Love Is…

Love is doing things you wouldn’t do by yourself  because you know your significant other needs to do them.

I feel really wiped out today and I know some of it is end of the week autistic exhaustion, but I also know that some of it is dealing with the ongoing situation with E and my parents and knowing that Shabbat (the Sabbath) is the hardest day for that. No one is arguing, but I’m just trying to keep things running smoothly so E can do what she needs to do without upsetting my parents, which is not always easy for me. I don’t blame E for doing what she needs to do, as her AuDHD needs are real (even if undiagnosed). I choose to try and keep things calm at home for myself and my future as much as for her, which is my choice, but it’s emotionally tiring. And I do increasingly feel the difficulty of living with my parents with autism myself, as if I was OK as long as I didn’t know there was an alternative, but now I know there is one, it’s hard to live with it (Alexis de Tocqueville famously said this about oppressive regimes that try to reform and become more democratic: revolution is more likely after the shift to reform starts than before, because people realise what they’re missing).

It’s also hard when E’s response to stress and especially to stress living with my parents is to want to go out and distract herself with something fun, whereas my response is to want to stay in and crash and just relax. She went out without me today, which was good, and we agreed that in the future she would sometimes go out without me. We don’t have to do everything together. I got on with some stuff at home, but I still feel like I have a stack of stuff to do and can’t go out so often. I still want to choose wedding photos for our album (although I guess we need to do that together), set up freelance proofreading profiles and start working on my novel in earnest, which might help me de-stress. This is aside from general stuff E and I have to do together, like finish buying stuff for our new kitchen (the disadvantage of having a small wedding was that we didn’t get everything we want/need as presents). I do probably need to focus more on alone time, although I did that last night and went to bed very late, which didn’t help with tiredness. I also went to bed late from blogging, but that’s also a coping strategy with emotional stress, as blogging helps me process emotions that would otherwise be hidden from me due to alexithymia. Of course, internet procrastination didn’t help.

We do hope the flat move happens soon. We had the survey done yesterday, which is a start. The solicitor emailed us a copy of the email he sent to the seller’s solicitor. It looks like he’s started the legal searches, which is also good, but also that he’s politely angry with the seller’s solicitor for not sending everything she should send.

My hands are still badly chapped, which I’m pretty sure is a stress thing at this time of year. I also got a minor headache and felt nauseous. I listened to music to deal with autistic exhaustion, despite the Three Weeks of Jewish mourning normally forbidding it, otherwise I don’t know how I would have got dressed. I don’t know if this was fully justified, but, as we discussed on the call yesterday (see yesterday’s post), I need to find a functional equilibrium that works for me, even if it’s not 100% halakhically (by Jewish law) justified.

I think E and I are handling the situation about as well as we can. We are communicating, with each other and with my parents. We aren’t arguing or passive aggressive. But we really need to get to our own space. To be fair, things might get a little easier in a few weeks, when Shabbat isn’t quite so long. But it will be hard until we’re in our new flat.

I did a few things today: the usual pre-Shabbat chores, read reviews for noise-cancelling headphones, did a tiny bit of Torah study, wrote some important emails. But there seems so much more to do, which makes me feel overwhelmed.

E and I want to get to shul (synagogue) tomorrow, but neither of us really feels like it, me because I feel exhausted and burnt out, E because the home stress has distanced her from religion for now. We feel we should keep going if we’re to have any chance of ever building friendships there, but we also feel we’re too neurodivergent to ever build up friendships there. It’s hard. There are people I would normally talk to about this type of problem, but I feel people who aren’t autistic or ADHD just don’t get it. Not a criticism or complaint, I just find it impossible to explain in ways they can understand.

My rabbi mentor and his wife are staying near us this Shabbat, literally round the corner, so we’re hoping to see them, which might make this Shabbat a bit easier.

***

I keep getting phoned from the Diesel Emissions Claim Centre or some such, offering to help me claim if I had a car that was showing false diesel emissions. I don’t drive. I’ve blocked the callers, but they all seem to come on different lines, from different cities in the UK. It’s very annoying and I don’t know what I can do about it. You would think they would get the message and pester someone else,, if only to avoid wasting their own time.

***

Yesterday at work I came across the following job title: “Consumer Happiness Representative”. I would love to know what this job really is. Is it just a fancy name for sales rep? Or helpdesk person?

***

WordPress gets worse. Now it’s replaced usernames with numbers in comments (probably a glitch, but annoying) and it’s showing me ads on my own blog.

Every Mitzvah Counts

I was exhausted today, but had to get up to help with the Tesco grocery delivery. I went back to bed for forty minutes after breakfast, even though it was late, and that helped a lot. Just lying still in a dark room wrapped in my weighted blanket can really help with mood, even though it’s not a practical suggestion much of the time.

I do also need to get off the computer earlier at night. It’s such a relief to be off it, but it’s so hard to get to that stage, partly because of writing my blog post and speaking to E, but also because of internet procrastination. Procrastination does me no good, but I do it anyway. As I’ve said before, the internet seems so urgent and attention-grabbing, but often it’s not urgent or even relevant,  it provokes pointless negative emotions and just leaves me feeling bad, but it’s addictive. It is the junk food of activities. At least E will be here LATER THIS MONTH and we won’t need to have late night (my time) Skype calls.

There was an apology for the family drama of the last few days, so hopefully things will be a bit more stable there from now on.

We got a contract from the photographer we want for our wedding. It’s good, but I find every stage in wedding planning can prompt “Did we make the right decision? This seems so final” thoughts.

I went to the bank and did a little shopping and was totally exhausted afterwards. E and I did some wedding paperwork stuff and I’m going to do a little Torah study after this, although it’s late. Unfortunately, I spent most of the day struggling with exhaustion and some of the evening with a mild, but persistent headache.

***

Sometimes (often) I wonder what it would be like to be a “normal” person, with no autism, mental health issues, a full-time job and so on. I used to think about it mainly in terms of marriage; now I have a wife who loves and accepts me, I think about it in terms of the Jewish community, being accepted and having friends, but also performing mitzvot (commandments) “properly.”

When I speak to my rabbi mentor, he always seems positive about my religious life, even when (as at the moment), I feel like I’m giving up on aspects of observances because I can’t cope practically and emotionally. I can’t work out if he really thinks I’m doing well or if he’s just trying to keep me Jewishly engaged and positive. He’s an honest person, so I imagine he really thinks it, but it’s hard to believe. Similarly, I never worked out if he said I should be open to dating less-frum (religious Jewish) women because he thinks that, as a general rule, frum people should be open to atypical relationships or because I found so few frum women willing to go out with me that I needed to broaden my search. I wouldn’t have dated E if he hadn’t said that, so it’s good whatever the reason, but I wonder about it sometimes. Likewise, when my Dad tells me he’s proud of me, I can’t help but wonder if he’s proud of me in the abstract, that I have done things that are inherently worthwhile or if he’s proud because I have a lot of “issues” yet I have done stuff which, although trivial to a “normal” person (e.g. my sister) are challenging to me. I guess I feel a degree of shame in not being “normal.”

Related, I’ve been thinking a lot about alexithymia (not being able to understand and process my own emotions) and Judaism. There are lots of emotions that I am supposed to feel as a Jew, for example, love and reverence of God, love of other people, joy on Yom Tov (festivals). I find all this very hard as I’m often not aware of these emotions and don’t know how to inspire them in myself. Now I wonder if I do feel some of them and just don’t know it. There are mental health and autistic challenges for me with most Yom Tovim, so I am probably not feeling joy there so much, but it occurs to me that if I can “prove” to myself that I love my family by looking at what I’m willing to sacrifice for them and how anxious I am about losing them, the same applies to God and Judaism. I have sacrificed a huge amount for them and don’t want to lose them I know it’s not from fear as it doesn’t feel like the anxiety I used to have with religious OCD. That would seem to indicate that it’s from love.

Other related thoughts I’ve had today: I had a headache, which reminded me of something I read in the book Calling Out to You, about Judaism and depression and anxiety, that if you had a headache, you would not pressure yourself to do your regular Jewish activities, so you shouldn’t pressure yourself if you have depression or anxiety. I feel a bit like I have a “permanent headache” in the form of autism, at least in some respects and maybe I shouldn’t pressure myself to behave like a neurotypical person.

E and I were speaking about Chabad and their kiruv (outreach) philosophy of acceptance of all Jews wherever they are religiously. While some kiruv organisations are very focused on getting people to commit to a fully observant Orthodox life, Chabad have an attitude of “every mitzvah counts.” They focus on getting people to do just one mitzvah regardless of whether they’re going to go on to do more mitzvot. Maybe I need to focus on one mitzvah at a time and just do what I can.

***

I still haven’t had my sleep study results and I don’t know who to chase. NHS, etc, etc.

Alexithymia

It was another difficult Shabbat (Sabbath). I miss E. This seems to be worse on Shabbat, for various reasons. It’s hard being “half-married.” I felt too burnt out and exhausted to go to shul (synagogue) on Friday night, with physical symptoms (light-headedness as well as exhaustion). I’m worried how often this has been happening lately. Otherwise, it was the usual type of Shabbat I have now: eating with my parents, reading a bit (I finally finished The Third Reich in Power; I’m hoping to read lighter things now, or once I finish the latest Jewish Review of Books), Torah study. I did some Talmud study for the first time in some weeks, which was positive. I napped in the afternoon, which was not good, but I didn’t sleep for as long as I have been doing recently, and I did at least feel refreshed on waking.

***

Frum (religious Jewish) therapist Elisheva Liss wrote on her blog:

But the essential purpose of life according to many Torah philosophers is to achieve spiritual pleasure through a connection to G-d and the world and our own sense of purpose. Pleasure, joy, love, connection- not exclusively, but predominantly.

I guess I find it hard to read that, when I struggle with alexithymia (difficulty identifying and understanding my own emotions). I often don’t know what I’m feeling, or only vaguely. Big emotions are easier to be aware of than small ones, and negative emotions are easier to identify than positive ones, sadly.

I think I get so confused about my attitude to Judaism because so often I don’t know what I feel about it, or only vaguely. I know I enjoy Shabbat; that when I went to shul on Rosh Hashanah, I experienced something positive; that studying Torah is easier some times than others (not just for external reasons like tiredness), indicating I like it more sometimes. But it’s often hard to notice these emotions, to really feel and understand them. Sometimes these feelings are more abstract, more thoughts in my head than emotions I experience.

It is especially hard to feel that God loves me, or that I love Him. It is hard to know that I love anyone sometimes. I worry sometimes that I don’t love my parents, or not “enough.” I still wonder if I really loved my grandparents, if I really grieved for them or if I really miss them the way other people feel these emotions. I once told E that I didn’t think I loved her as much as she loved me and that this was a failure on my part. She said she wasn’t interested in comparisons like that because love can’t be measured and what mattered was that she felt loved by me. This helped our relationship a lot, although I haven’t told her this before.

I feel that I might have more to say about this deep down, but I can’t access it now, because it’s late and because I’m feeling some kind of big negative emotion that I can’t identify or really understand (coincidentally; it’s not why I started writing this post). I’m going to do something relaxing and go to bed, I think.

Dilemmas

I have the Buridan’s Ass feeling of being caught between two writing projects. Strategically, the literary novel of character is probably the one to go for before the controversial satire, to build some kind of audience, and because it’s somewhat further ahead, but who knows which, if either, would be well-received? Anton Chekov said that medicine was his wife and literature his mistress and when he got bored of one, he went to the other. I’m not sure where that leaves me, with a part-time job, two unwritten embryo novels, one written-but-unpublished novel, various ongoing religious obligations and (last, but definitely not least) a long-distance relationship.

Of course, I have a written novel that I want to get published and today I got another rejection for that, so maybe I should prioritise getting that to lots of agents. Except that sending to agents isn’t fun, unlike thinking of ideas and writing.

***

A number of people on the autism forum seem to be struggling with constant fatigue and disturbed sleep (too much or too little), so I guess it’s not just me. Someone else on the forum sounded like me a few years ago, really lonely and wanting a girlfriend, but not knowing how to get one. I felt I should respond, but I didn’t know what to say, because the fact that I’m not still there is largely due to factors outside of my control, not things I can advise him to replicate. I guess his post also triggered my self-loathing, the feeling that I don’t deserve to be loved. When I went back to the site later to try to give some moral support, even if I couldn’t advise, the post seemed to have been deleted.

I am also getting a bit annoyed at the number of people on the forum who don’t choose a username and just stick with the serial number generated by the site when you join. It makes it hard to remember who is who when half the people just have a string of digits for a name. I understand why people might want anonymity (I think the site actually forbids the use of information that could identify you in real-life), but I prefer to talk to people, not numbers. It’s not that hard to think up a pseudonym.

The Great Journey of Life

We went out for dinner last night: me, my parents, my uncle (who was staying with us) and my sister and brother-in-law. Just before we left the house, the lights went out. We quickly ascertained that the whole road had lost power (actually, some of it hadn’t, weirdly, including the street lamp in front of the house, but most of it had). By the time we got to the restaurant, we realised that the whole area was out of power, including the restaurant, so we quickly made a reservation at the restaurant’s sister restaurant a couple of miles away. We had a good dinner, but, as usual, I spaced out at times, and lost my ability to concentrate properly before the end.

When we got home the power was back, which was good, as it turned out I couldn’t sleep, so I needed power to watch DVDs to try to unwind and to make hot chocolate. I don’t know why I couldn’t sleep. I probably needed more downtime to transition from peopling to sleep, but it could also have been caused by caffeine (I had a diet coke at the restaurant) or my recent work night insomnia or coming off olanzapine.

In the end I got two or three hours of sleep and somehow survived through a day of work today, although I fear I made even more mistakes than usual. I decided not to stay for Minchah and Ma’ariv (Afternoon and Evening Prayers) at the shul (synagogue), as I wanted to leave early, but J ended up staying later than usual and I didn’t want to ask to leave before him, so the benefit was fairly marginal. I got tired and very bored at work, but not really depressed, which is good, given my medication-reduction situation.

Speaking of work mistakes, I did post on an autism forum the other day about tips for managing executive function issues. I didn’t get many answers and I’m not sure how feasible the ones I did get are in my situation, other than write checklists, which I do, and still forget things.

***

I feel I need to say that I’m in love with E, as some blog readers apparently thought I was marrying her out of obligation or purely to have children. I would not advise anyone to do either of these two things. I’m not sure if I need to say this, but, just to reassure anyone else who is wondering, our relationship is built on a mixture of mutual love and care, trust, acceptance, shared values and outlooks, and chemistry/physical attraction. And joint Doctor Who viewing. But I’m not going to say more than that, as it’s private between the two of us.

***

I participated in a Zoom call from my shul about our proposed new premises. It was quite a lot of doom and gloom, and then a sort-of positive ending. It looks like I’ll have to stop going to my shul in a month or two’s time, as we’re losing our current premises without having any replacement until the autumn. Various alternative options are being considered, but I’m not sure any are ideal for someone with autistic overload and social anxiety issues. Then in six months, they hope to start using new premises. People are excited about this, but I feel like I am halfway out the community already and it isn’t a time for new beginnings. I need to decide if I want to stay a member for now (probably, for complicated reasons to do with the burial scheme).

As it’s clear that my current shul isn’t the right one for E, even if we live in this area, which is not likely, it does seem to accelerate my departure. I guess I’ll have to go to my parents’ shul in the meantime, which is not ideal, but I guess will get me used to going to a United Synagogue shul again (too much talking, too much cantorial and choral music).

The Hive Switch

I’m still reading The Righteous Mind: Why Good People are Divided by Politics and Religion by Jonathan Haidt. I had a bit of a paradigm shift reading it, which I think ties in to one I had a while back reading Rabbi Shagar. Haidt talks about people being 90% chimpanzee, 10% bee — not in a literal, biological sense, but that most of the time we are individuals who compete against each other (chimpanzee), but occasionally we can form a group that cooperates to compete against other groups (a bee hive). The competition doesn’t have to be violent, just in the evolutionary sense that we compete for resources.

Haidt talks about “The Hive Switch,” a metaphorical switch in our brains that can shift us rapidly from individual mode to group mode. Examples of things that can flick that switch include: ecstatic religious dancing (once common in every society except the individualist West); raves (the contemporary Western substitute); being in nature (I think similar what Freud termed the Oceanic Emotion, the awe on seeing nature); group singing; marching in formation with others; going to a political rally or protest; and taking hallucinogenic drugs. These things promote group identification, enhanced empathy for group insiders[1], improved morale, improved cooperation and increased willingness to die for comrades [2]. They are also connected with a religious sense of connection to the Infinite and intense love for everything.

(Incidentally, you can see here that the only contemporary Jewish movement really plugging into this is Hasidism, which has very much been about group singing, ecstatic dancing and alcohol (no hallucinogenic mushrooms in Poland or the Ukraine) since its origins in the eighteenth century, very much the return of the Jewish repressed, although even Yeshivish or Modern Orthodox weddings can get a bit like this.)

Reading this argument, I was struck by seeing two of my major struggles, as recorded in this blog, connected: my struggles to connect emotionally with God and my struggles to connect with other people. You can even locate the two at once in the ecstatic dancing in shul (synagogue) on Simchat Torah. I assumed that both problems were unrelated. My social struggles and anxiety often occur within the Jewish community, but I assumed that was simply because that is my main social environment. But Haidt suggests (although he doesn’t explicitly state it, so I could be wrong) that having experiential encounters with God/the Divine/the Infinite/whatever you want to call it is the same sort of thing as feeling accepted as part a group of people.

Now, I have had that Hive Switch flipped at times, but generally in ways that are hard to replicate. Paradoxically, I had it sometimes when in a period of suicidal depression, where I sort of got overwhelmed with how awful the world seemed and emotionally exhausted by my thoughts and feelings (and sometimes physically exhausted by anxious pacing or walking) then felt an intense feeling of God’s presence. One year I managed to get into Simchat Torah and really enjoyed the dancing (I’ve never worked out how I did that or how to replicate it). I have had it a bit with being in nature and maybe a tiny bit at pro-Israel rallies, although I usually feel out of place at any kind of political event, even if I agree with the platform. So it is possible to flip my Hive Switch, just very difficult. Incidentally, Haidt says the switch is an analogue slide switch rather than a binary on/off switch, meaning it’s possible to be a bit groupish and a bit individual; it’s not one or the other at a given time.

So this makes me wonder if autistic people, the mentally ill or maybe even all introverts have difficulty moving this switch along. I know that when my switch gets pushed, it sometimes encounters resistance. When I’m somewhere where people are bonding over shared political, religious or cultural views, a voice starts up in my head with opposing views (an extreme version of Rabbi Lord Sacks’ idea that the Jews are the question mark in the margin of the record of the conversation of mankind). I probably have some resistance to God too, which is probably a strange thing for a religious person to say, inasmuch as I’m resistant to miracle stories and proofs of God’s existence; for me, God has to exist alongside the Abyss, at least in this world.

The focus on awe in nature and very ‘real’ emotions reminded me of the essay My Faith: Faith in a Postmodern World by Rabbi Shagar (Rabbi Shimon Gershon Rosenberg), which I read over Sukkot and which had a powerful affect on me. I want to re-read it before I feel I fully understand it, but the main thing I took away from it was the idea of faith being experienced in what Rabbi Shagar terms ‘the Real.’ This is a term from Lacanian psychology, referring to the early stages of infancy, where the baby can not distinguish between different people and objects, but experiences the world as a sense of wholeness, not as separate objects. Not only that, but he doesn’t experience himself as a body or identity, but as “an amalgam of organs, energies, and urges.” Faith is rooted in experiencing the world as the Real and is about acceptance of the self, which is not narcissistic if accompanied by unity with God; or, alternatively, a creative search for meaning of one’s own. (I would have liked greater detail here.)[3]

I had been trying to live more in the moment, without really knowing how to do it. Then, when I read Rabbi Shagar’s essay, I started trying to note down if I felt myself to be living in the moment and experiencing absorption in the Real when doing anything, or if I feel any connection to God (my hypothesis being that if I experience God, then I’m in the Real even if I don’t know it). This is obviously hard to notice, because as soon as I notice it, I am coming out of it. I find it hard to experience it for more than a few moments and it is impossible for me to go into it deliberately. It’s also hard to tell if I’m really in the Real, so to speak, or if I feel I should be in there, or I want to be there, or I expect to be there. The easiest way to get there seems to be prayer or hitbodedut spontaneous prayer/meditation, but the connection only comes intermittently, maybe every few days, and often for no more than a few seconds. It doesn’t come so often with formal Torah study, but does happen sometimes (often on Shabbat evenings), when a creative interpretation of a passage of Torah, Midrash or Talmud suddenly comes to me even without formally studying the texts.

Being in the Real and flipping the Hive Switch seem to go together, although I’m not sure what is cause and what is effect yet. I would like to know how to trigger them both in myself, and whether I’m always going to struggle with that from autism, introversion, mental illness, personality or anything else.

[1] I think Haidt thinks that, contrary to what is often stated, groupishness doesn’t automatically lead to reduced empathy for outsiders, but I haven’t checked.

[2] Haidt’s argument is that soldiers in battle are willing to die primarily for the fellow soldiers in their unit, rather than nebulous ideas about nationalism or political ideology.

[3] Rabbi Adin Steinsaltz said something similar about the Talmudic statement about babies in the womb learning the whole Torah, which he understands as referring to experiencing God as a nurturing, undifferentiated whole.

***

Other than that, it’s been a fairly quiet couple of days. I somehow got up early yesterday and today. I went to bed early yesterday too, but I was very tired at work this morning. I submitted my manuscript (or the first ten pages of it) to another literary agent. It took me two hours to fill in the online submission form, but I guess it’s good experience even if I don’t get accepted. I do worry that the early parts of my novel (the bits agents ask to see) aren’t interesting enough to capture the attention of anyone not predisposed to like it.

I did various bits of chores and Torah study yesterday and today and I had work today. We had an audit of various valuables the organisation owns. If ever I wanted to see a demonstration that autism is not the same as introversion, it was this. J is typically quiet and introverted like me, but he had a long ‘small talk’ conversation with the external auditor, while I hardly said anything to her that wasn’t an answer to a direct question.

Grief and Love

I didn’t post yesterday because I was busy, but wasn’t having any particularly interesting, troubling or autistic-ey thoughts. I achieved quite a bit, but the sudden decision to go for a late afternoon run left me with an exercise headache and nausea for much of the evening. As a result, I went to bed late and I couldn’t sleep when I got there. I’m not sure why I seem to be struggling more with insomnia lately, albeit not to a huge extent.

At work today I was still making mistakes. Well, technically I made the mistakes previously and J told me about them today; hopefully I didn’t make any today, but it’s likely that I did. It’s like I can concentrate enough to do 80% of a task, but not 100%, and the bits I forget vary each time. It’s not a case of just reminding myself “Do X” because sometimes I remember X, but forget Y. I have to have five or six spreadsheets and databases open at once for some tasks, going from one to the other. I know what to do, but the multitasking aspect (not something autistic people are good at) leaves me confused and I forget what I came to a spreadsheet for and do the wrong thing, which then makes me forget the thing I should have done after the right thing. It’s an executive function issue. I don’t think I’ve fully persuaded my father that this is an autistic thing, so I definitely don’t feel able to tell J. Besides, if I can’t do this and I can’t do the Very Scary Task, it begins to look like I can’t do this job at all. My best answer for now is, instead of, or as well as, checking as I go along, wait until the end and go over the whole task from scratch, piece by piece, spreadsheet cell by spreadsheet cell. That would make it take much longer, but if it’s more accurate, it might be worth it.

This kind of concentration and multitasking issue makes me worried about learning to drive too, although I told E I would at least try to take some lessons at some point soon(ish). I should say I have high, and possibly irrational, anxiety of being in an accident and killing someone (being killed myself doesn’t bother me anywhere near as much).

By the afternoon I was feeling pretty overwhelmed again and near tears at one point. I’m not sure why. It’s not like J got angry at me, although he probably would have been justified in doing so. I just don’t like feeling incompetent, plus the more incompetent I feel, the less confident I feel that I will ever be able to earn enough money to help support a family or have the levels of emotional and practical competence needed to have children.

One thing I have been trying to do lately at work is to write down J’s instructions instead of trying to remember them. I think that is helpful. But if anyone has any tips or ideas for improving concentration and memory in the workplace or adjustments that might help, I’d be glad to hear them.

***

JYP has been writing about grief lately (latest post in the series here). It prompted some thoughts in me. I’m writing here because what I want to say seems too distant from the topic of her posts and I don’t want to take over the comments with my feelings or make it all about me.

I don’t know that I’ve ever really experienced grief for someone dying. I cried when my paternal grandmother died, the first time someone close to me had died, but I don’t think I did when any of my other grandparents died. Maybe when my maternal grandfather died, I’m not sure. When my paternal grandmother died, people told me not to bottle things up, but I didn’t have anything to say. I did tend to fall into episodes of depression or autistic burnout (it’s not always clear which in retrospect, and it could be both) after the deaths of grandparents, and I fell into a very deep depressive episode a few weeks after the death of my maternal grandfather, which involved a lot of crying for no apparent reason. Maybe it was just a delayed response.

I find it hard to put my feelings about my grandparents into words and I haven’t really spoken much about them in therapy. When my paternal grandfather died, the psychiatrist I was seeing rather brutally told me that I wasn’t close to him, because we didn’t have deep personal conversations. On that criterion, I’m not really close to anyone except my parents and E, and even those have only been in recent years (I share more with my parents now than I did as a teenager).

I wonder sometimes what I feel for my parents and my sister and how I would cope without them, not just in the practical sense (I do need a lot of help), but emotionally. It’s as hard for me to articulate love as it is grief. I instinctively feel that I would feel something if they weren’t there, but it’s hard to know what, or how I would cope. I worry that I would either shrug bereavement off unfeelingly or, conversely, get stuck in it for years.

A lot of this is probably due to alexithymia, the inability to feel and understand my own emotions. (I have never been ‘officially’ diagnosed with this, but one therapist did point out that I struggle with this even if she didn’t use the term.) A lot of the time I don’t know what I feel about things, even very broad things like if I’m happy or sad. It’s part of the reason I write here, to try to process my feelings better, or at least more consciously. It’s hard to know what I feel about my parents or my sister. I can see that there would be a hole in my life without them, but it’s hard to work out what I feel, let alone put it into words. I think this is a common autistic issue, but I’m not sure how other people deal with it. Perhaps some of them don’t care (I’ve met some autistic people who seem to be pretty uninterested in others.)

When I was with PIMOJ, I didn’t feel much of a ‘spark.’ I felt that I was finally experiencing a mature relationship without “crushing,” but the reality was that I didn’t feel much towards her, she just seemed a good match on paper. With E, I feel positive feelings when we Skype or even when we text, but it’s hard to analyse or quantify those feelings. Maybe I shouldn’t. Maybe they don’t need to be analysed. It’s hard not to, though, as I analyse everything (overthinking, you may have noticed). It’s kind of a calm feeling that I have with E, whereas my crushes were anxious feelings, constantly trying to work out if they liked me or how I could make myself more likeable/fanciable. However, it’s not too calm, as happened with PIMOJ, where I had to constantly remind myself why I liked her. There’s passion and desire with E, and playfulness, which is very rare for me.

OK, I’m going to stop now, as I’ve wandered very far from grief and into areas that are really between me and E and not the whole internet.

Success but Hollow Inside

I’ve only got a short time to write, but I wanted to write something and try to process my feelings about Rosh Hashanah (Jewish New Year).

The background to Rosh Hashanah was a mini-heatwave that hit us unexpectedly. I was expecting it to be pleasant, but it was uncomfortably hot, which had an impact on my mood throughout. The other background is that I had asked to sit in the covered area outdoors, by the window of the shul (synagogue), intended for people who were unwilling or unable to sit indoors because of COVID anxiety or reduced immunity. The acoustics at the window were bad and I spent a lot of my time at shul round the corner by the door, where I could hear and see what was going on rather better.

I don’t really remember much special about the first night in shul. I think I did feel pretty positive, despite the poor acoustics. At home we ate the simanim, special symbolic foods eaten to symbolise a good new year. We have only been doing this for a couple of years and it still has novelty value. Even though it was late, I did some Torah study after dinner, as I hadn’t done much during the day and felt that I wanted to connect to God. I struggled to sleep that night, whether from the heat or the mixed feelings I had being at shul, feeling I was missing out by being outside, but also feeling that I would have a lot of COVID anxiety inside.

I woke up early the next morning, but struggled to get up, I think because of social anxiety rather than burnout, although maybe a bit of both. I find it hard to accept social anxiety as a legitimate excuse for missing shul, even though it happens a lot. I got to shul in time for the sermon and the blowing of the shofar, the ram’s horn trumpet. Even though I was very late, I still stayed for another three hours until the end of the service; Rosh Hashanah services are very long. I slipped into the shul standing just inside the doorway to hear the shofar, otherwise staying outside except when I was asked to open the Ark for Alenu. I felt I couldn’t really turn it down as I had come in for the shofar, and I think it was an hour to be asked for that particular prayer (where we bow on the floor, something we only do here and on Yom Kippur).

I napped after lunch, then went to shul for Minchah (Afternoon Prayers) and then on to the brook for Tashlich, then came home. I was getting a headache, which I managed to stop turning into a massive migraine with early intervention, but I felt drained and justified in my decision not to go back for Ma’ariv (Evening Prayers).

I didn’t sleep well again and I struggled to get up in the morning. I had the “flat battery” feeling where I just don’t have the energy to sit up, let alone get dressed and go to shul. I eventually managed to get up around lunchtime. I was upset to have missed shul, but not surprised to be so burnt out. I was too burnt out to catch up on prayers and I didn’t want to delay my parents’ lunch.

After lunch I was still tired, so I napped again before saying the Mussaf prayers. I read the Jewish Review of Books for a bit, then went to shul for Minchah. I somehow found the confidence to tell the rabbi I had missed the morning prayers and the shofar blowing and he arranged for someone to blow it for me before Minchah started. I was pleased, and surprised that I found the confidence to do it, but I felt so socially anxious about drawing attention to myself asking for this that I struggled to focus on the shofar, and later on the prayers for Minchah. I decided I did not have the energy left for the shiur (religious class) and Ma’ariv, so I went home.

J left the same time as I did and said he didn’t see me in the morning and asked if I was OK. I said I’d been unwell, but was OK now; I didn’t want to go into a big thing about autistic burnout in the street. He said if I’m unwell tomorrow not to force myself to come into work, which was nice.

On the whole Rosh Hashanah must be a success, as I got to shul quite a bit and heard the shofar both days. However, I feel kind of hollow and down now and I don’t know why. Some of it is lack of passive relaxation time or alone time. I’ve spent most of my waking hours the last two days with other people, at shul or at home. Beyond this, I suppose I just wonder if I’ll ever get back to being the person who can go to every single service and shiur during the festival.

I suppose I also always focus on the next goal rather than the one just completed. There’s a story about a Hasidic rabbi (I think the Maggid of Mezeritch; I don’t have time to check) who was asked by a Hasid why, whenever he tried to move closer to God, God seemed as far away as ever. The Maggid said that it’s like a father with a toddler. The father calls the child to him, who takes a few faltering steps towards him, but as he gets near, the father moves a few steps away and calls him again, and so on. This is frustrating for the child, but is how he learns to walk. Similarly, God moves further and further away to call us towards Him, but I don’t know how to deal with the lack of self-esteem that results from feeling I have not reached God and am as far away as ever.

I actually spent a lot of time over Rosh Hashanah thinking about what it would mean to accept that God loves me. I’m not sure I came to any great conclusions. I find it easier to see God as punitive than loving, at least towards me, and I’m not sure why or how to change that. I don’t see God as punitive in an abstract, theological sense, or towards other people, but I find it hard to believe He could love me unconditionally.

The other thing I thought about a bit over Yom Tov was abuse (child abuse, get withholding etc.) in the Jewish community. It’s been in the news again lately. I wonder how God can forgive us while it goes on. There isn’t really anything I can do about it, except write about it, which makes me want to get my novel published. On which note, a book I’d ordered, a guide to publishers, editors and literary agents, arrived today, which may help me to plan my next step.

OK, I’m off to get ready for tomorrow, and to see if I can have something to eat and fit in Midweek Twin Peaks before bed.

“Such a lonely little boy. Lonely then and lonelier now. How can you bear it?”

(Title quote from Doctor Who: The Girl in the Fireplace by Steven Moffat)

I went to bed late last night, nearly 2.00am, but it took me three quarters of an hour or more to fall asleep. I had a blog post I read echoing in my head; there were things I wanted to say in response, but it was too late, and I wasn’t sure if I would dare to post the comment anyway. I was tired, but it got too late for me to watch TV or otherwise relax before bed, which always makes it hard for me to sleep. Possibly I’d been online too late as well, with the laptop light waking me up. I was in the difficult state of being very tired, but not sleepy, or not falling asleep.

Somehow, I still managed to get up at 9.00am today. I’m not sure how I managed that, but I felt lonely and a bit on edge. I was on the verge of tears while davening Shacharit (saying Morning Prayers) and again while doing Torah study in the afternoon. I don’t know why. I just feel lonely. I am at least trying to do what my therapist suggested and “stay in the present” with my loneliness and just experience it for what it is, rather than slide down into anxiety (“Will I ever meet the right person?”), shame (“Who else is a virgin at thirty-seven?!”) and self-loathing despair (“No one would ever marry someone as messed up as me! I’m going to die alone and unloved!”).

I tried to write the article on Asperger’s Syndrome in the frum (religious Jewish) community that I want to pitch to Aish. It’s been a struggle. I keep thinking that it’s too factual, too boring. Not enough personal anecdotes. Too dry. Too many details, zero inspiration, for a site that aspires to be spiritually inspiring. Why would anyone who doesn’t know me want to read about why I struggle with the workplace, shul (synagogue) or dating? But, I go on. I try to write short, active sentences rather than over-long, passive ones (bad habits I have). I spent a couple of hours on the article and wrote a first draft (just under 1,500 words). It will need more work before I try to pitch it.

I wonder if I’m doomed to be a compulsive writer, but a writer only of things that other people don’t want to read. Now I’m back to David Bowie’s comment that, “The worst thing that God can do to you is to make you an artist, but a mediocre artist.” I worry that my style is dreary Victorian, like Dickens without the irony and humour.

***

I did try to stay in the present with my loneliness, and I did succeed, at least a bit. I tried to tell myself that loneliness is just an emotion. That it doesn’t mean anything. That if I can cope with migraine pain, I can cope with loneliness pain. But while out running, I began to wonder:

“I wouldn’t mind if I have to be lonely forever, if I could just know why I have to be lonely forever!”

But you know why you’re lonely.

“Why?”

Because you have a neurological disorder that impairs your communication and a mental illness that makes you avoid social situations, so it’s pretty much impossible for you to meet anyone or successfully talk to her. Duh.

“I meant more like the metaphysical reason for my loneliness. Why me, why now, why this?”

But there are no answers to those questions in this world. Honestly, you’re really not the worst example of the problem of suffering out there! Get over yourself! You’re like the Not the Nine O’Clock News sketch where Rowan Atkinson keeps taking the question of why God allows suffering to why he cut his finger when opening a tin of food for the neighbour’s cat!

“Can’t I just have a hint? Something to keep me going for the next thirty lonely years? Or won’t I be lonely forever? I mean, out of seven billion people in the world, one of them’s got to be right for me?”

Yes, except that once you narrow it down to those who are (a) female, (b) Jewish, (c) the right age, (d) single, (e) have a vaguely compatible hashkafah (religious outlook), and (f) have a life situation that makes it vaguely possible for you to meet her, you’re down to a few thousand people even before you talk about chemistry, personality and values. Or whether she would ever like you in a million years.

“A lot of help you are.”

Look, if you’ve been miserable and lonely for this long, maybe you just couldn’t cope with love and happiness. Maybe it’s just not for people like you.

“‘People like me’?”

Weirdo freaks.

“Some help you are. Whose unconscious are you anyway?”

***

After I went for a run, my mood dropped quite a bit. I hoped eating dinner would help, but it didn’t really. I watched some TV. I’m in the middle of three different things right now. My Babylon 5 re-watch reached season four, which is good, but really dark and I need something to break up the gloom. I bought the first season of The Simpsons, I’m not entirely sure why, but I’d forgotten it’s not as funny as later seasons. And I also just started re-watching the first thirteen episodes of Doctor Who, from 1963-64. I’m rationing myself to just one twenty-five minute episode a night. I hadn’t watched much Doctor Who lately and I’m sufficiently addicted not to be able to go too long without it. I find the original run of Doctor Who (1963-1989) to be calming and involving whatever my mood, the way most autistic special interests are for people on the spectrum.

I feel I ought to read more. I actually read quite a bit, but it’s hard when my mood is low. I tend to prioritise Torah study over recreational reading, even though, as an aspiring writer, I need to read fiction. I used to read novels on the way home from work, but I can’t at the moment as J is giving me a lift. I do Torah study on the way in and don’t want to stop that. I read when I have lunch and sometimes before bed, depending on how depressed I feel. Lately it’s hard to care about what I read or to really get involved in a book. I did get a bit involved in Vampire Romance. Homage to Catalonia is interesting when talking about the realities of life on the front-line in The Spanish Civil War, less so when talking about the politics. I can’t think of much else I’ve got involved in lately. It’s just hard to get energy to read for fun when I use up my energy on work, exercise, Torah study, writing…

I think that’s probably a lot of ‘shoulds’ for something that’s supposed to be fun. Should should should. I think I run my life around shoulds.

***

Overall it was a busy day (a significant chunk of writing, Torah study, a 5K run and cooking some plain pasta for dinner), and I think I was less obsessed with loneliness/anxiety than recently but my mood did definitely get lower as the day went on, and it wasn’t that great to start with.

Sometimes I wonder whether I would be happier with a partner. Maybe I’ve been alone in my thoughts for so long that no one else can reach me. Maybe. I don’t know. I think I’d like someone to try. But I’m conscious that I ended two relationships in the lockdown year-and-a-bit, and while I think both were the right decision, I wonder if I’ve become scared of what a relationship would be like. It’s hard to tell, as mine have mostly been atypical in different ways.

“Too many people preaching practices/Don’t let them tell you what you want to be”

It’s always difficult in the summer when Shabbat (the Sabbath) goes out late. By the time I’ve davened Ma’ariv (said Evening Prayers), helped tidy up at home (and at shul (synagogue), if I went there for Ma’ariv) and ploughed through the emails and blog posts that built up in the last 25+ hours, it’s very late, but I need to write or things will buzz around my head and I won’t sleep. I’ll try to be brief.

***

I spent much of Shabbat worrying about whether I will ever get married. This was despite my therapist saying I should try to stay in the present and not worry about things like whether I will ever get married. I’m not sure if this was a “don’t think of pink elephants” thing, where saying what not to think about brings it to mind, or if it was just a product of being told by the Intimate Judaism sex therapist that she would try to find an autism-friendly shadchan (matchmaker) for me and trying to work through what that would mean for me. To be honest, having just re-read the email, I’m not even sure if that’s what she said she is going to do. It was a bit ambiguous. So I don’t know where that leaves me. Except that I still feel lonely.

I’m pretty sure I want a wife and children, but I still don’t know (a) how to make that happen and (b) whether I could cope with the sacrifices, noise and confusion that relationships and especially children entail, particularly for someone on the autism spectrum. However, I don’t know how to find out without actually getting married and having children.

***

I slept too much again. I did a fair bit of Torah study, but not much else except eat and pray. This means I feel too awake now. I thought my long nap in the afternoon had made me late for shul (synagogue), which was a bit of a relief for my social anxiety, as I felt I wouldn’t be called up to do anything in the service, but shul was at 6.15pm rather than 6.00pm and I was early. I got given petecha (opening the Ark to take the Torah scroll out and put it back). I fumbled my way through it, as I’m not sure how it’s supposed to be done in a COVID world — the shul changed the procedure so that fewer people touch the Torah scroll now for hygiene reasons. I’m not sure I did it right, but no one told me I was doing it wrong (which has happened before, pre-COVID), so hopefully I was OK.

I had a weird idea in shul to change my kippah (skullcap). I wear a large white, crochet kippah on Shabbat. These are associated with Modern Orthodox and especially Religious Zionist communities, while black suede or velvet ones are more associated with Haredi (ultra-Orthodox) communities like mine. I don’t wear my kippah for any of those reasons, but simply because I like it, but maybe it’s worth wearing a black suede one to fit in (I do have one somewhere; I have a stack of twenty-odd kippot in my wardrobe; they just accumulate over time). Of course, if I go down this route, I’ll have to wear white shirts on Shabbat and coloured for work, which is the reverse of what I currently do. Changing things to fit in is conformist and desperate, but maybe that’s what I need to do to be accepted (let alone married off).

***

I had another idea over Shabbat, which was to try to write an article on being an Aspie in the frum (religious Jewish) community to raise the issues. I would like to get it published somewhere like Aish.com where they will pay me for it. The money is less important than the recognition of being published, and trying to raise my profile in the community, as well as it being a prominent platform to raise the issue. If all else fails, I could try Hevria again, but (a) I’d rather look somewhere more mainstream and prominent and (b) I kind of lost touch with the Hevria people (it’s a long story and one I don’t want to go into). The site seems a bit dead these days anyway.

I’m off work next week, so I have an opportunity to write it. On the downside, Aish have published stuff on autism before, although not so much on life in the frum community (a little surprisingly) and none for a couple of years, so maybe I’ll be accepted. Ideally I should pitch the article before I write it, but I don’t trust myself to write from scratch in time; this way if I don’t like what I write, I can just forget about it rather than being committed to writing something.

***

Well, I think that’s the essence of this last Shabbat. I’m trying to stay positive, but it’s hard, and a lot of the time I just feel like I want to curl up and sleep to get away from my thoughts. I’m going to watch Doctor Who and go to bed, I think.

Dating to the Right and Left

I should say that “right” and “left” here refer to more or less traditionalist Jewish rather than politically right and left.

Yesterday my therapist encouraged me to stay in the present, to think about being able to succeed in my current job rather than worrying about my future career and to try to build a connection with someone rather than worrying about marriage. This is easier said than done. She suggested I “check in” with myself every few hours (I decided on every four hours) to see if I am staying in the present. I am not doing very well. Worries about marriage kept surfacing.

Early this morning I was thinking about a Jewish idea — possibly a popular spirituality idea rather than something in major primary sources; certainly I don’t think I’ve seen it there, but I’ve seen it on popular sites like Aish.com — that you have everything you need for your mission on earth. This is problematic when you think about people who lack the basics of life (historically, many important rabbis lived in extreme poverty at one point in their lives e.g. Hillel, Rabbi Akiva and others). Fortunately, my parents are supporting me financially, but, if I have everything I need, why do I feel such a need to give and receive love? It is a basic human need and I can’t pretend I don’t feel it. Maybe I need the need, but still, I don’t know what to do with it.

On the way to work, I was overtaken by hordes of Haredi (ultra-Orthodox Jewish) primary school-aged girls on scooters, going to school. I see them every time I go to work. I found myself wondering where they would be in ten years time, how many would still be in the Haredi community and how many would be married. Statistically speaking, the answer to both questions is “Most of them.” The retention rate is much higher in the Haredi world than the Modern Orthodox one, and early marriage is the norm.

Thinking about the Haredi community and its higher retention rate, I found myself wondering if I should be looking for a moderate Haredi spouse. After all, I go to a moderate Haredi shul (synagogue) and have some friends there. I can, apparently, “pass” on a basic level, even if I’m not a complete match for the ideology, and even if I worry a lot about being caught out. I feel a bit like I may not get the choice, as there are not many frum (religious) young people in the Modern Orthodox (United Synagogue) community in the UK, while the Haredi community is booming, and is younger (thanks to a high birth rate and high retention rate). There is also a tendency in my family for the men to marry “up” religiously and the women to marry “down” i.e. more religious women marrying less religious men. My previous girlfriends have mostly been less religious. Maybe that’s where I’ve been going wrong?

That would involve being set up on dates with Haredi women. The sex therapist from Intimate Judaism who responded to my email the other day offered to try to find a shadchan (matchmaker) specialising in people with “issues” for me. I’m not sure that she’s going to be able to do so, as I tried to find one myself some years ago, without success. But if she does manage it, I would imagine they would be more to the Haredi end of the spectrum, as shidduch dating (arranged dating) is more common there. So, again, that might push me in that direction.

Nevertheless, there is an issue here, which is my reliance on Doctor Who and other British TV science fiction as a coping mechanism as an autistic special interest and a coping mechanism for life stress. This is a bit weird even in the Modern Orthodox world (my Modern Orthodox rabbi mentor doesn’t even have a TV) and in the Haredi world TV is viewed with suspicion and even people who have one tend to keep it hidden. Being so into a TV programme (bear in mind I have even written and self-published a book on Doctor Who, for love rather than money) — well, it’s weird and geeky even in the secular world, let alone the Haredi world. I fear it would be a deal-breaker for many Haredi women and maybe even some Modern Orthodox ones.

I thought about the other obstacle I have to frum marriage, the fact I haven’t been to yeshiva (rabbinical seminary). Realistically, not going was probably the right decision for me, although if I hadn’t been in the depths of despair, a gap year after university instead of before might have worked. I worry about not being attractive to frum women by not being able to study Talmud, and potentially teach it to my children.

My parents think that I’m a good person and should therefore find a good wife, sooner or later. I’m not strongly convinced that I’m a good person (I think it’s more that lots of other people are subpar, and society is OK with that), but I worry that the type of woman I’m looking for will be looking for a good Jew rather than a good person, and that I’m not a good Jew because of my problems studying Talmud. I don’t think a frum woman would be faced with a choice between me and a bad person, but between me and an equally good person who can also study Talmud. This pushes me to date more non-frum women who wouldn’t care about Talmud studying ability, despite the problems I’ve had there. Then again, I could also say that a woman (frum or otherwise) would be faced with a choice between me and an equally good person who doesn’t have a shedload of other “issues.”

Which brings me back to the “special needs” shadchan. I haven’t tried this, but I worry that I would not be set up with the right sort of women. My one brief attempt at dating with a shadchan ended badly when, possibly because I had mentioned my depression and autism, she set me up with someone with learning disabilities who simply was not on my intellectual level. Admittedly, it didn’t help that there was zero chemistry between us, but I do wonder what would happen if I go down this route. Asperger’s is frustrating as it can involve being extremely intelligent and functional in academic areas, but absolutely not functional in basic social skills, which doesn’t make finding a compatible partner any easier.

So, for a day when I was supposed to be in the present and not worrying about my future, I was worrying a lot about my future. It didn’t help that work was quite slow. The morning was OK, but the afternoon was largely spent on fairly mindless work that left my brain free to worry about things. Being at work probably didn’t help, as I couldn’t really write things down to get them out of my brain until I got home. I’m going to post now, rather than before I get ready for bed as I usually do, to see if that helps me get rid of the thoughts and lets me sit in the present more this evening.

Also, the Talmud thing is a big issue for me (you may have noticed…), not just with dating, but with self-esteem and social conformity generally, and I don’t know what to do about it. Actually studying Talmud (the obvious solution) doesn’t work as I struggle so much with it. I’ve tried all kinds of different ways: different types of classes, chevruta (one-to-one) study, private study, all without success (actually, I did have some success with the LSJS class, but that was years ago and it hasn’t run since). I’ve been told it’s not an issue and I shouldn’t worry about it, but it seems like a big thing to me. I don’t know how to fit in comfortably to the frum community, whether looking for friends, community or a wife, without it. But my brain seems not to have been designed for Talmud study and now lacks the plasticity to learn.

Shul, and the Terrible Allure of Pity Parties

My mood over Shabbat (the Sabbath) was not as low as I feared, although it did dip at times. Friday night was mostly OK. I went to shul (synagogue) and we did Kabbalat Shabbat outside as normal so we could sing. I overslept this morning also as normal and dozed for a bit after lunch too, which made me late for shul for Minchah (Afternoon Prayers). This is awkward, as we were praying outdoors again and the only way to get to the seats was to walk in front of the makeshift bimah (the table where the service is led from), which isn’t really consider the proper shul etiquette. Also, the only seat free was right down the front, which increased my feeling of being painfully conspicuous.

Social anxiety plays a big part in my oversleeping on Shabbat. I haven’t been to shul for Shacharit (Morning Prayers) more than a few times in the last couple of years, and I’m sure I oversleep because if I wake up, I have to confront my social anxiety about going. Similarly, I struggled with social anxiety again this afternoon. Some of it is probably feeling I don’t fit in to my shul, but a lot of it is fear of getting an aliyah (being called to say the blessings over the Torah or otherwise get involved with the Torah reading), which is why I don’t get it on Friday nights to anything like the same extent. I’ve had an aliyah loads of times, but I still worry about it. I get flustered and do the wrong things, I worry I will start shaking and I generally feel conspicuous. I really don’t like it, but it’s considered an honour and you can’t really decline it.

I sat through Talmud shiur although I’m not sure how much I understood, even having prepared on Friday night. By the time I got home, I was getting a headache; I did a little Torah study and read a bit (Vampire Romance is a novella included in Anno Dracula 1918: The Bloody Red Baron — if The Bloody Red Baron is “Biggles with vampires,” Vampire Romance is a blend of P. G. Wodehouse and Agatha Christie with vampires, and it’s a lot more fun). Eventually my headache got too bad to read, although it responded quickly to medication after Shabbat.

Something that was at the back of mind, and sometimes at the front (where it shouldn’t have been) during Shabbat was my idea to email the Intimate Judaism people to speak to them about my circumstances and see if they have any suggestions. I do want to formulate one or two actual questions; I don’t want to just write a self-pitying email. I don’t think anyone still reading this used to read my comments on Hevria.com, but I used to write these enormous “pity party” comments about my depression, social anxiety and loneliness (I can’t remember whether autism was on my radar at the time). The silly thing was that I used to convince myself that they were relevant and responding to the articles in a meaningful way. I honestly don’t know why I didn’t get banned from the site. Eventually I started this blog and drifted away from Hevria for various reasons. Anyway, I don’t want to do that again, tempting though it is to just offload my issues on people (which I suppose I do here).

(I Don’t Believe In) Modern Love

I thought I would be very burnt out today after such a busy day yesterday and I was more or less right. I think I’ve been somewhat more optimistic since my autism diagnosis (which was less than two months ago, so quite fresh, even if I’d thought I was on the spectrum for years), but today I feel in “No one could ever love me, or if she could, I wouldn’t know how to meet her” mode. I’m not that hopeful about my novel either after the freelance editor I sent the first chapter to sent me feedback. She was reasonably positive, although she felt the type of editing I need was too far outside her experience for her to accept the work, which is fair enough. She did mention something E said on the early chapters she saw, though, about feeling too distant from the action, as if it was autobiography, telling rather than showing as E put it. There is an autobiographical element to the novel, but I didn’t want it to feel like that. So that’s one thing to think about for the next redraft, which will have to be quite drastic. I do feel that the parts that seemed to flow best and felt most engaging when I was writing them (if that proves anything about how things read) were the small bits of action, which is part of what is pushing me to genre fiction next time (“next time”!). I’m not sure what to do now though. The thought of going through the manuscript and doing a total, line-by-line rewrite is quite daunting, even if I had confidence in my ability to “show, don’t tell” the story, which at this stage, I don’t have. Maybe this is why Kafka hardly finished anything.

I actually had a dream related to writing anxiety last night. In the dream I was putting stuff online about what happened with the first woman I asked out (I asked her out; she said no; I stupidly didn’t stop off-loading my depressive thoughts on her; she panicked when I got suicidal and cut off all contact with me) and she understandably got annoyed. I’m not surprised I dreamt this, as I’ve been wondering whether it was a good idea to use that experience in the novel. I don’t know if she would recognise what happened between us in the novel (it was a long time ago and I have tried to fictionalise it somewhat) if she ever read it, but I do feel nervous about that sometimes. I know they (they = people who speak about writing) say to write what you know and I know some authors draw more heavily from their own experience than others, but I worry about crossing a line, although the reality is that even if I get published, she probably won’t read it. Last I heard, she doesn’t even live in this country any more.

***

After my post yesterday, I found myself wondering why I think about sex so much. Someone (I haven’t been able to source the quotation) said that “Sex is like water: if you have it, you don’t think about it; if you haven’t got it, you can’t think about anyone else.” To be honest, with me it’s probably a shorthand for love, intimacy, closeness and the absence of loneliness rather than just sex. Possibly it’s a shorthand for those things because the idea of touch is very difficult for me, on the spectrum: it can be very good, but often is very uncomfortable, even with people I love, like my parents. So the thought of someone I feel completely comfortable with touching me is very powerful and also very elusive and tied to ideas about trust and intimacy (especially as my first girlfriend rather trampled on my boundaries about touch).

In a low, burnt out mood this morning, I found myself wondering if I made a mistake in breaking up with PIMOJ and even if I made a mistake in breaking up with E last year (she tried to get back with me a while back, which I don’t think is a good idea rationally, but has a certain amount of emotional appeal). It’s hard to avoid feeling that I didn’t make a mistake in one of those breakups. It’s also easy to start thinking that I’ll be alone forever. I suppose the trick is just not to think about love and relationships and focus my attention elsewhere (where?).

***

Inasmuch as I did anything today, it was a chore day, as usual for a Friday. I did my usual Shabbat (Sabbath) chores; sorted out my desk drawer, which gets into a mess as I just shove stuff in it to keep my desk clear; phoned the GP’s surgery to request the form for my next lithium blood test (more NHS bureaucracy and I spent ages on hold); and went for a walk. During the walk, my mood, which had been OKish, mostly just tired, dropped quite a bit into “My life is never going to come together” mode, which makes me a bit nervous about my mood going through Shabbat.

My shul (synagogue) is bringing in Shabbat early during summer, so I won’t get time to look at this week’s Talmud page before Shabbat. I’ll try to look at it tonight, but I suspect I’ll be too tired to make much of it. I feel bad that the shiur (class) has only been going one week and I’m already slipping in my desire to look over it once before the shiur and revise it once afterwards.

Love and Autism

For those of you who don’t know, I broke up with PIMOJ yesterday. I think it was the right thing to do, but that doesn’t mean I don’t feel sad, or guilty about making her feel sad. I wanted to let myself sleep in this morning, but got woken just after 9am by an alarm I forgot to switch off (how can my phone alarms not wake me when I want to wake up and wake me when I don’t?). I tried to go back to sleep, but found myself thinking, “Macbeth hath murdered sleep, so Glamis shall sleep no more, Cawdor shall sleep no more.” (Yes, I did Macbeth for GCSE.) Then, a few minutes later, “Yet each man kills the thing he loves/By all let this be heard/Some do it withering look some with a flattering word/The coward does it with a kiss/The brave man with a sword.” (Quoting from memory. I’m not usually this literate first thing in the morning.) I guess there will be some guilt and processing for a while.

I cried a bit while davening Shacharit (saying Morning Prayers) this morning. I guess it was a release. The tears, I mean.

I can’t really complain. I got what I wanted when I went on JDate, which was to alleviate my loneliness and practise my social skills by being in a relationship for a while, one which might have progressed further, even if, in the event, it didn’t. I wasn’t looking to get married quickly, the way Orthodox Jews are supposed to do, so maybe it’s not a surprise that it didn’t last.

It’s funny, I’ve never been comfortable with the concept of “chemistry.” For years, I’ve felt guilty that I “click” with some people (I’m talking as friends, not necessarily romantically) and connect with them easily, and don’t “click” with other people. And I beat my self up about that. Sometimes the non-clicking ones turn out to be better friends in the long run. But I think chemistry is real and there’s only so far you can struggle against it, particularly in romantic relationships, and PIMOJ and I didn’t have the chemistry, among other issues.

I’ve been worrying about whether I could really love someone. I think that some of the reasons I broke up with PIMOJ would apply in any relationship, or most relationships. I think I probably could love someone, but it would have to be a special person who was willing to let me love her in my own way, and so far I haven’t met her.

I do wonder if I can express love a way someone else can accept. I don’t feel I express love strongly to my parents or my sister and I feel my relationships with my friends are somewhat distant. I tend not to miss people strongly when I don’t see them or want to catch up, but there I some people I like thinking about and I suppose I’m glad they’re alive — or that they lived, in the case of my grandparents. I’m trying to find words for feelings that I can’t really describe… I’m not sure if this is love or not.

I think I express love mostly by listening, by being there for someone else with issues. I did that for my first two girlfriends, but PIMOJ didn’t have many issues and I think she believed that women shouldn’t “burden” their boyfriends/husbands with their issues, which is not how I see it.

I don’t really express friendship overtly with friends at all, except by being open to listen to them, but this is less of a visible thing, as we live in a culture where men don’t really express their friendship very overtly.

There is the idea of love languages, that people express love primarily either through words of affirmation (praise), acts of service (doing things to help), giving gifts, spending quality time together or by physical touch. PIMOJ was a gift giver and I have all sorts of little things she gave me and which I didn’t quite know what to do with when we were together, let alone now. I probably express love for my parents and sister by spending time with them, although I do have to tell myself consciously to do so. At least Shabbat is a time to spend with family, particularly as I’ve lived with my parents for so long.

Touch is important too, but it complicated in general by autism (I am sensitive to touch and shied away from it for a long time) and, in romantic relationships, by the Jewish laws of shomer negiah, not touching people of the opposite sex, aside from close family. This has made touch in relationships fraught with guilt and difficulty for me. PIMOJ noticed my discomfort hugging, but thought it was about me feeling uncomfortable with the relationship, rather than with the concept of hugging. She didn’t come from the frum (religious Jewish) community and I think didn’t realise how guilt-inducing touch can be to frum people.

Related to this, a couple of years ago, the BBC made a very good (surprisingly good) documentary series on Mrs Thatcher and her government (Thatcher: A Very British Revolution – worth checking out if it’s online if you’re interested in politics or history). The first episode focused on her personality and I found myself wondering if she was on the autism spectrum (with all the usual caveats about “diagnosing” a dead person in absentia). She had a very logical and analytical mind (she was a research chemist and then a lawyer before going into politics, two jobs requiring logic and analysis). She saw the world in a very binary, black-and-white, with-me-or-against me way and couldn’t really accept that people who disagreed with her were acting in good faith. She didn’t have much of sense of humour, at least according to her speechwriters, who say she didn’t get the jokes they wrote for her. She didn’t express much emotion and (this was the bit that really interested me) her children said that she didn’t tell them she loved them or express it physically very much, they just knew it from the way she looked at them. It all sounded a bit autistic to me.

I wonder if my parents would say the same thing about me, that they know I love them from how I look or something else a bit distant. I worry that that would be how I would be with a wife and children.

***

Therapy was difficult, but good. I spoke about the breakup, but also about my autism diagnosis making me revise my view of myself and my life and that maybe it’s good, post-breakup, that I have time and space to learn to be myself. I also spoke about feeling a sense of agency from having realised that my life was not working, having seen autism as a possible explanation for this despite having been told otherwise, then researching and fighting for the diagnosis and finally getting it and now beginning to understand myself.

I didn’t do much other than therapy today. OK, that’s not quite true: I did a bit of Torah study and went walking and shopping. And I changed the time of my dentist appointment in May – a trivial task but it took nearly a dozen phone calls to do it, as the number was consistently engaged, went straight to answerphone or, on one occasion, I got through only to suddenly and mysteriously get cut off. It would seem dentists are much in demand post-lockdown.

Therapy was tiring and I didn’t do much afterwards. I gave myself time off after my breakup and spent time watching TV (Babylon 5: War Without End); I intend to follow up with The Simpsons (I’m only going to have Disney+ for another fortnight or so, so I might as well watch it) and maybe read for a bit. Oh, and I ate ice cream, because I broke up and it’s what you do if you break up, albeit classically watching rom coms rather than Babylon 5.

***

I’m wondering what to do with my novel again. I have an friend (email friend, I’ve never met her) who writes and edits professionally. I asked her a while back if she would be willing to read it. I meant it in a casual way, like would she glance over it, but she said she would write and edit it professionally, but I would have to wait until after Pesach (Passover). Pesach is now gone and I haven’t been back in touch. Partly I’m scared to show anyone my writing, partly I made a faux pas when I asked her, not talking about payment, but now have no idea how much to pay (typical Englishman, I don’t want to talk about money), but also I worry it would be straining the relationship, which is friendly, but not close. So now I’m wondering about other options. I don’t really need much in the way of proofreading, I just want someone to read the story and tell me if they like it, if the story is interesting and flows, and how rounded the characters are. Hmm.

Angst In My Pants

I still feel that I’m wilting in the heat.  It was hard to do anything again today.  The weather is predicted to be in the thirties (Celsius) until Wednesday, getting hotter every day until Thursday, then cooler, but with thunderstorms for the rest of the week, so I don’t think I’ll be exercising much this week.  I hope to go for a walk after dinner, if it’s a bit cooler than it is now.

***

I finished the job application I was writing.  I don’t know why the trend seems to be to ask for character references for time spent unemployed.  I could understand asking for character references if you’ve never worked, but I don’t know why they want character references for time between jobs.  I gave my rabbi, but technically he’s only known me for two years.  I feel it just draws attention to the fact that I’ve been out of work so much.

I found myself thinking about things I’ve done wrong at work, and job applications that I felt were not brilliant.  Somehow I feel that I struggle to demonstrate that I’ve got particular skills or had particular experiences even when I have had them.  There may be an autistic issue of looking at things a particular way and struggling to reframe my experiences to meet the demands of the application.  Sometimes talking to my parents helps with this, but I feel bad for needing help with applications.

***

I’m also feeling depressed (not quite the right word, but down and frustrated) that the only women I’ve been able to build a relationship with are women who also have “issues.”  That’s not a problem in itself, but it can create a situation where we both have issues and the relationship doesn’t work because of that.  Although sometimes they can’t cope with my issues, while expecting me to cope with theirs, which is not fair.

I feel that I want to be in a serious relationship, one that could lead to marriage one day, but that isn’t rushing towards it in the short-term.  Not involving sex (I’m not sure what I feel about hugging and hand holding), but close and emotionally connected.  The problem is that in the frum (religious Jewish) world, this type of relationship doesn’t really exist.  The focus is more on going out and deciding in the space of relatively few dates if you are right for each other and then getting married quickly.  I doubt that I could cope with being married at the moment, especially if I would be expected to have children soon after, as I would be in the frum community.  I want to have children some day, but I don’t know if I’ll ever be ready for that responsibility, emotionally or financially.  That’s another reason not to marry, as from a halakhic (Jewish legal) point of view, using birth control indefinitely without having any children is problematic.

I don’t really want to date non-religious women, because, for all my problems with the frum world, I can’t see my life being compatible with someone who doesn’t keep the basics, and I doubt a non-religious woman would want a long-term non-physical relationship.  I suppose in the more Modern Orthodox world I might find someone who wanted a slower-moving relationship, although even there the trend seems to be going towards faster dating, but I suspect by the time they get to my age, most of those women are looking to marry and have children too.  Anyway, I don’t know how to meet such a person.  Maybe on JDate, but online dating hasn’t always worked out well for me.

The idea that “dating is for marriage (and happens very quickly)” is so pervasive in the frum world that I feel guilty for even thinking that I want to date towards marriage, but slower than most.  It feels almost as if I wanted to be promiscuous, which must sound strange to outsiders.  That said, you might be surprised how many frum women I’ve met who are not sure if they want children, or are certain that they don’t.  So clearly there are other people who don’t fit the mould.

Of course, I can’t see many women wanting much to do with a man with poor employment prospects, depression, social anxiety and autism, so maybe all this is a pointless train of thought anyway.

***

The reverse side of this is that the thought of being in a relationship again makes me feel nervous as well as excited.  Being with someone who was right for me, at a time when I was ready for a relationship and children sounds good, but getting there seems impossible with all my issues and baggage, not to mention the whole process of dating different women, being rejected, having misunderstandings and arguments (actually, I haven’t had arguments, but I’m afraid I would), making myself vulnerable and getting hurt again…  The end is good if you can get there, but the journey seems impossible, at least for someone like me, with issues and a fragile sense of self-esteem (a fragile sense of self in general, really).

I have ended up having close platonic friendships with women over the years, often not frum or not Jewish, which I guess was a kind of substitute for a romantic relationship.  Most of those women I would have been open to dating if the situation had been different or if they had been interested.  Those friendships increasingly ended badly, most recently in E. and I becoming boyfriend/girlfriend and then breaking up, so I’m scared to do that any more.  I do worry about being alone forever, about not being able to talk to anyone.  I crave intimacy (I mean emotional intimacy more than physical, although there is an element of that), but it is elusive.

***

I’m not even sure if anything I’ve written in the last two sections makes sense, or if it all cancels itself out somehow.

***

I feel like I’m stuck in a never ending loop: living in lockdown, applying for jobs I don’t get, writing books no one reads, getting crushes that never go anywhere…  I’m aware that that’s not really accurate.  I’ve only written one book, I’m still working on the second.  I do get crushes that don’t go anywhere, but that’s over a much bigger timescale than just lockdown.  Shielding Mum in lockdown is hard, but hopefully that will get a bit easier in a month or so, after her operation, although I think I’ll be nervous about going into shops for a while longer, let alone going to shul (synagogue).

All that said, I wish there was some clearer sign that things can work out well for me, with career, writing and dating, and over a reasonable timescale too.  I don’t want to suddenly build a career and find love in my eighties (although I suppose it would be better than nothing).  I just worry I’ll never find even the small amount of happiness and fulfilment that most people manage to find.

***

Achievements today: not much.  I finished the job application, did about three quarters of an hour of Torah study and read paprt of a book on writing.  I bought books on writing when I had writers’ block a couple of months ago.  I’m torn between thinking that writing can’t be taught and I’m just going to confuse myself and stifle my creativity by reading about it and thinking that writing is a skill like anything else and saying that one shouldn’t formally learn it is like saying Yehudi Menuhin should have just picked up the violin and been perfect without lessons.

***

I’ve been listening to Sparks lately.  Sparks are a band who formed in the sixties and are still going, formed from brothers Ron and Russell Mael.  They aren’t hugely famous.  They are American, but were more popular in the UK than the US.  Their most famous song is This Town Ain’t Big Enough for the Both of Us.  To be honest, they can be a bit hit and miss and are something of an acquired taste, but their best songs are eccentric and quirky, with clever lyrics.  I find a lot of the songs have resonance for me.  Sherlock Holmes is about wanting to be someone you aren’t.  The Existential Threat is about anxiety.  Amateur Hour and When I’m With You are about insecurity in different ways.  Edith Piaf (Said it Better than Me) is about someone who has no regrets, because he has never done anything exciting.  And, to be honest, I suspect other people have thought I Wish You Were Fun about me behind my back.

Trying to Be Present in the Present

Today my mood has been OK when I’m busy doing things, but it drops pretty quickly when I’m not.  I especially low at the moment (see final section).

I feel sexually frustrated again, not the in obvious way, but just wishing that I was with someone I loved and could give to that way.  Also, to have that type of intimacy.  I think I’m generally a sensible, play it safe, type of person.  I don’t take risks.  I don’t drink or smoke and illegal drugs scare me.  Yet, for most of my adult life, I’ve found myself constantly wishing that I was in a relationship, even though I know that would not have been a sensible thing for me to do most of the time, given how much I’ve been struggling with mental illness since I was sixteen (at least).  I guess it’s loneliness and feeling that I’ve never been completely accepted and understood.  I felt that acceptance with E., until suddenly it wasn’t there, which was frightening.

I’m trying not to think like that (about wanting to be in a relationship), but it’s hard.  I guess it’s better to accept those feelings, and to sort of make space for them in my head, but to acknowledge that I shouldn’t be focusing on them right now.  It’s hard not to focus on them.  Lately my mood has been OK when I’m doing something, but then I stop and suddenly the depression and loneliness rush in.

We’re in the introspective time of year.  The Three Weeks of Mourning are introspective, thinking about what we’ve done wrong to contribute to the exile of the Jewish people and the destruction (or non-rebuilding) of the Temple in Jerusalem, then we go into Elul which is the month of introspection before Rosh Hashanah (Jewish New Year) and then we have the Ten Days of Repentance bookended by Rosh Hashanah and Yom Kippur (The Day of Atonement).  Even though this introspection is only really starting, I already feel that I know what to focus on this year.  I need to learn to be in the present and not worry about the future and to stop trying to predict it, because it’s impossible to predict accurately.

The Medieval Torah commentator Rashi says (on Devarim (Deuteronomy) 18.13): “‘You shall be wholehearted with HaShem Your God’: walk before him whole-heartedly, put your hope in Him and do not attempt to investigate the future, but whatever it may be that comes upon you accept it whole-heartedly, and then you shall be with Him and become His portion.” (translation via Sefaria, slightly modernised)

I think Rashi is quoting or paraphrasing the halakhic Midrash (I haven’t checked which).  It’s talking primarily about not engaging in soothsaying, divination and the like (that’s the context of the verse), but Rashi makes a wider homiletic point about having faith in the future and accepting whatever happens.

I’d like to have the mindful/present-centred mindset of not worrying about the future or feeling excessive guilt and shame about the past, but it’s hard.  I worry a lot, and when I think about my past, it almost always seems to lead to guilt or self-blame.  It would be so nice to think of myself married to someone who I love and who loved me, just as it would be nice to think of myself as making a career writing Jewish novels, but both seem so distant that they seem like I’m taunting myself rather than setting realistic goals.

I guess I feel scared because it seems like I’ve passed the point in my life where I could have the things I want in life.  I could still get married any time until I’m ancient, but if I want children (and I do) I have to either find a wife in the next few years or marry someone significantly younger than me.  I know people who have happy marriages who do have a big age gap, but I feel it’s not so likely for me.  Likewise with careers, it’s really hard to be building a career from nothing in my late thirties, especially as I am struggling with librarianship, but not confident enough in my writing ability and struggling to get started with that too.  If I built some kind of career and if I got married, then I think I could have some happiness even if I couldn’t have children, but I struggle to feel positive about being unemployed, single and living with my parents in the long-term.  And of course in the frum community almost everyone my age is married, just as most of my Oxford peers (that I still know of) have important jobs in law, politics, academia, the rabbinate or the like.  This is why I left Facebook, to try to stop myself from comparing myself to others.  I have to accept that my life is going to be very different to other people’s (including my sister’s), but it’s hard to do that when I don’t have a clear idea of what type of life I could realistically build.

***

I woke up early, about 7.15am.  Despite only having had four or five hours sleep (I went to bed late and then struggled to sleep, probably from sleeping too much in the day), I didn’t feel too tired, but I didn’t feel inclined to get up and just stayed wrapped up in my duvet.  It wasn’t a particularly sensible thing to do, as I eventually fell asleep again, for several hours and ended up getting up no earlier than usual.

Achievements: an hour and twenty minutes spent on the novel (admittedly with some procrastination).  I finished another chapter.  I’m up to 66,000 words, with two chapters left to go, so hopefully the word count will be OK.  There’s a lot to do in redrafting, though.  I see this taking at least four drafts, maybe more.

I also did forty-five minutes of Torah study, reading this coming Shabbat’Torah portion (Va’etchanan, my bar mitzvah portion).

I got changed to have a run, put insoles in my trainers to see if that makes them more cushioned and stops hurting my feet, and warmed up, but once I started running, I could feel my ankle hurting again.  Not badly, but I didn’t want to risk making it worse, so I decided not to run for a few days.  I went for a walk instead, which isn’t as good at sublimating negative feelings, but is better than nothing.

***

Sometimes it’s hard to know what to do or think.  Lately I’ve been thinking a lot about China persecuting the Uighurs, and also the Tibetans, Chinese Christians and adherents of Falun Gong, who are also being persecuted, but aren’t in the news.  I want to do something, but I don’t know what.  I feel very small and insignificant.  It’s hard even to talk about it without sounding like I’m making a point about some other issue.  The Jewish newspapers have been drawing parallels between the treatment of the Uighurs and the Holocaust, but it is hard to know what can be done.  There aren’t large numbers of refugees here that I could help in some practical way (I used to volunteer at a refugee drop-in centre, although it’s been shut from COVID), nor is escalated confrontation with China a promising option, when it could easily become a nuclear standoff that would destroy the planet.

***

The Doctor Who bit; also the antisemitism bit (skip if not interested):

Asking for the Doctor Who Series Twelve box set for my birthday looks more and more like it was a mistake.  I watched episode three, Orphan 55, which I hated first time around, in the hope that I would find something to like now I know what the bad bits are.  I didn’t.  In a word, awful.  In two words, really awful.

Unlike first viewing, I’m not completely sure that there’s an antisemitic bit.  There’s a montage of images of natural disasters and riots that includes a shot of fighter planes flying over Jerusalem, the only identifiable place in the sequence.  I feel it shows that BBC-types see “Israel” as a shorthand for “evil” in a way they wouldn’t with other countries.  At least, I hope it’s “Israel”; it’s possibly “Jews,” a thought not dispelled by the BBC’s low-key coverage of the weekend’s Twitter antisemitism storm compared  with the coverage of other forms of prejudice.

I told myself I wouldn’t write negative reviews any more, for various reasons, so I’m going to let it go rather than reviewing it on my Doctor Who blog, but I hope I get more out of the rest of the series or this will be a waste of time and money.  I think the series did get somewhat better as it went on.

The sad truth is that I’m enough of a completist that I still want to have every TV episode and that I will watch episodes at least twice because I know a first viewing sometimes obscures good points.  Experimental episodes in particular can improve on second viewing once you can see what they are trying to do, although very little of this series was experimental.  You can call that autistic obsession on my part if you want, and certainly the BBC makes a lot of money out of people like me.  Still, there are more expensive hobbies out there.  I’m just glad I don’t have the need to own every Doctor Who novel, audio drama, comic strip, computer game, etc. which would be an enormous drain of time as well as money.

Telephone Anxiety

I had to make a couple of phone calls, both medical-related.  One to my psychiatrist try to resolve the question of where I can have my blood test at the moment because most hospitals are either not doing blood tests at all or are only doing urgent ones; the alternative is to travel to a hospital quite some way away.  The other call to the GP because I have a suspicious mole on my back that I’ve just noticed – itchy and I think new, although it’s hard to tell, as I have a lot of skin blemishes.  I’ve had two moles removed in the past and they were fine, but it’s more anxiety-provoking now with Mum being treated for cancer and with COVID disrupting everything, leading to autistic “new thing” anxiety.

I was experiencing very strong social anxiety before phoning.  I generally would experience that before phoning anyway, but it seemed worse than usual.  I really think lockdown has set me back regarding social anxiety.

I spoke to the psychiatrist’s secretary.  She went to speak to the psychiatrist and phoned me back to say I could have the blood test done in September, which was what the GP originally wanted.  Hopefully things will have changed a bit by then.

As for the GP, I was on hold for a long time and then was told that non-emergency appointments are only dealt with at 8.30am.  I suppose I could have known that, as that was sort-of the pre-COVID system (new appointments were only released at 8.30am and 6.30pm, which is a really awful system on so many levels, particularly when dealing with people who may not be keeping straightforward hours), but it wasn’t clear from the surgery website.

It feels like almost every interaction I have with GP reception staff ends with me feeling stupid.  That’s an exaggeration, but does it happen a lot.  I think a lot of the receptionists at the practice are just bad-tempered and I internalise their mood and turn it against myself.  I do dread contacting the surgery now, which is not good.  It took a huge effort to phone today; I can’t imagine how it will feel tomorrow.  The doctors are really nice there, so I don’t want to change practice, but getting past the “gatekeepers” can be a challenge.  They mess up prescriptions and the like a lot too.  Coincidentally, a friend posted on his blog to say that even pre-COVID, a lot of doctors’ receptionists seemed to be trying to stop anyone from seeing a doctor, which is sadly my experience too.

***

Aside from the hour or more that I spent doing that, it was a good day.  (It didn’t take me an hour to phone, but it took a long time to psyche myself up to doing it and to calm myself down afterwards.)

I worked on my novel for about an hour and three quarters.  The writing flowed easily for the first hour, but the second part was harder, and I ended up procrastinating online.  I think I should try to split my writing time into two chunks with a break in-between in the future.  I did write well over 1,000 words, which was good.  I did another fifteen minutes or so after dinner too, to get up to two full hours, which was also good.

I went for a walk after that.  I found I was ruminating on being single and the fact that my therapist said that I should widen my dating pool to include less religious women as otherwise I was likely to struggle to find someone kind and understanding enough to cope with all my issues.  This may be true, but I have noticed that, since breaking up with E., who was a lot less religious than me, some (not all) of my religious anxieties have reduced.  I feel a lot less of a sense of inner conflict about how religious I am/should be.  So I’m a bit wary of dating someone else less religious.   That said, frum (religious Orthodox Jewish) women seem not to like me at all, so maybe I’ll have to date non-frum women.

I found I was sinking into despair about this and quite consciously tried to change my thoughts to think about my devar Torah (Torah thought) for the week.  I wrote that when I got home, or at least I wrote a draft.  As is usually the case, I’m not brilliantly happy with it.  In particular, there was one Midrash (rabbinic expansion of the biblical text) that I think I interpreted correctly, but superficially; I felt there were depths to it that I could not reach.  Then I quoted the Medieval commentator Rashi, but couldn’t find his source; the references given didn’t seem to be correct.  It’s frustrating, but at 500 – 1000 words a week, my divrei Torah are never going to be exhaustive, so I shouldn’t feel too bad.

My partial regret for the day is only managing twenty minutes of Torah study, but that is in addition to spending an hour or so researching and writing my devar Torah, so that’s really not bad for one day.

Because God is Infinite His Pain is Infinite

I made a crucial typo in yesterday’s post.  It should have read, “Therefore it’s impossible for something to exist without God knowing and understanding it.  Therefore God can’t find me weird and unlikeable.”  I put “with” instead of “without.”  Whoops.  Brewer’s Dictionary of Phrase and Fable has a whole long list of historical editions of the Bible that, thanks to typos, enjoined readers to “sin on more” instead of “sin no more” or commanded them that “Thou shalt commit adultery” missing the “not” or suggested that “The fool hath said in his heart there is a God” (instead of “no god”).  Ahem.  At least my mistake won’t cost me anything; the missing “no” in the last quote cost the printers £3000 (a huge sum of money in the seventeenth century) and the edition was suppressed, so they couldn’t make anything back from it.

Anyway, Shabbat (the Sabbath) was OK.  I was mostly bouncing back and forth between depression and sort-of OKness.  I worried a bit that I made a mistake in breaking up with E., or that I didn’t make a mistake, but I will still be single forever.  I think I had some other depressive thoughts, but I don’t remember what they were now.  I know I had a few morbid thoughts about my parents dying.  I slept a lot again, hence feeling really awake now (midnight) and not sure what to do.

The one really good thing that happened was something I came across in the holy book Sacred Fire: Torah from the Years of Fury 1939-1942 by the Piaseczno Rebbe, Rabbi Kalonymus Kalmish Shapira, translated by J. Hershy Worch.  It’s from a sermon delivered in the Warsaw Ghetto on Shabbat Shekalim (Mishpatim), 14 February 1942, in the middle of the Holocaust.  I’m going to quote it at length:

For behold!  A Jew, tortured in his suffering, may think he is the only one in pain, as though his individual, personal pain, and the pain of all other Jews, has no affect Above, God forbid.  But, as the verse (Isaiah 63:9) says, “In all their pain is His pain,” and as we learn in the Talmud (Hagigah 15b) in the name of R. Meir, “When a person suffers, to what expression does the Shechinah (Divine) give utterance? ‘O woe!  My head, O woe!  My arms.’”  In sacred literature we learn that God, as it were, suffers the pain of a Jew much more than that person himself feels it.

Possibly because God is infinite – and hence unknowable in the world – His pain at the suffering of Jewish people is also infinite.  Perhaps it is just impossible for any human to feel such immense pain, it is impossible even to apprehend the level of God’s pain, to know that He bears it.

Hagigah is actually one of the few masechtot (volumes) of Talmud I actually own a hard copy of, so I looked up the reference.  In the Steinsaltz (Koren Noé) Edition Talmud, the translation explains that this pain (‘O woe!  My head, O woe!  My arms.’) is referring to someone who is in pain because he has been sentenced to lashes or to death by the court (in ancient times, when Jewish courts permitted corporal and capital punishment).  The Talmud goes on to say, if God feels so much pain when a wicked person is punished, how much more so when a righteous person is in pain.  In fact, the quotation comes in a whole long narrative about Elisha ben Avuyah the Talmudic rabbi who became a heretic, and how some of the rabbis tried to get him into Heaven (so to speak) after his death even though he was very wicked.

So this would indicate that God does feel my pain and care about me on an individual level, not just because I’m human/Jewish (I know it is a very particularist Jewish text, like a lot of Jewish texts, particularly mystical ones).  This is the question that has been bothering me for a couple of years now.  I’m not sure what I feel now I have an answer.  I think I do feel closer to God.  I’m not sure what else I feel.  My mood has been going up and down, as I said.

That’s all I have to say tonight.

Repeat to Fade

It’s been business as usual: depressed, lonely, touch hungry.  Beating myself up about things that probably aren’t in my control, and neglecting things that are.  I’m pessimistic about the future, but trying not to think about it too much.  I feel that autism is at the root of my issues (depression, work issues, relationship issues, friendship issues, community issues, maybe even God issues — see below) and that’s not something I can ever “cure.”  The most I can do is get taught workarounds for it.  While even workarounds would be something, I feel that autism set me up to fail from the moment I was born.  Will I ever get a career (librarianship or writing)?  Will anyone ever really be able to love me romantically?  Will I ever be able to build the type of friendships and community life I want?  It all seems terribly unlikely.

I also worry about not being diagnosed a third time when I feel so sure I’m on the spectrum.  What future would that give me?  Would it mean that I’m not on the spectrum and my issues are just in my head i.e. I’m just useless?  Would it mean no career, no relationship, no life?  It would certainly mean no NHS help, although I’m not quite sure what they can offer anyway.

***

Yesterday was one month since I broke up with E.  It was the right thing to do, but I haven’t got back in touch with her from fear that if I do that, we’ll end up together again.  Sometimes I feel like I shouldn’t have broken up.  There’s a feeling of, “Even if it wasn’t perfect, I’m not likely to get any better offers.”  It is hard to know what to do with lonely feelings when there is no outlet.

***

I tried to work on my novel, but it was hard to get in the right mindset.  I needed to write something related to a big mistake I made at work once, and I procrastinated because I didn’t want to revisit it in my memory.  I made slow progress, but I did get through the difficult bit.  It seemed like it wasn’t such a big mistake in retrospect once I confronted it.  I am still worried about not having quite enough plot to last to the minimum word count.

***

Good things: my parents have bought a chocolate fudge cake as it’s my birthday next week.  There’s a huge chocolate swirl thing on the top.  This has cheered me up a little.  Even then there was a problem, in that Dad ordered a square cake and they gave a round, which is smaller because there are no corners (the price is the same, so the square is better value for money).  I wouldn’t have noticed if Dad hadn’t pointed it out to me.  But I’m trying not to let that bother me.

The post also bought half of an indulgent “birthday present” I bought for myself a few days ago: an animated Doctor Who story from years ago on DVD (The Infinite Quest).  It’s aimed more at children than most Doctor Who (it was an animated segment on the children’s spin off Totally Doctor Who), but I was curious to see it again and found a cheap copy on Music Magpie (one of the “anything other than Amazon” sites I’ve taken to using).  To be honest, it wasn’t not great, much more obviously aimed at children than the average Doctor Who story, but it was diverting.

***

I was not abused as a child, but there were some things that happened to me which therapists have said could be trauma, and which could have stopped me believing that adult authority figures really cared about me and/or would protect me.  I’ve also known that this is the probable cause of my difficulty in trusting God and accepting He loves me, God being another authority figure in essence.

The problem with knowing this is it hasn’t really taken me anywhere.  I guess in a book or TV programme, this would be big revelation to the main character and they would suddenly achieve catharsis and closure and move on with their lives.  In reality, it’s something I’ve known for years, even decades, but I still feel depressed and I still feel, at least some of the time, that God hates me and is out to punish me for real or imagined sins.

What I did find myself wondering today, and don’t really have time to explore further before Shabbat, is where my autism fits in.  I didn’t know about high functioning autism as a child (the diagnosis didn’t even exist back then), but I was conscious of being an outsider both at home and especially at school, that people found me weird and didn’t like me.  Do I assume that God is also going to find me weird and unlikeable?  Maybe.

The mystics (in Judaism and other religions) teach that God is in everyone and everything as well as being beyond everything (panentheism, as distinct from pantheism where God is everything without having a transcendent Being beyond everything).  Therefore it’s impossible for something to exist without God knowing and understanding it.  Therefore God can’t find me weird and unlikeable.  But I resist this, partly because I’ve never felt fully comfortable with mysticism and kabbalah, but partly — I don’t know what, just resistance to the idea that God loves me.  That I can’t be that good.  I don’t know.  (Of course, a rationalist like Rambam would find the idea of God being in everything heretical nonsense.  Maybe that’s why I struggle to accept it.)

***

I’ve noticed I’ve started using Oxford commas in my writing recently, despite being pretty set against them in the past.  I’m not sure why this is.

“Time’s wingèd chariot hurrying near”

I was half-awake when the phone rang this morning.  It was the mental health clinic saying I had an appointment with the psychiatrist today after all, but on the phone.  Phone appointments are my least favourite kind.  Like a lot of people on the autism spectrum, I do not like the phone at all.  I feel very anxious and self-conscious on the phone, even more so than in person, and I find it hard to connect to the person on the other end.  I often struggle to hear and process information on the phone too, particularly if the line is not great.  Then there is the fact that NHS telephone appointments rarely seem to happen as scheduled, but often are very late (leading to anxious waiting) or very early (when I’m not ready and am doing something else).

Fortunately, the psychiatrist phoned when she said she would, at midday.  I know I’ve had bad experiences on the NHS before, and have been critical of that, but this psychiatrist seems really good (I think I saw her twice before lockdown).  I did struggle to hear everything on the phone call though and am worried I may have missed something.  I said that I’ve been feeling worse in the last few weeks and we spoke about increasing or changing medication, but both agreed to wait a few more months to try and get out of lockdown and see if the real-world triggers (Mum, E.) subside a bit.  She did want me to go for my regular lithium blood test now (over three months after the last one) rather than in September (six months) when the GP surgery wants me to go.  She also said she would also try to see where my autism referral has got to.  I assumed it was completely frozen where it was before lockdown, but the psychiatrist said she thinks they are doing some video assessments.  We booked another appointment for October.  Hopefully things will be a bit more normal by then, the Jewish autumn holiday season notwithstanding.  Whatever “normal” is.

I tried to book the blood test, but the online appointments are not working due to COVID (?!) and I will have to phone tomorrow.  Did I mention I hate phoning?

***

I don’t feel quite so depressed today, but I am still feeling some level of depression.  I also feel lethargic and drained, lacking in energy and motivation.  I start something, but then I hit an obstacle, however small, and grind to a halt.  A few minutes later, I start up again, until I hit another obstacle.

In terms of achievements, I advanced quite a bit with the bank accounts.  I think I’ve got it all set up now, I just need to transfer the money to the right account.

I did about an hour of novel writing.  I procrastinated a bit in the middle of it, but I felt better for having done it, although I realised I’m going to have to revisit one of my worst experiences at my further education job for the novel.  Sadly, my narrator’s life has to be as difficult as mine was.  At least I know he gets an ending that, if not exactly happy, is at least on some level redemptive.  I should be so lucky.

I did some Torah study, but I lost track of how much.  I think about fifty minutes, plus some time finishing my devar Torah (Torah thought).  I also did a bit of ironing and quickly wrote a review of a Doctor Who episode which I will post to my other blog once I’ve posted this and can log off my Secret Identity and onto my real name.

***

Today’s anxious/autistic stress moment: I went to pick up my blood test form from the doctor’s surgery (walking to/from there was my exercise for today).  I hadn’t been there since lockdown started and was not sure what to expect.  When I got there the doors were locked and there were signs saying only people with an appointment could come in.  Anxiety set in – social anxiety and autistic “new situation” anxiety.  I thought of ringing the buzzer, but was too scared of being told I was doing the wrong thing and being stupid.  In the end I phoned the surgery (while standing right outside) and asked them what to do.  They said to ring the buzzer and say why I was here and they would bring the form out, which I did, so it was OK in the end, but it made me feel useless again, and anxious.

Ordinarily I would probably have gone to the charity shop around the corner from the surgery afterwards and browsed the books to try to restore myself a bit, but I decided it wasn’t worth the risk with COVID, thus potentially depriving the economy of the pound I might have spent on a second-hand book.

***

Why do I feel the desperate need to love someone?  It seems so pointless, as I struggle to imagine ever being in a relationship again, both from a practical point of view of being ready and in terms of finding someone.  “More than the calf wants to suckle, the cow wants to nurse” says the Talmud.  It does seem hopeless, though.  I don’t know how I would even go about it now.  I guess via a professional shadchan (matchmaker), although I’m sceptical of them, or a dating website, although they seem expensive.

I feel like Orthodox Judaism is supposed to be about trading a degree of independence and freedom for security: security in terms of family, community, meaning and, above all, God.  I never got the security.  Maybe I didn’t make enough sacrifices.  I don’t know.  There is a part of me that says, “I won’t give up my books and Doctor Who and other telefantasy even if God wants it of me.”  That’s part of why I didn’t go to yeshiva (rabbinical seminary) and part of why I’ve never been able to fully embrace Haredi (ultra-Orthodox) Judaism.  There’s a part of me — arguably a neurodivergent, autistic part of me — that won’t give those things up for God, because they’re too important to me.  I can give them up for periods of time, but not permanently.  That’s a blemish in my service of God, from a religious perspective.  But, given who I am and how much a part of myself these things are, from an autistic special interest perspective, I don’t think I could ever have passed that test.  So maybe I do deserve to suffer, on some level, or at least not to be accepted by the community whose values of religious self-sacrifice I do not fully embrace.

***

I think I’m having a lot of vaguely morbid thoughts lately, sometimes going into suicidal ideation, perhaps because it’s my birthday next week.  I had hoped that thirty-six would be a good year, but it largely wasn’t.  I had vague hopes of finding work, finding love, even becoming more involved in my community.  I hoped it would be the year of “twice chai” (in gematria, Hebrew numerology, “chai” (life) is eighteen, so multiples of eighteen e.g. thirty-six are seen as auspicious).  I was also aware that the Ba’al Shem Tov, the founder of Hasidism was thirty-six according to legend when he started publicising his teachings.

The reality was that I was unemployed for all bar one month, Mum got ill, the world imploded with COVID lockdown and exploded with riots.  I had a girlfriend for a few months, but it didn’t work out, leaving me despondent.  My one month of employment didn’t lead on to anything bigger.  I spent three months not moving more than a mile from the house.  I did a few minor things — I led some services in shul (synagogue) and started writing and publicising my divrei Torah as well as self-publishing my Doctor Who book — but it hasn’t been a great year.

I feel that I’ve missed out on so much of life.  I haven’t done a lot of the things people say make life meaningful, whether somewhat self-indulgent (I don’t mean that in a judgemental way) things like travel or going to concerts or using alcohol (etc.) or sex, or more religious/self-denying things like helping others (I have obviously helped others, but not enough), significant Torah study, meaningful prayer and so on (actually, Judaism would say that good sex should be in the religious/helping others category, but that’s not strictly relevant to my point).

What have I done?  Written a book on Doctor Who that couldn’t find a publisher and which one person has read.  Written three-quarters of a first draft of a novel.  Some library work.  A few divrei Torah and shiurim (religious classes).  It’s not nothing, but it’s not very much.  I might be over a third of the way through my life.  (I might fall under a bus tomorrow, of course, which just makes me feel worse.)  I want to help people, I want to connect with other people and with God, I want to feel good about myself.  I want to write, and to be read.  I want to feel that there’s meaning in my being here, which I fear I have not felt since childhood (if I even felt it then).  I did two good things in my life, which I won’t mention here, but I don’t feel I can keep relying on them as sources of merit.

In his biography of Rebbe Nachman of Bratzlav, Tormented Master, Arthur Green quotes Rebbe Nachman, in his depression, as saying that we believe in two worlds, This World and the Next World.  However, while the latter certainly exists, maybe This World does not exist, because a lot of the time it feels like Gehennom (Purgatory).  That’s an image that resonates with me, and turns up a bit in stories that resonate with me (TV and prose).  It feels that way at the moment, the endless loneliness and self-loathing.

Do I really feel so self-loathing right now?  I used the word instinctively, but have I been feeling self-loathing recently so much as frustration with myself and my world?  That’s not the same thing.

Sometimes I feel the reverse, that I’m somehow carrying the world on my shoulders.  That my suffering should be redemptive in some sense.  That’s probably just as dangerous a thing to think.

I just want my life to have meaning.  I don’t know what I’m here for.

Porcupines in Winter

Oh dear, this is going to be one of those posts again, the very despairing and depressed type.  Sorry.  You don’t have to read it.

I thought I’d used the title of this post before, but apparently not.  The philosopher Arthur Schopenhauer wrote about porcupines that want to huddle together for warmth in winter, but if they do, they hurt each other with their spines.  This is how I feel: I want to draw closer to others, yet I find they “hurt” me and I apparently hurt them, not always for obvious reasons.

I woke up feeling very depressed and exhausted today; also rather lonely and “touch hungry.”  I feel a lot that I want to love and be loved.  I also feel a lot that I want to have sex, particularly when depressed.  Neither of these statements are hugely socially acceptable (in Western society, let alone Orthodox Jewish society), but the second is absolutely unacceptable.  I find it hard to live with knowing that I feel like that without being able to express it.  It is hard to know what to do with it for decades on end.

It was hard to get going today.  I just wanted to stay in bed.  Actually, I didn’t really want to be anywhere, but bed was easier than anywhere else.  I’m feeling a lot of self-loathing today and I don’t know why.  I just seem so socially inept.  I also seem pretty useless at living a good or productive life (not the same thing, I know), by either Western or Jewish standards.  It was hard to put on tallit and tefillin and daven (pray).  This is a struggle every morning, yet I do, usually rather late, and in the winter, when the days are short, I often miss Shacharit (Morning Prayers) entirely and have to skip straight to Minchah (Afternoon Prayers), but I do put on tallit and tefillin and daven, after breakfast, but before engaging with the day, yet I never give myself credit for it, I just beat myself up for doing it late.  I wish I could give myself credit for it.

I felt really depressed and exhausted even after lunch, when my mood usually peaks.  I wanted to cry, but didn’t feel able to do so.  I just wanted to curl up and hibernate.  I did very nearly go and do that; at any rate I went and lay on the bed.  I had told myself to do chores today rather than write my novel, but apparently the motivation I had to write the novel, inconsistent as it can be, can’t be transferred to chores.

The main chore opening a new ISA (tax-free savings account).  Dad is always getting me to open new bank accounts and ISAs because I will get more interest in the new one than my old one.  I do it because I am weak and always do what other people tell me to do, especially my parents.  I think the amount of interest I get on the amount of money I have to save is minimal, and probably not worth the hassle.  Also, having so many accounts confuses someone who is increasingly bad with numbers (unbelievably, I got an A* at GCSE maths.  I’ve got no idea how I did that.  I think I’ve become rusty in the intervening twenty years.  Being vague about money is one of the things E. did not like about me).  I can’t work out how to transfer money into this account and I think I may have messed something up.  I think I need to open a savings account with the same building society and then pay money from there into the ISA, but it’s a lot of hassle for what amounts to a relatively small amount interest over two years, which my Dad would probably then advise me to reinvest elsewhere anyway.

And, yes, I know having too many bank accounts is a first world problem, and being able to write off the small amount of interest is a sign of privilege (although the privilege in this case is more that I have practically zero expenditure because I have no life than that I have lots of money).  I’m not even sure what this money is being saved for; notionally to pay a deposit on a house or flat, I suppose, but it seems less and less likely that I’m ever going to be in a fit state to do that.  I can’t drive and am scared of learning, so it’s not going on a car, and I don’t really go on holiday, so it’s not going on that.  I live with my parents, so it’s not going on rent or white goods.  There isn’t much else to spend on it.

So that wasted an hour or two.  Then I wasted more time by going to the post office, which was shut despite saying online that it would be.  I also went to the pharmacist, which didn’t have what I was looking for.  At least I went for a walk.

I tried to do some Torah study, but felt too depressed to concentrate and only managed ten or fifteen minutes.

My main achievement for the day, aside from the walk, was cooking dinner, which I had already decided macaroni cheese, fortunately, as it is very quick and easy to cook.  I also phoned the mental health clinic to check that the appointment I had booked with the psychiatrist for this coming Thursday (from before lockdown) has been cancelled.  I feel I should have had some kind of official cancellation letter, but don’t think I have.  There was no answer when I phoned, so I’m guessing they haven’t reopened for non-emergency mental health yet.

I ended up just watching Doctor Who this evening in lieu of doing anything productive, because I just felt too depressed.  I ended up watching new series episodes for some reason (Asylum of the Daleks and The Name of the Doctor), even though I don’t generally like them as much as the original series.

***

I get a sort of pressure in my skull when I try to force myself to concentrate on things when I’m too exhausted and depressed.  I’ve never seen that listed as a depression symptom, but I get it quite a bit.  Also, when I get agitated, I start thinking as much in images than words, which I think is an autism symptom, but it would usually be constant for someone rather than only during times of agitation.

***

I think, far from being nearly over E., I’m only just beginning to mourn the loss of the relationship.  In Heaven Sent (perhaps the definitive Doctor Who episode), the Doctor reflects that the day someone dies isn’t the hardest day – that day you’re busy.  The difficult days are all the subsequent days when they’re still dead.  I think the fact that the relationship is still dead is hitting me.  I still think I did the right thing to end it, not least because I think E. would have ended it soon if I hadn’t, but still…  I miss her.  Or do I just miss having someone to talk to?  Can you even have “someone to talk to” in the abstract?

***

Sometimes I feel I could die or go mad from how “wrong” my life feels, but I don’t know how to change it, or if the changes I want are even possible (certainly being in a relationship is not possible now, and maybe not ever).  I just want to scream.  And I struggle to let other people understand how wrong my life seems to be, which makes me wonder if it’s just catastrophising, yet their suggestions for change all seem impossible and unworkable.

I just feel sad and lonely right now.  I’m hiding it from my parents again, or trying to (they can usually tell).  I’m not sure why I can’t tell them.  I’m just struggling to cope today.  I don’t feel tired, but I might go to bed because I’m too depressed to read (and reading The Jewish Review of Books today just makes me feel that should have been a journalist, essayist, novelist, academic… something shaping the Jewish experience and the world of ideas).  It’s either that or sit up late watching DVDs.  I feel that I hate myself, my life, my blog… except “hate” is too strong a word for what I feel.  I’m too depressed to feel hate today.

Well, at least today’s post is shorter than yesterday’s.