things in the past that now terrify me (e.g. public speaking). I want to write novels, but I don’t know if I can realistically do this or if I’m wasting my time. It is difficult to know what to think about this.

High Anxiety

I had sleep trouble again last night, going to bed early, but waking around 3.30am and not being able to get back to sleep until 5.00am. I got to work on time, but I was a bit tired. Worse, I was rather anxious. This was particularly the case when I had to wear my mask, on the Tube to work and when I went to the bank and the post office. Wearing a mask can feel very constricting and suffocating at the best of times, and I was wondering what would happen on the Tube if I suddenly needed to breathe fresh air. I didn’t actually have a panic attack, but I feel vaguely apprehensive about mask situations in the near future.

Other than that I had some anxiety about work and about PIMOJ, but was mostly OK, except for feelings of physical discomfort and aching in my limbs, and also in my teeth/gums, like my teeth are being scraped at the dentist. At one point I was shaking somewhat and unable to type accurately. I just checked the haloperidol leaflet; agitation is a possible side-effect, but anxiety is not, so maybe that’s “just” anxiety from everything going on in my life (work, relationship, autism assessment) and the world at large (COVID) and perhaps the olanzapine was keeping it at bay.

I got home from work very early and tried to work on my novel. I managed about half an hour, but I didn’t do very much other than correct some passages that had been initially written in the first person and then mostly, but not entirely, switched to the third person. I got through another chapter, but I feel very much like I need external criticism (dread word!) as I can’t judge it objectively.

I tried to do some extra Torah study as I hadn’t done much on the Tube into work, because when I felt anxious, I switched to listening to music. I didn’t have much time though because I prioritised working on my novel and going to Zoom depression group. I read some interesting things in Rabbi Sacks’ Morality, but I feel too tired to engage with it now.

Depression group was draining, as I think it always is, but worthwhile. I find the second half more draining than the first and really should volunteer to speak in the first half more often. I spoke about PIMOJ for the first time, really in an off-hand way. I’m still not sure what I feel comfortable sharing about the relationship there – or here, for that matter. It’s hard to know what I feel comfortable sharing, especially in the somewhat artificial environment of Zoom (as opposed to in-person meetings).

Vague Apprehensions

I woke up earlyish, but struggled to get up again and eventually fell asleep again (twice). I don’t think of myself as someone with poor impulse control or a lot of laziness, but getting out of bed, and staying out of bed, is hard and I can’t work out why.

I spent an hour and a quarter working on my novel. I was actually quite focused, first on research, then on writing, but I don’t feel that I got much done in terms of words written on the page. I think I’ve written all I can write for now and need some external feedback. I’m going to try to read through and redraft once more and then hopefully try to find people who can read and respond.

I felt rather anxious this afternoon and I’m not sure why. Some of it was about my novel. Some was probably about my relationship with PIMOJ. I think a lot of it was about work and whether I processed all the cheques properly last week or if someone will write angrily if we ask for payment that has already been made.

I also felt some minor physical discomfort today too. It’s hard to describe, aside from a slightly runny nose (which might be a minor cold), but I guess it’s a kind of tension in my limbs. I wonder if it’s the new haloperidol.

I spoke to my rabbi mentor, which helped with the anxiety a bit. It helped to put into words that I’m trying to accept that some days will be more productive than others, that I won’t always exercise, study Torah or write as much as I would like every day and so on and that it’s about trying to balance these things over a number of days.

Mum cut my hair, and then I was on a Zoom call this evening with my parents and most of my Israeli family. I stuck with it for over an hour, but then I had to leave. I struggle with these meetings. I find it harder to speak than when I’m with people in person, and also harder to be heard when I do speak, plus I find it all very noisy and draining (admittedly my family are rather noisy, and there are a lot of us on these calls).

I feel like I didn’t accomplish much today, although I suppose I did, just not as much as I wanted in terms of writing and exercise. I need to take some time out before bed for TV to decompress from everything that happened today, especially the noisy Zoom call. I feel a bit tense and uncomfortable in general, and vaguely apprehensive about a lot of things that are going to happen in the next few weeks.

Integrity

I spent too much of Shabbat (the Sabbath) in bed again, curled up in the duvet because it calms me, although I wasn’t conscious of feeling anxious, but perhaps I was feeling overwhelmed. I couldn’t sleep last night because I took my medication late and once I did fall asleep, I didn’t get up until midday again. I did quite a bit of Torah study and recreational reading on Friday night and today. I’m getting fed up with all the non-fiction I’m reading at the moment and want to read a novel, but also don’t want to abandon anything half-read. Hopefully I’ll finish Morality or America During the Cold War soon.

After Shabbat I helped tidy up and did some more Torah reading. I hoped to work on my novel, but I felt ill again: a headache, feeling hot (although I don’t think I have a temperature), nauseous, runny nose… I don’t think it’s COVID, but I think fear of COVID might turn me into a hypochondriac. I did feel better after making myself eat some toast and was able to eat enough to take my psych meds. The headache did seem to respond to paracetamol and a kool and soothe strip and once the headache was gone everything else seemed to go, so it seems that it was just a migraine.

I wanted to watch something fairly mindless as I recovered from the migraine, so opted to watch Wonder Woman (the film, not the TV series) with my parents. It was not a good choice, as I found it fairly incoherent and dull. I think superhero films are one of those things I think I “should” like (as a geek), but actually don’t.

***

Last night I had a dream that, while not a recurring dream as such, is a recurring dream scenario, where I’m put in some situation where I have to break Shabbat. I don’t know why I still dream about this when I’ve been keeping Shabbat for about two decades, about as long as the period before I kept it. I clearly still have anxiety about being forced to break it.

***

As I mentioned, I’m still reading Rabbi Lord Sacks’ Morality. He speaks about victim culture and is critical of it, saying it makes people look backward, and look for someone to blame. Inspired by Viktor Frankl and other Holocaust survivors, he advocates looking forwards for new challenges. I think this is true, or at any rate reflects my own experiences. I feel like I’ve only been able to move on from my mental health issues and my anger (not quite the right word, but I’m not sure what else it could be) about being on the autism spectrum in the last eighteen months or so, since feeling I could write. Before that, I had a period when I felt that I could be a librarian, but as that ran into difficulty, the depression and frustration came back. I worry what will happen if my writing doesn’t find an audience.

I guess I admire resilience rather than victimhood. By resilience I mean just carrying on, somehow, even at a level that would not be considered “normal” in the mainstream world. I admire people who can keep going without losing their integrity. Sometimes that’s the only thing you can hold onto. I think integrity in general is a much under-valued virtue these days. Maybe that’s why I have nightmares about breaking Shabbat; it would be a betrayal of my values and integrity.

Minor Trials and Tribulations

Today seemed quite busy. I slept badly again, struggling to fall asleep and then struggling to get out of bed. Today was Rosh Chodesh (New Moon) I managed to get up a little earlier to say some of the extra prayers, although I’m still saying a much-reduced Shacharit (Morning Service).

I spent the morning at work processing cheques people have sent in to pay fees. I think I had a few moments of autistic executive function block where my mind went blank and I didn’t know what I was doing and possibly I didn’t save data properly. I think/hope that I caught all of those. I intended to check all of them at the end, but checking forty-six payments seemed excessive (not to mention likely to send me back down the path of OCD compulsive checking), so I checked three or four random accounts and the data was always saved properly, so hopefully it was all OK. Later I processed a credit card payment over the phone and made a mistake, but the payment still went through when it probably shouldn’t have done. I put the wrong name on the card because I was confused by a woman paying on behalf of her mother. Hopefully that won’t be a mess that I need to sort out next week. Other than that, the main diversion was another trip to the bank to pay in the cheques. The cashier looked at the big pile of cheques and said I obviously hadn’t done any banking for a while. “Not since Monday” was my response. Almost everyone pays their annual fees in January, so we have to pay a lot of cheques in, although J says more people are paying by phone or online this year, which is easier for us.

J and I left work early today and despite going a different route home to avoid traffic, I had time this evening to finish and send my devar Torah (Torah thought) and work on my novel for twenty minutes or so.

I spoke to PIMOJ for an hour. She wanted to call on WhatsApp, which was fine, but I didn’t realise my phone hadn’t connected to the wifi properly when I came home, so I used 80% of my data for the next month (it just refreshed a few days ago). Not good. It’s not disastrous, as I don’t generally use much data, but it is frustrating.

PIMOJ bought me chocolate, which she sent in the post. I feel a bit apprehensive about the amount of gifts she gives me. They’re mostly small things, but I don’t really express affection that way and I wonder how she wants me to express affection to her. I wouldn’t know what presents to buy her and it wouldn’t really occur to me to do so without prompting. I’d say it’s an autistic thing, but it’s probably a male thing. Possibly PIMOJ and I need to talk about “love languages” (if you believe in love languages), but we already had one serious conversation today and it’s probably just as well we didn’t have another. At least we were on the same page about the serious conversation we did have.

I got given a confectionary package from my shul (synagogue) today too. Do they think I’m still shielding? I’m not sure, and I’m not sure who to ask/tell. It was probably a bit unfortunate that it came today as I sent off the email asking for a shul fee reduction given my employment/financial situation.

But certainly dieting with this much junk food around will be hard!

***

My glasses broke last night. I’m not sure how. The arm came off the little hinge. I suspect it’s either really easy to fix, or completely impossible and I need a new pair. Dad tried to take them in to Specsavers today. In ordinary times, it would be a simple thing, but because of COVID you have to get an appointment just to speak to someone about a broken pair of glasses and they forgot to phone him back. I wore my spare pair of glasses to work, but they have an old prescription. They were OK, but after a day wearing them, I think my eyes were getting strained, so I took them off. I generally only get new glasses when my prescription changes; then I take the older pair as an imperfect spare. I rarely need to use my spare glasses and even then usually for only a day or two, so it’s not usually a problem, but of course COVID makes everything a problem.

***

From my devar Torah (Torah thought) for this week:

Finally, Rashi tells us that sometimes Moshe [Moses] is put before Aharon [Aaron] and sometimes Aharon is put before Moshe to teach us that they were equal.[1]  This is puzzling, as we know that Moshe was the greatest prophet, so how could Aharon be his equal?  According to Rav Moshe Feinstein, Aharon was equal to Moshe in two senses.  First, that Moshe would not have succeeded without him, so his participation, like Moshe’s, was essential even if Moshe was greater.  Second, Aharon achieved the maximum of his potential, just like Moshe.  Although Moshe’s achievement in absolute terms was greater, both brothers achieved 100% of their potential and are equal in God’s eyes, as He judges success by the proportion of a person’s mission that is achieved and not the amount achieved in absolute terms.[2]


[1] Rashi Commentary to Shemot 6.26

[2] Quoted in Rabbi Nosson Scherman ed, The Stone Edition Chumash: The Torah: Haftaros and Five Megillos with a Commentary Anthologized from the Rabbinic Writings

This idea, about achievement being relative to a person’s potential in God’s eyes rather than an absolute value, is not a new idea to me. So why it is so hard to accept?

***

The pharmacy I use is one of the six in the country that are providing COVID vaccinations. It’s just been on the TV news because the minister in charge of vaccine roll-out was there today. Selfishly, I am vaguely worried about whether this (the vaccinations, not the minister or the news) will have any impact on how fast and easily I can collect my monthly repeat prescriptions, particularly as I have one that needs collection on Monday.

***

None of what I have written here is serious, but it has all left me pretty exhausted. I’m going to do a bit more Torah study, then watch Doctor Who for a bit and go to bed.

Writing Success, Financial Embarrassment

I had another difficult morning of oversleeping. To make it worse, when my clock-radio alarm went off, I couldn’t get it to turn off. I was too tired to work out if I was pressing the wrong button in tiredness and confusion or if it was actually broken and the increasing volume of the alarm was distressing me a bit, so I just yanked the plug out of the wall socket. I couldn’t get it back in the socket in the half-light, so I have no idea what time I actually woke up “properly” because I lay in bed for a long time before I got up and plugged the clock back in. Like yesterday, I went back to bed after breakfast (although it was afternoon) because I was tired and depressed.

***

I spent over an hour working on my novel in the afternoon. Some of the time was spent writing, and I’m more or less up to 80,000 words now (I’ve been told that 70,000 words is the bare minimum for an adult novel, but 80,000 to 100,000 words is safer). The rest of the time was spent reading online, trying to research what the arrest and prosecution process would be for someone making a rape claim weeks after the event and whether the police would realistically advise her to do so in the absence of evidence. I need to do more research and then probably rewrite the climax of the novel (again).

I had hoped to get the novel in a shape where I can get feedback from other readers and potentially send it to editors or agents by Rosh Hashanah (Jewish New Year) in the autumn, but that was when I was unemployed and single. Meeting that deadline seems less likely as work and my relationship are taking up a lot of additional time. I have a three or four page document of changes I still want to make. Some are relatively brief, but some are more far-reaching.

I spent five minutes tidying up the bookmark folder on my internet browser where I had saved links to stuff relevant to writing, either sites for research for my current or potential future novels; or pages about finding an agent or publisher or pitching to magazines. I’m usually quite tidy, but the fact that I had not organised this is probably indicative of a deep-seated avoidance of the aspects of writing involving getting other people to read and judge my work, let alone pay me for it.

***

I worked on the novel straight after lunch, because I wanted to make sure I made progress with it today. This meant that when I went for a walk, it was dark again, although it had at least stopped raining. I feel the winter darkness is getting to me, as it usually is by this time of year. I haven’t been using my light box much, as I’ve been getting up too late, and using it in the afternoon can lead to insomnia later. On days when I work, I get up earlier, but I rush to leave and don’t always remember to use it or get enough time. I am wondering a bit if buying a weighted blanket will lead to more refreshing sleep, although it won’t help with sunlight deprivation.

***

I’m nervous about my relationship too, which is going well, but I’m increasingly aware that PIMOJ and I will face a lot of obstacles in making it more permanent. I’m also a bit concerned about my general mental health at the moment. My therapy is currently fortnightly and this was an ‘off’ week, but I should have asked to see if the therapist could add a session in. I thought I didn’t need it, but in retrospect I did. Next Wednesday afternoon seems a long way away.

***

I drafted an email to my shul (synagogue). They raised their membership fees recently. The increase was small, but I have been paying full fees over the last two years, even though I have only worked for five and a half months out of the last twenty-four, and that was part-time. I don’t feel that I can continue to pay at this rate. I did not say anything until now because I was hoping to find work and because I was ashamed to ask for special consideration. I have also been letting the synagogue collect gift aid from my contribution which really they shouldn’t do as I’m not a taxpayer. This was oversight on my part rather than a deliberate attempt to defraud HM Treasury, although I’m vaguely worried that the taxman may make me pay it back. I feel bad about the whole thing. I don’t like being dependent on others like this, but it was ridiculous that for so long I was making myself pay the full amount like people who are in full-time work. I don’t think I realised how ridiculous it was until in a Zoom shul a few weeks ago, meeting someone in authority said something off-hand about if you were made unemployed you would immediately arrange a fee reduction/cancellation and I realised that it hadn’t done it for so long.

It reminds me of something I heard ages ago from a rabbi, that shuls have funds to support the needy in the community, especially before festivals, which can be particularly expensive. He said that they don’t have a problem getting people to donate to the fund, the problem is getting people to accept the donations, as people feel embarrassed and ashamed. The Medieval halakhicist (jurist) Rambam (Maimonides) wrote about the best and worst ways of giving charity. The best is to make someone self-sufficient by giving them a job or an interest-free loan of start-up capital. Then it goes through various types of giving, but anonymous donation is seen as better, because less shaming. Double anonymity (donor doesn’t know recipient and vice versa) is the absolute best.

***

Other than that, my main achievement was drafting my devar Torah (Torah thought), but I was pressed for time and used some secondary sources (including Artscroll books) rather than going back to the primary sources (Talmud, Midrash). I usually do at least try to do that. I felt it wasn’t a great effort overall, and I’m not sure that my main point is either well-argued or correct.

***

I started to take the haloperidol. The information leaflet says it can cause delusions. Insert joke about Donald Trump here.

***

PIMOJ and I started watching The Mandalorian (Star Wars spin-off streamed TV series). We both got Disney+ the other week to watch the film Soul together. Then PIMOJ found The Mandalorian on there and started watching and asked if I would like to join her. PIMOJ isn’t a straightforward geek, but she likes science fiction, which is good. The series is entertaining. I find it a bit po-faced, but I feel that about Star Wars in general (the old Doctor Who/Star Wars rivalry). I might watch some Doctor Who before bed for something with more humour and imagination. Possibly The Happiness Patrol which is tonally as far from Star Wars as you can get.

***

I had an email from a job agency asking if they could put me forward for a potential job. I don’t think I’ll get it, as I don’t have all the necessary skills and experience, plus it’s a full-time job, which I don’t think I could handle right now, but I will probably tell the agency to put my name forward as a tactical move to show willing to the agency, as they handle a lot of library roles and might have a more suitable part-time role at some point.

***

After the scam phone call I got yesterday, I had another one today. Same scam, slightly different number (last three digits different). I think there was another scam call that I didn’t pick up. The frequency of this worries me a little.

Where Have All the Good Times Gone?

I woke up a few times in the morning and even got up briefly, but didn’t manage to stay up and awake. I just felt too burnt out and depressed. I eventually got up after midday – not good. And I went back to bed after breakfast, which is worse. I still felt drained and low after lunch, which usually boosts my mood. PIMOJ said to focus on taking one step at a time and not worry about tomorrow, which is true, but I still felt like I’ve gone backwards.

I actually got woken up earlier by the phone ringing, but it was a number I didn’t recognise and I didn’t feel able to deal with it, so I didn’t accept the call. Later, I got called by an almost identical number. It was a recorded message saying my National Insurance number was compromised and I was going to be investigated by the police. It sounded like a scam (similar to these), so I hung up. There are very bad people out there in the world.

I struggled to do anything until mid-afternoon. I went for a walk and requested a repeat prescription; cooked dinner (vegetable curry); and bought birthday cards for my Dad and my sister, also a present for Dad (my sister hasn’t told me what she would like yet… we don’t really do surprise presents in this family, although I think my Mum would like to).

I spent about five minutes on research for my devar Torah (Torah thought) for this week. This was probably not enough time, but I have an idea of what to write and spent another five minutes sketching out a plan. I wish I had a lot more time to invest in my divrei Torah than the hour or two a week I usually manage, most of which is spent on writing rather than researching. It would be good to have more resources too (books and Hebrew reading ability). I did some other Torah study too, but ran out of time for working on my novel, which frustrated me, as I feel I’ve been neglecting it since starting my job and that I’m running out of momentum with it, which worries me a bit.

I also submitted a comment online to support my synagogue’s attempt to get planning permission for a new site, which is exciting, but also makes me worry about the semi-detached relationship I seem to have to the community, something that will be worsened if it moves to the other side of the local area (it would be about a twenty minute walk, maybe a little longer, as opposed to currently a ten minute walk). I had been putting off writing the comment for a week and a half, so it was good to get it done.

***

I feel like I’ve gone back to a hand-to-mouth existence, in terms of time, energy and mood, never quite having the time or energy for everything. I’m still hopeful that coming off olanzapine will improve my sleep and get me two to four hours more awake most days, but it might not, if my over-sleeping is caused by depression not medication. There’s also no guarantee the haloperidol will work as a replacement, especially as I have a history of poor responses to antidepressant medication.

The biggest new drains on my time and energy in the last few months have been my new job and my new relationship, but I’m not willing to give up either, so I will just have to squeeze out time for working on my novel where I can. It could be that the winter lack of sunlight and poor weather is having an effect on me too.

In the meantime I find myself feeling a ridiculous amount of unnecessary anxiety about what TV to watch every evening. I’m not entirely sure where these thoughts came from.

***

People on the autism spectrum are supposed to be good at spotting patterns. Supposedly, there’s an entire autistic unit of the Israeli Military Intelligence because of this ability. I think I have that ability on some level, but the patterns I spot aren’t necessarily useful ones. I noticed lately three songs I’ve been listening to that could be taken as referring to mainline London train stations (Waterloo Sunset by The Kinks, which actually is about Waterloo Station; Victoria, also by The Kinks, and Waterloo by ABBA). I’m good at memorising bits of trivia for quizzes, but not really at anything useful. I’m not sure what I’m trying to say here.

Time Travel

I feel somewhat better today. I don’t know if I was distracted from depression and anxiety by being at work. I had autistic executive function issues with tasks where I had to fill in multiple spreadsheets at the same time and I kept losing the place or forgetting which spreadsheets I was supposed to use. This was made worse by having to deal with people phoning to make credit card payments where I had to drop everything and sort out the credit card payment and then afterwards try to remember what I was doing before the phone rang. I am slowly learning what all the spreadsheets do, which makes it easier to work out what goes where, but I still forget things sometimes. I made a couple of mistakes that I caught; I hope there weren’t any that I didn’t catch.

I was at least proud of myself for answering the phone. I hate doing that (anxiety), so it was a big thing.

I went to the bank too. The nearest branch, about fifteen or twenty minutes away, is closed because of COVID. The second-nearest was just a little bit up the road from the nearest one, but had a long queue, so I was out of the office for about an hour. I didn’t get lost this time.

That was it, really. I’m not feeling particularly depressed or anxious, just tired. When I was getting dressed this morning, I had an image in my head from Twin Peaks: The Return, where one character removes her face off to reveal a murky darkness broken by a bright grin. I’m not quite sure why this image was in my head. Did I feel like that this morning? It’s possible. Certainly there have been times in my life where I would have felt like that, but I don’t feel like that right now. It’s possible that being at work helped me today, in which case we’ll have to see what happens tomorrow when I’m at home (cooking dinner and hopefully working on my novel).

I do feel confused about my relationship, but I’m not sure what to do that. I think we were probably moving too fast. Our relationship faces a number of unusual challenges, and the pandemic is one of then. We can’t really move things on at the moment. I think we need to slow down for a bit, but also to spend time together, which we can’t really do right now because of the lockdown.

Other than work, I went to a shiur (religious class) in the evening. It was a bit late and I struggled to concentrate. It was more a mussar (ethical self-development) shiur than anything else, about keeping going if you fail in an area of personal growth. Discussions like this always make me feel weird, as I tend to put other people on a pedestal and assume everyone is doing amazingly and only I am struggling with all my middot (character traits). I still suspect that I have worse traits than everyone really, even if they struggle in the same area. Someone asked a question at the end about how to get non-religious Jews engaged religiously when there is so much they could enjoy in Judaism. The rabbi didn’t want to answer the question in the shiur, as it was a bit off-topic, but I did wonder a bit about whether there’s a way that I could enjoy Judaism more. I can enjoy and find meaning in mitzvot (commandments), Torah study and prayer on Shabbat (the Sabbath), but it seems hard to get that during the week.

I’m not sure what to do now. I’m tired, but not sleepy. I feel I should do something to unwind to help me sleep, but I don’t know what. I’m tired enough that I just sent my sister a text meant for PIMOJ, fortunately just asking how her evening was going.

***

I realised recently that I would rather have a time machine than a spaceship. (I appreciate that this decision is unlikely to have many practical ramifications.) I have felt for a long time that I don’t belong in this time. It’s partly having “old-fashioned” interests in terms of books and TV, partly feeling my politics are not a great fit for any party currently around (although I revise my political views fairly frequently – I get the impression that most people don’t), partly feeling my general worldview (religious, cultural) is different. Not necessarily out-dated, just different. I’ve never got on well with contemporary slang and trends.

I used to feel that studying history (my BA is in history) gave me access to information about the past that allowed me to understand the present better than most people. Now I’m not sure that that’s true. In fact, I suspect it’s not true. I don’t think I really understand the world particularly well. If I have an advantage, it’s only knowing that I don’t understand it, and maybe being aware that the world is more complicated than most people suppose.

Still, I feel adrift in time, looking for a society that works for me, people that I can communicate with. I want to write about a Jewish time traveller, hopefully when I’ve finished my current novel.

Thinking/Worrying

Another day that got away from me…

I think my negative self-talk is back. I think it went away, or more likely reduced without entirely going away, over the last few weeks as I felt more stable, but it seems to be back again now. Some “I’m useless, I hate myself” thoughts, and guilt feelings that are objectively probably out of proportion to anything I might have done, but it’s hard to be sure.

In Morality, Rabbi Lord Sacks says that Maslow and Rogers, the psychologists who did more than anyone to put self-esteem at the centre of healthy psychology, actually both went off the idea late in life. Maslow did research that suggested that people with high self-esteem were more likely to take advantage of other people in various ways, while Rogers switched from self-esteem to self-discipline as a key character trait of psychologists he wanted to employ at his institute. Although I think there is probably room for me to have more self-esteem without ending up taking advantage of other people.

***

I went to bed very late last night, feeling a bit agitated. I slept through the morning again and struggled to get going, despite knowing that I had a lot I wanted to do today. I just feel that my life is a mess and don’t know how to change it. I feel like I try to do the right thing, but God constantly puts me in situations where I can’t. I know that sounds like excuses, but I don’t know how else to describe what happens to me. I know when I choose to do something that is perhaps against Jewish law or Jewish ethics and I know when I feel pushed into something by events or feeling overwhelmed.

I went back to bed after breakfast. This was after 1pm because I got up so late. I just couldn’t face the day. It took ages to get dressed. I had too many negative thoughts about myself and my future. I wonder if I will ever get my life in order, whatever that might mean (career, family, feeling at peace with myself on some level etc.). Just paralysed thinking/worrying.

I guess this is olanzapine withdrawal. Unfortunately, I’m not sure when I’m going to be able to get haloperidol (the replacement mood stabiliser); hopefully by the end of the week, but I’m at the mercy of the NHS bureaucracy.

***

I made myself work on my novel for an hour as leaving it alone was just worrying me. I actually wrote nearly 1,000 words, without much procrastination, which I guess shows I can write fluently if I know what I’m doing and it’s not too emotionally draining for me (this bit wasn’t autobiographical or dark). Then I went for a walk. I replied to some emails too and filled in a form for the Department of Work and Pensions about my benefits (which I think are about to be stopped now I’m in work, even though it’s only part-time work). I guess I did quite a bit (I fitted in a brief call with PIMOJ and a little bit of Torah study too), but not as much as I would have liked.

***

I had fluctuating depression and anxiety during the day. I know it’s partly triggered by coming off the olanzapine, but I feel I have real things to worry about too. At the moment I’m mainly worried about my relationship with PIMOJ for various reasons I can’t really discuss here. It’s hard to know what to think about it sometimes, there are so many different thoughts and feelings, so much that could go wrong. I want to live in the present with it, but that’s hard when COVID is restricting what we can do in the present so much.

PIMOJ wants me to live in the present too (she very much does this) and to accept that God loves me and thinks I’m good enough, but I have a lot of psychological resistance to these ideas. She suggested I should try to see the spiritual beyond the physical. I don’t know if it’s depression or autism or low self-esteem or just me, but I find that hard. Almost impossible, really. It’s the type of thing that makes me wonder if I’m really cut out to be frum (religious Jewish). Or if PIMOJ is right for me. I try to tell myself I thought we were good for each other last week and it’s just olanzapine withdrawal that is making me doubt it now, but it’s hard to believe sometimes. She is very different to me in outlook, very positive and spiritual. I don’t think she understands my depressions and anxieties at all, they’re completely alien to her. Do I need her to understand? I’m not sure. I wonder what it would be like if we were living together and I had a few days like the last few days. I’m in full-blown, “I’m going to be lonely and miserable forever” mode today, even though I know that in the worst case scenario I can go back on olanzapine and be tired all the time and over-weight, but less miserable. I’m telling myself not to make any major decisions until I’m stable, but it’s easy to catastrophise.

***

I have a list of birthdays and anniversaries for family and friends and I copy the dates into my diary each year, alongside reminders of when to buy cards where relevant (yes, I prefer dead tree format despite the effort). Looking at the list today, I see so many friends I am no longer friends with, mostly because they got angry with me, often for reasons I did not understand. Sometimes there were complicated romantic feelings going on in one or other direction. It makes me sceptical of my ability to manage friendships, let alone relationships.

***

I can see that my unhelpful coping strategies are back. At the very least, I’m unable to reduce my junk food intake soon or eating cereal late at night. Not that I eat so much junk in absolute terms, but my medication means whatever I eat goes straight to my waist, and it’s hard to keep up with exercise (a) while working, (b) in the winter and (c) in lockdown.

***

I’m struggling with relaxation at the moment. America During the Cold War is interesting (especially to see how much of our contemporary political crisis parallels that of the 1970s), but is proving a slow read as I’m not really in the mood for non-fiction at the moment. I am trying to decide whether to switch to fiction. Similarly, The Sandbaggers on DVD is excellent, but dark and even nihilistic, so I’ve been watching Doctor Who instead recently. I re-watched The God Complex today – an under-rated story, in my opinion, with a positive presentation of religion that is rare for TV nowadays, let alone Doctor Who.

Very Anxious Day

I had the second part of my autism assessment this afternoon. It was a Zoom call with a psychiatric nurse (I think the one who interviewed my Mum a while back). I don’t know how I did. They said it would take an hour to an hour and a half, but it only lasted forty minutes or so. I’m not sure if that’s good or bad. The psychiatric nurse asked me some questions about emotions: what makes angry, happy, sad, etc. and what those emotions feel like. I think I struggled to put those emotions into words and tended to speak more about what I do when I’m angry, happy, sad, etc. Which I guess would suggest autism. We also spoke about friends and having a partner and what that was like emotionally and practically. Also if I coped with living alone, cooking, cleaning, etc. and whether I can handle my own finances. I know I can live alone OK because I just set up routines so I know what I’m doing, but I find that I can’t handle my finances as well as I feel I should be able to do and need to ask my Dad for help sometimes. Again, this might suggest autism.

I also had to narrate a picture book, describe how to brush my teeth and tell a story using five random objects as props. The psychiatric nurse narrated a story with five objects first, to show me what to do. I noticed that while her story was very abstract (e.g. a pen representing a boy, a sellotape roll representing a cake), mine was more literal (e.g. a Lego man for a person, a leaf for a forest), which again would suggest autism to me, although I’m not sure what they are looking for there. I don’t really know if this went well or not, or what “well” really means in this situation. I was told I should hear about the next stage (the actual diagnosis appointment) within six weeks, probably less, but I’m not sure if the actual diagnosis appointment will be within six weeks or just if I should hear when it will be.

The story test makes me wonder if I will really be able to make a career as a novelist, although a quick internet search reveals there are other autistic writers out there. I guess with my current novel, one plot strand is about my experiences with depression and autism in the Jewish community and the other strand is based on a lot of research I did into real life domestic abuse. I suspect I would be the type of author who wears his influences visibly and sticks to existing generic tropes rather than the type of daring, avant garde literary author part of me would like to be. So more of a Terry Nation than a Steven Moffat. Fine, I think Terry Nation is under-rated and I should only make as much money as Terry Nation did… (Nation created a number of popular programmes for British and American television, but was most famous for creating the Daleks for Doctor Who and making a fortune out of them thanks to canny merchandising and rigorous copyright enforcement.)

***

Yesterday J gave me nearly 300 invoices to put in envelopes, stick on stamps and post (he is paying me for this, don’t worry!). Today I put over 100 invoices in envelopes and sealed them; tomorrow I hope to put the rest in and put stamps on them all. It would probably have been more efficient to put a stamp on each envelope after sealing it, but I knew that if I did that, then I would constantly be having OCD worries about whether or not I put one on each one and would be going back to check. Easier, I thought, to do the lot at once, check them, and be done with it.

There’s no volunteering tomorrow, as the paid staff are worried about COVID and are reviewing their procedures to check everything is safe. The packing will be done just by the paid staff this week. Hopefully I can use the morning for envelope stuffing before I have therapy in the afternoon.

***

In the evening I had a rather anxiety-provoking experience. I don’t feel that I can go into much detail. It’s going to be an ongoing thing for a while. I think it’s the right thing to happen, absolutely, but it’s important and scary.

The hardest part isn’t actually the difficult and scary bits. I’m very dependent on the opinion of others, particularly those in religious authority. I worry about appearing like something other than the person I want to be, even though I ended up where I am in good faith and on rabbinic advice. I guess if you have low self-esteem, it’s easy to think everyone thinks badly of you, just as it’s easy to think that every difficulty (or anxiety) is a punishment from God for trivial infractions.

***

Because of everything that happened today, I didn’t do much Torah study. I read Rabbi Sacks’ Morality book for a while, but that was about it. I don’t know if that counts. Is it Torah study if I read a book by a Chief Rabbi about morality, but mostly couched in terms of secular philosophy and psychology rather than Torah sources? I don’t know, but it’s a very good book. I’m pretty tired now, but I need to shower and probably to watch some TV to unwind before going to bed as I still feel very tense, although the anxiety is slowly dissipating. I ate dinner very late, because I was too anxious before, and then I ate a ton of ice cream for dessert. So much for being on a diet.

Feeling Anxious

I’d like to be able to start a post without talking about my sleep pattern, but it seems to be a big part of my life at the moment, so here goes. I went to bed about 12.00pm. I wasn’t sure if I would sleep or not. Being sick can make you sleepy, but I had done nothing all evening since being sick except watch TV, so I didn’t feel particularly tired. I couldn’t sleep. I’m not sure if it was a lack of tiredness or the constant agitated thoughts about the Zoom meeting on Tuesday evening Rabbi B. Eventually I got up and watched some more Doctor Who to calm myself down. I did actually enjoy the second half of Logopolis more than the first, although that may be because it was 1.00am and my standards were not as high. I did eventually fall asleep around 2.00am, but slept through the morning again, which I was hoping to stop doing. I guess it was not entirely unexpected, given the evening I had (being sick, but also having a difficult conversation with my parents and arranging the call with Rabbi B). What did upset me a little was waking up with some religious OCD thoughts, which had not really bothered me for some time. I was a little surprised to experience them, although I know there’s always a risk of the religious OCD coming back at times of stress and exhaustion. They did at least go after I’d eaten breakfast – low blood sugar also exacerbates OCD for me.

After breakfast I felt better, but also a bit down and lethargic. It was hard to do very much. I guess it’s not surprising, given that I had been very sick less than twenty-four hours previously. At lunch I opened the box of vegetables that I was eating with PIMOJ yesterday and saw that the leftover cucumber had gone off. It was completely mouldy and furry. So I suspect I was sick from food poisoning from eating gone off cucumber. I knew it was a little past its best, but it still looked edible yesterday. Obviously not.

I was pleased to get thoughtful messages from PIMOJ, but also a message from J asking how I was, which was nice. He said I could do some work from home one day this week, putting 300 invoices in envelopes, stamping and posting them. I think I can do that on Wednesday, hopefully working around my therapy in the afternoon. I had already decided I was going to skip volunteering this week as I have too many stressful things even without being sick. I’m a bit upset at letting them down, but I need to look after my mental health. I skipped depression group tonight too, as I didn’t feel I had enough stamina to spend a long time on Zoom, as well as not feeling able to speak about the things that most concern me. I feel a bit bad about missing it again, but I feel that I need to focus on the autism assessment, meeting with the rabbi and paid work this week.

I spent an hour or so in the early evening working on my novel. Once I got into it, it flowed quite well for a while and I wrote 500 words, but around seven o’clock I suddenly became very anxious. It was a feeling of nausea and apprehension rather than specific voiced fears, but I suspect the meeting with Rabbi B tomorrow evening is at the root of it, and maybe also the autism assessment tomorrow afternoon.

I guess the Rabbi B fear is wondering what he will think of me, feeling that I’ve done something in good faith and on the advice of my rabbi mentor, but which on the face of it appears bad to someone from an Orthodox Jewish background. Although my rabbi mentor got in touch with Rabbi B before I made contact with him, I’m not sure how much of my story he told him. I guess below that is guilt, which probably isn’t justified. Beyond this, when I knew Rabbi B when I was at university, I felt that I was constantly embarrassing myself in front of him and looking like a freak or an idiot (for reasons I would now identify as being down to autism or social anxiety) and wondered what he thought about me…

Other than that, I didn’t achieve much. I didn’t go for a walk (I actually only just realised that I didn’t go out all day). I did some Torah study and preparation for my devar Torah, but wasn’t satisfied that I’d done enough, nor was I satisfied with my preparation. I may have to start from scratch, but it’s much too late to do that now.

I got distracted this evening reading stuff online that only left me upset, frustrated, guilty and uncertain of things, but I don’t really want to go into it here. Now it’s nearly midnight and I should go to bed as I have a busy day tomorrow (autism assessment, Rabbi B), but I feel very tense and unsleepy. And I haven’t even mentioned my thoughts about Lockdown 3: The Mutant Strain.

***

I was voicing my anxieties to PIMOJ and she was trying to calm me down. Then I watched the first episode of the Doctor Who story Castrovalva and saw the same scenario play out as the composed Nyssa tried to calm down the panicking Tegan, saying that panicking doesn’t achieve anything and so on. To be honest, there’s an element of geeky Adric about me too, and I’ve long suspected that I don’t appreciate Peter Davison’s Doctor as much as I should because he’s the Doctor who’s most like me (polite, but given to moments of panic and ultimately not that good at being the Doctor, with fatal consequences). Suddenly my future life seems like Season Nineteen of Doctor Who… I guess there are worse things it could be, although I hope it’s more Kinda than Earthshock.

***

I commented on someone else’s blog today to say that I’ve only been paid for one piece of writing, although I have done some professional or at least semi-professional writing for free. This, it occurred to me afterwards, is not true any more, as I have sold a couple of copies of my non-fiction Doctor Who book, and while so far only friends and family have bought copies, at least two people have read and enjoyed it (my oldest friend and my sister’s nephew). It’s a bit frightening how my mind can keep positive memories and thoughts away from me when I need it.

Feeling Positive

Shabbat was pretty good, but not much to note. I went to shul in the evening and did a lot of Torah study on Friday night, including an hour on a really difficult Mishnah. I didn’t nap either Friday evening before dinner or this afternoon, and I got up early this morning, albeit that after ten minutes or so I fell asleep again, so maybe reducing the olanzapine is helping already. I feel a little more alert and I don’t feel more depressed, so maybe I won’t need the alternative anti-psychotic after all.

I reflected that I haven’t felt this good for a long time. I feel like I have some kind of structure and purpose in my life again: I work two days a week at a job that seems to be within my capabilities, even if it is fairly mundane; volunteer one morning; work on my novel; have therapy fortnightly; have a relationship that is going well; am doing quite a bit of Torah study… I feel like writing Jewish fiction is giving me a sense of purpose in my life, and working at the admin job is validated by feeling like I’m earning money to support myself writing, which is my real mission.

I had a lot of interesting thoughts last night, some prompted by one of the books I’m reading (Morality by the late Rabbi Lord Sacks z”tl), one of which will hopefully become a devar Torah later in the year. I was pleased with these thoughts and am wondering if PIMOJ is right to see them as communications from God (not in a prophetic/psychotic sense, but in a “there’s no such thing as coincidence/hidden miracle” way, that positive things that happen, happen for a reason), but I wish they wouldn’t become so obsessive and “stuck in my head” (like a song) when I think of them on Shabbat and can’t write them down. I usually do have these kinds of thoughts on Shabbat, I don’t know whether it’s for spiritual reasons or just because it’s when I switch off from computer, phone and TV and let myself actually think about things. Or not think. Sometimes just sitting still and not thinking about anything in particular can lead to very interesting thoughts.

I had a headache today. It started about an hour before the end of Shabbat. The headache part went after a while, but there was still some nausea. As a result, I had to postpone a film night with PIMOJ (watching a film simultaneously in our different homes). We were hoping to go out tomorrow too. I was ready to commit to that, but PIMOJ was worried my headache would return and said to confirm tomorrow morning. We did speak on the phone (via WhatsApp) once my headache was better.

As my headache meant I couldn’t do much, I watched the New Year’s Special Doctor Who, which was broadcast after Shabbat started on Friday, so I had to wait until Saturday evening to watch it. I didn’t hate it, but I didn’t get much out of it. I can’t work out if current Doctor Who showrunner Chris Chibnall’s vision for the programme just doesn’t excite me in either positive or negative ways or if I’m just too old for it now. It is supposed to be a family programme, even if it’s always had a significant adult audience. I can watch the original 1963-1989 run of Doctor Who endlessly without much drop in enjoyment, and I can watch selected episodes of Russell T Davies and especially Steven Moffat’s versions of Doctor Who and get some enjoyment out of them, even if some bits annoy me (no, the Doctor doesn’t need a love interest, and his cultural references should be wider than those of a contemporary ten year old). But Chibnall’s vision of Doctor Who doesn’t even anger me much, except when it’s being inadvertently (I hope) antisemitic (The Witch-Finders, Orphan 55). It’s just there. Maybe I’ve finally grown up. His first season (2018) had moments of narrative, directorial and thematic innovation and daring, in a low-key way, but I haven’t really been excited by it since then.

Draining Day

Today was the last of my semi-holiday days, as J is still off work isolating (back tomorrow) and there was no volunteering this week. However, I feel tense and am running late, and did not manage to do everything I wanted to do.

I slept far too long again last night, with bad dreams that I don’t remember (thus sparing you the details). I finally got the letter from the psychiatrist about changing medication yesterday, so I reduced the dosage of my olanzapine today. We’ll see how that affects both sleep and mood. Obviously I want sleep to improve and mood to stay the same (good), but we’ll see. I’m on three different drugs that increase tiredness (and weight-gain), so changing one may not do enough, and the others seem too important and useful to change. I don’t think I’m far enough in my recovery to stop my meds entirely, and maybe I never will be. I do want to have a morning though, to have more hours in the day; to daven Shacharit (say Morning Prayers) at the proper time, maybe even at shul (synagogue) post-COVID; to align my body clock more with PIMOJ’s (she’s early to bed and very early to rise); to be less fearful of oversleeping when I have work or volunteering… I’m fed up with being quasi-nocturnal, really, especially in the winter when I don’t get enough daylight.

It’s strange… feeling that I want to hibernate at this time of year is not new, but feeling physically tired without feeling particularly emotionally low is new. I’m not quite sure what to make of it. To be honest, despite having slept through the morning, I wanted to go back to bed after breakfast, although I didn’t.

***

I tried to work on my novel, but my brain was basically doing what my body did this morning: retreating into hibernate mode with the bedclothes over its head. The main thing I did was delete 90% of what I wrote yesterday as it wasn’t working. As for what I did write… I sat in front of the document for an hour or so, of which about twenty or thirty minutes was productive. I wrote 300 words, leaving me 100 words behind where I was before I deleted yesterday’s work. I managed to use the word “gastronome.” I guess I’m quantifying my life again to try to “prove” to myself that I’m doing things…

***

I went for a walk and did some shopping, and I wrote my devar Torah – in the end, I did write a new one rather than reusing an old one. I did a little Torah study beyond the devar Torah, finishing Emmanuel Levinas’ Nine Talmudic Readings. I did not understand all of it, but what I did understand made me want to read more Levinas, at least his writings on Judaism and perhaps some of his more general ethical writings. His sense of a responsibility that precedes contracts, precedes even freedom and itself is necessary for it to exist is rather lacking in the world around us.

***

My uncle, in Israel, has had the COVID vaccine. He’s the first person I know personally to get it, at least that I know of – I can think of some people I know who should have had it, or should get it soon, but I haven’t heard that they have yet. I guess that’s the advantage for my uncle of living in small country (the entire population of Israel is about the same as that of Greater London, something not usually made clear in news coverage).

Meanwhile, our new cleaner refused to wear her mask properly (nose uncovered) on the grounds that she couldn’t breathe properly. This led to mild anxiety that she’s infected us. I don’t think she’s coming again, although for reasons unrelated to COVID precautions.

***

The COVID anxiety has subsided, but I’ve had bits of stress building up in the last hour or two, as I need to get ready for work tomorrow and feel that I haven’t done everything I want to do, and also that tomorrow is going to be busy. At least I can see that stress is not depression or anxiety.